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» LymeNet Flash » Questions and Discussion » Medical Questions » Recovery or Remission?

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Author Topic: Recovery or Remission?
canbravelyme
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What is the lastest thought on this? I used to believe that I would be "cured" (which is a good mindset to focus on). But I'm wondering whether the general consensus these days is for remission, with maintenance abx?

Best,

canbravelyme.

--------------------
For medical advice related to Lyme disease, please see an ILADS physician.

Posts: 1494 | From Getting there... | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
Geneal
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Dear Can,

My LLMD says "remission". He says he has seen too many cases of Lyme

go dormant or in remission for 5, 6 or more years to come back.

Of course, he adds, had we caught this when you got bit by a tick, then you can be cured...

Great...never saw a tick....never had a rash.

I pray for a "cure" from Lyme, but won't be disappointed if this is something

I may have to deal with off and on for the rest of my life....

Hugs,

Geneal

Posts: 6250 | From Louisiana | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
canbravelyme
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Thanks, Geneal.

It's funny, I'm willing to live with the remission notion as well - something I refused to entertain for the past 2 1/2 years when I began suspecting Lyme (I'd already been disabled for 1 year prior to that, with no diagnosis). Perhaps it's a question of negotiating with the devil...OK then, you can live here, but _I_ get to manage you, OK? VS: Get the hell out!

Maybe until a "cure" is found we just have to accept that human life is in "relationship" with one _serious_ parasite, and that's just the "deal"?

Looking forward to hearing other people's thoughts.

With best wishes for a speedy recovery for all,

Alyssa.

--------------------
For medical advice related to Lyme disease, please see an ILADS physician.

Posts: 1494 | From Getting there... | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
treepatrol
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Iam startng to think this is a mute point anymore.
Reasons why because mosquitoes, fleas,ticks,blackfly,all known to carry the spirochetes thus just the possibilities of being reinfected are now really high.

What is needed is complete vacination to reinfection of all types borrelia.

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

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Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
Geneal
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Dear Tree,

That would be wonderful!!!!

I guess I measure quality vs. quantity.

I am slowly getting some measure of quality back in my life....

I can appreciate my children again...which for a while really had no concept of what was real

due to the significant brain fog.

I guess I realize that the "powers that be" don't even accurately report Lyme,

test for Lyme, or basically believe in Lyme past 28 days of antibiotics.

I am sure I run a high risk of being reinfected again, due to living in the country

and having so many people around me being bitten by ticks and having Lyme symptoms.

If I have to take doxy every day for the rest of my life to have a life....well, come on doxy!!!!!

Still praying and hoping for a "cure" though.

Hugs,

Geneal

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Monica
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The LLMD I am currently seeing does not believe in a cure. She believes we can get LD into remission, but never eliminate it entirely.
Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
Visual Afterimage Man
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Recovery... Remission... Whatever. The end result is that we all desire to feel well again.

Whatever label you put on it.. I don't care. If / when I feel well again, I'll be extactic.

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26 months of treatment. And counting.......

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treepatrol
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Feeling well and being well are two different things.

Lots of people feel well right up to where they have a heart attack and die. Lots of people felt well right up too where they cant think anymore.

Personaly I want this sprirochete and all its cohorts totally iradicated from My body.

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

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Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
EWT1638
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I had heard that a Canadian pharmaceutical company had come up with a vaccine in the late 80s or 90s, but stopped making it due to lack of demand. Anyone have any information about this?

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When you reach your "wits-end" remember this: "Peace I leave with you, my peace I give you. I do not give as the world gives. Do not let your hearts be troubled and do not be afraid." John 14:27

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CaliforniaLyme
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Remission!!!

The Pubmed abstract I have been looking for years now- saw it once and didn't save it to a thread- and have never been able to find it again- why i love pubmed- not a conspiracy- just whimsical keywords- was done by Russian researchers and was about Lyme as a life stage disease- I think of that abstract as the One That Got Away!


Can't wait to read it again one day-= probably will be disappointed- but it was basically saying they had conculded after doing an age baased study of LD that is was a lifetime lifestage illness- made me really think in terms of genreatonal Lyme- transplacental transmission/activation- just neat to think about- all the permutations of what that means with other TBDs thrown in- wow!!!!

so- yes- REMISSION!!!!

and I believe bulls-eye rashes- are always RE infectioN!!!

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There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

Posts: 5639 | From Aptos CA USA | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
   

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