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» LymeNet Flash » Questions and Discussion » Medical Questions » Where are the letters we wrote to the legislators?

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Author Topic: Where are the letters we wrote to the legislators?
HEATHERKISS
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Everyone posted their letters a couple months back. It would be helpful if someone knows how to find them.

What were the bill names?

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HEATHER

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Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
HEATHERKISS
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We could reuse them for our MASSACHUSETES letter campaign. Same with the letters for NY Times. All those letters will give a good idea of what to write.

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HEATHER

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Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
HEATHERKISS
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http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=034449

Here are some ideas to get started.

Write Now, Right Now

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HEATHER

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Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
HEATHERKISS
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9/21/05

To whom it may concern:


I'm writing to have my story submitted for review at the public Lyme Disease hearing on October 12th in Hearing Room A-1 at the Massachusetts State House, Beacon Hill, Boston.
I have had Lyme Disease for 7 years and have finally been properly diagnosed January of this year. I've been from doctor to doctor trying to find out what was making me so sick.
I was tested for Lyme amongst other things and always came back negative. The Lyme tests are not accurate and not acceptable for diagnosing someone with Lyme.
I have found out that to my dismay that the public knows very little about Lyme desease. I didn't know until just recently.
Finally a friend told me she thought I had Lyme and sent me to a Doctor who knows how to treat Lyme and other tick born deseases. I tested positive with two specialty labs.
The Doctor I go to doesn't take insurance due to the fact that he treats aggressively for success in conquering this horrible debilitating disease. Insurance companies don't "allow" Doctors to treat aggressively with out persecution or scrutiny.
My insurance company should not dictate my health. They are not doctors. Allot of the literature available from my insurance company on Lyme is outdated. On their audio directory they talk about the lyme vaccine "Lymrix" which has been off the market for many years. It is really pathetic and unsafe how much control the insurance industry has.

Thanks so much,
Heather xxxx
xxxxxxxxx Aberdeen, NJ 07747
732.000.0000

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HEATHER

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Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
DJP
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Thank you Heather!
Posts: 441 | From USA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
HEATHERKISS
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Did everyone email their letters yet?

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HEATHER

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Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
chainsaw joseph
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It would be nice to know how many letters we have done as a team and also whos going but Im not asking.If it was quite a bit we all probably would be even more encouraged that we are going to be heard and seen.Wouldnt it be great to have tons of letters and a crowd in Boston,its what we deserve and could make happen.I hope.
Posts: 308 | From new bedford,Ma. | Registered: Dec 2004  |  IP: Logged | Report this post to a Moderator
8man12
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I sure hope are government hasnt read the diagnosis page on the CDC,website,WE all know what tests and labs they are talking about..Using the term specialty lab may hurt us,BUT,i feel they are probably the best.Lets just pray these bills go through.
Posts: 510 | From NEVERLAND.USA | Registered: Jul 2005  |  IP: Logged | Report this post to a Moderator
   

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