LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » issues with quack specialist could have result in loss of long term disability

 - UBBFriend: Email this page to someone!    
Author Topic: issues with quack specialist could have result in loss of long term disability
brighty
Member
Member # 6808

Icon 1 posted      Profile for brighty   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Before I was diagnosed with Lyme, had a specialist (who saw me for 20 mins) diagnos me with cerebral lupus and supported my claim of being disabled, which got me on long term disability.

I felt his diagnosis didn't fit, so I went on my own, made the match to lyme, found a llmd that confirmed this (also tested positive for Rocky Mt Spotted fever and Bart.)

My GP dismisses these and wants me to see specialist Duck who diagnosed lupus. If I don't see duck and take his treatment (predisone), neither will continue to support LT disability.

I can see duck, argue my case get the presciption and not use it. What am I risking by doing this verses writing to LTD company and explaining current lyme treatment?

Posts: 66 | From BC Canada | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
Corgilla
LymeNet Contributor
Member # 4066

Icon 1 posted      Profile for Corgilla     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi,

Touchy subject.

All I can say is in the US it would be a faceoff between insurance fraud and your health. Don't know how it works in BC.

Maybe the duck would be willing to see your point of view?

Good Luck,

Corgilla

--------------------
"I'll never forget good old Whatsisname."

Posts: 694 | From PA | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686

Icon 1 posted      Profile for SForsgren         Edit/Delete Post   Reply With Quote 
If you really feel confident the Lupus is not the correct diagnosis (and maybe even if you are not sure), I would personally not take the Prednisone. Getting LTD is hard for Lyme in general even without the other complicating factors.

--------------------
Be well,
Scott

Posts: 4617 | From San Jose, CA | Registered: Jul 2005  |  IP: Logged | Report this post to a Moderator
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686

Icon 1 posted      Profile for SForsgren         Edit/Delete Post   Reply With Quote 
Another option would be to go down the path of getting an official Lyme diagnosis from an LLMD and dealing with the issues of LTD for Lyme (which are many from what I have read) and forget about the Lupus "duck".

--------------------
Be well,
Scott

Posts: 4617 | From San Jose, CA | Registered: Jul 2005  |  IP: Logged | Report this post to a Moderator
brighty
Member
Member # 6808

Icon 1 posted      Profile for brighty   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'm going to try answering my own question (lyme brain in action) If asked by the Long term disability - I am agressively following a treatment for lyme as perscribed by my LLMD and especially for the Rocky Mt. Spotted fever which can be fatal. My cognitive functions are scary - I can't remember my name some days, can't count money and get lost in grocery stores.. Have found some success with Mepron/zitho which suggests babesia. When the treatment for all coinfections/lyme is successful, then I will follow up with the specialist duck.
Posts: 66 | From BC Canada | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
vitch
LymeNet Contributor
Member # 8094

Icon 1 posted      Profile for vitch     Send New Private Message       Edit/Delete Post   Reply With Quote 
Write all you disabiling symptoms down, so you'll remember them. Add to the list as they occur to you. Try to get a SPECT or MRI or any other test that supports your Lyme disability diagnosis.

--------------------
[email protected]

www.lymediseaseassociation.org/Conflicts.doc

Worthless tests & labs, a dangerous vaccine, insurance companies refuse to pay, undertreatment the norm, all about money. MO.

Posts: 281 | From CT | Registered: Oct 2005  |  IP: Logged | Report this post to a Moderator
luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090

Icon 1 posted      Profile for luvs2ride     Send New Private Message       Edit/Delete Post   Reply With Quote 
One more suggestion. Keep seeing lupus duck but don't follow his advice. Cheap way to retain your LTD.

--------------------
When the Power of Love overcomes the Love of Power, there will be Peace.

Posts: 3038 | From america | Registered: Oct 2005  |  IP: Logged | Report this post to a Moderator
burnbitter
LymeNet Contributor
Member # 7088

Icon 1 posted      Profile for burnbitter     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by luvs2ride:
One more suggestion. Keep seeing lupus duck but don't follow his advice. Cheap way to retain your LTD.

Yes true.
Also you can get disability for cfs, fibromyalgia, and chronic pain...rahter than the label of lyme, which we all have though none of those labels mean anything.
incidently medicare won't pay squat once you do finally get it, and disibility certainly won't give you much extra to pay for speicalist, but better than being homeless if that's your alternative.
just don't go in thinking you'll be getting medicare that will help pay for adequate healthcare.

Posts: 207 | From san francisco, ca | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
WildCondor
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
If i were you I would NOT take the Prednisone. BIG BIG BIG MISTAKE!!!!!!!!!!!!
I would get to a real LLMD and get a real Lyme diagnosis, if that is what you have, and proceed from there.
Lupus=disabilty also, so you could just go along with the duck and DONT TAKE the steroids and get on disability. Make sure you know what you have, and do everything you can to get a correct diagnosis and get the right treatment. ACT NOW!

IP: Logged | Report this post to a Moderator
Susan in G'ville
Member
Member # 8185

Icon 1 posted      Profile for Susan in G'ville   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I second the comments by W Condor. I've read that steroids are a big mistake w/LD, that make your situation even worse. Prednisone will eventually depress your body's ability to deal w/joint pain. Then, if you've been on it a good while and stop taking it, you have to slowly wean off or you'll get hit w/ a LOT of pain that your body can't deal with. This happened to my Mamma.

Sounds like you've got tough decisions to make. I wish you strength thru it all.

Posts: 23 | From Gainesville, FL | Registered: Oct 2005  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.