I was sort of diagnosed in Feb. My Igenex WB came back IND on IGM and negative on IGG. I was seeing a dr. at a clinic for Fibro and Chronic Fatigue.
Recently had an insurance change and she is no longer covered and she suggests some VERY expensive treatments I can not afford.
So took my results to my internist who said it may or may not be Lyme and is treating me with Doxy 200 mg/day.
I've been ill for about 6 years, symptoms coming and going and changing. Mostly fatigue, post exertional exhaustion, tremors, myoclonus, stomach problems, numbness, etc.
Over the years have seen several doctors including internist, allergist, gastroenterologist, psychiatrist (of course), neurologist who did an MRI, MRA and EMG and all came back normal as do all of my other tests - chest xray, pelvic u/s, blood work, etc.
Am on several supplements such as Maitake mushroom extract trying to pump up my immune system.
I guess I'm wondering about herxing because I feel no different - no better, no worse! I'm not even 100% sure I have lyme!
-------------------- Cutie Posts: 125 | From Atlanta | Registered: Dec 2005
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You may want your doctor to re-run the Western Blot now that you've been on antibiotics for a couple of weeks.
This can sometimes turn an inconclusive Western Blot into a positive one - being on the antibiotics for a short term can get some of spirochetes out of hiding enough to pick them up on the test.
Now that I've read more about your situation, I realize how confusing it can be. I had chronic fatigue syndrome for ten years, many years ago. I was bitten by the tick four years ago.
My CFS symptoms were quite different than my current Lyme symptoms. Yet some people, including some doctors - even some at the F&F Clinics, believe that many cases of CFS are really misdiagnosed cases of Lyme. So I can see why you are perplexed.
Personally, your symptoms of fatigue and post-exercise exhaustion were like what I had with CFS, but many Lyme patients have that. The tremors and myoclonus sound much more like Lyme or other diseases - again, just from my personal experience with both diseases - so it's important that you keep pursuing a correct diagnosis.
Good luck, Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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