Hi all. I've been having a problem with my WBC's dropping the past few months. Now they are so low I have to stop Heparin and antibiotics. I've been on Dr. C's protocol for 8 months. Prior to that I was on ATB's a lot for supposed "sinus infection". Undiagnosed LD for 3 years.
Local Dr. tells me if WBC's go any lower I will need to go into isolation at hosp. (Good place to get sick.) (=
To complicate things, as soon as I stop the ATB's, I start feeling sick in a different way, like I have a bacterial infection...chills without actual fever, sleeping all the time, no energy at all. The best I can describe it is it feels like a sinus infection.
This is scary. If I am unable to take antibiotics and I get acutely ill then what? (This may be a rhetorical question.)
What about meningitis? What are the stats on developing this?
I have 2 months of orals then 2 months of IV's left of the protocal. But most of us know that may not be the end of the critters. I have done doxy, zith, Flagyl, 10 days of Clindamycin/Quinine.
I have seen posts about pulsing antibiotics. I have done this to some degree but maybe this is the only way I will be able to continue?
What about Rife?
I was going to try and go back to work as finances need help. Can't go to work in the medical arena with such a low WBC.
I am taking a good line of supplements for nutrition with increased amounts of Vit. C, lots of pure water, no sugar, sleeping well.
Things to consider...I eat dairy (for heaven's sake I live next to a cheese shop), drink small amounts of caffeine, and take colloidal silver.
Dr. C's office indicated not many patients have this problem with WBC's.
herbal immune support astragalus licorice bee pollen and propolis vitamin C bee sting therapy( this is great if you arent allergic, it also will reduce pain) bee vemon boosts the immune system
alternative lyme treatments teasel root artemesia( babs)( chills is a symptom of babesiosis rife is really intense , the machines are expensive though , herxes tend to be very severe at first
Posts: 154 | From NH | Registered: Sep 2003
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I cannot take Mepron, Malarone plaquenil etc. because of this. Antimalerials can increase cortisol output, which in turn can cause low WBC. I can take artemisinin, but important to spread out artemisinin from antioxidents like coQ etc. What has helped the most: undenatured whey powder. Mix w/handmixer with rice milk (I have to limit soy) and fruit in lieu of Friday cocktails.
CoQ 10 and ACL carnitine help keep NK cells high and functioning, and magnesium also helps.
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Areneli, you said, "I would say it is more likely that heparin did it to you." I have never heard this, do you have information stating this? I was on heparin for 3 years and never experienced low WBC.
I have read that heparin can lower adrenal function and that if you have already low adrenal function, this should be monitored. This is different though. I would like to know what you know.
quote:Originally posted by Jellybelly: Areneli, you said, "I would say it is more likely that heparin did it to you." I have never heard this, do you have information stating this? I was on heparin for 3 years and never experienced low WBC.
Hasn't happened to me either after 3 yrs of heparin.
These "sinus infections" that happen when I'm not on an antibiotic started happening a few months after the tick bite. I was working with my husband tearing down an old building and we thought maybe it could be that.
Since NO Dr. thought it could be Lyme Disease we went the Ear, Nose, Throat way, but no ENT Dr. could find anything that should have been causing these symptoms. The Mayo Doc did prescribe Nasal Washes of amphotericin B (for a year). He was thinking it COULD be a fungal thing since I was exposed to black mold (among other things) while we were tearing the building down. No culture was done, he said there are so many bugs in the nasal cavity it's not definitive.
Well after 2 weeks, my nose and sinuses were on fire and I was so-o-o sick. That's when I had to leave my job and I haven't been back since.
But ALL of this is post tick bite. Prior to that I was so healthy and energetic I ran circles around folks.
I know everyone is so different and that Lyme Disease brings out all kinds of differing problems.
But does what I'm dealing with here sound like a complication of LD or seperate problems?
1) The falling WBC's and 2) the sinus infections when I'm not on an ATB.
I know in many cases you never can explain it all, you just treat and hope and pray you heal.
I so desire any comments or suggestions.
Thank-you so much.
God Bless and God Bless America and those who have given us freedom.