posted
Sounds sort of babesiatic. (I made up a word.)
Why did you decide to use both labs? Let us know the results. I just sent my 19 year old son's test kit to Igenex.
Posts: 830 | From Colorado | Registered: Mar 2005
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Heather, You could copy the symptom list from the Canadian Lyme Disease Foundation, and have her review it. http://www.canlyme.com/ (click on symptoms)
When I look at her symptoms, this is what I see.
Sleeps 14 hours a day or more -- chronic fatigue? Common Lyme symptom.
Takes Synthroid -- thyroid problems are a common Lyme problem.
Lose balance, sometimes fall -- dizziness and vertigo can be Lyme symptoms
Poor memory, can't retrieve words -- Yes! Common Lyme symptoms
Can't see as good as before, need new glasses but got new ones less than a year ago. Frequent vision changes and eyeglass prescriptions are a Lyme symptom.
Headache over right eye, severe but leaves after a few minutes -- Severe intermittant headaches might be Lyme symptom.
Can't hear as good as I used to. Some noises bother me -- Might be Lyme symptom.
Alternate diarrhea with constipation -- yes, a Lyme symptom. (Of course, this can be symptom of other things also.)
I don't know how to evaluate the bloodwork problems, but Babesia does invade the red blood cells, and possibley the bone marrow. This needs further investigation.
Being pale would be from the anemia. There is something called "anemia of chronic illness."
I have a relative who got iron infusions, and she had many more than two. Someone needs to check on this, because if they helped your mother, she should be able to get more of them.
See what she thinks of the Lyme symptom list. Carol
Posts: 6932 | From Lancaster, PA | Registered: Feb 2004
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mlkeen
Frequent Contributor (1K+ posts)
Member # 1260
posted
Moning Heather-
Some things sound like lyme. Others sound like my glutin intolerence, the anemia and the digestive issues.
I have been asking why about the anemia for years, with no good explanation until my current llmd thought about it. My gluten anti-bodies are in the noraml range, but my general heath has greatly improved by eliminating wheat from my diet.
I could never rid my body of lyme until my anemia was better. Our bodies need oxygen to heal and anemic blood doesn't carry much oxygen. I still have no iron reserves, but my energy level is way up.
Please look into this as well. Woman, over 40 and blood type O are most prone to glutin intolerance, so says my llmd.
posted
Babesia can cause the loss of appetite and anemia. Was she checked for this too??
I'm really sorry she is ill. Much of it sounds like possible Lyme.
Don't forget....the tests are pretty lousy....especially the co-infection testing. Where does she live?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 94761 | From Texas | Registered: Feb 2001
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HEATHERKISS
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Member # 6789
posted
She is in California now.
But she lived in a high risk area in NJ near the Delaware River.
She has been sick for a while.
The only thing is she doesn't really complain about pain.
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
Heather, I'm really sorry to hear about your Mom. How old is she? I'm asking, because I've noticed some of those symptoms with my own mother...
Not the same constellation, though.
I'm just glad she and her doc are willing to get the tests done.
The results will give everyone a starting point.
Andie
Posts: 2548 | From never never land | Registered: May 2005
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
Sounds more like Babs than Lyme!!! Where in CA>?! We have plenty of Babs in CA!!!!!!!!!!!!!!!!!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
Babs...sorry dear.
Trout
-------------------- Now is the time in your life to find the "tiger" within. Let the claws be bared, and Lyme BEWARE!!! www.iowalymedisease.com [/URL] Posts: 5262 | From North East Iowa | Registered: Sep 2002
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HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
Huntington Beach. She is 56. I have given her the symptom list and the website for the California website.
She didn't have an "ah ha moment" like I did when I saw the Lyme symptoms checklist.
She's just going to do the testing becuase of me and becuase Doctors still havent found the problem.
I think It sounds like advanced Lyme and Babs.
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789
posted
canlyme website symptoms:
Rash at site of bite Rashes on other parts of your body Rash basically circular and spreading out (or generalized) Raised rash, disappearing and recurring
Head, Face, Neck
Unexplained hair loss Headache, mild or severe, Seizures Pressure in Head, White Matter Lesions in Head (MRI) Twitching of facial or other muscles Facial paralysis (Bell's Palsy) Tingling of nose, (tip of) tongue, cheek or facial flushing Stiff or painful neck Jaw pain or stiffness Dental problems (unexplained) Sore throat, clearing throat a lot, phlegm ( flem ), hoarseness, runny nose
Eyes/Vision
Double or blurry vision Increased floating spots Pain in eyes, or swelling around eyes Oversensitivity to light Flashing lights/Peripheral waves/phantom images in corner of eyes
Ears/Hearing
Decreased hearing in one or both ears, plugged ears Buzzing in ears Pain in ears, oversensitivity to sounds Ringing in one or both ears
Digestive and Excretory Systems
Diarrhea Constipation Irritable bladder (trouble starting, stopping) or Interstitial cystitis Upset stomach (nausea or pain) or GERD (gastroesophageal reflux disease)
Musculoskeletal System
Bone pain, joint pain or swelling, carpal tunnel syndrome Stiffness of joints, back, neck, tennis elbow Muscle pain or cramps, (Fibromyalgia)
Respiratory and Circulatory Systems
Shortness of breath, can't get full/satisfying breath, cough Chest pain or rib soreness Night sweats or unexplained chills Heart palpitations or extra beats Endocarditis, Heart blockage
Neurologic System
Tremors or unexplained shaking Burning or stabbing sensations in the body Fatigue, Chronic Fatigue Syndrome, Weakness, peripheral neuropathy or partial paralysis Pressure in the head Numbness in body, tingling, pinpricks Poor balance, dizziness, difficulty walking Increased motion sickness Lightheadedness, wooziness
Psychological well-being
Mood swings, irritability, bi-polar disorder Unusual depression Disorientation (getting or feeling lost) Feeling as if you are losing your mind Over-emotional reactions, crying easily Too much sleep, or insomnia Difficulty falling or staying asleep Narcolepsy, sleep apnea Panic attacks, anxiety
Mental Capability
Memory loss (short or long term) Confusion, difficulty in thinking Difficulty with concentration or reading Going to the wrong place Speech difficulty (slurred or slow) Stammering speech Forgetting how to perform simple tasks
Reproduction and Sexuality
Loss of sex drive Sexual dysfunction Unexplained menstral pain, irregularity Unexplained breast pain, discharge Testicular or pelvic pain
General Well-being
Unexplained weight gain, loss Extreme fatigue Swollen glands/lymph nodes Unexplained fevers (high or low grade) Continual infections (sinus, kidney, eye, etc.) Symptoms seem to change, come and go Pain migrates (moves) to different body parts Early on, experienced a "flu-like" illness, after which you have not since felt well. Low body temperature
Allergies/Chemical sensitivities
Increased affect from alcohol and possible worse hangover
ienced a "flu-like" illness, after which you have not since felt well. Low body temperature
Allergies/Chemical sensitivities
Increased affect from alcohol and possible worse hangover
-------------------- HEATHER
Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
Heather,
I had that "ah ha!" moment when I saw the Lyme symptom list, too.
After I looked at the list, suddenly everything seemed to make sense -- all those doctors' appointments and all those tests.
If I hadn't tested positive I think I still would have been convinced I had this disease.
Glad the tests confirmed it, though, and I hope your Mom is willing to see an LLMD.
Andie
Posts: 2548 | From never never land | Registered: May 2005
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