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» LymeNet Flash » Questions and Discussion » Medical Questions » a question for all?

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Author Topic: a question for all?
Robin61
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How many feel this lyme in their brain? Is it just me. This really scares me after 2 years now of treatment that i am still feeling this....crawling prickling occasionally burning brain...feel as if an organism has taken residence there. We did an MRI at the beginning before treatment and it was normal. Is this more a Babesia thing? Sometimes i feel this slight pressure above my ears on each side of my head and it feels as if a nest of something resides there. I have been treated over a year ago with 7 months of mepron and then titer were so low Doc pulled me off mepron. I have done lots or artemisnin on and off but just wandering if these Head symptoms are common with lyme. My two kids and husband have lyme and did not have these symptoms. Thanks any replies appreciated! Robin in Houston
Posts: 121 | From Houston, TX | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
HEATHERKISS
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It can go into any part of your body.

Try having a headache for over 3 years straight!!!!!!

I'm one of the lucky ones. I just have occasional siezures now for the past few years.

There are antibiotics that cross the blood brain barrier. You can read about it in the newbie links. Flagyl is one of them.

I've been sick 8 years one of them on antibiotics. 1 year has made a big difference. Feeling alot better.

It gets better with treatment.
Good luck,

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HEATHER

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Andie333
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Before I started taking abx, I'd gone undx for 9 years. Most of my symptoms were physiological.

After taking Ceftin (one that does cross the blood-brain barrier, I think), I started with the creepy-crawlies you describe as well as quite a bit of numbness and cognitive distress.

Now, I'm 7 + mos into treatment. I only rarely have the crawly thing but still deal with numbness, especially when I'm herxing.

I agree with Heather that these little buggers just go all over the place...

Andie

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Green Darkness
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Have had the same experience. Can't stand when my head actually can feel the swelling, etc.
Vice like headaches drove me nuts. Used to say, my brain hurts.
The flashes of light in the dark were the worst.

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Ann-OH
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I have trouble reading a solid block of print - so will split up your post. My comments are at the end.
Ann - OH

You said:
How many feel this lyme in their brain? Is it just me.

This really scares me after 2 years now of treatment that i am still feeling this....crawling prickling occasionally burning brain...feel as if an organism has taken residence there.

We did an MRI at the beginning before treatment and it was normal. Is this more a Babesia thing?

Sometimes i feel this slight pressure above my ears on each side of my head and it feels as if a nest of something resides there.

I have been treated over a year ago with 7 months of mepron and then titer were so low Doc pulled me off mepron.

I have done lots or artemisnin on and off but just wondering if these Head symptoms are common with lyme.

My two kids and husband have lyme and did not have these symptoms.
Thanks. any replies appreciated!

Robin in Houston
[end quote]

There are so many symptoms caused by neuro-lyme.
Some experience stuff others never have. I had strange neurology and psychological effects that all cleared up with antibiotic treatment.

I don't know about the babesia effects, but others will be able to talk to you about that.

I hope you have a good Lyme doctor handy. You should be able to get some good answers.

Ann - OH

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bettyg
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Ann, thanks for breaking up the long paragraph to what we neuro folks like you/me can read.

Robin, I have this problem; NO co-infections, and been on abx since 8-04; NO improvements. Mental stuff keeps getting worse. Hard to compose words when speaking; easier when I type things out.

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