LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Felt like herx from hell

 - UBBFriend: Email this page to someone!    
Author Topic: Felt like herx from hell
spookydew
LymeNet Contributor
Member # 8432

Icon 1 posted      Profile for spookydew     Send New Private Message       Edit/Delete Post   Reply With Quote 
I started guafenesin protocol for orthostatic hypotension. Then, I added eye antibiotics to see if change in visual disturbance. In four days it felt like I was having herx from hell.

I thought I was going to bite the dust. Every bone in body ached even my skull. Every gland was swollen. Lumps popped up all over and they hurt too. Got fever 101. Didn't sleep for 2 days. I was up every 2 hours reheating hot pack. Could not get rid of pain.

It seems that this happens on the guafenesin protocol if you have fibromyalgia.

The lumps down my groin scared me. Thought I had cancer.

I told my husband that I finally killed myself. Then when I studied more and saw it was normal, I told him that it looked like I might live.

Posts: 290 | From ohio | Registered: Dec 2005  |  IP: Logged | Report this post to a Moderator
TerryK
Frequent Contributor (5K+ posts)
Member # 8552

Icon 1 posted      Profile for TerryK     Send New Private Message       Edit/Delete Post   Reply With Quote 
I've been on the protocol for almost 7 years and one who has had improvement in my orthostic problems with the guaifenesin protocol. The idea is to be on a dose that makes one feel "tolerably worse". You may need to move your dose down or change the form of guaifenesin (short acting/long acting or some combination) or your dosing schedule. If you need help figuring out your dose or anything else regarding the protocol, go here and join the group and they will help you.
http://www.psha-inc.com/guai-support/

You do not need to suffer horribly although it does cause herx symptoms for many who have symptoms that are consistent with fibromyalgia. The doctor who developed the protocol says it is not a herx but many on the protocol feel that it is.

I had cyclical herxes for the first several years. I had large hard lumps that went away. They got soft, hot to the touch and disolved. I also got a metallic taste in my mouth and via muscle testing needed a lot of metal detox products.

Feel free to e-mail me.
Terry

Posts: 6282 | From Oregon | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.