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» LymeNet Flash » Questions and Discussion » Medical Questions » Malarone experiences

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Author Topic: Malarone experiences
dontlikeliver
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Having previously been on Mepron for 8 months finishing last April........I am now starting Malarone. (I'm on Ketek already and will add Artemesia too).

I really didn't have much side effects from the Mepron, just a bit gloomy (homicidal [Smile] ), sleepy at first, but nothing major.

I read some of the old threads on Malarone and wonder - are you more likely to have side effects from Malarone??? It seems that way having read of people throwing up and feeling absolutely horrible on Malarone.

Why? I thought Malarone was more gentle?

I am supposed to start with 250mg x2, 2x a day (i.e. 500mg twice a day), working up to 250 x3, 2x a day. Does that sound like a normal dose?

DLL

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lymster
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Hi DLL:

After been on mepron 10 months along with zithro/artemesia and some other abx; I got switched to malarone and I didn't have any mayor herxing but I relapse from babs within a month..........so.......LLMD put me back on mepron.

I am still on mepron 17 months and counting -with the exception of that 1 month on malarone-, still having babs sx, less severe but still present. LLMD said maybe primaquine next time I see him.


Take care, nice to hear from you,
Lymster in WA

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dontlikeliver
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Thanks Lymster,

I would say that my Babs sx are mild, and they may be the Lyme, but as we're not sure, we're treating again.

Did you have any particular side-effects on the malarone?

DLL

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lymster
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No side effects on malarone at all, just a slow and steady relapse on my babs.

My babs has allways been a big issue on my case, sx were really severe before tx and they got worse for the first 6 months of treatment including: daily fever, unbearable headaches, incredible weight loss, nausea, vomit, drenching night sweats 3-4 times per night and inhability to walk because of lack of balance. I did tested positive for babs with a really high number.

My first 3 months on mepron were horrendous, back then I really believed that if Lyme hadn't killed me yet, the lovely mepron will kill me by sure;.........but...... I stayed the course, never stopped meds and by the fourth month things really started to change for the better.

Hope this helps, TAKE CARE
Lymster in WA

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dontlikeliver
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Thanks. I'm glad you're doing better Lymester. [Smile]

Last year I had hardly any headaches after finishing the Mepron, and after years of headaches that made me feel like I would have a seizure (and I might have had a couple of small ones also), or like my head would just explode or I would have a stroke.

After nearly a year of no or much less headaches, they are increasing again - start in the back of my neck on left side usually, and work their way up my head, on left,and down my spine to about between my shoulder blades with a collosal headache after a couple of hours that might take a couple of days to clear. When it clears, I feel washed out and weird/toxic.

My balance, same thing, was fine during/after Mepron, and now once in a while I feel like I'm walking on a mattress again.

Nightsweats still there, they never went away....but I would say that they are not severe, and only maybe 7 days out of the month and not always all over, usually it seems like I have a 'spout' in the middle of my chest and I just sweat a greasy horrible sweat from there.....Does anyone else have that? I think it's a bit weird.


BTW, do you have to take a lot of fat/fatty meal with the Malarone like with Mepron?

DLL

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Christine202
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No side effects with Malarone for me either... I am not sure if it is as efffective as Mepron...

I take it with fatty meals like the Mepron... My pharmasists told me to

Good Luck and keep us posted!

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dontlikeliver
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Thanks Christine.
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dontlikeliver
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Anyone else?
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LymeLaura
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I've been taking Malarone for almost three months now. My doctor likes to use it for at least 5 months.

I previously was on Mepron/Zith (2 months) and Mepron/Ketek (3 weeks) and was horribly sick on both. As a side note, it turns out I can't take Biaxin, Ketek or Zithromax - it causes my blood pressure to become dangerously high.

I had knee surgery in the fall and the horrible sweats came back. My new llmd started the Malarone after that and I haven't really had problems with it. Just make sure you take it with a fatty meal (just like Mepron).

By the way, my sweats are gone! Good Luck!

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