LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Has any one seen a LLMD at Stony Brook in NY

 - UBBFriend: Email this page to someone!    
Author Topic: Has any one seen a LLMD at Stony Brook in NY
hiker53
Frequent Contributor (5K+ posts)
Member # 6046

Icon 5 posted      Profile for hiker53     Send New Private Message       Edit/Delete Post   Reply With Quote 
My neurologist read an article and attended a conference about Lyme. One of the presenters was from Stony Brook Medical Center. Now my neurologist want me to see someone there.

Has anyone seen a LLMD there? Good or bad?

E-mail me privately if you wish as I know we are not to use MD names on this site.


Posts: 6389 | From Illinois | Registered: Aug 2004  |  IP: Logged | Report this post to a Moderator
lou
Frequent Contributor (5K+ posts)
Member # 81

Icon 1 posted      Profile for lou     Send New Private Message       Edit/Delete Post   Reply With Quote 
Bad place to go for lyme. Duck Hotel.
Posts: 8430 | From Not available | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
Aligondo Bruce
LymeNet Contributor
Member # 6219

Icon 1 posted      Profile for Aligondo Bruce     Send New Private Message       Edit/Delete Post   Reply With Quote 
go to stony brook, and you risk getting the good ole 2 weeks of doxycycline routine even though 4 weeks doesn't work on dogs so basically what is going to happen is you are going to be treated with less respect than a dog.
Patricia Coyle is a hag.

Posts: 523 | From Stillwater,OK,USA | Registered: Sep 2004  |  IP: Logged | Report this post to a Moderator
duramater
LymeNet Contributor
Member # 6480

Icon 1 posted      Profile for duramater     Send New Private Message       Edit/Delete Post   Reply With Quote 
I saw Patricia Coyle at SUNY-SB, and while her social skills aren't stunning, she's a cracker-jack neurologist.

She's not as free & easy with the antibiotics as many LLMDs, nor is she a two-four weeks of low dose doxy person either.

I would say she is great if you need to figure out if you have Lyme and/or some other neurological disorder, but not a prime pick for your primary LLMD.

In the course of my treatment several years ago, I had meningitis and some other neuro problems and my LLMD (Dr L in NY) sent me to her for a consult. She was VERY helpful in that situation, but she runs a few different clinics and does more than just neurolyme stuff, so....not a PRIMARY LLMD candidate. But if you have some major neuro issues, she may be someone quite good with whom to consult.


Posts: 689 | From western MA (we say buttER and pizzA) | Registered: Nov 2004  |  IP: Logged | Report this post to a Moderator
NP40
Frequent Contributor (1K+ posts)
Member # 6711

Icon 1 posted      Profile for NP40     Send New Private Message       Edit/Delete Post   Reply With Quote 
Our LLMD uses Stonybrook for testing because they accept the main insurance providers in our state. He treats clinically for lyme anyhow, so the test doesn't sway him one way or the other.
Posts: 1632 | From Northern Wisconsin | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
tickitout
LymeNet Contributor
Member # 6982

Icon 1 posted      Profile for tickitout     Send New Private Message       Edit/Delete Post   Reply With Quote 
My experience was a total waste of time, money and spinal fluid...


Must admit out of all the horrible things I have been through this is on the top of the list as far as a dr/pt relationship...which was non-existance.


Posts: 139 | From nj | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
Monica
Frequent Contributor (1K+ posts)
Member # 224

Icon 1 posted      Profile for Monica     Send New Private Message       Edit/Delete Post   Reply With Quote 
I personally have not been to Stony Brook, but have never heard anything good about their doctors and/or Lyme treatment.
Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
hiker53
Frequent Contributor (5K+ posts)
Member # 6046

Icon 1 posted      Profile for hiker53     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks for the information. I don't have a lot of confidence in my local neurologist as he (and Mayo) failed to diagnose my lyme. He's good for monitoring my seizure meds, though.

I did get a chuckle when I asked him about rife and he said the electromagnetic waves would kill my body cells. So I asked him if the MRI I had killed my brain cells and if so, wouldn't he then be responsible since he wrote the order for it. He shut up pretty quickly.


Posts: 6389 | From Illinois | Registered: Aug 2004  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by hiker53:

I did get a chuckle when I asked him about rife and he said the electromagnetic waves would kill my body cells. So I asked him if the MRI I had killed my brain cells and if so, wouldn't he then be responsible since he wrote the order for it. He shut up pretty quickly.



ROTFLMAO!!!!


Posts: 94688 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789

Icon 3 posted      Profile for HEATHERKISS     Send New Private Message       Edit/Delete Post   Reply With Quote 
up for wocoli
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
savebabe
Frequent Contributor (1K+ posts)
Member # 9847

Icon 1 posted      Profile for savebabe     Send New Private Message       Edit/Delete Post   Reply With Quote 
I live two minutes down the road from StonyBrook and I would not take my worst enemy there.

I drive 3 hours north to see Dr. H and it is worth every penny.

Posts: 1603 | From ny | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.