LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Are you now or were you taking Neurontin??

 - UBBFriend: Email this page to someone!    
Author Topic: Are you now or were you taking Neurontin??
SentByHim
Frequent Contributor (1K+ posts)
Member # 3998

Icon 1 posted      Profile for SentByHim     Send New Private Message       Edit/Delete Post   Reply With Quote 
Meant to edit and replied with a quote...lyme fog....
Sent

[This message has been edited by SentByHim (edited 14 May 2004).]


Posts: 1574 | From Port St Lucie, Florida, USA | Registered: May 2003  |  IP: Logged | Report this post to a Moderator
SentByHim
Frequent Contributor (1K+ posts)
Member # 3998

Icon 1 posted      Profile for SentByHim     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by SentByHim:
Check this out. Phizer got is BIG trouble for telling lies about what it can do and what it can actually treat. So if you had problems with some "Ducks" because this drugs was innefective in treating your pain or mood swings. It was the drug and the Duck.

Here is the link to the news story. The only thing this drug is approved for is seizures.


neurontin story

Sent



Posts: 1574 | From Port St Lucie, Florida, USA | Registered: May 2003  |  IP: Logged | Report this post to a Moderator
treepatrol
Honored Contributor (10K+ posts)
Member # 4117

Icon 1 posted      Profile for treepatrol     Send New Private Message       Edit/Delete Post   Reply With Quote 
http://www.foxnews.com/story/0,2933,119817,00.html

------------------
Do unto others as you would have them do unto you.


Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
SentByHim
Frequent Contributor (1K+ posts)
Member # 3998

Icon 1 posted      Profile for SentByHim     Send New Private Message       Edit/Delete Post   Reply With Quote 
up
here is another link to another story

Posts: 1574 | From Port St Lucie, Florida, USA | Registered: May 2003  |  IP: Logged | Report this post to a Moderator
guiney
LymeNet Contributor
Member # 4550

Icon 1 posted      Profile for guiney     Send New Private Message       Edit/Delete Post   Reply With Quote 
So I ask,what IS Nuerontin takenfor? I'm supposed to taking Nuerontin (2500mgs.a day) for Nuero symptoms!!

Thanx for the article!!!Jamie

------------------


Posts: 504 | From US | Registered: Sep 2003  |  IP: Logged | Report this post to a Moderator
SentByHim
Frequent Contributor (1K+ posts)
Member # 3998

Icon 1 posted      Profile for SentByHim     Send New Private Message       Edit/Delete Post   Reply With Quote 
Its only approved for siezures by the FDA according to what I was able to find.

Sent


Posts: 1574 | From Port St Lucie, Florida, USA | Registered: May 2003  |  IP: Logged | Report this post to a Moderator
tvalentijn
LymeNet Contributor
Member # 5255

Icon 1 posted      Profile for tvalentijn     Send New Private Message       Edit/Delete Post   Reply With Quote 
three years I was diagnosed with testicular cancer. I was lucky, it had not spread, so I only had to do radiation treatment. Some time after the treatment, my legs hurt like hell. The slightest touch to the skin made me jump, I could not even wear pants. The pain was symmetrical (left/right leg) and moved all around the legs.

The MRI of the spine did not show anything, they did not know what caused it. I was on Neurontin for quite a while and it did get rid of the symptoms.

I was diagnosed with Lyme in January, after a long time doing all kind of tests. Now I am thinking whether these neurological effects could have been Lyme related.

Since I have been on abx for the Lyme, the pain comes back once-in-a-while, but never as bad as it used to be. What can I say, my body is all f'ed up...

Tim


Posts: 147 | From Westborough, MA, USA | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
Imabeachbum
Junior Member
Member # 5502

Icon 1 posted      Profile for Imabeachbum     Send New Private Message       Edit/Delete Post   Reply With Quote 
Interesting article....

I take Neurontin for pain and it does help. I can't say that it takes away all pain but it helps. I have an 80 year old aunt that has been suffering for years with back pain and her doctor recently started her on Neurontin and she is like a new woman!

So what if it was not approved for treatment of pain? Yes, they should not have marketed the drug in such a way. But let's face it, the "studies" are not always accurate and complete are they? If so, we would all be cured and wouldn't be sitting here reading these posts, would we? How many of us have tried some kind of treatment that was not "approved" for the treatment of lyme?

Just like one antibiotic may help you and not me............Neurontin may help me with my pain but not you. So if it helps, I say.........take it!



Posts: 4 | From South Jersey, USA | Registered: Apr 2004  |  IP: Logged | Report this post to a Moderator
livinlyme
Frequent Contributor (1K+ posts)
Member # 3773

Icon 1 posted      Profile for livinlyme   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
i know this is an old article and post, but i have to add since I was on it and it did help my symptoms.. of course the drug itself has it's own side effects (like which ones do not) but while i needed the drug it was helpful but it turns out the side affects were the reason I needed to stop taking the drugs brain fog was too much but then again even the Lyme causes that.. so either way.. but the neurontin helped for a time but I found that Lyrica helped more

--------------------
"Hatred paralyzes life; love releases it. Hatred confuses life; love harmonizes it. Hatred darkens life; love illuminates it."

Posts: 1389 | From who knows, who cares, but somewhere over the rainbow | Registered: Mar 2003  |  IP: Logged | Report this post to a Moderator
lpkayak
Honored Contributor (10K+ posts)
Member # 5230

Icon 1 posted      Profile for lpkayak     Send New Private Message       Edit/Delete Post   Reply With Quote 
it helps my nerve pain and helps me sleep also helps restless legs i think but i never take more than 900mg a day never more than 300 if im going to drive . 600 basically puts me to sleep

my neuro said at this level i could not get dependent...that is a concern of mine

i dont like the neuro tho

in hospital i was told you are not allowed to take it as needed . it will hurt you if you dont take it the same amount everyday mine is prescribed as needed and i rarely take it...so i guess i may be in some kind of danger...but i dont know what right now

--------------------
Lyme? Its complicated. Educate yourself.

Posts: 13712 | From new england | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
dbpei
Frequent Contributor (1K+ posts)
Member # 33574

Icon 1 posted      Profile for dbpei     Send New Private Message       Edit/Delete Post   Reply With Quote 
A dentist and oral surgeon have wanted me to take this (or tegratol) for the 'parasthesias' that I have in my face and skull. It is not really pain, but odd bug crawling, squeezing, sizzling sensations with lots of buzzing and tinnitus.

Since I have already gone deaf in one ear and have extensive vestibular damage from this disease, I am afraid of taking these meds. From what I have read, they are very ototoxic (damaging to the ears and vestibular system).

But I would like to follow this thread because I am curious to see what others' experiences have been with them.

Posts: 2358 | From New England | Registered: Aug 2011  |  IP: Logged | Report this post to a Moderator
Ellen101
Frequent Contributor (1K+ posts)
Member # 35432

Icon 1 posted      Profile for Ellen101     Send New Private Message       Edit/Delete Post   Reply With Quote 
I was prescribed neurontin by my LLNP for nerve pain. I did not take as much as was recommended as there is no way I would be able to function if I had.

A small dose did seem to help. I was also prescribed it many years a go for a possible issue with trigeminal neuralgia. It helped with the nerve pain then as well.

Posts: 1747 | From United States | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
SouthPaw
Member
Member # 35229

Icon 1 posted      Profile for SouthPaw     Send New Private Message       Edit/Delete Post   Reply With Quote 
I take Neurontin for REM sleep.

Years before I was diagnosed with Lyme doctors were tackling all my symptoms individually. One of the things they found was I lost the ability to get natural REM sleep.

They put me on Neurontin and the first night alone was incredible, I hadn't slept that well in over a year.

Posts: 99 | From Cali | Registered: Dec 2011  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Don't hate me:

http://www.wellnessresources.com/freedom/articles/neurontin_and_lyrica_are_a_death_sentence_for_new_brain_synapses/

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95252 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.