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» LymeNet Flash » Questions and Discussion » Medical Questions » My mothers symptoms in her own words.

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Author Topic: My mothers symptoms in her own words.
HEATHERKISS
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I'VE BEEN NAGGING MY MOTHER!!

She finally gave symptoms in her own words. Is this Lyme?

I've got the tests kits from Igenex and Mdl going to her house. Her Doctor will order the tests.

OK, sleep about 14 hours a day or more. Synthroid dose OK for thyroid.

Loose balance, sometimes fall.

Poor memory, Can't retrieve words.

Headache over right eye, severe but leaves after a few minutes.

Can't hear as good as I used to. Some noises bother me.

Anemic. Bone marrow not making enough red blood cells. Red blood cells not formed at the right mature levels.

Iron low. Ferriten should be 40-80 and mine is 4. I have had 2 IVs of iron. You are only allowed 2.

Ana positive.

White blood cells low.

pale

Not hungry, loosing weight.

Can't see as good as before, need new glasses but got new ones less than a year ago.

Alternate diarrhea with constipation. Had GI work up done came out OK other that veins up high in colon like varicose veins that are going to break.

won't get surgery at this time because too serious because not enough red blood cells.

I think that is about it

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HEATHER

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Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
SForsgren
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Hmmm. Could be any number of things but doesn't jump right out as Lyme to me. Will be interesting to see what the tests show.

--------------------
Be well,
Scott

Posts: 4617 | From San Jose, CA | Registered: Jul 2005  |  IP: Logged | Report this post to a Moderator
aliyalex
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Sounds sort of babesiatic. (I made up a word.)

Why did you decide to use both labs? Let us know the results. I just sent my 19 year old son's test kit to Igenex.

Posts: 830 | From Colorado | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
Carol in PA
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Heather,
You could copy the symptom list from the Canadian Lyme Disease Foundation, and have her review it.
http://www.canlyme.com/
(click on symptoms)


When I look at her symptoms, this is what I see.

Sleeps 14 hours a day or more -- chronic fatigue? Common Lyme symptom.

Takes Synthroid -- thyroid problems are a common Lyme problem.

Lose balance, sometimes fall -- dizziness and vertigo can be Lyme symptoms

Poor memory, can't retrieve words -- Yes! Common Lyme symptoms

Can't see as good as before, need new glasses but got new ones less than a year ago.
Frequent vision changes and eyeglass prescriptions are a Lyme symptom.

Headache over right eye, severe but leaves after a few minutes -- Severe intermittant headaches might be Lyme symptom.

Can't hear as good as I used to. Some noises bother me -- Might be Lyme symptom.

Alternate diarrhea with constipation -- yes, a Lyme symptom. (Of course, this can be symptom of other things also.)

I don't know how to evaluate the bloodwork problems, but Babesia does invade the red blood cells, and possibley the bone marrow. This needs further investigation.

Being pale would be from the anemia.
There is something called "anemia of chronic illness."

I have a relative who got iron infusions, and she had many more than two. Someone needs to check on this, because if they helped your mother, she should be able to get more of them.


See what she thinks of the Lyme symptom list.
Carol

Posts: 6932 | From Lancaster, PA | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
mlkeen
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Moning Heather-

Some things sound like lyme. Others sound like my glutin intolerence, the anemia and the digestive issues.

I have been asking why about the anemia for years, with no good explanation until my current llmd thought about it. My gluten anti-bodies are in the noraml range, but my general heath has greatly improved by eliminating wheat from my diet.

I could never rid my body of lyme until my anemia was better. Our bodies need oxygen to heal and anemic blood doesn't carry much oxygen. I still have no iron reserves, but my energy level is way up.

Please look into this as well. Woman, over 40 and blood type O are most prone to glutin intolerance, so says my llmd.

Mel

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Lymetoo
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Babesia can cause the loss of appetite and anemia. Was she checked for this too??

I'm really sorry she is ill. Much of it sounds like possible Lyme.

Don't forget....the tests are pretty lousy....especially the co-infection testing. Where does she live?

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94761 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
HEATHERKISS
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She is in California now.

But she lived in a high risk area in NJ near the Delaware River.

She has been sick for a while.

The only thing is she doesn't really complain about pain. [confused]

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HEATHER

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Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
Andie333
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Heather,
I'm really sorry to hear about your Mom. How old is she? I'm asking, because I've noticed some of those symptoms with my own mother...

Not the same constellation, though.

I'm just glad she and her doc are willing to get the tests done.

The results will give everyone a starting point.

Andie

Posts: 2548 | From never never land | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
CaliforniaLyme
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Sounds more like Babs than Lyme!!! Where in CA>?! We have plenty of Babs in CA!!!!!!!!!!!!!!!!!!!

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

Posts: 5639 | From Aptos CA USA | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
troutscout
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Babs...sorry dear.

Trout [Wink]

--------------------
Now is the time in your life to find the "tiger" within.
Let the claws be bared,
and Lyme BEWARE!!!
www.iowalymedisease.com
[/URL]  -

Posts: 5262 | From North East Iowa | Registered: Sep 2002  |  IP: Logged | Report this post to a Moderator
HEATHERKISS
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Huntington Beach. She is 56. I have given her the symptom list and the website for the California website.

She didn't have an "ah ha moment" like I did when I saw the Lyme symptoms checklist.

She's just going to do the testing becuase of me and becuase Doctors still havent found the problem.

I think It sounds like advanced Lyme and Babs.

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HEATHER

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Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
HEATHERKISS
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canlyme website symptoms:

Rash at site of bite
Rashes on other parts of your body
Rash basically circular and spreading out (or generalized)
Raised rash, disappearing and recurring


Head, Face, Neck


Unexplained hair loss
Headache, mild or severe, Seizures
Pressure in Head, White Matter Lesions in Head (MRI)
Twitching of facial or other muscles
Facial paralysis (Bell's Palsy)
Tingling of nose, (tip of) tongue, cheek or facial flushing
Stiff or painful neck
Jaw pain or stiffness
Dental problems (unexplained)
Sore throat, clearing throat a lot, phlegm ( flem ), hoarseness, runny nose


Eyes/Vision


Double or blurry vision
Increased floating spots
Pain in eyes, or swelling around eyes
Oversensitivity to light
Flashing lights/Peripheral waves/phantom images in corner of eyes


Ears/Hearing


Decreased hearing in one or both ears, plugged ears
Buzzing in ears
Pain in ears, oversensitivity to sounds
Ringing in one or both ears


Digestive and Excretory Systems


Diarrhea
Constipation
Irritable bladder (trouble starting, stopping) or Interstitial cystitis
Upset stomach (nausea or pain) or GERD (gastroesophageal reflux disease)


Musculoskeletal System


Bone pain, joint pain or swelling, carpal tunnel syndrome
Stiffness of joints, back, neck, tennis elbow
Muscle pain or cramps, (Fibromyalgia)


Respiratory and Circulatory Systems


Shortness of breath, can't get full/satisfying breath, cough
Chest pain or rib soreness
Night sweats or unexplained chills
Heart palpitations or extra beats
Endocarditis, Heart blockage


Neurologic System


Tremors or unexplained shaking
Burning or stabbing sensations in the body
Fatigue, Chronic Fatigue Syndrome, Weakness, peripheral neuropathy or partial paralysis
Pressure in the head
Numbness in body, tingling, pinpricks
Poor balance, dizziness, difficulty walking
Increased motion sickness
Lightheadedness, wooziness


Psychological well-being


Mood swings, irritability, bi-polar disorder
Unusual depression
Disorientation (getting or feeling lost)
Feeling as if you are losing your mind
Over-emotional reactions, crying easily
Too much sleep, or insomnia
Difficulty falling or staying asleep
Narcolepsy, sleep apnea
Panic attacks, anxiety


Mental Capability


Memory loss (short or long term)
Confusion, difficulty in thinking
Difficulty with concentration or reading
Going to the wrong place
Speech difficulty (slurred or slow)
Stammering speech
Forgetting how to perform simple tasks


Reproduction and Sexuality


Loss of sex drive
Sexual dysfunction
Unexplained menstral pain, irregularity
Unexplained breast pain, discharge
Testicular or pelvic pain


General Well-being


Unexplained weight gain, loss
Extreme fatigue
Swollen glands/lymph nodes
Unexplained fevers (high or low grade)
Continual infections (sinus, kidney, eye, etc.)
Symptoms seem to change, come and go
Pain migrates (moves) to different body parts
Early on, experienced a "flu-like" illness, after which you
have not since felt well.
Low body temperature

Allergies/Chemical sensitivities

Increased affect from alcohol and possible worse hangover

ienced a "flu-like" illness, after which you
have not since felt well.
Low body temperature

Allergies/Chemical sensitivities

Increased affect from alcohol and possible worse hangover

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HEATHER

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Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
Andie333
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Heather,

I had that "ah ha!" moment when I saw the Lyme symptom list, too.

After I looked at the list, suddenly everything seemed to make sense -- all those doctors' appointments and all those tests.

If I hadn't tested positive I think I still would have been convinced I had this disease.

Glad the tests confirmed it, though, and I hope your Mom is willing to see an LLMD.

Andie

Posts: 2548 | From never never land | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
   

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