LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Fibro & Fatigue Centers?

 - UBBFriend: Email this page to someone!    
Author Topic: Fibro & Fatigue Centers?
Foggy
Frequent Contributor (1K+ posts)
Member # 1584

Icon 1 posted      Profile for Foggy         Edit/Delete Post   Reply With Quote 
http://www.fibroandfatigue.com/index.php

Anyone been? LL?

Posts: 2451 | From Lyme Central | Registered: Aug 2001  |  IP: Logged | Report this post to a Moderator
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196

Icon 1 posted      Profile for Silverwolf     Send New Private Message       Edit/Delete Post   Reply With Quote 
Heylloooo <<<<< Foggy >>>>> *[W/hope that we can discuss here, and not on the 'Dr. Finding Board'.if there is a difficulty please let us know].*

*I'm perhaps overly cautious, haven't been to the Fibro&Fatigue centers yet,but if we don't get satisfactory results from Team NN in Utah [posted over on 'general' about the problems]. we may be checking them out.Their literature seems to suggest at least soem Lyme Awareness. I will be checking furhter,if I find out more I could perhaps pm you?! Double check w/ me please as my brain gets to ridin' in confusion clouds.

Silverwolf loco-lobo-lady![Ps Im usually gone over the weekend].

--------------------
2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain.
[ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94
Diabetes*2 Dx 10/'08

Posts: 3467 | From SE Idaho | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Some here have said that's where they got diagnosed!!! Why don't you do a search here. It's been discussed several times in the past 2 months.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 94592 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
snowboarder
LymeNet Contributor
Member # 6346

Icon 1 posted      Profile for snowboarder     Send New Private Message       Edit/Delete Post   Reply With Quote 
There were a few people I met at the CO support group meeting who had been diagnosed at these centers. They're pricey from what I've heard. Cost is about $1,000.00 a month and they don't bill insurance...your on your own.
Posts: 738 | From Colorado | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
Foggy
Frequent Contributor (1K+ posts)
Member # 1584

Icon 1 posted      Profile for Foggy         Edit/Delete Post   Reply With Quote 
I had a feeling this was a for-profit endeavor after hearing the ads on radio.
Posts: 2451 | From Lyme Central | Registered: Aug 2001  |  IP: Logged | Report this post to a Moderator
cutie
LymeNet Contributor
Member # 8468

Icon 1 posted      Profile for cutie     Send New Private Message       Edit/Delete Post   Reply With Quote 
I went there for about 6 months. That is where I was dx with Lyme Disease. however, i am now w/o health insurance and being treated right now by a lyme empathetic but not LLMD.

As soon as I get some decent health ins. I'm going to find a good LLMD even if I have to travel.

I feel like the centers are on the right track but always felt VERY hard pushed to buy their supplements, take iv treatments and take numerous expensive prescriptions.

It is very expensive and very salesy. It turned me off.

Cutie

--------------------
Cutie

Posts: 125 | From Atlanta | Registered: Dec 2005  |  IP: Logged | Report this post to a Moderator
foggedup
LymeNet Contributor
Member # 7415

Icon 1 posted      Profile for foggedup     Send New Private Message       Edit/Delete Post   Reply With Quote 
I was diagnosed though the FFC and had a lot of blood work that NO other Doctor would test for, Mycoplasma, Lyme, viruses, hormones, thyroid...

If you already have blood tests done, take them in and that will save $$.

I am in Fort Worth and just received a call this weekend saying that one of the Drs has left FFC to start his own practice once again. (this is off subject sorry) I wonder whats up. I will find out though...

I am very happy with the FFC for saying yes, you are sick lets find out why.

I am being treated by an LLMD, not at FFC, but since my LLMD is out of town FFC helps with blood work and will be doing the picc line.

M

Posts: 106 | From Texas | Registered: Jun 2005  |  IP: Logged | Report this post to a Moderator
mojo
Frequent Contributor (1K+ posts)
Member # 9309

Icon 1 posted      Profile for mojo     Send New Private Message       Edit/Delete Post   Reply With Quote 
I was at the FFC in MI for four months. I am happy I went - never suspected my Lyme and probably would not have gotten my diagnosis if I hadn't gone there. I have since moved on to a local "holistic" DO that has been agressively treating Lyme for three years as the Dr. at FFC had NO experience with Lyme.

My PPO BCBS reimbursed me about 80% of my visits and IV's but the supplements are VERY expensive (you can find them cheaper on line and most patients do). Overall, I'm glad I went there but I'm happier with my new Dr.

Posts: 1761 | From USA | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
FoggyLikeLA
Member
Member # 8170

Icon 1 posted      Profile for FoggyLikeLA     Send New Private Message       Edit/Delete Post   Reply With Quote 
I've been goin to FFC for about a year now. Here in LA its pretty much the only LLMD there is.

In FFC its all about research. They research all the latest abstracts, journals, and attend all the conventions to get the most up to date information on treating lyme. Beware, if your going there looking for ani-biotics, they will not give them to you right off the bat. They first do many tests to see how bad lyme has deteriorated your body then, they buld up your body, using hormones, IV's and supplements.

They are the only clinic that tested my serotonin levels. Once they stablize your body they hit you with anti-biotics pretty aggressivly, while contantly monitoring your body.

I have found that since I have been taking antibiotics, using there protocol i have not suffered any where near as bad as some of the people here. I have only improved.

My doctor was telling me that many patients just come to them for antibiotics and when he says not at first, they leave, but come back much later. FFC also holds conference calls with all the doctors in the centers constantly keeping up to date with each other in what has been working and going on. They seem pretty damn through with me, and I have been improving non-stop since being there.

I remember when they put me on rocephin, they immediatey put me on actigall, they know whats going on pretty well.

[ 21. July 2006, 06:49 PM: Message edited by: FoggyLikeLA ]

Posts: 31 | From Los Angeles, Ca | Registered: Oct 2005  |  IP: Logged | Report this post to a Moderator
AmandaPI
Member
Member # 5587

Icon 1 posted      Profile for AmandaPI     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have been going to F & F Center and seeing a DO for about five months. I already had a positive Western Blot and had had a recurrance after doing IV Rocephin and Leqequin (sp?)about two years ago.

The Dr. that I'm seeing tested me for tons of other things and found irregularities in my hypotalomus, thyroid, adrenal and female hormones.

I'm now taking a lot of new meds for these problems as well as clonopin and ambien for sleep and pain meds (yuck!, as well as anti-candida medication and probiotics.

I'm sleeping much better, less fatiqued but have severe pain problems.

The jury is still out about the outcome of my recovery and IV abx is most likely the next step again.

I do feel that they have been very thorough and am feeling more encouraged although my insurance has yet to cover anything except for the labs and the medication and the cost is expensive to see the Dr. at the center.

I hope others are having good luck with the FFC's.

Posts: 80 | From Salt Lake City, Utah USA | Registered: Apr 2004  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.