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» LymeNet Flash » Questions and Discussion » Medical Questions » I'm new to this site am looking for answers.

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Author Topic: I'm new to this site am looking for answers.
Libora
Junior Member
Member # 11099

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Hello everyone. I had 9 ticks pulled from me over a 3 year period. One was embedded in my middle back over night and because I was so achy all over that evening I put a heating pad on my back and tried to get relief and sleep, because I was to leave for NY city the next morning. When I got up to shower and try to make sense of how I was to go anywhere because I had so much pain, I caught a glimse of my back in a mirror and WOW - there was the dark spot, but there was a giant red ring on my whole back! I was incubating the little sucker. Long story short, I asked for titter and even western blot because of so much exposure that summer but all were negative. Now 3 years later, I have been diagnosed with Fibromyalgia. The pain is unbelievable and my knees and legs and back are the worst. Should I be asking form more tests? I'm finding out that the doctors I go to are treating me like it's all in my head? I have an appointment with a new doctor early in Feb. How can I be sure to get someone to pay attention to this? Thank you all for being here. These discussions are so valuable.
Posts: 1 | From Delmar, New York | Registered: Jan 2007  |  IP: Logged | Report this post to a Moderator
Troup Brazelton
LymeNet Contributor
Member # 6297

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Find some one who is an LLMD and explain your history, ring and all. Tesing should be done, but lyme is a clinical dx and testing only confirms lyme and finds other diseases call co-infections that also need to be treated. Hopefully you can start on some abx right away. Watch for the herx, that just means more pain if that is what you are currently experiencing. At least you will know something is going on.
Posts: 219 | From Aubur,Al. USA | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
Lisianthus
LymeNet Contributor
Member # 6631

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If you had a known tick attachment and a bulleye rash that is diagnostic alone for Lyme Disease!


The sad thing is most doctors are idiots when it comes to any knowledge about Lyme. They should have least put you on 6 weeks of abx(antibotics) just for having a known tick bite/rash.


My advise.... get a LLMD (lyme literate medical doctor) who can start treating you before you get any worse. Also read "Newbie Help Links" it will explain everything from testing to the
politics of Lyme.


Go to "seeking a doctor" section and post there someone will come along with a LLMD nearest to you.


Good luck,
Lisi

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Posts: 986 | From Michigan | Registered: Dec 2004  |  IP: Logged | Report this post to a Moderator
treepatrol
Honored Contributor (10K+ posts)
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Get your butt to a LLMD you have lyme !!

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Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
Beverly
Frequent Contributor (5K+ posts)
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Ditto to all above, find a LLMD asap!
Posts: 6626 | From Michigan | Registered: Jun 2001  |  IP: Logged | Report this post to a Moderator
tdtid
Frequent Contributor (1K+ posts)
Member # 10276

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I too was diagnosed with "fibromyalgia" but never even saw a tick or got a bulls eye rash. As the others say, get to a lyme specialist and they will run labs from Igenex.

It is NOT in your head. If you need a doctor, post a note in the doctor section and please make an appointment.

There's no need to suffer from "fibro" since most all of those cases are lyme anyway. Good luck.

Cathy

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Lymied
LymeNet Contributor
Member # 6704

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I was diagnosed with Fibro and CFS - took extended antibiotic therapy and all of my 'sore points' that pointed to fibro are gone.

Now, I am just trying to pull myself out of the lyme, babesia, ehrlichia hole I was thrown in by all the misdiagnosis.

Get to an LLMD asap and get proper diagnosis and treatment. Sorry to hear you are sick.

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Pride is concerned with who is right. Humility is concerned with what is right. - Ezre Taft Benson

Posts: 655 | From NC, Exit 88 on the Deer SuperHighway | Registered: Dec 2004  |  IP: Logged | Report this post to a Moderator
humanbeing
LymeNet Contributor
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Get some doxy right away then find a lyme doc, get tested and buckle up for a bumpy ride...come here often!

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Posts: 906 | From CT | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
hatsnscarfs
LymeNet Contributor
Member # 6562

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You're in the right place now. It's not in your head, it's real, it's lyme & it's hard to get treatment.

You'll find tons of info here on LymeNet to help you. Take time to start reading the Newbie Links and start seeking a LLMD to treat you.

I've been here for a few years and I'm getting better. I've learned so much here on LymeNet and thanks to the help here & my LLMD I'm finally pain free most of the time.

Welcome -
hats

Posts: 956 | From MA | Registered: Nov 2004  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

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quote:
Originally posted by Libora:
How can I be sure to get someone to pay attention to this?

By finding a dr who is adept at diagnosing and TREATING Lyme adequately.

That would be an LLMD.

Did you post over in Seeking a Doctor yet??

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--Lymetutu--
Opinions, not medical advice!

Posts: 95978 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
   

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