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» LymeNet Flash » Questions and Discussion » Medical Questions » These people hurt - what is being done for them?

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Author Topic: These people hurt - what is being done for them?
Tincup
Honored Contributor (10K+ posts)
Member # 5829

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This stuff turns me inside out. IDIOT doctors!

Another group of people who are diagnosed with something called.. ERYTHROMELALGIA (EM)... basically meaning burning pain in hands and/or feet... mixed with other typical Lyme symptoms.

This is a crime. And to top it off.. look what they state about the prognosis... the last line posted below.

I stumble on this stuff while researching... and don't have the time, energy, or stomach to address each group. What is happening to these people makes me sick.

If anyone could sign up on the site below and drop them a note about Lyme disease.. you will probably help MANY people with one small effort.

Thank you.

```````````````````````````````````````````

"EXPECTED COURSE/PROGNOSIS


* Course - variable; chronic; remitting

* Outlook only satisfactory, may need attempts at several treatment modalities. No one form of therapy is superior to others. Failure to respond to one form does not mitigate against success with another.

* Those patients receiving work compensation for an injury or secondary gain from family or friends are in a separate category and may never get well"


CAN YOU BELIEVE THAT GARBAGE? The poor folks who get stuck in this black widows web are losing BIG TIME!


```````````````````````````````````````````

Here is the site...

http://www.angelfire.com/journal2/sadhelp/emd.htm#Raynaud's%20&%20Scleroderma%20Association


Thank you.

`````````````````````````````````````````

And HERE is the treatment info.. and NON success rates:

"Gabapentin 16 16
Aspirin 14 1
Diltiazem 8 6
Amitriptyline 8 5
Sertraline 6 3
Fluoxetine 5 3
Misoprostol 5 2
Opiates (oral) 5 2
Phenoxybenzamine 5 2
Imipramine 4 3
Pentoxifylline 4 1
Carbamazepine 4 1
Antihistamines 3 2
Clonazepam 3 2
Cyproheptacline 3 0
Venlafaxine 2 1
Tramadol 2 2
Paroxetine 1 1
Fluvoxamine 1 1

Topicals:

OTC capsaicin
cream 4 0
EMLA cream 3 0
Doxepin cream 1 1

Invasive therapies:

Morphine pump 2 1
Spinal cord
stimulator 2 2

Nonmedicinal therapies:

Acupuncture 4 1
Biofeedback 4 2
Hypnosis 3 0
Magnets 2 0"


Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Beverly
Frequent Contributor (5K+ posts)
Member # 1271

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Yeah..I agree with you Tin, it's a crime.
Posts: 6641 | From Michigan | Registered: Jun 2001  |  IP: Logged | Report this post to a Moderator
hopeful123
Frequent Contributor (1K+ posts)
Member # 3244

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Tincup,
Yep, that sucks...

Makes me grateful for what I've got


hopeful123


Posts: 1160 | From NY | Registered: Oct 2002  |  IP: Logged | Report this post to a Moderator
lymiecanuck
Unregistered


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The EM or whatever that was called describes exactly what was goin on with me when I went down with lyme's avalance of symptoms along with a whole whack of other stuff.

Lymiecanuck


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