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Author Topic: poll - low body temp
zipzip
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do you have consistently low body temperature (95-97 degrees mean average)?
Posts: 795 | From nyc | Registered: Sep 2004  |  IP: Logged | Report this post to a Moderator
LymeLaura
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Yes, I do. The doctor I see about hypthroidism (underactive) said the next time I see him he will treat for Wilson's syndrome with T3 supplement in addition to my Synthroid. Google on Wilson's disease; a major symptom is low body temperature.
By the way, thyroid problems also seem to be associated with Lyme.

[This message has been edited by LymeLaura (edited 25 January 2005).]

[This message has been edited by LymeLaura (edited 25 January 2005).]


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Laczitag
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Yes!!!! Ever since I had Lyme , 1999, I have had consistently low body temps as normal... 96.8 to 97.4
Puzzles me ??? Laczi

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griswoldgirl
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yup! me too! my morning temp before getting out of bed is around 96. I run between there and 97. something. Oddly though when I was on abx, it went up to normal or higher.

I have had strep throat with "normal" temps, white count of 27,000 with a pelvic infection in hosp with temp of 95.6--the nurses would come in at night and wake me up and take my damn temp 4 times, use different thermometers and I would finally have to tell them that is normal for me--please let me sleep!!

I have had a battery of test on my thyroid and have showed liturature to my rheumatologist when the dx was fibro and cfs on how a low basil temp can indicate low thyroid function or uptake and that a low dose of synthroid would help---at least 10 have said no--tests are normal.

Frustrating--now I have been off iv abx since 12/21/04 and have a host of other problems and temp has dropped also back to 96----------things that make you go Hmmmmmmmmm!!


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Bill ATL
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All...

I am new to this, and finally have made an appointment with a LLMD. I was positive on the Lyme Screen (Elisa), but neg on the Wb. I have had over 30 of Burrescano's symptoms since October. I have been checking my temp on a regular basis and it never has gone above 98. The overall feeling that I've had is one that would be indicative of infection...with the headaches and muscle aches all seeming to move around...including one instance of an encephalitis-like episode that drove me to the ER.

The "lack of a high temp" has made me second-guess whether I have an issue (Lyme) or not. It certainly causes the "other" types of doctors to dismiss one's suspicions of any kind of infection very quickly.

I think this is a very serious consequence/symptom that causes people to postpone getting help, thus leading to chronic Lyme.

Great Topic/question


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ShelleyA
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I also took my temp frequently to find my average temp...........it's 97.4.
I kindly remind any and every doctor of this.....when my temp is a "normal" 98.6 I HAVE A FEVER. Just push the temp issue......you are the only one who knows how you feel when your temp is a "normal 98.6"! or higher...........

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Foggy
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Yes, and cold hands and feet, but it has improved since I started Levoxyl. Hence the Thyroid connection.

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Lyddie
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What is Levoxyl?

My 14 year-old has low body temperature, cold hands and feet, sometimes an range hue to her skin, puffiness in face and arms, fatigue, and most improtantly, gains weight if she eats more than 1,000 calories a day.

Her endocrinoloigst (she has type 1 diabetes in addition to Lyme) said her thyroid tests were low two years in a row, in the springtime. He called it "sick euthyroid syndrome." He said this menas it is caused by the Lyme, not by thyroid dysfunction, and that Synthroid or whatever wouldn't help her.

Recently, her thyroid tests were in the low range of normal, but her symptoms are even worse. She doesn't eat much, but gains weight and is paincky about it. MD's don't udnerstand and think it's an eating disorder. To pacify them, I took her to an eating disorder clinic AND a psychologist, and neither one says she has an eating disorder.

Also fatigue and bouts of depression.

I am thinking about aggressively finding an MD who will consider trying supplements for her thyroid.

Can anyone tell me if, once you take Synthroid or Armour thyroid or any other thyroid supplement, if you then have to take it forever? Any stories about side effects.

Most doctors we deal with just don't believe us. My daughter has also had the problme of having a "normal temp." with an infection and meeting skepticism when she says that for her, it's a fever.


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Foggy
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Levox is a Thyroid med. I had normal T#s but an elevated Thyroid autoimmune antibody. Consequently, my LLMD thought it might be worth a trial dose to see how I feel.
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cigi
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I know of my temp being 96.-97. for the last two years. I was hypothyroid since my son was born (9 years ago) but my lyme saga started almost 2 years ago. I know there's a connection, but I'm not sure what it is. I'm on levoxyl (synthroid.75)and my thyroid numbers are where they're supposed to be, but I can't even explain, not only depression, but depersonalization that if one has never had it, sounds like insanity, but if you do, you'll understand. There is a connection somehow though.

Take care,

Cigi


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mountainmoma
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Low body temp and feeling cold has been a hall mark of my illness also. Since Im on treatment and getting better, it is generally in the mid 97s, I havent seen it fall into 96s for a while, but that is how it started out
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jmardis
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Yes, I have a low body temperature too! It started in October with all my other symptoms. I was just diagnosed with Lyme Disease on Friday.

Temperature runs between 96.4 and 97.5. Have always had 98.6 temp my whole life. Now if it hits this high I break out in sweat and feel like I am burning up.

Hypothyroidism doesn't make since for me because I can eat anything I want and am still under ideal body wait. I tried to starve out yeast and lost 6 lbs in 4 days. Had to stop.

Any ideas anyone.

[This message has been edited by jmardis (edited 03 February 2005).]


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Beverly
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Yes, I have also had low thyroid probelms since I was a teenager.
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tabbytamer
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Yes, low body temp. Averages around 97*

Also have hypothyroidism/Hashimotos.


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pattiecake
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yes low temp has been an issue for me as well. FInally got up to 98 since starting ABX. But to throw a monkey wrench in it... when I had lyme the last time (9 years ago that i fully recovered) my temp was CONSISTENTLY 99 until I got better. go figure.
Pattiecake
I added the fully recovered to throw hope out there to everyone.

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Barngirl
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Oh yeah.

95.0 for me on Christmas eve day. I was down and out by 2:00pm.
Lately I have been running right at 96.4.
I was doing pretty well a few months ago and it was up to 97.6 but I crashed.

I was alway 97.6 for as long as I can remember (20+ years) till Sept 2003. I ran a fever of 102.5 with tylenol. It was ehrlichiosis, both types and babesiosis.
I hope it is gone now. Just started Ketek. I was on doxy for 4 months.
Been treated for 1 and 1/2 years now with lots of different stuff.


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TheCrimeOfLyme
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I NEVER had a low body temp until I started abx.

Two months off them, my temperature is finally normal again. Go figure.


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artbyjessie2
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i started off with 104.5 fever in the beginning.

then i started on low grade fevers for a few months.

now it's 96 - 97 for me on a daily basis so when my temp is up to 99, for me that is a fever!

and my hands and feet are very very cold - in fact, i developed Raynauds at the same time the lyme started.

very strange stuff.


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KBear
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Add another one to the yes column.
I run about 97 all the time. When it's 98.6 I've got a fever. Higher than that and I'm REALLY sick!
KB

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giftoflife
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Lyddie,
Please get your daughter to a Thyroid Specialist. I was diagnosed with a hypothyroid(underactive) 5 years ago. PCP couldn't get me on the right dose of med.. After 1 year I went to specialist and after another year my thyroid was regulated. Takes alot of bloodwork every 3 months. This is how long the medication takes to work. I have been on different doses of Synthroid and Levoxyl. The latter working best. I will take this med for the rest of my life, and get boodwork done every 6 months to check thyroid. Both are necessary. It is very easy to gain weight with an underactive thyroid, even when it is regulated. The medication has to change with any weight gain or loss or it is ineffective. I still get tired but not as bad, and I do get depressed even being on an anti-depressant. Most thyroid patients take this. As far as side effects..I don't have any.
Take care

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Walnut
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I have had low body temperature, 95-97 degrees, since 1993. And probably had lyme even longer.

The most fustrating thing with low temperature is coming down with a flu or other illness causing a fever, and trying to explain to a MD that a temperature of 98 degree is a fever, and 99 degree is high fever for me.


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andie-ws
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Dear Zip,

Yes.

Prior to Lyme, JC's temp was always a steady 98.6.

Now, it ranges between 95 and 97. Anything higher and he's feverish and herxing.

When he first started abx, his temp rose and stayed at a miserable 100+ for 2 months.

It was only after we started IV that it dropped.

He was off abx for 2 days around Christmas and had an instant and quite scary neuro and physical relapse.

His temp flew to 103 and he began shaking so hard we thought he might start convulsing. We avoided the ER but just barely.

Back on the abx he eventually returned to his 95-97 range.


peace,
andie, JC & Julie


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cootiegirl
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My body temp is low as well. It has dipped as low as 94....

Before being dxed with lyme, I was treated for what the doc thought was Wilson's thyroid.....didn't work.

I agree that our thyroids can get all screwed up with this illness so it's really important keep tabs on them and treat accordingly....
cootiegirl


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cmichaelo
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My body temp ranges between 93 and 97.

Typically in the 93-95 range in the morning.

Typically in the 95-97 range remainer of day and while sleeping.

It is well known that Bb doesn't like heat.

Steve Harris, MD, reported that in vivo experiments showed that Bb will die in a matter of 3 hours if kept at 103 deg.

Except in the cyst form...strike out again for us.

Michael


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fish
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Yes, shortly after getting ill with lyme, many years ago. I can make the connection now, but I didn't know it then.

With treatment, my average temperature is consistantly at 98.0 to 98.6 again. I feel warmer! It was a VERY noticable change that happened somewhere toward the end of my first year of abx.

A recent thyroid test shows my TSH is back into normal range again, after being borderline high (hypothyroid) over 5 years of testing.

I never used thyroid meds since no doctor believed there really was a problem with my thyroid since it was "only" borderline high. UGGGH. Turns out I didn't need it in the end, but I think I just got lucky reversing the problem.


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Coyotecrazy
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Another "Yes"

My body temp was very consistently 98.6 until I got Lyme.

My "normal" body temp now runs 96.3. If I do get to 98.6 now, I am flushed and feel "feverish".


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DR. Wiseass
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My temp, too, is generally below 98.6 -- don't ask me what it usually is - can't remember such details - too lazy to use paper & pen.

I also know that when I'm in a flare of some kind - used to be my interstitial cystitis flares - that I would get daily low grade fevers that come & go at will.

Otherwise, I'm below normal...also hypothyroid.

I'm interested in what someone said in an earlier post that Bb doesn't like heat & that it will die at 103?

OK - now I'm not suggesting anyone try this - and I'm not saying I'm going to do it...but what if I were to shoot my hot tub temperature up to above 103 (to the max I can "handle") and try a little hot water therapy? Does anyone think that would do any good....provided I have a strong, competent adult that can pull my limp, heat exhausted body OUT of the hot tub (and call 911 if necessary)??

Back when I was in massage therapy school, I could swear I remember reading that is some kind of "valid" therapy - to give yourself a fever in an effort to kill a virus or bacteria. Any comments?

AND PLEASE don't try this if you don't know what you're doing...and NEVER alone....I'm not a doctor...just a fellow lymie... and a real big a$$!

------------------
DR. Wiseass - not a real doc - just a real wise ass.
www.twistoflyme.blogspot.com


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cmichaelo
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quote:
Originally posted by DR. Wiseass:
I'm interested in what someone said in an earlier post that Bb doesn't like heat & that it will die at 103?

OK - now I'm not suggesting anyone try this - and I'm not saying I'm going to do it...but what if I were to shoot my hot tub temperature up to above 103 (to the max I can "handle") and try a little hot water therapy? Does anyone think that would do any good....provided I have a strong, competent adult that can pull my limp, heat exhausted body OUT of the hot tub (and call 911 if necessary)??

Back when I was in massage therapy school, I could swear I remember reading that is some kind of "valid" therapy - to give yourself a fever in an effort to kill a virus or bacteria. Any comments?

AND PLEASE don't try this if you don't know what you're doing...and NEVER alone....I'm not a doctor...just a fellow lymie... and a real big a$$!


This has been discussed extensively. Just do a search.

Generally, many list members do sauna and herx afterwards.

I do too. Don't know if it helps though. But I do feel bad afterwards, presumable due to killing a few Bb's. But I'm not really sure what's going on.

I know this. I can only stay in sauna for mas 20min. My pulse rockets up to 130. I get dizzy after 20min, and suddenly need to get out.

Hottub at 103 for 3 hours? Good luck if you can do that. I can imagine it will help, but you're also likely to hurt yourself.

I would be very careful with any sort of heat treatment.

Do some and get out as soon as you start feeling "dizzy" or what ever.

Michael


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DR. Wiseass
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Thanks Michael.

I will do some more research, AND I will most definitely wait until I get my cardiac clearance.

------------------
DR. Wiseass - not a real doc - just a real wise ass.
www.twistoflyme.blogspot.com


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artbyjessie2
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I get in the hot tub regularly but after about 10 mins start to feel really dizzy and overheated.

When i get out i always feel queasy and dizzy.

not sure if that's a herx or just a normal response to 105 degrees. But my husband seeems fine afterwards (he doesn't have lyme).


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islandgirl
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Add me to the list. I'm below normal (temperture wise as well...LOL) Also hypothyroid.

Since lyme (both before diagnosis and now, with 7 months antibiotics) I find myself very dizzy even taking a hot soak in my tub at night, and which I have done since I was a kid. Have to get out,drink tons of water, and lie down or I think I will faint.


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SuZ-Q
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Well, someone has to be the odd one here, so I guess it will be me, or to be more precise, my 13 year old daughter. She has kept a fever for at least 2 years now. It has been as high as 104.4, but usually stays between 100 and 102. We have several mercury and gallistan glass thermometers that all back each other up. She runs a degree or 2 lower on digitals.

She has recently been tested for viral infections and mycoplasma and had chest and adominal CT scans run, but all is normal. Positive WB for Lyme and positive Bartonella last January. She's been on orals since. If anyone has any ideas as to possible causes or suggestions for additional tests, I'd love to hear them and would be most appreciative. We are starting to feel deperate to get to the bottom of these fevers!


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believe3
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Yup, me too. It always in the 97 range.

------------------


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believe3
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Yup, me too. It always in the 97 range.

------------------


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Foggy
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Here's food for thought:

To my surprise, I've had 98.7 temps for the last week. No keg party here, but I still feel like I attended one.

When a 96.8 Lymie has a normal temp, could that indicate that they have a fever, even though they still read normal?

Do we redefine the parameters for Lymies?

I should also mention that my new Thyroid meds have been introduced simultaneously with the increase in temp.


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Biting Back
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Yes, 96.4 is approximate average for me.


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ArtnSoul
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Yes,

Both of my children and my self. A temp of the normal 98.6 - 99 , and we feel like we have a major fever.


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