I just started reading/posting to this site a few days ago. And though I've found what I've read very helpful, I find that I still have a lot of unanswered questions.
I am only 25 years old and newly married, but have been fighting Lyme since 1997. In the past, I went temporarily blind from it. More recently, the pain in my right hip and knee is to the point where I'm considering a cane, but I don't even know if that will help. I'm also losing my hearing on that side. I'm so very frustrated with the fact that I was able to get a 4.0, and consider myself intelligent, but I will have blanks where I think of a simple word. Like, "bed"...I'll know that it starts with a B and that it's the thing I sleep on at night (the definition), but someone else will have to provide the word for me.
The other day I left a light on in the house and remember going back inside to turn it off, but the next thing I know, I'm standing with my hand on the door ready to go back out and cannot remember if I went upstairs and shut off the light.
I'm having trouble with finding a good doctor/getting support about the one I went to...please help someone! I really feel lost, isolated, and helpless to control this deterioration.
I hear you and I'm sorry you are suffering with this. Sounds like you need a good LLMD as soon as possible. Look in support groups on this site. Write to the ones in your area and ask for help! I had to wait sis weeks to see mine but it was well worth it.
I would think getting yourself tested through IgeneX lab would be the next step. My guess is you need to be checked for co-infections as well.
Don't be too hard on yourself about the symptoms you're having. I can't tell you how many times a day I start in a direction only to find I have no idea what I had in mind to do. All this goes with the territory.
I have lyme as well as Babeosis and erlichia. It just exacerbates the lyme symptoms. It's going to take time, but once you find a Lyme literate doctor you feel comfortable with you'll be on your way.
Let us know how you are doing and best to you on this journey!
So so sorry to know you are suffering so much right now. What you'd described about your condition I had experienced the very same problems before my current treatments. You gave me a flashback and my heart goes out to you.
LymeNet is a great place to get your info and receiving the understanding about your conditions.
Why don't you contact www.akgnaturals.com for recommendation. This is the company where I've being purchasing a lot of my programs and they are having many referrals from LLMDs, MDs and herbalists. Maybe they can help you.
dear abit concerned, i can completely identify with what you are saying. you are in the rightplace. you just need the right llmd for you.
i just had one of the happiest days of my life . aftr 18 years of being undiagnosed and near death's door, i was referred to a doctor who i saw on thursday. he knew every symptom i had and related them to what the diseases are actuaaly doing to my body. he was so compassionate! he absolutely kn0ws what he is doing. he told me to get ready for battle. i would be going to war.
i bought a cane and a scooter - whatever aid you need to conserve your energy for the fight.
let me know if you want more info. warm regards paisley
Frequent Contributor (1K+ posts)
Member # 4622
Oh my goodness, you're in a bad place...mentally. Lucky for you, you stumbled here!! Welcome to Lymenet.
Yes, many of us have been where you are. And many of us, myself included, have had Lyme 10 years or longer.
Since you're willing to travel, I emailed you the info on my LLMD here in NJ - which I think is closer than Philly. She saved me - I was a mess. And now I have my life back and am off antibiotics after 8 months. Not too bad, considering I went untreated for 10 years.
Keep reading, and follow those links that riversinger sent you.
You're not alone in this.
------------------ Julie G. ___________ lymeinhell
Posts: 2257 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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Frequent Contributor (1K+ posts)
Member # 4715
I'm a lot concerned about your situation. Please e-mail me at [email protected] and I'll give you my Lyme Doc's name in CT.
My whole family has been treated by him and I think he's intelligent, kind and relentless.