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» LymeNet Flash » Questions and Discussion » Medical Questions » Please tell me if anyone has had these jerks or what they might be called

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Author Topic: Please tell me if anyone has had these jerks or what they might be called
suttles
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Member # 5984

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Last summer I had a pinched nerve in my neck.
It started with the feeling I used to get that was dx as tendonitis.
Instead of the pain staying in neck between shoulder blades it went
down my arm and hurt like a bad cramp. I had to hold my arm over my
head to get a little relief.

I went to a chiropractor that took xrays and said I had degenerative
disk and spurs. He also dx the pinched nerve called it radiopathiy?

My fingers stayed numb and if I use my arm over head it has been weak.
This was things I could live with so I quit going to chiro after the
pain got better.

For the past several months I have had neck pain that is burning and
my arms and neck feel like they are spastic. My MD had a cervical
MRI done and it said
cervical spondylosis with JOINTS OF LUSCHKA hypertrophy at C5-6 and
C6-7. Encroachment on the neural foramina more severe on the right
than left. He said this was narrowing.

The left is where I had the pinched nerve but right is worse.
My MD wants me to see a neuro surgeon for a evaluation.

I am having times that if I hold my arms in certain fixed positions
they make my shoulders start drawing up. The shoulder blades will
stick out and my clavical area draws up. I look like the hunchback
of Notre Dame. This drawing just takes control of these muscles.
I can make it stop if I move my arms but if they stay in that spot
they just keep drawing up.
I have numbness in my left hand more sometimes than others.
The pain is worse at times then ok at other times.

It is the drawing of my shoulders that I don't understand then
sometimes my arms will be in a certain different position and they
will get to trembling and then they will do this big flapping but if
I move them out of the position they will quit.
Since I can make both things stop by moving my arms in a different
spot I don't know if I am making myself do this. That sounds crazy
but I don't think I am because my neck has wanted to feel that
trembling feeling.
I had a couple of episodes with my back muscles shaking like they
were cold only they were not but shivered all up and down.

If someone could just help me to understand what this could be called
I would appreciate it so much.
I see words like fasculations, mytonia, contractions, and myopathy.

I live in a small town and I have been trying to find out more about
the Drs in Nashville or Knoxville,

Just please help me to understand these movements.

Thanks,
suttles


Posts: 67 | From moving soon | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
brainless
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C5 & C6 are major problem areas for Lyme patients.

You need to see a LLMD ASAP, preferably a neuro.

b


Posts: 210 | From lalaland | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
suttles
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Thank you I do know that I have lyme.
I had a positive western blot and I went to see Dr C in Mo about a month ago .

This has gotten worse since then. Mostly I just want to understand what it is.

Why would my arms jerk when they are in certain positions and then the way that my shoulder blade and I think the clavical area I think will just go into a huge cramp with it sticking out and then it just keeps contraction and I do look like the hunch back but if I move my arms it will quit. I am also afrain it will look like I am doing it on purpose since I can make it stop with placeing my arms in a different spot.
The weakness is something that can be seen because the muscle underneath has turned to flab. My feet and hands are always cold.
Thanks,
Suttles


Posts: 67 | From moving soon | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
trailsgrl
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Suttles, From what I have learned, it's coz the lyme is "squeezing" on those nerves at the nerve root in your C spine. I have almost EXACTLY what you describe. Not to extreme of flapping though.

Some words for you to look into too:

-TOS, Thoracic outlet syndrome (was diagnosed with THAT one for a long time this winter before I realized that the lyme had relapsed)

-Brachialgia

-Brachial plexopathy

-radiopathy

The nerves in the neck and brachial plexus (upper chest area) go thru the thoracic outlet (like the carpel tunnel, but it is in the shoulder, not the wrist) and are distributed throughout that arm. It is a HUGE bundle of nerves, so if you have a problem way up there then you can have major problems throughout the arm AND the scapula.

You may have more than one thing going on, but for me the lyme was the root of it all.

Did you have a cortizone shot by any chance?

Also, did you have an EMG? What were the results? Mine showed nerve root damage on the right side of lower cervical spine. The physiatrist (like a glorified PT) (jerk) refused to believe that Lyme can cause actual nerve root damage. Well, welcome to MY planet, lady!


My LLMD sent her a letter, so hopefully she is fuming up in Albuquerque.

Lets keep in touch about this and learn more about eachother's symptoms and how we fair with treatment, etc.
Trails


Posts: 196 | From Mesilla, NM USA | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
Melanie Reber
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Hi Suttles,

You also might want to research myoclonus.

Just type that in the subject, and ``terter'' in the username, (or whatever it is called) in the search feature...and there is plenty to read.

Good luck,
Melanie

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C O L O R A D O * S U P P O R T * S Y S T E M
[email protected]


Posts: 7052 | From Colorado | Registered: Mar 2003  |  IP: Logged | Report this post to a Moderator
brainless
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Myclonic (sp) jerks is a phrase that comes to mind.

b


Posts: 210 | From lalaland | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
groovy2
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Hi suttles
Neck pain can be caused by many things-
But neck pain is very common symptom
of lyme--
Lyme causes connedtive tissue problems
that can cause stiff neck- also stiff
neck is caused by lyme bactira infecting
brain stem and inflaming it--

Lyme also tends to attack places on
body that have been injured before--
I had stiff neck for 18 years non stop-
I had been in a car wreck 8 months before
I was bitten by tick--
-I thought neck pain was do to
wiplash even tho I was fine for 7 months
after wreck--

Lyme is a crazy disease--
can and will cause all kinds of stuff
to happen-- this is one of the Big
problems getting correct Dx for it.
Docs think your crazy--
No one could
have this many things wrong with them--
If I had not Lived through it-- I would
have found it hard to believe too--

My list of symptoms was a full page--
On the page of symptoms was a complete
clenical Dx for lyme except for the
Lyme bullseye bruse that I had seen
on my leg 2 months before and did
not connect with illness.
I sure wish docs had paid more attention
to my list--

Do more research-- keep notes--
read the newbe pages- print out-
lots of good info--Hopefully you
dont have lyme-- Do a few
hours of reading and see --
--Jay--


Posts: 2999 | From Austin tx USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
   

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