LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Long COVID coagulation and micro clts

 - UBBFriend: Email this page to someone!    
Author Topic: Long COVID coagulation and micro clts
mlg
LymeNet Contributor
Member # 35383

Icon 1 posted      Profile for mlg     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have long COVID. It seems to be a coagulation issue and micro clots from some pub medical articles I read (coagulation issue). How do you think I can treat? Cryptolepsis? Artemisinin? Nattokinase and Serrapeptase?
Posts: 706 | From CA | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
mlg
LymeNet Contributor
Member # 35383

Icon 1 posted      Profile for mlg     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have an appointment with a doctor that treats long COVID successfully on Friday.
Posts: 706 | From CA | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
map1131
Frequent Contributor (5K+ posts)
Member # 2022

Icon 1 posted      Profile for map1131     Send New Private Message       Edit/Delete Post   Reply With Quote 
mlg, my naturopath in January recommended I do Nattokinase 200mg
Take 1 cap 3x day
20 minutes away from food
Dissolves any micro blood clots in your brain
Stay on for 2 weeks then
Reduce to 1 cap per day

Pam

--------------------
"Never, never, never, never, never give up" Winston Churchill

Posts: 6485 | From Louisville, Ky | Registered: Jan 2002  |  IP: Logged | Report this post to a Moderator
Phoiph
Frequent Contributor (1K+ posts)
Member # 41238

Icon 1 posted      Profile for Phoiph     Send New Private Message       Edit/Delete Post   Reply With Quote 
I-RECOVER Long Covid Protocol from FLCCC (Front Line Covid-19 Critical Care Alliance) physicians:

https://covid19criticalcare.com/protocol/i-recover-long-covid-treatment/

Posts: 1915 | From Earth | Registered: Jul 2013  |  IP: Logged | Report this post to a Moderator
kgg
Frequent Contributor (1K+ posts)
Member # 5867

Icon 1 posted      Profile for kgg   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hopefully, your appointment on Friday was helpful. I second the recommendation that Phoiph made. FLCCC or Covid19criticalcare is where I look for anything Covid.
Posts: 1722 | From Maine | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
mlg
LymeNet Contributor
Member # 35383

Icon 1 posted      Profile for mlg     Send New Private Message       Edit/Delete Post   Reply With Quote 
The doctor rescheduled me for next week. It feels like severe babesia (coagulation, brain fog) and severe bartonella ( blood vessel problems, sudden hypertension, severe anxiety, depression, etc). Yes, I chose and FLCCC doctor. I tried nattokinase, Curcumin, bromelian, etc, but haven’t noticed an improvement. I also juice wheatgrass, kale, greens and take liposomal glutathione. I am frustrated. Thanks for the info and advice above.
Posts: 706 | From CA | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960

Icon 2 posted      Profile for aklnwlf     Send New Private Message       Edit/Delete Post   Reply With Quote 
If you're having vascular headaches I used ice around my head wherever it was hurting. Google breathing techniques to lower blood pressure until you find the right BP med. It'll help with anxiety too.

[group hug]

--------------------
Do not take this as medical advice. This comment is based on opinion and personal experience only.

Alaska Lone Wolf

Posts: 6343 | From Columbus, GA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
kgg
Frequent Contributor (1K+ posts)
Member # 5867

Icon 1 posted      Profile for kgg   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Uggh, just when you think you are going to get some help, they reschedule. Hopefully, the wait is not to difficult. Good to hear you chose a FLCCC doc.

Hang in there and please let us know how you are doing.

Posts: 1722 | From Maine | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177

Icon 1 posted      Profile for Bartenderbonnie     Send New Private Message       Edit/Delete Post   Reply With Quote 
New Treatment - Therapeutic apheresis

https://www.nature.com/articles/s41380-023-02084-1

“ Here, we have analyzed in different cohorts of Long-Covid patients specific biomarkers before and after therapeutic apheresis. In patients that reported a significant improvement following two cycles of therapeutic apheresis, there was a significant reduction in neurotransmitter autoantibodies, lipids, and inflammatory markers.

Furthermore, we observed a 70% reduction in fibrinogen, and following apheresis, erythrocyte rouleaux formation and fibrin fibers largely disappeared as demonstrated by dark field microscopy.”

Posts: 3023 | From Florida | Registered: Nov 2016  |  IP: Logged | Report this post to a Moderator
mlg
LymeNet Contributor
Member # 35383

Icon 1 posted      Profile for mlg     Send New Private Message       Edit/Delete Post   Reply With Quote 
What is apheresis? Do you just inject heparin through intramuscular, etc?
Posts: 706 | From CA | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
kgg
Frequent Contributor (1K+ posts)
Member # 5867

Icon 1 posted      Profile for kgg   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Here is a definition of apheresis:

(a-feh-REE-sis) A procedure in which blood is collected, part of the blood such as platelets or white blood cells is taken out, and the rest of the blood is returned to the donor. Also called pheresis.

Posts: 1722 | From Maine | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
mlg
LymeNet Contributor
Member # 35383

Icon 1 posted      Profile for mlg     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you!
Posts: 706 | From CA | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
Lonestartick
LymeNet Contributor
Member # 2151

Icon 1 posted      Profile for Lonestartick     Send New Private Message       Edit/Delete Post   Reply With Quote 
Janna Moen is a PhD neuroscientist who suffers from Long Covid. She started a blog to synthesize and share information with other patients.

She does a great job of breaking down the pathophysiology and discussing current research.

Anyone can click continue to read without subscribing, but this may be worth subscribing (free) because she keeps up with research and is able to reach out to scientists for clarification.


About: Janna Moen, PhD
https://lcbreakdown.substack.com/about

Long Covid Research Breakdown
https://lcbreakdown.substack.com

Microclots
https://lcbreakdown.substack.com/p/deep-dive-microclots-in-long-covid

Low Dose Naltrexone as glial modulator to treat neuroinflammation for Long Covid & ME
https://lcbreakdown.substack.com/p/lessons-from-low-dose-naltrexone

Archive
https://lcbreakdown.substack.com/archive

edited to add additional link

Posts: 487 | From USA | Registered: Feb 2002  |  IP: Logged | Report this post to a Moderator
mlg
LymeNet Contributor
Member # 35383

Icon 1 posted      Profile for mlg     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you!
Posts: 706 | From CA | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
mlg
LymeNet Contributor
Member # 35383

Icon 1 posted      Profile for mlg     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have been following a doctor that treats long COVID in Texas

Dr Robert Groysman
From his post
There are going to continue to be many discussions about the causes and treatments because this is how medicine and science works. Yes both scientists, researchers, and medical doctors will debate over which of the treatments are best. Because there is so much noise out there, you will have to decide for yourselves who to trust and whose guidance you will follow. I would suggest that you pick and stick to one treatment and not jump around. I have made my opinions known and why I am sticking to these 4 below based on science and my experience. I won't be commenting on the other causes/treatments any more until there is new information available.

The causes and treatments I focus on are:

1. Dysautonomia

2. Mitochondrial dysfunction

3. Gut dysbiosis

4. MCAS

There are other causes and treatments that others focus on. I will point out that each has stated they have great success in treatment results, including myself.

1. Dr. Bruce Patterson focuses on testing interleukines, Maravoroc, statins, etc to treat persistant virus.

2. Dr. Vanhn focuses on testing for microclots and doing triple anticoagulant therapy.

3. Dr. McCollough focuses on spike protein detox and pericarditis treatment.

Still there are others who focus on:

4. HELP apheresis

5. Stem cell therapies

6. HBOT

Posts: 706 | From CA | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.