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» LymeNet Flash » Questions and Discussion » Medical Questions » Who will do co-infection testing and..

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Author Topic: Who will do co-infection testing and..
MarsyNY
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Member # 7766

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My first visit with LLMD he would not test me
for co-infections - said maybe down the road.

And would it not be better to have this testing
done before starting antibiotics. He has
prescribed 3000mg amoxicillin. I have not
started it yet as I am trying to figure this out.

I am wondering who I can get to do these tests
Any ideas?

MY PCP has refused as well. What about an
infectious disease MD?

Posts: 465 | From New York, NY | Registered: Aug 2005  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Most infectious disease drs do NOT believe in treating lyme past 4 wks. They also will not use Igenex labs.

I would find another LLMD as soon as possible, as this one may not work out. I read a statistic that said 85% of Lyme patients have coinfections...so not testing and treating for them is not in the patient's best interest!!!!

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--Lymetutu--
Opinions, not medical advice!

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Lymetoo
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up for help

--------------------
--Lymetutu--
Opinions, not medical advice!

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MarsyNY
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I cannot afford to start over with another LLMD

Any ideas for getting these tests done somewhere
would be greatly appreciated.

Thanks,

Marsy

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Lymetoo
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Go to a chiropractor. They can order tests. [in most states]

Then go to a lab [hospital or whereever] and have the blood drawn.

Maybe you can't afford NOT TO change LLMD's.

--------------------
--Lymetutu--
Opinions, not medical advice!

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MarsyNY
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TuTu,

Great idea, wish I had a chiropractor to begin with.

Maybe you are right that I cannot afford NOT to
find another LLMD..

Marsy

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Mathias
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Co-infection testing is critial. It saved my life.

What is "down the road", next month, two months, next year? Depends on what the answer is and if your LLMD actually has a plan.

An LLMD is not an LLMD if they don't believe in co-infections.

--------------------
Mathias

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bettyg
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Once you get someone to order the co-infection testing, make sure you send it to one of our BEST LYME/CO-INFECTION LABS! Igenex, MD labs, or Bowen
Bettyg [Big Grin]

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Lymetoo
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You know, most tests for coinfections are not any better than the lyme tests. My own babs test came out "borderline"...but when my dr treated me for babs, WHAM! I herxed terribly!! I definitely benefited from treatment.

So the real issue is WILL THIS DR treat YOU FOR COINFECTIONS?

--------------------
--Lymetutu--
Opinions, not medical advice!

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Cheryl
Frequent Contributor (1K+ posts)
Member # 75

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quote:
Originally posted by Lymetoo:
You know, most tests for coinfections are not any better than the lyme tests.

This is precisely why some LLMDs are not gung-ho testers. They follow the approach that it's better to treat based on clinical signs and symptoms, not unreliable lab results. They apply this to Lyme AND coinfections. People who are seronegative for Lyme or can't afford constant tests love this approach. Other patients want a lot of tests for a variety of reasons. That's why the choice of LLMD is so personalized.

[Smile]
Cheryl

PS. Some of the LLMDs who don't rely on testing will agree to run them anyway if you express how important it is to you personally. [Wink]

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