quote:

---

Originally posted by meg:

1)49
2)Female
3)Oregon-where I was bit by a tick in my
backyard
4) 3 1/2 yrs.
5) 2 1/2 yrs.
6)no commitments-all tests are negative-
then finally a LLMD (ha) Luat done
incorrectly-
hair loss possibly a hormone problem
(a woman needing more testosterone??
what's up with that??-told him forget
it!)
possible nutcase!! 6 "doctors" seen-
aren't they wonderful???

---

------------------
Sabrina 8 )~

SEX MALE

STATE MISSOURI

I THINK HAVE HAD LYME FOR 2 OR 3 YEARS. NOTICEABLE SYMPTOMS STARTED 18 MONTHS AGO.

TREATMENT STARTED 3 WEEKS AGO.

1) Age 26
2) Sex F
3) What state do you live in? Tennessee, although everybody knows, there is no lyme in Tennessee
4) How long have you had Lyme? 11 yrs
5) How long have been recieving treatment? 6 yrs
6) Where you mis-diag'ed w/ something else before Lyme? What was the diag? CFS

[/B][/QUOTE]

quote:

---

Originally posted by c-rob:
I would like to conduct a quick/informal poll of other Lymies. Here are the questions.

1) Age
2) Sex
3) What state do you live in?
4) How long have you had Lyme?
5) How long have been recieving treatment?
6) Where you mis-diag'ed w/ something else before Lyme? What was the diag?

For me:
1) 35
2) Male
3) New York
4) June 2000
5) October 2000 (Doxy)
6) Yes -- Possible ALS

---

age - 34
sex- female
state- Pennsylvania.( believe affected in Eastern PA and now live in Western PA.)
10 + years
7 months ( finally some answers)
CFS, Depression, Fibromyalgia, MS, it's all in your head.

c-rob, c-rob, where are you????

Nice poll though, isn't it!!?? it's kinda like engraving our names on a tree, ya know!?

EIGHT PAGES!!!!

1) Age
2) Sex
3) What state do you live in?
4) How long have you had Lyme?
5) How long have been recieving treatment?
6) Where you mis-diag'ed w/ something else before Lyme? What was the diag?

For me:
1) 39
2) I'm a *Woman* !!!
3) California (the better half!)
4) "spider bites" in l980-82, bit by tick in 1987. . . so for either 22 yrs, or 15 yrs.
5) Sept. 2000-2001 w/ abx, Sept.01-Mar.02 w/ Mepron/Biaxin for babs. (now back on Lyme abx)
6) Yes -- mitral valve prolapse, benign fasiculations (love those neuro quackers!*whonk whonk*)
"peri-menopausal" (since early 30's, yeah rightee-oo bub) "busy-overscheduled-mom-syndrome" (for those lovely forgotten moments in time)

For oldest son
1) 12 yr old
2) boy
3) CA
4) since birth (1989) or since 2nd grade, um, I guess he would've been about 7 ? when his headaches first started.
5) June 2000 (after first and only known tick bite, for prophylaxis, but Sept. 2000 for Lyme, after pos. WB test and first LLMD visit).
6) For 4 yrs (that's how long he had his headaches before getting in to see LLMD in 2000). Pedi said "oh at least it's not a brain tumor since he doesn't wake up in the morning with a headache!". Pedi also said that her daughter also got frequent headaches, and it was probably "nothing". Yeah, nothing alright.

Youngest son:
1) 9 yrs old
2) boy (sorry if this is redundant, my Lyme brain likes to be perfect and answer all the questions
3)CA
4)since birth-breastfed first 3 yrs of his life, or been bitten anytime from birth to 5 yrs old, when he started w/ his first Lyme symptom, of "leg pain" not being able to walk or bear weight on his right leg due to pain.
5)Sept. 2000 to present.
6)juevenile reactive arthritis. By UCSF rhemie clinic, and orthopod whonker.

Male

Ohio

almost 8 years "Live with Chronic lyme/Chronic Fatigue syndrome"

recieved treatment for about 4 months (this was 7 years ago) no improvement was noticed and I stopped treatment

Depression, anxiety, unknown viral illness

1) Age
2) Sex
3) What state do you live in?
4) How long have you had Lyme?
5) How long have been recieving treatment?
6) Where you mis-diag'ed w/ something else before Lyme? What was the diag?

For me:
1) 35
2) Male
3) New York
4) June 2000
5) October 2000 (Doxy)
6) Yes -- Possible ALS

Oops hit reply to soon

for my daughter:

1.35 months old
2.Texas
3. dx at 21 months old (dr. J thinks it's congenital)
4. still on orals (amoxil & zithro)
5. colic, possible heart defect, eczema, allergies, ear infections, multiple virus'

so- for what it's worth;

1) 42
2) F
3) California (was bitten & became "transiently" acutely ill in both Wyoming and California, 9 and maybe 12 years ago.)
4) ?? very chronically sick for 8 years
5) 9 weeks, oral doxy
6) YES. Flu, bladder infection, Pelvic Inflamitory Disease, Endometreosis, Stress, Psycosomatic, IBS, CFIDs, Fibromyalgia, Early-Onset Osteo-what ever it is; bone loss, fasceitis (feet), unknown transient viral menengitis (nothing to worry about!!). Now that I'm 42 & early menopausal; ageing.

other known secondary infections/conditions- EB virus (mono), h. pylori, yeast, d.fragalis, a narrowing & slipped spinal disk, hair loss, chemical sensitivities, cysts and ulcers.

quote:

---

Originally posted by c-rob:
[B
1)25
]2)female
3)Got it in Michigan or NJ while vacationing, grew up in PA, now live in FL.
4)9 years
5)9 years
6)I figure I must have had Lyme a couple years before being diagnosed. I origionally had neck problems and migraine headaches, didn't seek treatment until joints started flaring.

[/B]

---

*** Any 20 somethings out there that think they got lyme in college too?

female

New York

18 years

contant treatment with IV & orals since l998

female

forgot the rest of the questions-I will do the best that I can....have been diagnosed about 12 or 13 years ago. Was treated on antibiotics off and on for about 6 years or so...

I have been dxed with LD, Graves Disease, myoclonus, heart problems, depression..

have been misdiagnosed with pseudo seizures! GRRRRRRR

2) Male

3) Rhode Island, but was "ticked" in western New York state.

4) 14 years

5) 3 1/2 months

1) Age-------41(feel like 90)

2) Sex---------F

3) What state do you live in?-----MA

4) How long have you had Lyme?------possibly since childhood

5) How long have been recieving treatment?--
---------haven't been treated yet,waiting to see LLMD

6) Where you mis-diag'ed w/ something else before Lyme? What was the diag?---------

stress, severe PMS, stress, stress, stress, depression, osteo arthritis, fibromyalgia,lyme?

1) Age
2) Sex
3) What state do you live in?
4) How long have you had Lyme?
5) How long have been recieving treatment?
6) Where you mis-diag'ed w/ something else before Lyme? What was the diag?

For me:
1) 35
2) Male
3) New York
4) June 2000
5) October 2000 (Doxy)
6) Yes -- Possible ALS

[/B][/QUOTE]
1)44
2) Female
3)Michigan
4) Late June 2002 ?
5) July 4, 2002
6) Not yet! Had 2 "bulls eye" rashes on thigh.

quote:

---

Originally posted by c-rob:
I would like to conduct a quick/informal poll of other Lymies. Here are the questions.

1) Age
2) Sex
3) What state do you live in?
4) How long have you had Lyme?
5) How long have been recieving treatment?
6) Where you mis-diag'ed w/ something else before Lyme? What was the diag?

For me:
1) 35
2) Male
3) New York
4) June 2000
5) October 2000 (Doxy)
6) Yes -- Possible ALS

---

Ages: 48, 47, 21, 19, 14

Sex: M, F, M, F, F

State: Maryland

How Long: Positive tests results -
Past 2 years, Probably had longer.

Tx: Rocephin IV, Zithromax IV, Biaxin XL, Amoxicillan, Plaquinel, Cedax, Doxycycline, Minocycline, Malarone, Mepron, Trazadone, Zoloft, Xanax, Welbutrin

2) F

3) NC

4) April 2002

5) Treatment since July 2002

1) Age- 35

2) Sex- F

3) What state do you live in? New Hampshire

4) How long have you had Lyme? 2 years

5) How long have been receiving treatment? This is my fourth time being treated. I have been treated this last time for the past 8 months, and will be on antibiotics for probably another year - or longer... Until I'm Symptom/Lyme Free.

6) Where you mis-diag'ed w/ something else before Lyme? What was the diag?
I was tested for MS and Lupus!!!! I also was told I might have CFS.

Happy Holidays!!!!!

2) male

3)MA- Cape Cod

4)12 years

5) September 2002- Tetracycline 1500mg-Dr. D