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» LymeNet Flash » Questions and Discussion » Medical Questions » still very scared

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Author Topic: still very scared
polar blast
LymeNet Contributor
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when I lay down to sleep i cant and I get eye twitching and sweating from the head..flashing lights and purple blurbs behind the eyes...I am so scared..did I ruin my brain stem?this is not normal...I will try to sleep...or then i am going to hospital...
eric

Posts: 593 | From long island ny | Registered: Apr 2006  |  IP: Logged | Report this post to a Moderator
Aniek
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Eric,

Are you still taking Mepron and Zith? If not, how long ago did you stop? It's very likely this is a herx from the Mepron and Zith.

How long ago did you stop the Art? I get a feeling it was weeks ago, am I right? If so, then my gut is that this isn't from the Art.

From the studies that were posted, it doesn't seem like you took a high enough dose and it seems like it gets out of the system pretty quickly.

What you describe sounds like it could be a migraine. Some people get migraines without headaches.

The twitching and sweating both can happen from Babesia. So that suggests a herx.

I know this can be frightening. But symptoms can get much worse before getting better. I had a lot of motor tics come out when I was on Zith. I also had insomnia for a while on Zith.

Nothing I go through with Lyme and coinfections is normal. You'll soon figure a new relative of normal in all of this.

--------------------
"When there is pain, there are no words." - Toni Morrison

Posts: 4711 | From Washington, DC | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
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Here is my email address..

Email me your number and I will call you if you think it would help.. but keep in mind I am NOT a doctor.

[email protected]

If you feel you need to go to the hospital.. please go.

Then let us know how you are when you get home.

OK?

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20352 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Vermont_Lymie
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Hi polar,

sorry that you are still feeling so awful sick.

Not a doctor but --

I do not think that you damaged your brain stem, because you would not be able to write these posts if you had. It may be a medication reaction.

Can someone help you to go an emergency room?
Or is there someone you can call to stay with you tonight?

I hope you try to get some rest tonight -- and keep us posted.

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minimonkey
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I'm guessing the head sweating is a herx-reaction from the babesia -- I had that a lot before I started treatment for babs.

As for the rest of it, I've had *all* those reactions during a bad herx (and before diagnosis, too)....lyme certainly affects the central nervous system quite a lot, and herxing can cause those symptoms to flare a great deal.

I'd certainly call your LLMD, but I thought you might feel reassured that I've been through something similar.

When I herxed from Ketek (rather similar to zith) I had a lot of scary neuro stuff, including feeling confused, word finding problems, etc.

Hope you feel better soon.

--------------------
"Looks like freedom but it feels like death..
It's something in between, I guess"

Leonard Cohen, from the song "Closing Time"

Posts: 822 | From California | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
cantgiveupyet
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Hello Eric,

I would call your LLMD first thing in the morning to let them know what is going on. They may recommend stopping the meds for a lil bit until things let up a bit.

Ive had smilar things happen to me while on antibiotics.

I had very scary chest pressure, paralysis, and breathing problems.....i swear i thought i was dying. but when i stopped the antibiotics things got a lil better then i started back up again slowly.

Try to hang in there best that you can. Drink water and get lots of rest.

Hang in there!

--------------------
"Say it straight simple and with a smile."

"Thus the task is, not so much to see what no one has seen yet,
But to think what nobody has thought yet, About what everybody sees."

-Schopenhauer

pos babs, bart, igenex WB igm/igg

Posts: 3156 | From Lyme limbo | Registered: Oct 2005  |  IP: Logged | Report this post to a Moderator
bigmamma
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Hey polar,

I hope you got some sleep and called your LLMD. I am concerned about you. With lyme meningitis I had most of your same symptoms.

Check in with us to let us know how you are doing.

(((Hugs)))

--------------------
 - Some day, this mamma's gonna dance!  -

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kumba
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Polar,
Please let us know how you are doing and if you contacted your LLMD.

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polar blast
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just got back this morning...last nite i went to the er and they watched me while i slept...I did not think that i would mke it and was very worryed..the heart beat was going up to 100 sometimes...also when i sleep i get the sensation of my lungs not working to capacity..i had this when i was acute three years ago..well would you know I slept like a baby..I did no have the gasping for breath..i had some myclonic jerks but that was it..sometimes i feel like I am falling into a wierd sleep and it is frightening but then i remeber alot of times that I had this sensation..in 1993 i would wake up and see all red...how is that for a bummer..well I am going to try to go to work and work off the toxin left behind..
eric

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Michelle M
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Thanks for checking in, Eric.

I wish you had someone who could stay with you when the going is rough! I hope you did not have too bad a time with the ducks in the ER; it wouldn't be surprising to find that most of them haven't got a clue about lyme and haven't even heard of babesia.

I hope you are going to get in touch with your LLMD today and get his advice about how to continue because I really want you to get rid of this stuff and come out the other side. Let us know what he says, okay?

And don't be afraid to use a sick day!!

Michelle

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Aniek
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eric,

I'm wondering if you are in a cycle of really scary symptoms and anxiety that make the symtpoms worse.

I am not saying it's in your head. But maybe the reason you slept well at the ER was that you were relaxed, because you knew you were being monitored.

I have asthma, and there is a huge emotional impact on the attacks. If I start to worry about not being able to breathe, then my asthma gets worse. It's all real, but controlling the anxiety can help control the asthma.

Now Lyme can cause anxiety. I also know that a herx on Zith can cause anxiety, which I think you are taking. Plus, the symptoms you have and the stress of Lyme, etc. alone can cause anxiety.

You may want to talk to your LLMD about this. Maybe helping to control anxiety, through either medication, therapy or relaxation techniques, will help you through this time.

I hope you at least got good rest last night at the hospital.

-Aniek

--------------------
"When there is pain, there are no words." - Toni Morrison

Posts: 4711 | From Washington, DC | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
polar blast
LymeNet Contributor
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tin cup and everyone on this board a deep and heartfelt thanks for bieng there...I truly did not think that I would make it..but I am still here...the docs at the hospital know me very very well..I have been there about no joking 50 times for lyme...they just dont know about it..
it was nice to be watched as if i had any trouble they would be there..all day long i have had a racing heart and that is not normal for me..so once again thanks...now the reason that i was at the hospital last night is because of an idiot named wormser...yea three weeks...
eric

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char
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Hi Polar,

Hope you are feeling a little better.

My daughter has the racing heart problem.

She got diagnosed with POTS. A severe problem with blood pressure. Not enough blood getting to tissues can cause adrenal glands to kick into
overdrive which causes the heart to pump faster.

POTS causes depression, insomnia, and stomach problems, also dizziness. Very pale.

The doctors missed the signs in my daughter and we thought all the above were from the lyme.

She is much recovered with getting this diagnosed and treated.

An idea for you is to interview cardiologists and find one that specializes in POTS and believes in lyme. Actually the POTS can be easily treated, I imagine, whether the dr is totally up with lyme as the tests are objective.

The dr. pushed upwards on her trunk and asked her if she felt more clear minded and she did because of getting some blood flow to the brain.

She said yes immediately, which is amazing. Then he asked, "Do you feel happy?" She couldn't tell because he was pressing so hard it hurt some.

Anyway, just trying to think what might help you out.

Best Wishes,
Char

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5dana8
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[group hug] Polar blast [group hug]

Everyone has given such good advice already, that I don't have anything else to add,

just wanted to send you some healing prayers & hugs [kiss]

--------------------
5dana8

Posts: 4432 | From some where over the rainbow | Registered: Sep 2005  |  IP: Logged | Report this post to a Moderator
   

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