LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » 3 out of 4 - Baby tested positive (Breastmilk?)

 - UBBFriend: Email this page to someone!    
Author Topic: 3 out of 4 - Baby tested positive (Breastmilk?)
DJP
LymeNet Contributor
Member # 5893

Icon 1 posted      Profile for DJP     Send New Private Message       Edit/Delete Post   Reply With Quote 
Just got my 18 mos old results back positive from MDL - Lyme Urine PCR!!!

This makes 3, my 3 year old, me and now her!!

I breastfed her for about a year before I knew I had Lyme. She also had a mosquito bite in July that looked like a bulls-eye.

I know if you are positive on the WB, which tests for antibodies then it means you've been exposed to Lyme and a clinical diagnosis can confirm it.

The PCR looks for Bb DNA (antigen vs antibodies), so if it is positive does it mean you have the disease or just that you've been exposed?


I'm so bummed out!

Already have a call into Dr. J.

[This message has been edited by DJP (edited 15 August 2005).]


Posts: 441 | From USA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
DJP
LymeNet Contributor
Member # 5893

Icon 1 posted      Profile for DJP     Send New Private Message       Edit/Delete Post   Reply With Quote 
Up, didn't ask my question the first time.
Posts: 441 | From USA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
lou
Frequent Contributor (5K+ posts)
Member # 81

Icon 1 posted      Profile for lou     Send New Private Message       Edit/Delete Post   Reply With Quote 
Antibody test like western blot and elisa show that you have been exposed.

PCR means they have found the antigen itself, so you have the disease.

It is like seeing the footprint of the abominable snowman (antibody) vs. seeing the snowman himself (antigen). If you see the footprint only, then it might be old, with the critter long gone. If you see the critter, he is definitely there!


Posts: 8430 | From Not available | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
DJP
LymeNet Contributor
Member # 5893

Icon 1 posted      Profile for DJP     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks lou,

Just talked to Dr. J's office and they said the same thing as you, she has the disease. I guess intellectly I knew that, but emotionally I was hoping it wasn't definitive. aaaggghhhh!

Loved the analogy!


Posts: 441 | From USA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
cbb
Frequent Contributor (1K+ posts)
Member # 788

Icon 1 posted      Profile for cbb     Send New Private Message       Edit/Delete Post   Reply With Quote 
DJP,
So sorry you've got another positive in the family.

I know it's bad news, but look at the positive side -
If she has Lyme, what a blessing that you knew to check it out & who to call.

There's no way to know how many children never get a diagnosis at all. That's the worst part.

Isn't Dr J & his staff wonderful?
They are another blessing in your life.
Did they recommend what her treatment should be?

With your knowledge of Lyme & advice from the very best....
the prognosis should be good.


Posts: 4638 | From South Carolina | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
DJP
LymeNet Contributor
Member # 5893

Icon 1 posted      Profile for DJP     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi cbb,

Thanks for reminding me to see the positive because there are many positives.

Dr. J's office just called with a couple of questions and they will get back to me as far as the next step.

They may want to do a Western Blot because it will tell them more information.

Yes, they are a blessing to us!


Posts: 441 | From USA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
cbb
Frequent Contributor (1K+ posts)
Member # 788

Icon 1 posted      Profile for cbb     Send New Private Message       Edit/Delete Post   Reply With Quote 
Can't even imagine how difficult it has to be on you.
I hope that all 3 of you get along well on your treatment.

Keep in touch & let us know.


Posts: 4638 | From South Carolina | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
DJP
LymeNet Contributor
Member # 5893

Icon 1 posted      Profile for DJP     Send New Private Message       Edit/Delete Post   Reply With Quote 
cbb,

Dr. J's office called back today and my husband talked to them and they recommended 3 mos of antibiotics and said no need to do Western Blot.

We are blessed because it really hasn't been as bad as it could be. We were lucky my daughter had the bulls-eye, that we found this site and were directed to Dr. J and, that we tested positive and we are all getting treatment (espcially considering the area we live in).

I was able to avoid alot of the pitfalls because of the people on this site that had been there.

I know many others on this site are much sicker and are having a harder time getting treatment and dealing with insurance companies.


Posts: 441 | From USA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
skrwolf
LymeNet Contributor
Member # 1575

Icon 1 posted      Profile for skrwolf     Send New Private Message       Edit/Delete Post   Reply With Quote 
DJP,

Do you mind if I ask what abx Dr. J put your 18 month old on? I have a good MD that isn't an LLMD (YET), but he is learning and is willing to do whatever he needs to to get our family better. Thanks!

Shelly :-)


Posts: 292 | From UT | Registered: Aug 2001  |  IP: Logged | Report this post to a Moderator
DJP
LymeNet Contributor
Member # 5893

Icon 1 posted      Profile for DJP     Send New Private Message       Edit/Delete Post   Reply With Quote 
Shelly,

I just picked up the prescription from the pharmacy and this is what I got:

Amoxicillin 200/5ml
1/2 teaspoon twice a day

However, my husband got the call from Dr. J's office and he didn't know exactly what they were calling in.

I've learned in the past (because my 3 year old is being treated for Lyme and the pharmacy has made mistakes) to double check the prescription with what the Dr. said they called in.

So, I still need to call Dr. J's office and confirm that what I got is what they called in.

I'll try to call in the next day or two and I'll let you know if it is different. Email me if you don't hear from me in a couple of days.

Is your LLMD working with Dr. J? I know he consults with other doctors.


Posts: 441 | From USA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
DJP
LymeNet Contributor
Member # 5893

Icon 1 posted      Profile for DJP     Send New Private Message       Edit/Delete Post   Reply With Quote 
srkwolf,

I talked to Dr. J's office and that is what they called in.

It seems like a really small dose so I'm going to call back tomorrow and find out why.

My other daughter was at a much higher dose when she was on amoxy.

Will let you know what I find out.


Posts: 441 | From USA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.