lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
G., I am so sorry for you..This is really rough and a horrible waste of time.. My llmd always calls me if there is a problem..They have my cell phone number and have even called if they are running late..
Can you see someone local to hold you over until you must go again?
Also there are some Drs closer that might see you if you are interested in not driving as far. lymemomtooo
posted
Sorry about your tremendous commute- and disappointment. Don't lose hope, maybe it was a sign that you shouldn't be on that road that particular day! I drive an hour and a half away and always call ahead of time- one time I got there and the nurse told me that I didn't have an appointment that day!! Thank God, the Dr. was there anyway and could see me. Hang in there!
Posts: 247 | From san antonio,tx | Registered: Oct 2004
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I have used Aveeno Baths several times for severe itching. They sell it at most larger stores. Its worth a try. I wish there was more I could suggest-HUGS.
Darlene in Ohio
Posts: 39 | From seneca lake oh | Registered: Sep 2003
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posted
My biggest itching problem came as a side effect of a med (mepron). Are you on any meds that might be doing this and could be stopped temporarily?
Posts: 8430 | From Not available | Registered: Oct 2000
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Starphoenix
Frequent Contributor (1K+ posts)
Member # 2402
posted
Hi, Guiney.
I wish I could help you. I can say that I think we have the same doctor (if her last name, and first, actually, begin with a "D.")
I "only" have a two-hour trip (compared to you, that's a hop, skip, and jump away!). I'm supposed to see her next week, but I'm under the impression she may be out longer.
Steph
Posts: 1318 | From Shohola, PA | Registered: Apr 2002
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You may need to rule out allergic reaction, this can happen even if you have been on something a while.
Also..be very careful about using the steroid..I would wait to get a hold of LLMD or find out from the staff first if you can!
Mo
Posts: 8337 | From the other shore | Registered: Jul 2002
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Kathy Boss
Frequent Contributor (1K+ posts)
Member # 3062
posted
Dear G, When I was at my worst with my rash Benadryl made mine worse too. My llmd said for me to try it.
What has worked the best was the high enzyme protocol I was on for 9 months.
I itched for an entire year before the rash appeared and was give all kind of things. The itching would wake me up everynight and at times thought I was going nuts.
Once I broke out into a full flair it did not itch as bad and at times not at all. Untill I took Benadryl.
Oh, and a steriod shot made it worse. It then entered my eyes. ABX would also make it worse.
Red meat also seems to make it worse. Don't know why.
Baths with lavender oil helped daily. Epsom salt did nothing.
I took 90,000 mils a day of enzymes made by American Biologics. Enzymes thins the blood so I was also able to get off the shot of Fragmin I took daily and oral Plavix.
Hello there. I have the itching problem too. I am pretty sure mine is from my pain medicine.
I take a supplement that I got from the health food store. As soon as I itch, I take one of them. They are called Quercetin. I take one in the morning and one in the evening. They are 500 mg. It takes the itch away for me.
Before you take and supplement, you should check with your doctor to make sure there is no interaction.
Good luck and take care.
Maria
Posts: 164 | From Rising Sun, MD, USA | Registered: Apr 2004
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posted
I had horrendous itching from bartonella with a rash. DONT take steroids!!! I was given them 3 times and altho they helped temporarily it came back with a vengence. Going on Zythromax and Doxy is what has taken it away. Do you have any rash or bite like lesions or pin prick looking things? and one more question please e-mail me and tell me who your doctor is. (if you dont mind) Pattiecake
Posts: 687 | From PA | Registered: Oct 2004
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I took benadryl when black fly bites were itching and swelling. I had been using benadryl cream for a week. My Dr. insisted I take Benadryl. The next morning I felt like total crap.
I took it again a few days later and my whole body got covered with a rash. Numerous other problems followed. This was in the months before my tick bite. I already a mess by the time Lyme started.
I heard from several Dr. friends that Benadryl cream is a sensitizer and taking Benadryl after using the cream can cause a reaction. I'll never touch benadryl again. be careful.
I took prednisone for one week for Bell's Palsy. I've read so many postings here cautioning against using steroids with Lyme. If I had it to do over again I might not take prednisone.
I don't know if it made me worse or not. It did seem to take away all my aches and pains in my hands knees etc. Problem is that after 4 days or so I felt like I had no joints at all. Now after 5 months I am starting to have normal feeling in my feet again.
I'm starting to get itching at night lately. Don't knoe what is triggering it. Fortunately I sleep through much of it.
posted
When my son broke out in a severe allergic reaction to ceclor they gave him a prescription for something called atarax. It is stronger than benaryl.
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