LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Had another siezure!!!

 - UBBFriend: Email this page to someone!    
Author Topic: Had another siezure!!!
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789

Icon 1 posted      Profile for HEATHERKISS     Send New Private Message       Edit/Delete Post   Reply With Quote 
I had another seizure. I woke up sick and in pain on saturday.

Bill said I was moaning. I asked him to get me the bathroom trash can so I could puke.

He said as soon as he left me there was a loud crash.

Can you believe I fell out of bed and landed on my face! [cussing] Ouch! Having a seizure in bed I thought would be safe. Well, I guess you live and learn!

He said he ran back in and I was out cold. He flipped me over to make sure I was breathing.

I lost bladder control.

I'm off of all pills except for synthroid. I've been feeling strange. Hard to describe. Not the usual for me.

I've been feeling sick for a few days. Damn!


Bill and I are going to Dr. S tommorrow. I guess I have alot to talk about w/ him.

Of course I'll report back to all of you. [hi]

--------------------
HEATHER

 -

Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
Nal
Frequent Contributor (1K+ posts)
Member # 6801

Icon 1 posted      Profile for Nal     Send New Private Message       Edit/Delete Post   Reply With Quote 
OMG, thats so scarey! I am so glad that you are ok though!

Do you get these seizures often?? Wow, I hope your dr is able to give you some answers.

Nancy

--------------------
Life is 10% what happens to you, 90% how you respond to it!

-Chuck Swindoll

Posts: 1594 | From Colorado | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165

Icon 1 posted      Profile for cantgiveupyet     Send New Private Message       Edit/Delete Post   Reply With Quote 
Oh Heather, im sorry. Im so glad that you are OK and glad your husband was there with you.

Is there something in the air im seeing a few of us havent been feeling right.


I swear i was dying yesterday...it really felt like it.

good luck tomorrow.....and let me know how it goes ok.

--------------------
"Say it straight simple and with a smile."

"Thus the task is, not so much to see what no one has seen yet,
But to think what nobody has thought yet, About what everybody sees."

-Schopenhauer

pos babs, bart, igenex WB igm/igg

Posts: 3156 | From Lyme limbo | Registered: Oct 2005  |  IP: Logged | Report this post to a Moderator
trails
Frequent Contributor (1K+ posts)
Member # 1620

Icon 1 posted      Profile for trails     Send New Private Message       Edit/Delete Post   Reply With Quote 
oh HEATHER!!!!

Please let us know what the doc says. I am worried about you.

What were you on meds wise? What is synthroid for?

Hang in there,
Thinking of you!
Trails

Posts: 1950 | From New Mexico | Registered: Sep 2001  |  IP: Logged | Report this post to a Moderator
Lymied
LymeNet Contributor
Member # 6704

Icon 1 posted      Profile for Lymied     Send New Private Message       Edit/Delete Post   Reply With Quote 
So sorry Heather...Just want you to know you are in my thoughts and hope the doctor's appointment goes well and that is the last seizure...

Take care and keep us posted...

--------------------
Pride is concerned with who is right. Humility is concerned with what is right. - Ezre Taft Benson

Posts: 655 | From NC, Exit 88 on the Deer SuperHighway | Registered: Dec 2004  |  IP: Logged | Report this post to a Moderator
Carol B
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
The feeling strange , hard to describe feeling, may be "auras" of seizure activity. Some people experience them with seizures, some do not.

It's like a precurser to having a seizure-but technically I guess it is considered a seizure,too.

Anyway I was truly skeptical to start taking Keppra for seizures-but what a blessing it has been for me.I was also in denial, and resisting the diagnosis.

The aura feeling- I hesitate to try to describe it myself-it's like becoming separated from reality with a feeling of forboding, paralyzing kind of, only you are still awake, but pulled into this void.

I differenciate it from the kind of detachment I feel with lyme-because with the lyme detachment I can still move around , I just feel separated from reality but still functioning.

With an aura I can't move, I am afraid to move, and I'm scared, but I can still see. It's just a bit more weird-as if lyme isn't weird enough.

Anyway I have improved on seizure meds. [Smile]
And when I am further along in my lyme treatment I may consider going off the seizure meds-if I have the nerve. Don't know- I am just three months into lyme treatment.

Good luck at your appointment.
Carol

IP: Logged | Report this post to a Moderator
minoucat
Frequent Contributor (1K+ posts)
Member # 5175

Icon 1 posted      Profile for minoucat     Send New Private Message       Edit/Delete Post   Reply With Quote 
The hubby has had the whole range of seizures, from just the precursor feeling to spacing-out-for a-moment to full grand mal with thrashing and loss of awareness for several minutes. The seizures occurred over a period of about 5 years with increasing intensity. At one point he was having several a week, but mostly of the mild spacing-out-for-a-second-or-two variety. He found that if he noticed them early enough (the aura), stopped what he was doing, and concentrated on breathing he could stay concious.

His EEG never showed any abnormality; nor did MRIs.

He was always very weak and tired afterwards, even if they were mild.

They've been gone completely for the past 4 years. I think the babesia treatment played a big role in stopping them.

--------------------
*********************

RECIDITE, PLEBES! Gero rem imperialem!
(Stand aside plebians! I am on imperial business.)



Posts: 2331 | From WA | Registered: Jan 2004  |  IP: Logged | Report this post to a Moderator
pq
Frequent Contributor (1K+ posts)
Member # 6886

Icon 1 posted      Profile for pq     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Heather,

geeez...sorry to hear this. prayer sent for safety.

if you and/or your doc. feel the synthroid is to blame, then armour thyroid might be a better alternative. the thyroid, and thyroid meds can be extremely tricky to deal with.

within the past two weeks a radio doc., a real M.D., expressed teh opinion that the "...adrenal glands..." might have to be adressed before, or along with, dealing with teh thyroid gland.

good luck

Posts: 2708 | Registered: Feb 2005  |  IP: Logged | Report this post to a Moderator
5dana8
Frequent Contributor (1K+ posts)
Member # 7935

Icon 1 posted      Profile for 5dana8   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
hey heatherkiss

I'll keep you in my prayers and hope your doctors appointment goes well tommorow. Sorry this had to happen. Let us know how things go.

hang in there [group hug]

--------------------
5dana8

Posts: 4432 | From some where over the rainbow | Registered: Sep 2005  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Oh dang!! I hope you find the answer soon! Sounds like you need some seizure meds. Keep us posted, OK??? Hope you're feeling better today. [group hug]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94751 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
iceskater
LymeNet Contributor
Member # 8655

Icon 1 posted      Profile for iceskater     Send New Private Message       Edit/Delete Post   Reply With Quote 
Keep us posted. Hope that Dr S can find something to be of help to you to eliminate this symptom. I will keep you in my thoughts and prayers. Don't hesitate to send a pm if you need a hug.. [group hug]
Posts: 719 | From Delaware | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
johnnyb
Frequent Contributor (1K+ posts)
Member # 7645

Icon 1 posted      Profile for johnnyb         Edit/Delete Post   Reply With Quote 
Hi Heather, long time no speak.

That really sucks. How long have you been getting seizures, and what meds are you on right now?

Hope you are feeling better.

- JB

Posts: 1197 | From New Jersey | Registered: Jul 2005  |  IP: Logged | Report this post to a Moderator
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789

Icon 10 posted      Profile for HEATHERKISS     Send New Private Message       Edit/Delete Post   Reply With Quote 
Wow. Thanks for the imput everyone!

From what I can remember and from my journal I think it's the first one this year. So seizures are alot less.

I fainted/ passed out when Bill was in the emergency room a couple months ago. I don't know if those were seizures becuase noone saw me.

When I have seizures I'm totally out. It's actually quite peaceful......... until I wake up in a cold sweat. HATE the loss of bladder control!!!!!!

So my LLMD said if I have another seizure then I'll go back to the LLMD Nuero. REALLY DON'T WANT TO!!!!!!

We just switched up my meds last month. Back to Biaxin xl 2x a day. Cedax 2x. Valtrex, diflucan, synthroid, acidophilus, physillium, and etc........

Dr. S seems to think herx becuase i had alot of my old symptoms before the seizure.

Now it's going to be zith 1x, cedax 2x. Never took zith before. We'll see.........

So I'm hoping to make it thru the rest of this year without a siezure.

--------------------
HEATHER

 -

Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
hiker53
Frequent Contributor (5K+ posts)
Member # 6046

Icon 1 posted      Profile for hiker53     Send New Private Message       Edit/Delete Post   Reply With Quote 
Heather,

This is just my opinion, since I have only minor seizures (I fall down, but don't pass out). I would suggest getting on some seizure medication. You do not want this to happen while you are driving.

If you continue to have seizures you will not be allowed to drive. Just something to think about.

God Bless You. Hiker

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

Posts: 6442 | From Illinois | Registered: Aug 2004  |  IP: Logged | Report this post to a Moderator
trueblue
Frequent Contributor (1K+ posts)
Member # 7348

Icon 1 posted      Profile for trueblue     Send New Private Message       Edit/Delete Post   Reply With Quote 
Oh, Heather, I'm sorry, I just saw this now.
That's really scary. [Frown]

Since, I'm obviously too late to send good thoughts for the LLMD appointment... I'll concentrate my good thought and prayers to no more seizures.

[group hug]

--------------------
more light, more love
more truth and more innovation

Posts: 3783 | From somewhere other than here | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396

Icon 1 posted      Profile for lymemomtooo     Send New Private Message       Edit/Delete Post   Reply With Quote 
I hope you are doing better..This must be very scary..lymemomtooo
Posts: 2360 | From SE PA | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
johnnyb
Frequent Contributor (1K+ posts)
Member # 7645

Icon 1 posted      Profile for johnnyb         Edit/Delete Post   Reply With Quote 
Agree with Hiker, Heather. There is a BIG sign in the neurologist's office saying that by law he has to report you to the dmv if you've had multiple seizures.

Is it possible the meds contributed to the seizure? Have you looked up side-effects? Or have you had the seizures before you started any of the medicines?

I'm not saying it's the meds.... just throwing things out there that you might want to investigate.

Take care and I hope you stay seizure-free. I've only had one and certainly would NOT want to have another.

Later,

- JB

Posts: 1197 | From New Jersey | Registered: Jul 2005  |  IP: Logged | Report this post to a Moderator
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789

Icon 3 posted      Profile for HEATHERKISS     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'm going to ramp up really slow with the meds to make sure it's not the meds causing the seizures.

Dr. S thinks herx because I had alot of old symptoms before seizure. Seizures were an old symptom also.

--------------------
HEATHER

 -

Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
lymedesign
LymeNet Contributor
Member # 8791

Icon 1 posted      Profile for lymedesign     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Heather,

I am so sorry to hear that you are having these seizures. Zithromax has been a very good abx for my daughter with little or no side effects. Hope that you have the same response to it. It's great that you only have to take it 1x a day also. Let us know how you make out on this new combo.

On another note, a neighbor of mine whose sister was recentently diagnosed with MS is considering Lyme as a possible culprit. She lives in Toms River, so in a heavy tick endemic area. I remember a few months back when you answered a post in seeking Dr's about a LL Neuro. in Neptune. Can you pm me with that info. I am very concerned for this young mother.

Thank you!!

Posts: 263 | From Georgia | Registered: Feb 2006  |  IP: Logged | Report this post to a Moderator
seibertneurolyme
Frequent Contributor (5K+ posts)
Member # 6416

Icon 1 posted      Profile for seibertneurolyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Heather,

Makes me wonder if the same thing didn't happen to hubby several times in the past. I know there were at least 2 or 3 times I left him in bed and ran to the grocery store and came back 30 minutes or so later and found him passed out in the floor.

I thought he was trying to get up to go to the bathroom and was too weak to walk that far. It sure was a job to clean him up (he had lost bladder control as well) and get him back into bed while he remained unconscious. Can't remember, but this may have been while we were doing IV Rocephin -- his 1st antibioitc.

Anyway, read my post on the thread Achey posted about her seizures.

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=045436

Hope you can figure out the cause as I know just how scarey these symptoms can be.

Bea Seibert

Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
ArtistDi
Frequent Contributor (1K+ posts)
Member # 2297

Icon 1 posted      Profile for ArtistDi     Send New Private Message       Edit/Delete Post   Reply With Quote 
I had seizures for three years, and you do need
to be on a seizure medication until the antibiotics can eradicate more of the problem.
Do you see a neurologist at all?

Bladder control loss is consistent with seizure
activity. I used to experience auras during the
day--smells that were not there. For example,
I would smell gasoline or oranges in my bedroom,
and this would be a clue that I would be heading
into a seizure. My seizures came with falling
asleep or waking.

I hope you can see a neurologist as well as your
llmd, because you will need a med to help stem
them.

They are frightening, but as you gain control,
and can identify any symptoms that precede the
seizure, sometimes you can head it off.

Posts: 1565 | From Hatfield, MA, USA | Registered: Mar 2002  |  IP: Logged | Report this post to a Moderator
Michelle M
Frequent Contributor (1K+ posts)
Member # 7200

Icon 1 posted      Profile for Michelle M   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Goodness, Heatherkiss. You got me all worried here. How about adding some Topomax? Stops headaches, anti-seizure properties, and a pleasant side effect of weight loss, all in one pill? You take it at bedtime.

I'm keeping you in my prayers...

Michelle

Posts: 3193 | From Northern California | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
Marnie
Frequent Contributor (5K+ posts)
Member # 773

Icon 1 posted      Profile for Marnie     Send New Private Message       Edit/Delete Post   Reply With Quote 
They (researchers) think Depakote for seizures works by keeping the sodium channels open...preventing the influx of calcium. Sodium is more "reactive" than calcium.

This is why strobe lights/fluorescent lights can trigger a seizure...has to do with interferring with the calcium channels.

Caution: Depakote can be really toxic to the liver. Watch ALT liver enzyme levels.

This IS what is happening in lyme...too much Na and too many hydrogens IN the cells = metabolic acidosis.

The Mg-Ca and Na-K pumps are kapoot.

This maybe due to too little ATP...the energy carrier.

Bb needs phosphorus to make ITS ATP.

It's taking ours.

ATP is one thing that will drive the Mg-ATP pump...Mg will only enter the cells to lock onto the matching # of ATP as Mg-ATP.

Lecithin (phosphorus + choline) might help...a lot. In more ways than one. Once a day is likely not enough.

Posts: 9402 | From Sunshine State | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
Monica
Frequent Contributor (1K+ posts)
Member # 224

Icon 1 posted      Profile for Monica     Send New Private Message       Edit/Delete Post   Reply With Quote 
So sorry to read about this, Heather!

Hope it's your last seizure forever.

Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789

Icon 10 posted      Profile for HEATHERKISS     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks everyone! So nice.... I'm all choked up!

This is the first time I had 4 pms waiting and it's been a long time since I had a popular post.

[woohoo] I really love you guys.
 -

I'm sick in the head too. [kiss]

Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
Andie333
Frequent Contributor (1K+ posts)
Member # 7370

Icon 1 posted      Profile for Andie333     Send New Private Message       Edit/Delete Post   Reply With Quote 
Heather,

I'm hoping your LLMD's strategy is successful in getting you past this.

I can only imagine how scary it must have been for you.

Hope you're doing better now and just wanted to let you know you're in my thoughts.

Andie

Posts: 2548 | From never never land | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.