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Author Topic: Lyme Poll
Lishs mom
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quote:
Originally posted by meg:

1)49
2)Female
3)Oregon-where I was bit by a tick in my
backyard
4) 3 1/2 yrs.
5) 2 1/2 yrs.
6)no commitments-all tests are negative-
then finally a LLMD (ha) Luat done
incorrectly-
hair loss possibly a hormone problem
(a woman needing more testosterone??
what's up with that??-told him forget
it!)
possible nutcase!! 6 "doctors" seen-
aren't they wonderful???


Meg-First of all IMPOSSIBLE-Lyme doesnt exist in oregon!....I heard it from over 25 drs! Lishka doesnt have lyme, only CFS, Arthritis...mind you no rheumatoid factor, Cardiac conduction problems creating three near heart attacks and two congestive heart failures, seizures, and put a health active 7 yr old child into a wheelchair within a year.....but, never mind, couldnt be a lyme, babesia or erlichia that they treated her for and she is now walking, going to school, hasnt had a heart "attack" in a year, no more seizures...funny coincidence eh???
We got ours at Cultus Lake or Sisters wilderness, how about you?


Posts: 1918 | From Central, Oregon | Registered: Apr 2002  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Hey, Lish's mom....are you coming back incognito??
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Meg
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Lishs Mom
I would love to compare notes with you on who you're seeing and the bad docs here.....got mine in my backyard. We live in the hay growing desert to the SE of you.
I went to lots of docs myself beginning with the BMClinic who told me "you don't need to worry we don't have lyme here routine"....right, we're 100 miles above the Northern CA. border dingbats!
I'll put my mail up here for a few days in the hopes you will write then erase it later.

[This message has been edited by meg (edited 04 April 2002).]


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SabrinaMSmiley
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1) 25
2) Female
3) Michigan
4) 3 years, 10 years, ???????? No idea
5) 5 years
6) Diagnosed with depression, CFS, anxiety, vassodepressor syncope, hypochondria..... I was making it all up!!!!!!

------------------
Sabrina 8 )~

"If the only tool you have is a hammer, you tend to treat everything as if it were a nail."-Abrahan Maslow


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Lishs mom
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lymentoo!...yes yes yes its me...
(I changed isp providers, and I forgot my old password)
Things have been crazy, I have been working behind the scenes with some lyme stuff.

How have you been?
HUGZZZZZZZZZZ


Posts: 1918 | From Central, Oregon | Registered: Apr 2002  |  IP: Logged | Report this post to a Moderator
erinsmom
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My daughter
1)14
2)Female
3) MD
4)2 1/2 years
5)1 yr
6) bitten by ticks in backyard-pediatrician would not test unless symptoms
vague symptoms for 1 yr.
misdiagnosed for 6 mos after being extremely ill - no doctor would treat even though I was screaming that I felt she had Lyme!
Still not back in school for 2 years.
Fibromyalgia, CFS, Post Viral Syndrome, needs psychiatric help then Lyme Disease

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GP
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AGE 58

SEX MALE

STATE MISSOURI

I THINK HAVE HAD LYME FOR 2 OR 3 YEARS. NOTICEABLE SYMPTOMS STARTED 18 MONTHS AGO.

TREATMENT STARTED 3 WEEKS AGO.

THE ORTHOPEDIC SAID ARTHRITIS 18 MONTHS AGO(PARTLY CORRECT). 2 MONTHS AGO THE INFECTIOUS DISEASE DOCTOR TOLD ME MY SYMPTOMS WERE PSYCHO SOMATIC.


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Garys Girl
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1) 45
2) Female
3) PA
4) 5 years
5) 4 years, all orals. Currently taking flagyl and clindamycin.
6) Misdiagnosed as menopausal, depression, connective tissue illness

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christiana
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1) Age - 31
2) Sex - F
3) What state do you live in? - CA
4) How long have you had Lyme? - 2 years
5) How long have been recieving treatment? - 9 months
6) Where you mis-diag'ed w/ something else before Lyme? What was the diag? - Yes. Fibromyalgia and degenerative TMJ, but really they thought nothing was wrong with me.

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flbpf
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Here is info. on husband

1.41
3.Oklahoma
4.Not sure, for at least 1 1/2 years
5.Started treatment in December 2001
6.ALS


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kacan
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for my daughter

1) Age 26
2) Sex F
3) What state do you live in? Tennessee, although everybody knows, there is no lyme in Tennessee
4) How long have you had Lyme? 11 yrs
5) How long have been recieving treatment? 6 yrs
6) Where you mis-diag'ed w/ something else before Lyme? What was the diag? CFS

[/B][/QUOTE]


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pgm
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1. 48
2. F
3. AR
4. 3 years
5. 2 weeks twice
6. No

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LimeKrazy
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1) 32
2) F
3) PA
4) 2YRS
5) OFF AND ON FOR ABOUT 20 MOS
6) PCP SAID EM RASH WASN'T EM BECAUSE IT ITCHED AND WAS SOLID RED -- WAS TOLD IT WAS JUST ALLERGIC REACTION TO "SOMETHING" THAT BIT ME AND GAVE ME ANTIHISTAMINES --
LATER, WHEN DISSEMINATED, PROPERLY DIAGNOSED BY INFECTIOUS DISEASE DOCTOR BUT
AFTER COURSE OF IV ROCEPHIN "CURED" ME AND W/IN A FEW MONTHS I BECAME ILL AGAIN, WAS TOLD IT COULDN'T BE LYME ANYMORE -- UNTIL RHEUMATOLOGIST CLEARED ME OF SUSPECTED FIBROMYALGIA AND I GOT NEW CDC POSITIVE WESTERN BLOT...AND THE SAGA CONTINUES


quote:
Originally posted by c-rob:
I would like to conduct a quick/informal poll of other Lymies. Here are the questions.

1) Age
2) Sex
3) What state do you live in?
4) How long have you had Lyme?
5) How long have been recieving treatment?
6) Where you mis-diag'ed w/ something else before Lyme? What was the diag?

For me:
1) 35
2) Male
3) New York
4) June 2000
5) October 2000 (Doxy)
6) Yes -- Possible ALS



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kfa
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40 years old
female
currently i live in NY, i was living in PA when i contracted lyme. i think i was bitten while in NJ
i have had lyme for 3 years
i have been recieving treatment for 3 years
i was never misdiagnosed
i was on doxycyclene for 6 months 'till it stopped working, then i was on zithromax for
2.5 years 'till it stopped working
i have just started taking biaxin

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Curley911
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I'm curious C-Rob - you only have five posts on Lymenet, the 5th being a poll request of Lymie history. What's up? What is the purpose of this Poll? I notice your email address says "no longer available" on your profile. I'd like to know what you're doing with this information . . .
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lynnic
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Ok everyone this might be a repeat but I can't remember if I answered this poll before or not?? sound familiar...

age - 34
sex- female
state- Pennsylvania.( believe affected in Eastern PA and now live in Western PA.)
10 + years
7 months ( finally some answers)
CFS, Depression, Fibromyalgia, MS, it's all in your head.

Lynne


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cyboman
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29
Male
California
about 4-5 years
two weeks
Yes, Fibromyalgia/CFS/MCS

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Russo
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1) 43
2) Male
3) Oregon
4) at least one year, maybe much longer
5) 5 months
6) Yes, by myself. I thought I had a spider bite

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Liz Hallinan
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Hey C-Rob. I was born and raised in Huntington, New York! Went to ST. Patricks elementary and Old Fields Jr. high.

1. 32
2.female
3. Illinois
4. had it 9 years
5.diagnosed 16 months ago
6. Been on antibiotics 16 months
7. Misdiagnosed as psoriatic arthritis, fibromyalgia.


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possumsu
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oops! see below.

[This message has been edited by possumsu (edited 01 June 2002).]


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Houston Lyme Pie
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1. 47 years old
2. female
3. live in Houston but bit on visit to Baltimore County MD
4. Bitten during last week of April 2002
5. Began treatment May 3, 2002
6. no

Okay, so you never answered the ?- What are you doing with this info? Just askin'


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possumsu
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1. 51
2. female
3. ?? lived in: CA,AZ,WA,TX,FL,NC,SC (you choose cause Lyme is everywhere )
4. 10+
5. Dx officially 4 days ago!
6. starting IV Rocephin, then PO for total of 2 yrs.
7. over the years: thyroid disease, migraines, CFS, all in the head,sinusitis, bladder spasms from chronic infections, cycts on liver and chronic gall bladder infections, CFS, chronic anxiety, hives from some unknown food allergy (really, that was my dx from my secondary rash! [proven by photos])chronic sinusitis, fibromyalgia, CFS, MS, **LYME!!**
( well you asked! )

------------------
possumsu


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AngelbeGroff
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1) Age 29
2) Sex F
3) What state do you live in? PA
4) How long have you had Lyme? 4 Weeks
5) How long have been recieving treatment? 2 Weeks of Doxy with 2 more to go
6) Where you mis-diag'ed w/ something else before Lyme? No What was the diag?


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RSF718
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1) 22
2) Female
3) CT
4) 4-6 years dormant ... about 13 months treated so far
5) about 13 months
6) Yes ... mono, fibromylasia, chonic fatigue syndrome, MS ... and I can't even remember the rest of the bogus misdiagnosises. Oh, yea ... one doctor told me that all I had to do was eat a more well-balanced diet and I'd be okay and another told me that it was the stresses of college that were doing this to me ... what a bunch of quacks!!

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Lymetoo
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Hmmmm....what's c-rob doing with this information??? He'd probably die of shock if he saw 7 pages of replies. He started this thread in November of 2000. Ain't seen him around for more than a year, at least.

c-rob, c-rob, where are you????

Nice poll though, isn't it!!?? it's kinda like engraving our names on a tree, ya know!?

------------------
oops!
Lymetutu


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Lymetoo
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CORRECTION!!!!

EIGHT PAGES!!!!

------------------
oops!
Lymetutu


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Just Julie
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Here are the questions.

1) Age
2) Sex
3) What state do you live in?
4) How long have you had Lyme?
5) How long have been recieving treatment?
6) Where you mis-diag'ed w/ something else before Lyme? What was the diag?

For me:
1) 39
2) I'm a *Woman* !!!
3) California (the better half!)
4) "spider bites" in l980-82, bit by tick in 1987. . . so for either 22 yrs, or 15 yrs.
5) Sept. 2000-2001 w/ abx, Sept.01-Mar.02 w/ Mepron/Biaxin for babs. (now back on Lyme abx)
6) Yes -- mitral valve prolapse, benign fasiculations (love those neuro quackers!*whonk whonk*)
"peri-menopausal" (since early 30's, yeah rightee-oo bub) "busy-overscheduled-mom-syndrome" (for those lovely forgotten moments in time)

For oldest son
1) 12 yr old
2) boy
3) CA
4) since birth (1989) or since 2nd grade, um, I guess he would've been about 7 ? when his headaches first started.
5) June 2000 (after first and only known tick bite, for prophylaxis, but Sept. 2000 for Lyme, after pos. WB test and first LLMD visit).
6) For 4 yrs (that's how long he had his headaches before getting in to see LLMD in 2000). Pedi said "oh at least it's not a brain tumor since he doesn't wake up in the morning with a headache!". Pedi also said that her daughter also got frequent headaches, and it was probably "nothing". Yeah, nothing alright.

Youngest son:
1) 9 yrs old
2) boy (sorry if this is redundant, my Lyme brain likes to be perfect and answer all the questions
3)CA
4)since birth-breastfed first 3 yrs of his life, or been bitten anytime from birth to 5 yrs old, when he started w/ his first Lyme symptom, of "leg pain" not being able to walk or bear weight on his right leg due to pain.
5)Sept. 2000 to present.
6)juevenile reactive arthritis. By UCSF rhemie clinic, and orthopod whonker.



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dennisdavid27
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27

Male

Ohio

almost 8 years "Live with Chronic lyme/Chronic Fatigue syndrome"

recieved treatment for about 4 months (this was 7 years ago) no improvement was noticed and I stopped treatment

Depression, anxiety, unknown viral illness


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pix20
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1. 25
2. Female
3. California
4. Since 1998
5. In 1999, I got treatment and went into remission for 2 years...been on antibiotics since Feb 2002.
6. Depression, Stress, CFS, MS, and Lupus.

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AnnieY
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[QUOTE]Originally posted by c-rob:
[B]I would like to conduct a quick/informal poll of other Lymies. Here are the questions.

1) Age
2) Sex
3) What state do you live in?
4) How long have you had Lyme?
5) How long have been recieving treatment?
6) Where you mis-diag'ed w/ something else before Lyme? What was the diag?

For me:
1) 35
2) Male
3) New York
4) June 2000
5) October 2000 (Doxy)
6) Yes -- Possible ALS

Oops hit reply to soon

1) 33
2) Female
3) MA
4) May 2001
5) Rec'd treatment for 4 months for Ehrlicia, now have babesiosis, and am being treated
6) depression, chronic fatigue syndrome, tested for Lupus, Lukemia,


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Obi Wan Knobi
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AGE, 35
Sex, Yes whenever I can. Male, Jedi Master
State. P.A.
How Long, 11 months
How Long Treated, P.C.P. 2 weeks of Doxy 100 mg 1 X daily to cover his butt.
misdiagnosed: Of Course, Subacute Thyroiditis, Depression, Anxiety, Stress, Partial Bells Palsey, etc.
P.C.P did a Lyme Tyter that came back negative, so he is convinced that it is not Lyme, however, he has no other idea what it could be. Asked me this question, what are the odds of you being bitten by a tick with Lyme???? Needless to say I have a appointment with a LLMD on July 3. I still spend the majority of my free time in the woods MTN biking, and rock climbing, that is when I feel up to it.

May The Force Be With You.
Obi Wan


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slynn422
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1)20
2)female
3)North Carolina-just moved here from New York
4)Uncertain-since I was 14 or 15 possibly
5)Just starting Rocephin this week
6)Depression,Lupus

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Oski
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Age:39
Sex:F
State:CA
How long infected: Since last week May 2000
How long tx: Just finished 6 months Mepron/Zith for babs. Start Biaxin/suprax today (yay!)
Misdx: May 2000-misdx with spider bite/cellulitis and symptoms secondary to stress
Later on: no dx, but they tossed around atypical MS, Lupus and my personal favorite.."A possible unidentified connective tissue disorder"..loved that one.

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KJ
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27
1.female
2.Texas
3.diagnosed in June,2001-doc thinks I've had it at least since childhood, if not birth
4.still on abx (6 months oral, now 6 months IV)
5.dx with Irritable Bowel Syndrome, possible Lupus,panic attacks, "hyperventilation syndrome (what the crap is that??!!,) migrains, PMS,
stress, etc., etc...

for my daughter:

1.35 months old
2.Texas
3. dx at 21 months old (dr. J thinks it's congenital)
4. still on orals (amoxil & zithro)
5. colic, possible heart defect, eczema, allergies, ear infections, multiple virus'

[This message has been edited by KJ (edited 04 June 2002).]


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Bridetobe**
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1. 34
2. Female
3. New York
4. Lyme for 4 + yrs
5. Meds for about 2 years
6. Couldn't find out what was wrong for the
first couple of months, after I became so sick that I couldn't walk.

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Shoregirl
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Hi
42
F
Maryland
2-3yrs tested pos. 1yr. ago for lyme,babesiosis
4wks doxy Dr thinks I`am cured and now have false pos test results because of doxy.thinks now my pain is from anxiety and athritis and I`am lyme nut

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nan
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Age: 65
Sex: F
Where: Cape Cod MA
How Long:5+ years
Dx: March 2000
Biaxin, Plaquenil,tetracycline
for two years +
No diagnosis til 2000 (No cause for your symptoms!

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caat
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I have a "maybe" dx of Lyme and/or erlichosis- no pos tests out of elisas & a unilab (CDC guidelines) WB.

so- for what it's worth;

1) 42
2) F
3) California (was bitten & became "transiently" acutely ill in both Wyoming and California, 9 and maybe 12 years ago.)
4) ?? very chronically sick for 8 years
5) 9 weeks, oral doxy
6) YES. Flu, bladder infection, Pelvic Inflamitory Disease, Endometreosis, Stress, Psycosomatic, IBS, CFIDs, Fibromyalgia, Early-Onset Osteo-what ever it is; bone loss, fasceitis (feet), unknown transient viral menengitis (nothing to worry about!!). Now that I'm 42 & early menopausal; ageing.

other known secondary infections/conditions- EB virus (mono), h. pylori, yeast, d.fragalis, a narrowing & slipped spinal disk, hair loss, chemical sensitivities, cysts and ulcers.

[This message has been edited by caat (edited 05 June 2002).]


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rosesisland2000
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to the top

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boola
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1) 49
2) F
3) WI (CT when I contracted Lyme)
4) 10 yrs
5) Sporadically, since 1994
6) Yes. "Menopause" (I was 39), Psychiatric problems, CFS, Arthritis, Migraine, "Lyme Hysteria"

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Elizabeth
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quote:
Originally posted by c-rob:
[B
1)25
]2)female
3)Got it in Michigan or NJ while vacationing, grew up in PA, now live in FL.
4)9 years
5)9 years
6)I figure I must have had Lyme a couple years before being diagnosed. I origionally had neck problems and migraine headaches, didn't seek treatment until joints started flaring.

[/B]



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zf
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1)39
2)F
3)TN (Go Vols)
4)Not sure
5)10/01
6)Originally CFS in late 2000. Dr. still insists I have CFS along with lymes.

Thanks
Zina


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wendy
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1) 24 years old - 25 late this month.
2) Grew up in northern Ca, got really sick in Austin Tx after "bizarre symptoms" while still living in Ca.
3) Think I have had it four to five years, bitten in Ca (Sonoma County) without memory of tick or rash.
4) Currently being treated for three days so far but will be treated for 6 - 12+ months. Have had rochephin IM on monday, and biax/doxy combo plus supplements now. Going to get IV later in treatment after my body has "gotten ready."
5) Misdiagnosed: Vulvodynia, CFIDS, Systemic Fungal Infection.... BUT IT WAS LYME THROUGH AND THROUGH!!!

*** Any 20 somethings out there that think they got lyme in college too?

Take care guys.
Wendy


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nhmom
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1) Age - 41
2) Sex - F
3) What state do you live in? NH
4) How long have you had Lyme? Since 1983
5) How long have been recieving treatment? 1 Day
6) Where you mis-diag'ed w/ something else before Lyme? What was the diag? Yes, Fibromyalgia with possibility of Lupus

------------------
NH Mom


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bik77
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1.) 37
2.) M
3.) NJ
4.) First noticed bulls-eye rash 6/01/02 (headache started 6/06/02)
5.) Began 500mg/day Doxy 6/07/02
6.) 6/07/02 went to a general practitioner who said it was Lyme because of the bulls-eye. He didn't mention co-infections and prescribed 200mg/day Doxy for three weeks but since I had visited Lyme Net the day before my visit, I knew better and took 500mg/day since then while scheduling an appointment with a LLMD. Lyme Net is the best!

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rushkiller/rose
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46

female

New York

18 years

contant treatment with IV & orals since l998

Originally told I had allergies and was treated for allergies for 14 years, instead of lyme. In l998 I was told I needed knee surgery(I refused). Mid l998 a lyme diagnosis. Still very sick after IV and oral treatment of 12 weeks. Neurologist said I couldn't still have lyme. Thomas Rush, Infectious Diease doctor told me I never had lyme and shoud see a shrink. Many doctors later I now had fibromyalgia and then finally back to a lyme diagnosis. I saw 46 doctors in total to arrive at my final diagnosis.


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Mark LaFevers
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1)47
2)Male
3)CA
4)Possibly more than ten years, started seeking medical help for symptoms mid 1996
5)Started tentative treatment June 2001
6)Atypical fibromyalgia

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terter
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44

female

forgot the rest of the questions-I will do the best that I can....have been diagnosed about 12 or 13 years ago. Was treated on antibiotics off and on for about 6 years or so...

I have been dxed with LD, Graves Disease, myoclonus, heart problems, depression..

have been misdiagnosed with pseudo seizures! GRRRRRRR

Both my girls have been properly diagnosed and treated thanks to my knowledge and persistance!


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gusgus260
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1) 49 yrs old
2) Male
3) Florida
4) 9 1/2 months
5) First round- started 3 months after infection: 9 weeks of oral tetracycline, nearly symptom free at end.
Relapse after 1 month.
Second round- three weeks oral doxycycline, no positive effect. Switched to oral tetracycline again, slight improvements after 2 weeks.
6) Misdiagnoised mainly as depression. Checked for MS, gall bladder, stomach cancer, ulcer.

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pano
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1) 25
2) Male
3) Germany Baden-Wrttenberg
4) August 2001
5) March 2002
6) Nothing Something else Lyme Disease

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PROV2001
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1) 62

2) Male

3) Rhode Island, but was "ticked" in western New York state.

4) 14 years

5) 3 1/2 months

6) Yes. CFS/CFIDS


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Kira
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Hello,
My name is Kira
*Age 36
*Female
*Live in and infected in Illinois
*Ill now for almost 2 years
*Just started treatment 6 weeks ago
*Drs searched and searched for what was wrong, but when they exhausted their minds...I was always given the diagnosis of "somatization disorder" (ie, it's all in my head, seeking attention)...then the closest to a diagnosis I got most recently was that I have recurrent meningitis from unknown source...but thank goodness I found the source now!!

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lepidoptera lapis
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[QUOTE]Originally posted by c-rob:
[B]I would like to conduct a quick/informal poll of other Lymies. Here are the questions.

1) Age-------41(feel like 90)

2) Sex---------F

3) What state do you live in?-----MA

4) How long have you had Lyme?------possibly since childhood

5) How long have been recieving treatment?--
---------haven't been treated yet,waiting to see LLMD

6) Where you mis-diag'ed w/ something else before Lyme? What was the diag?---------

stress, severe PMS, stress, stress, stress, depression, osteo arthritis, fibromyalgia,lyme?

------------------
butterfly wings


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lyme_aide
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42
female
Chillicothe, mo
93
Jan. 98 to present ( take breaks for 2-3 weeks every so often)
no ( alot of testing for 9 months)

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chrisF
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1) Age
2) Sex
3) What state do you live in?
4) How long have you had Lyme?
5) How long have been recieving treatment?
6) Where you mis-diag'ed w/ something else before Lyme? What was the diag?

For me:
1) 35
2) Male
3) New York
4) June 2000
5) October 2000 (Doxy)
6) Yes -- Possible ALS

[/B][/QUOTE]
1)44
2) Female
3)Michigan
4) Late June 2002 ?
5) July 4, 2002
6) Not yet! Had 2 "bulls eye" rashes on thigh.


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Tincup
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up for more members...
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lineride
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1.) 45
2.) F
3.) NY
4.) 7/04/02 first symptoms (fever etc)
5.) 7/6/02
Went to ER EM appeared 7/05/02 Started Doxy 200mg on 7/6 On 9/25 Amox.500mgx6 currently still taking. Diagnosed at ER.

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IDA
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50 yrs old
female
NJ
3 years (since I received Lymerix shots)
2 months tx
1st neurologist: wanted to put me on Alzheimer's med
2nd neruologist: wanted me to take Plavix
No real dxs.
DX'd myself after reading this website. Infectious disease dr agreed with me.

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IDA
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age 50
female
NJ
3 years (ever since I had 3 Lymerix shots)
2 months (2 weeks doxy, 4 weeks IV rocephin, 3 weeks zith/flagyl)
1st neurologist: wanted me to take Alzheimer's med
2nd neurologist: originally dxed me as migraines, then wanted me to take plavix

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Steve Wright UK
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1) 28
2) M
3) Barrow-in-Furness Cumbria UK
4) 3 Months
5) 3 Months
6) I made the diagnosis after talking with a pal in Philly, doc followed with Amox 2 weeks, and I was refered to the hospital who gave me amox for another 4 Weeks. Ive had two negative blood tests, and Im still sick but it feels different.

------------------
Msn id: english_pup, yahoo id: same.


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Bbd033
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39
female
maryland
??? starting to wonder??
have been receiving treatment for 3 weeks
I believe I have had Lyme for at least a year or so but symptoms would come and go.
I just assumed my fatigue, joint pain in knees, floaters(just found out that is associated w/ Lyme) were coming w/ age.


quote:
Originally posted by c-rob:
I would like to conduct a quick/informal poll of other Lymies. Here are the questions.

1) Age
2) Sex
3) What state do you live in?
4) How long have you had Lyme?
5) How long have been recieving treatment?
6) Where you mis-diag'ed w/ something else before Lyme? What was the diag?

For me:
1) 35
2) Male
3) New York
4) June 2000
5) October 2000 (Doxy)
6) Yes -- Possible ALS



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helen65
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me
1. 36 1/2
2. Female
3. Michigan
4. ?? since 1997
5. since 1999
6. yes, all in my head-depression

my husband
1. 38
2. Male
3. Michigan
4. ?? since 1997
5. since 1999
6. no


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ladybug
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Apparently my husband has Lyme Disease
1) 30
2) Male
3) Alberta, Canada
4) Diagnosed in May 2002
5) I do not think treatment of Lyme Disease has begun yet, he is on many, many vitamins and Chlorestrymine.
6) Previous diagnosis ALS

------------------
Ladybug


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Jack Lemonlyme
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31
male
Pennsylvania
about 2 years, maybe longer
2 months iv rocephin, oral zith
no misdiagnoses, just we don't knows

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erinsmom
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Whole Family

Ages: 48, 47, 21, 19, 14

Sex: M, F, M, F, F

State: Maryland

How Long: Positive tests results -
Past 2 years, Probably had longer.

Tx: Rocephin IV, Zithromax IV, Biaxin XL, Amoxicillan, Plaquinel, Cedax, Doxycycline, Minocycline, Malarone, Mepron, Trazadone, Zoloft, Xanax, Welbutrin

Misdiagnoised: Panic Disorder, CFS, Fibromyalgia, School Phobia, Maybe she's preganant????


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SKINNYNOW32
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1)32
2)f
3)NH
4)have no clue as to when I got lyme
5)I was put on doxy as a precaution when my wb showed 1 band positive,had severe reaction nurse practitioner decided was allergic reaction (sounds like herx to me)switched to iv rocephin 14days- felt better dr sd i should be cured on that. 1 week later was real sick again do br put me back on doxy 100 2x per day- I have convinced her to increase dose to 400 daily and she agreed =now day 15 on oral doxy but day 4 on 400 mg- no allergic reaction by the way- just herxing - i will do this until i see my new llmd on 10-25 (DR R in greenwich CT)yeah i cant wait.
6)first thought to be vitamin deficiency,periphial neuropathy unknown cause,dr brought up possible lupus, hiv,ms etc even after my getting better on the rocephin - but once my symptoms came back and kicked my but again within 2 weeks of discontinuing the Iv and after i came back to her with printed out info from the internet she agrees its lyme and is in my corner to fight with my ins and to work with dr r to personally see to me getting better -HERES A DR WILLING TO LEARN,AND HELP PATIENTS WITHOUT QUACKING TOO MUCH .neurologist who dx my nerve damage told me my other symptoms were probably related to stress -DUMMY!

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CouchPotato
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1) 51
2) Male
3) New Jersey
4) August 1997 (possibly Sept.) Bulls eye in September.
5) On and off since 1997. Worse this year, may have had babesia infection since March/April. Was working a lot and thought I was just tired. Full blown in August. Taking Doxy, Zithromax, Omnicef, Mepron since then.
6)Had bulls eye and doctor started treatment right away. Only surfaced once or twice a year since '97.

This was such a great idea. I like the listing 1,2,3,etc. Makes it easier for me to understand and not read so much. Really having trouble with the eyes and brain fog.
Would like to see a list of tests done and what drugs are used? How many have co-infections? Very interesting.


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Rita
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54
f
CT
54 years. Dr B says I was born with it
since 87
Fibromyalgia, hypochondria, depression

------------------
www.lyme.org www.lymenet.org www.lymealliance.org www.lymeinfo.net/lyme www.geocities.com/ldbullseye


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1rosco02
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age:34
sex:female
state:connecticut
how long had lyme:14 years
receiving treatment:10 months on oral ,i am better then I have been in years
misdiagnosed:with secondary progressive multiple sclerosis since 1992found out was lyme this year

------------------


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TaylorFamily
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At our house, it's my 15 yr. old son who has active Lyme disease.
We live in Middle Tennessee.
He first got it in the Spring of '97. Our Family Physician, seeing 2 bulls-eye rashes and Classic Lyme Symptoms after multiple tick bites, said "I know you think this is Lyme Disease, but the thing is, we don't even HAVE Lyme disease in Tennessee". To appease me, he gave our son 10 days of erythromycin. Strangely enough, the symptoms went away and we naively thought that was the end of it. Four years later, a rather serious accident triggered the disease to become active again. It took us about 6 mos. and thousands of dollars in medical bills tho, before he was finally accurately diagnosed with Lyme. Mostly what we were told was, "We don't see anything" or "Everything looks fine!" The only thing they did find was Acid Reflux and a Hiatal Hernia. Our son has been seeing a LLMD for the past 12 mos. but has made very little, if any, progress. On Jan. 9 we will have our 1st appt. with the much acclaimed Dr. J
a Pediatric Lyme Specialist, and we are Very optomistic.

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Tunes
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1) 43
2) F
3) IL vacation in northern Wisconsin summers
4) July 2001
5) June 2002
6) Irritable Bowel Syndrome / Stress

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fake
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1) 34

2) F

3) NC

4) April 2002

5) Treatment since July 2002

6) no


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lymebrat
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Hi.

1) Age- 35

2) Sex- F

3) What state do you live in? New Hampshire

4) How long have you had Lyme? 2 years

5) How long have been receiving treatment? This is my fourth time being treated. I have been treated this last time for the past 8 months, and will be on antibiotics for probably another year - or longer... Until I'm Symptom/Lyme Free.

6) Where you mis-diag'ed w/ something else before Lyme? What was the diag?
I was tested for MS and Lupus!!!! I also was told I might have CFS.

Happy Holidays!!!!!

~ Missy
LymeBrat


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lymerx
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1) 51
2) Male
3) OR
4) 2 yrs. 6 mos
5) 2 yrs. 5 mos.
6) No.

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Csback
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1) 49

2) male

3)MA- Cape Cod

4)12 years

5) September 2002- Tetracycline 1500mg-Dr. D

6)Yes- EBV- CFIDS-


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