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» LymeNet Flash » Questions and Discussion » Medical Questions » Always worse on meds -is this herxing?

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Author Topic: Always worse on meds -is this herxing?
SuZ-Q
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My daughter has been on oral abx since Jan. of '04(except for about a 6 weeks when she was pretending to take her meds). We've been doing some pulsing with the abx. A week off, three on, etc.

She always gets noticably worse a couple of days into a new cycle and stays that way for most of the time she is on the meds. How do we know whether this is herxing or just side effects from being on several antibiotics and plaquenil? When she was pretending to take meds, she stayed better until about the third or fourth week then she took a nose dive. At the time, she was just supposed to be taking an anti-viral anyway, so we assumed that the bacteria were multiplying unchecked and starting to make her feel worse again. Does that seem likely?

Anyway, a lot of friends & family say things like, "If she feels so much worse on the meds, maybe she should stay off of them." Sometimes when I am seeing her suffer, I start to feel the same way. How can we tell if she is herxing vs. having drug side effects?

Thanks in advance to all for your input!

Suzy


Posts: 260 | From Virginia | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
duramater
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Well, I for one (and a few other folks here) do get worse the entire time we are on antibiotics. There was a thread to this effect a few months ago (try continuous herx in the search - the title was something like that).

For myself, I suspect (but can't state definitively) that it is due to the treatment rather than side effects because it happens regardless of the antibiotic I am on (also, I can only do 1 med at a time since I have very bad drug allergies).

So, personally, I would suspect worsening of symptoms rather than side effect if this occurs for multiple classes of antibotics (e.g., tetracyclines, macrolides, cephalosporins). If it occurs for a single drug or class of drugs, but not other antibiotics, then I would suspect side effects.


Posts: 689 | From western MA (we say buttER and pizzA) | Registered: Nov 2004  |  IP: Logged | Report this post to a Moderator
Lymetoo
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I was in a continuous herx for more than a year when I first started on meds. When her bacterial load begins to go down, she should begin to have a few good days here and there. Later, those days will become weeks. Good luck!

------------------
oops!
Lymetutu


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kam
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I have not read the other posts and am interested in reading what is said. I am just able to put things out instead of take things in right now.

I wondered about this too because I too felt I was actually less functioning in some ways on the abx than I was when I first came down with this and didn't have a dx or treatment.

So, I got off all abx all together. I have tried this twice.

Both times I went back on.

At first I felt better the second time but then things were worse than before. Symptoms I had forgotten about returned.

I also think making sure I am detoxing is important.

I wonder if things are rough because of the toxins too when the abx are working.

Still trying to figure out a balance with this and get it right.

I use epsom salt baths and clay detox. I also need to drink lots of water.

I have apple cider vinegar and honey but haven't had it lately. I need to get back to that.


Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002  |  IP: Logged | Report this post to a Moderator
SuZ-Q
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Thanks all for your responses!!!
Anyone else want to comment?

Much appreciation,
Suzy


Posts: 260 | From Virginia | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
Beverly
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Hi SuZ-Q,

When I first when on abx for a tick bite in 2001, I herxing constanlty, but didn't know it, cuz I was so sick at the time. I felt bad all the time anyway, so I couldn't really tell any difference.

It took me a while to really start to feel better. I have felt the best after treating for Babesia.
It has been the same for my son, he still herxes, just not as much.

I think as long as I see my son herx after taking abx, I know he still needs them, but Dr. Jones has told me Thomas is doing so well that he will eventually get off all abx. This gives me hope.

Hang in there.


Posts: 6626 | From Michigan | Registered: Jun 2001  |  IP: Logged | Report this post to a Moderator
   

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