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» LymeNet Flash » Questions and Discussion » Medical Questions » Skin burning

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Author Topic: Skin burning
BJG
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Hi,
Has anyone tried essential oils to treat skin burning?

Has anyone had any luck with ANYTHING that reduces this terrible pain.

Thanks
BJG [woohoo]

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TerryK
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Mine got a lot better since I've started abx.
Terry

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BJG
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Terry,
What ABX helped?
thanks
BJG [woohoo]

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Allie
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I have had terrible skin burning and I got some temporary relief with SARNA lotion (the one with camphor and menthol -- not the unscented variety). It was suggested to me by an allergist. I can buy it in the pharmacy in the first-aid section.

There are no steroids, so can't hurt.

I have no financial interest in whatever company makes it... [Smile] In fact, I have next to no financial interest in any companies that make anything.

Allie

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Foggy
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Abx was the only thing that helped. Neurontin was not helpful & the side effects were hard to take.
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TerryK
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I noticed a big difference with minocycline but I got hyper pigmentation with that so had to stop. Now I'm on doxy which is also helpful but I still have some burning in my feet. When I started abx I had severe burning in my feet, hands, nostrils and other areas.
Terry

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Areneli
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TerryK,
If you take vitamin C with Mino you will likely be fine: no more new hyperpigmentation.

Also this pigmentation after Mino is not permamenent and will eventually go away on its own.

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she7
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I used silver sulfadiazine cream (RX for burns) when I had burning and itching during my first treatment with antibiotics. It really helped- I don't know why.
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canbravelyme
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Flagyl gives me some relief; I can feel the relief within 20 minutes of my first dose; it was like someone had come and taken a mister and misted me with a few sprays.

Flagyl has been a miracle for me ITO symptoms. I have excruciating abdominal pain that is relieved, as well as the burning - horrible burning.

I've been back on 1gm/day (4 doses) for about a month and a half. The burning is quite relieved.

--------------------
For medical advice related to Lyme disease, please see an ILADS physician.

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clairenotes
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I had burning in my scalp area off and on for several months and sometimes it was accompanied by some minor hair loss. I felt that my burning sensations were due to die-off based on timing of anti-microbials, etc.

In December I began using an essential oil blend and noticed that it often took away the burning sensations. I had been rubbing it on my scalp to help with neuro sx in general, and this result was completely serendipitous.

I am not sure it helped each and every time, which leads me to believe that some die-offs respond to these particular oils, others might not. Whether my understanding of these events is correct or not... as they are not scientific, but just personal observations, the oils did help.

Claire

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BugBarb
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The burning thing, or even better, the feeling of someone pouring warm water on your skin...and it is invisible....all is neurological. In small areas the topical stuff probably helps and smells really wonderful,,aromatherapy...
Otehrwise, like me all body problems take skystmic solutions...antibiotics, neurontin, lyrica.....questran, to remove the toxins.

--------------------
Lyme is like the flu. You can get it and recover, but you can always get it again.

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bettyg
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hi belva,

YOUR MAIL BOX IS FULL; clean house please so others can reply back to you.

also, if you want to keep messages, keep them in your HOME INBOX FILE FOLDERS! then delete what's in PM box.

OR BLOCK COPY YOUR ENTIRE POST IN "PM" BOX, and send to yourself in your HOME INBOX to file in that folder! i set mine up as "lymenet friends". i keep everything there except for a few things with specific other names!


belva, you can PM me after you've cleaned house and i'll send you my newbie links! i know you've been here a long time ... but other advise, long symptoms list, IGENEX TESTS, disability, etc.


i personally have NOT had burning skin you all talk about unless it's my BURSITIS that they are calling it in my both thigh areas! they are working a cream into my skin, and i start again at clinic next week after 6 home treatments.

so perhaps would that be considered BURNING skin; i can't stand having material over that area, and keep my FROZEN ICE PACKS in a terry towel over it just numbing those areas.

thanks also for asking how i'm doing; every day is better than the previous day. sat outside tonight reading newspaper and talking to my young neighbor kids who are like our grandkids! [group hug] [kiss] [group hug]

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dlp252
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I tried to reply to your PM but it said your mailbox was full.

Yes, I still do have the burning skin. It feels exactly like I have a bad sunburn but there is no redness or mark of any kind. My hair touching my neck will be enough to set me on edge!

It started to get bad a few months ago. Before that, I only had it once in a while.

Sometime last year, it started happening more often, and in the last few months it's been almost everyday.

I haven't started treating the lyme yet so can't tell if that will help. I'm starting on some herbal stuff today, which was suggested to me specifically for the lyme, so I'll see if that helps.

In the last week or two the burning has been less severe. Haven't figured out why yet. [Frown]

So far, nothing works...creams, lotions, nothing. [Frown]

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Kathi
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Hi,
my LLMD said that the reason for this burning are heavy metalls. So now I`m chelating...thank goodness I had no amalgam fillings or this would have been really costly to fix. The burning has eased a bit, but is still there, especially at night. Kathi

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dlp252
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quote:
Originally posted by Kathi:
Hi,
my LLMD said that the reason for this burning are heavy metalls. So now I`m chelating...thank goodness I had no amalgam fillings or this would have been really costly to fix. The burning has eased a bit, but is still there, especially at night. Kathi

Well, that COULD certainly be it in my case too. I just had the last of 11 amalgams (6 of which were covered by gold crowns) removed in January/February.

I have not begun chelating yet either...hoping to hear more about when I'll start on my next LLMD visit.

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CaliforniaLyme
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The last of my burning spots was this one spot under my left eye that went away with treatment for Bartonella.

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

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BJG
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Hey All,
Gee, sorry that I had not cleaned out my mailbox, but then again I guess one must know there is a mailbox- I am very slow!!!
LOL
It is cleaned out now, thanks for the instructions.

Thank you for all of your responses, although I was really hopeing that you were all doing well and not having the terrible burning.

I just don't get why, with all of us working on Bb and Burning that we cannot beat it.

Do any of you Rife?
If so, has that helped?

Peace,

BJG

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WildCondor
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Lyme and babesia treatment combined plus HBOT made my skin burning go away for good. It used to be horrible burning all over my face and ears.

Meds such as Biaxin, mepron, flagyl etc. all worked well.

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davidx
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This topic seems to come up every so often which is good because I wrestle with skin sensitivity/burning.

The "odd" thing regarding my skin issues are that I generally only have pain when clothing touches my skin in certain places. For example, sometimes the collar of a shirt really burns/hurts my neck or my pants can feel like sandpaper on my legs.

I went through many tests and have been diagnosed with "peripheral neuropathy" through a skin bopsy that was done. It showed reduced nerve fiber density or something like that.

This really is a very frustrating symptom to deal with so I feel for all of you who have to deal with this.

-David

--------------------
Same nightmare, different day!

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BartonFink
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I also have this and it's the most awful symptom. Has anyone else noticed that it gets worse soon after eating?

--------------------
Please dont suggest "ask your LLMD" because we dont have them here in this country... [Frown] I just have to count on you fellow patients. [Smile]

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klutzo
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My burning does not seem to get worse after eating, but it definitely gets worse at night. Sometimes I have no buring at all during the day, and about 4 PM it slowly starts to creep up, until it is unbearable by 8 PM.

I do notice that in my case the burning is often associated with higher blood pressure, chills, more palpitations, and brief runs of atrial fibrillation, as well as agitation to the point where I pace back and forth.

Klutzo

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chamade
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Mine pretty much disappeared since I started taking doxycycline. Mine was neurological in nature and accompanied/preceded by tingling. Is this what you mean?

--------------------
Why me? Well, why not me???

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Areneli
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****Hey All,
Gee, sorry that I had not cleaned out my mailbox, but then again I guess one must know there is a mailbox- I am very slow!!!***

Hey BJG,
It would be also nice if you read the responses you get.
System tells me that you have never opened my responses to you dated as far back as January 2007.

Sorry, no more responses to you until you get clear.

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davidx
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For those of you reading this thread, you should check out this other thread regarding the lemon drink. I plan to start it tonight or tomorrow to see if it provides any help.

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=055552

-David

--------------------
Same nightmare, different day!

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BJG
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Hi everyone,
Thanks for all the invo, just wish it woul have gotten us whole. sure wish we had been healed. [bonk]

I apologize to anyone that I did not respond to due to my STUPIDITY in not knowing about my Mail box. {stop shaking your heads}

Anyway they are all read, some saved, but all read.

There has been some info written about Homeopathic and Lyme, skin nurning, nunb ness, tingeling.

Stay safe===


SHALOM,
Belva

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BartonFink
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quote:
Originally posted by klutzo:
Sometimes I have no buring at all during the day, and about 4 PM it slowly starts to creep up, until it is unbearable by 8 PM.

Same here. Almost always worst in the evening.

--------------------
Please dont suggest "ask your LLMD" because we dont have them here in this country... [Frown] I just have to count on you fellow patients. [Smile]

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Areneli
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My PM box notifies me that my message to you have remained unread by you. It is marked "Unread by Recipient"

Psano, daystar1952 are other users who wanted my input at some point of time and have never read my response.

Very strange! Why did they ask than in the first place?

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klutzo
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Hi DAVIDX - I've been putting the lemon in my water for years, and it has not helped the burning one bit. Does it help yours? I also eat mostly raw salads and raw fruits, which are alkalinizing as well.

- - - - - - - - -- - - - - - - - - - - -- -

Hi BARTON FINK - Do you think it could be related to our off kilter circadian rhythms? Or maybe a daily hormonal fluctuation? I've tried to find out what hormone could cause red skin.

Asking ducktors about these sx resulted in 4 urine and 2 blood tests for something called carcinoid cancer. I did not have it. It is a small tumor that pours out catecholamines, like adrenalin and serotonin. What I don't get is why someone who does not have it would be pouring out adrenalin every evening.

Klutzo

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BartonFink
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quote:

Hi BARTON FINK - Do you think it could be related to our off kilter circadian rhythms? Or maybe a daily hormonal fluctuation? I've tried to find out what hormone could cause red skin.

Asking ducktors about these sx resulted in 4 urine and 2 blood tests for something called carcinoid cancer. I did not have it. It is a small tumor that pours out catecholamines, like adrenalin and serotonin. What I don't get is why someone who does not have it would be pouring out adrenalin every evening.

Klutzo [/QB]

I wish I knew. It's interesting that you mentioned hormones. I just read from the net about a guy who had had burning skin for 2 years. A hormone drug called Danazol took away the burning. He probably didn't have Lyme though.

--------------------
Please dont suggest "ask your LLMD" because we dont have them here in this country... [Frown] I just have to count on you fellow patients. [Smile]

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davidx
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Klutzo-

I just got through day #3 of drinking the lemon drinks. I'd love to say after 3 days all my symtoms are gone...but...not yet! I'll be sure to report back after 2 weeks are up and let you know if I notice any difference.

-David

--------------------
Same nightmare, different day!

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lymeHerx001
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Muscle relaxers helped a little.

Lyrica is scary.

Anti-candida diet helped.

My feet are BURNING now. You know why?

MOLD.....thats right, I have mold in my house, small amounts, but just breathing it in makes my feet burn.

UHHH DAMN DiSEASE. Im hoping yeast treatment will help.

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TerryK
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Areneli wrote:
quote:
TerryK, If you take vitamin C with Mino you will likely be fine: no more new hyperpigmentation.
Thanks Areneli but I was on 3 grams of Vit C per day and had been for several years when this happened.

Areneli wrote:
quote:
Also this pigmentation after Mino is not permamenent and will eventually go away on its own.
Good to know. It's been 7 months and it is only slightly better. The info I read said it may or may not go away. I hope it goes away but if it doesn't, it's not the end of the world.

Terry

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Areneli
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A mouse wouldn't get hyperpigmentation from Mino if given vit C at the time.
Strange than that you got it.

I guess you are not a mouse.

My dermatologist caused many patients to develop hyperpigmentation and all after long time recovered.

[ 14. June 2007, 11:07 AM: Message edited by: Areneli ]

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HEATHERKISS
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Oh my,

Burning and itching can drive you insane!
It definately is worse at night.

After showering and after meals can be brutal
also.

I'm on the anti yeast diet. Lost 6lbs so far.

Don't worry I won't be too skinny anytime soon. I could lose 50lbs and still look good.

Love and healing,

--------------------
HEATHER

 -

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BJG
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Hey,
I too am doing the Lemon/Olive oil.

Dave, keep me informed of your progress.

I spoke with Dr C this morning.
He still beleives the burning is from Toxins.

Have any of you tried IV Chelation?

Have any of you made any progress made with Actos/questran?

Please pray that he has a pos expereince with the Mo Board in July.
He truly cares.

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TerryK
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Areneli-Thanks for posting the Vit C info, it didn't work for me but it might work for someone else. I was guessing that in my case, the fact that I wasn't detoxing well according to tests that my LLMD ran could be why it developed but I really have no idea. I read on a university cancer site that those on chemo sometimes get hyperpigementation.

BJG - I've been on actos/CSM since I started abx so maybe it wasn't the abx that helped so much with the burning, but instead perhaps it is the actos/CSM.

Terry

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Areneli
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I used CSM for months. Helped me a lot for many things BUT NOT for this symptom.
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charlie
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The questran (csm) did help me with the burning feet...I guess we're all different.....
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randibear
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you know several years ago, i hit my foot against a chair. i got an electrical shock all the way up to my hip. several days later my foot started to burn so badly i couldn't touch it. then it started turning colors, blue and red mostly.

it hurt so bad i couldn't walk, stand a shoe on, sheet, anything.

then it went to my left hand. the burning was excruciating.

i was diagnosed with rsd (reflex sympathethic dystroply) and underwent 13 cervical and lumbar blocks.

i don't know if they had steroids in hem or not.

i'm wondering if anyone would know if maybe that was lyme acting up or was it actually RSD?

has anyone else ever been diagnosed with rsd? sorry if you've already responded, but i can't remember.

--------------------
do not look back when the only course is forward

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Cobweb
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^
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BJG
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Hey,
RSD is certainly real.

I think it is difficult to determine the diffrence at times.
Basically RSD {to my understanding} is progressive.

As quirky as Lyme is who knows!

I went to a RSD/PAin specialist in Wis before I was diagnosed.
I used a machine called the Dynatron STS mfor 2 weeks. Bought the machine and used it for 4 months.

It did not help me, but I saw many people helped.

I have used Questran 2 different times, each thru a whole can.
I can tell no difference.

I think the can lasts about two months.
The first time I went thru 2 cans.

Enough Time??? [bonk]

No difference.

My LLMD says toxins, but I wonder if it is something else.

Couldn't be the Cyst form Lyme in the brain/nrain area?

Mine also started with Mild tingling in one finger-
Within 7 months it had moved ALLL over my body and was accompainied with extreme twitching.

I was an electrical curcuit gone haywire.

Any info I will appreciate.

And my mailbox is updated-lol

I gues one needs to know they have a mailbox to clear it out- DUH [bonk]

LOL

Peace,
B

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DolphinLady
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The photonic stimulator has completely and permanently cured my neuropathy - thank goodness!

Go to CTI-net.com for more info if interested.

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BartonFink
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Just curious: at what time of the day is this burning worst for you? For me its always the evenings, maybe between 6 - 9 pm.

--------------------
Please dont suggest "ask your LLMD" because we dont have them here in this country... [Frown] I just have to count on you fellow patients. [Smile]

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BJG
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HI DL,

I may be slow, but at that site I could not find a ph number to call them. I did email them, but have not received a response.

My objective is to find a practioner.
I really want to give this a try.

Thanks
B

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DolphinLady
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BJG,

The number is 801-776-4700. Good luck and keep me posted.

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BJG
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thanks- [hi]
I will keep you posted [hi]

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BJG
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Hey all, [group hug]

My burning appears to mount thru-out the day. Late afternnoon is the worsed.

I think my burning is minimized by lying down.
When I get in the fetal position, neck bent forward, it sometimes reduces the burning.

For this reason I had a C-3,4 fusion, thinking it was a disk problem. This was before the Lyme diagnosis when the docs were just plain confused and searching for an explanation for the pain and twtiching.

they fist considered MS.

Of course at night. when we are still, [sleepy] the world is quiet we have no mind distractions, so the pain may seem to intensifiy.

Mornings may have less pain due to :

1. night meds have night worn off
2. we have not triggered/irritated the skin yet

as the day progresses there is more potential for pain by clothes, pressure {walking, sitting} on the skin, which for me, increases the pain.

There have been nights when the pain is out of control.

I take elavil at night 25 mg.

Peace,
BJG

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