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» LymeNet Flash » Questions and Discussion » Medical Questions » Your worst symptoms top 3?

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Author Topic: Your worst symptoms top 3?
BartonFink
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Here is mine:

1.Burning, stinging, prickling skin. I don't think anything can be more awful and torturous as this. A demonic symptom I would say.

2.Extreme fatigue. There is million things you would like to do but you can't because you just don't have the energy. No matter how much you sleep, you're still exhausted.

3.The mental combo of anxiety, nervousness, jitteriness, confusion, crankiness, brain fog and depression.

How about you?

BF

--------------------
Please dont suggest "ask your LLMD" because we dont have them here in this country... [Frown] I just have to count on you fellow patients. [Smile]

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treepatrol
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Before treatment
1.Fevers
2.Joint pain
3.heart palps

After treatment and during
1.tired
2.acheing
3.herx

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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jimmystermite
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Don't have too much problem with the stinging and burning sensation, not like some I have read..but the worst 3 for me have got to be..

1. The "fogginess"...for sure is number one. Without that I could probably get through the rest..

I am so tired of "searching" for words and not being able to carry on a simple conversation w/out sounding like an idiot..

And not being able to read and comprehend information is torture for me... I graduated w/ honors from a local business institute in 1997, now most days I can't seem to think my way out of a paper bag. [Frown]

2. Fatigue.. Even on days when I am feeling "okay", I am so tired and have no energy to do anything...

3. The floaters and other problems with my eyes..
I can not focus clear enough to read like I used to and dealing w/ flouresent lighting..forget it.

Mind you, those are by far not all of the symptoms that I have, but definitely the worst 3...the ones that I have the hardest time dealing with..

Ellen

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Lisianthus
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Before treatment:

1. Fatigue, depression.
2. Not understanding what was said to me, or being able to comprehend, & memory loss
3. Headaches, and extreme pain all over.

After Treatment:

Pretty much the same but they all improved as time went on.


Lisi

--------------------
yahoo 360 http://360.yahoo.com/my_profile-UqSNGiA9crUMRW.lFNGN5Jk-?cq=1

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Visual Afterimage Man
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1. Brain Fog
2. Fatigue
3. Vision (floaters, blurry, afterimages etc)

--------------------
26 months of treatment. And counting.......

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lou4656
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1. Brain fog
2. Fatigue
3. Stiff neck/headaches

--------------------
LouLou

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DanP
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bef treatment:

1) back pain
2) brain fog
3) night sweats/sleeplessness

aft treatment:

1) back pain
2) joint pain
3) disturbed sleep

altho, now i'm getting treated for babs and the back pain is easing

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CaliforniaLyme
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Before tx:

1. progressive weakness
2. falling
3. agony throughout entire body 24/7

After tx:

1. 1-3 minutes of mild pain in left knee premenstrually!!!!!!!!
2. 1-3 minutes of mild pain in left knee
premenstrually!!!
3. 1-3 minutes of mild pain in left knee
premenstrually!!!!

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

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yourtroubl
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1. Pain
2. Severe Fatigue
3. Pain

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sixgoofykids
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1. fatigue

2. brain doesn't work right -- way beyond what I would call brain fog!

3. anything else is minor in comparison to those two! Joint pain, muscle aches, night sweats, heart palps, air hunger, TMJ problems, etc.

--------------------
sixgoofykids.blogspot.com

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Geneal
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Hmmmmm...

1. Air hunger

2. Insomnia

3. Fatigue!!!!

Hugs,

Geneal

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cantgiveupyet
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1) bladder/ urethral pain
2) tight and very sore pelvic muscles
3)Extreme thirst

--------------------
"Say it straight simple and with a smile."

"Thus the task is, not so much to see what no one has seen yet,
But to think what nobody has thought yet, About what everybody sees."

-Schopenhauer

pos babs, bart, igenex WB igm/igg

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5dana8
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neuro problems..,memory, brain fog, speach ect...
Fatigue
joint pain/muscle aches-worse in feet & back.

--------------------
5dana8

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hiker53
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1) myoclonus seizures
2) sensitivity to stimuli such as noise and crowds
3) fatigue

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

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ByronSBell 2007
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Chronic Double sided migrain headahce
Chronic severe nausea-lost 35 lbs
Severe muscle/Joint pain

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LisaS
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1) vibrationlike feeling running through me always

2) head pressure like my brain is too big for my head

3) feeling like Im going to faint all the time

--------------------
https://www.facebook.com/profile.php?id=1660435643

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6t5frlane
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1) Fatique

2)Muscle Twitching/Buzzing

3) Muscle weakness

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savebabe
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1) Severe headaches that have lasted for years

2) Burning and tingling sensations

3) Fatigue

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lymeladyinNY
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1. hip weakness to the point I often can't move my legs so I need a wheelchair a lot or at the very least I'm limping [Frown]

2. burning rivers of pain throughout my body that can make me scream

3. extreme malaise with splitting headaches and head pressure

--------------------
I want to be free

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randibear
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facial twitching and jerking
TINNNITUS!!!
head feeling like it's going to burst

basically, everything above the neck!!!

--------------------
do not look back when the only course is forward

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kitkat32
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Befoge treatment:

1. Severe anxiety, panic, depression.
2. Numbness and tingling
3. Migraine headache

After treatment:

1. Fatigue
2. Insomnia
3. Brain fog

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Ann in CA
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Before treatment;

1. Severe eye ache/headache, left side only

2. Deep, severe bone/joint ache--hips, shoulders, knees-moved around

3. Stiff neck

After (treatment continues)

1. Eye dryness, floaters

2. Mild short term memory loss,

3. Permanent damage to knee & mild, occasional hip & knee pain

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Nebula2005
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1. What randibear said: tinnitis, pressure, pain, twitching, neck rigid and hot
2. insomnia/fatigue, feeling stupid
3. sore, stiff, swollen knee(s) and legs

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Squeegee
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1. Excruciating back pain
2. Extreme fatigue
3. Excruciating knee pain (lying in bed did not produce relief -- it produced a different torture -- feeling like someone was trying to twist my kneecap off)

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antsettler
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1. fatigue and apathy
2. brain fog and anxiety
3. dolour

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kam
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1. Lack of independence (not able to work, do household chores most of the time or use the noggin most of the time.

2. Lack of mobility (can only be on my feet for very short periods of time and never know how long or how often...can not sit upright usually or if I do I pay for it later in pain or lots of down time)

3. Now, what was the question? [hi]

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Searching4Answers
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I've had every symptom imaginable, but the scariest involve muscle twitching, tingling and numbness. To go to sleep at night feeling your arms go numb at the shoulders, and to feel tingling and shakey, it is really really scary.

Lately, I've had heart palpatations and pressure in my head, and that is scary too.

Tingling in my face and twitching in my face is scary.

All of this is horrible.

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bettyg
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great question!

before treatment:

1. super sensitivities of:

.. lights, glare, and reflection;
.. noise/sounds
.. chemicals: perfumes, hair spray, cigarette smoke, cleaning/office supplies, some foods, diesel, etc.

2. PAIN in total body!

3. lyme fog where i can no longer remember words, think correctly, etc.


AFTER TREATMENT:

1. SAME AS ABOVE but eyes MUCH worse due to the doxycycline i took and the after effects.

2. FATIGUE; i've never had as many naps as i've had these past 3 years.

3. pain; 24/7 in all fibro's 18 pressure point areas.

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Andie333
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Before treatment

1. life-halting fatigue
2. severe brain fog, stuttering, compromised memory
3. numbness

After starting antibiotics

1. Searing pain in knee and hip
2. seizures
3. numbness

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Al
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1, DIZZINESS
2, FAINTING
3, FLUID AND RINGING IN EARS

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clpgotlyme
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Before treatment:
Severe 24-7 head and neck pain
Severe joint, muscle,ligament pain
profound fatigue, brain fog

Now, 2 years into treatment:
1 week/month head and neck pain
moderate joint, ligament pain
varying amounts of fatigue and brain fog

Cindy

--------------------
Cindy

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h8lyme
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1) Brain Fog
2) Headache/Neck ache
3) Air Hunger

I just started treatment, I think this is going to be a long road

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SouthernCO
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After lumbar epidural steroid injection 4 yrs ago:

1. Severe knee and back pain.
2. Fatigue.
3. Weakness from knees down to ankles.

Prior to steroid injection:

1. Fatigue.
2. Weakness from knees down to ankles.
3. Back pain.

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Michelle M
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1. Headaches.
2. Fatigue (fall asleep sitting upright!!)
3. Short-term memory loss.

Michelle

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lymeHerx001
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1) MCS/VERTIGO
2) PAIN/WEAKNESS/NEUROPATHY
3) SEVERE BRAIN FOG

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heiwalove
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before tx:

*brain fog, confusion, couldn't think/read/write/process/communicate
*feeling like every cell in my body was slowly being poisoned to death
*suicidality/depression/panic
*dizziness

(i know that's 4 - or more than 4, technically - but i couldn't narrow it down any further)

--------------------
http://www.myspace.com/violinexplosion

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Robin123
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Before starting clindamycin:

1)Fibromyalgia

2)Unstable joints

3)Can I say just complete confusion as to what was going on with symptom after symptom with no explanation?

Post recognition/starting clinda:

1)Lipomas in legs -- very painful, no idea how to stop them

2)Totally unstable joints that send me to the chiropractor a couple times a week.

3)Amazing chemical sensitiviy. I can't even touch/buy new clothes now -- have to wash my old ones in the sink.

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AZURE WISH
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My three most debilitating

1. Fatigue (no energy- no endurance)

2. pain

3. feeling like I could fall over at any given moment (weakness & balance issues)

--------------------
multiple chemical sensitvity group:
http://www.lymefriends.com/group/multiplechemicalsensitivities

Group for artists. All media welcome:
http://www.lymefriends.com/group/creativecorner


http://groups.yahoo.com/group/Lyme_Artist

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BartonFink
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Robin123, your private mailbox is full. [Smile]

--------------------
Please dont suggest "ask your LLMD" because we dont have them here in this country... [Frown] I just have to count on you fellow patients. [Smile]

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treepatrol
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quote:
Originally posted by Robin123:


1)Lipomas in legs -- very painful, no idea how to stop them


Treatment
Often, treatment of a lipoma is not necessary, unless the tumor becomes painful or restricts movement. Many people have them removed for cosmetic reasons. However, if the capsule of the lipoma is not completely removed during the surgery, it may grow back.

A lipoma may be removed by simple excision, but liposuction is another option that often results in less scarring if the lipoma is soft and has a small connective tissue component. However, liposuction has a greater tendency to not remove the entire lipoma, which often results in re-growth.

There are new methods being developed that are supposed to remove the lipomas without the scarring. One of them is removal by the use of protein injection. Another method being developed is the use of ultrasound waves to destroy the lipoma. This can be compared with the removal of kidney stones that uses the same sort of technique to pulverize the stones

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

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motownlyme
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Only three,huh? Sorry, I can only narrow it down to 5...

(1) Air hunger
(2) Pressure - head, chest, lungs
(3) Can't think, concentrate
(4) Anxiety
(5) Hyperacusis

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Rooster
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Neck pain/"stuck" feeling
Chronic back pain
Brain fog/lack of focus
burning in places on skin
Tingling or "spiders" crawling under skin
Tremors...

Does anyone else get tremors?

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Lioness
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Pain, all over, burning, throbbing, gnawing, shocking, tingling, unable to walk (wanting to die it gets so bad)

Neurological issues (all of them) loss of memory, concentration, unable to recall thoughts or words, pain, tinnitus, vertigo, migraines, depression, anxiety, rage...

Absolute, flat out exhaustion. Fall asleep driving, talking...

Not being able to stand the smell of anything

quote:
Originally posted by Rooster:
Does anyone else get tremors?

yes, I get tremors
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Katcon
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Before treatment

1. Seizures
2. Unable to walk
3. Unable to get a deep breath, chest heaving for air

Now during treatment, and this changes
1. Fatigue
2. Get out of breath at times
3. Head pain, feeling like something is going to explode

But I can walk!

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Dave6002
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1. Insomnia (improved from +7 to +4);
2. Stomachache(improved from +8 to +2);
3. Pains of soles, palms and hips(improved from +9 to +5).

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tonysgirl
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Ok, my top three are:

1. Muscle Twitching (All over, especially the
face drives me mad!

2. Muscle Burning/Stinging - In my upper thighs
and radiates into my hip area.

3. Lastly, the damned Eye Burn! Only constant
drops help this.

Can we do a post on how long people believe they have been infected?

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CatWoman
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1- unrelenting insomnia

2-bladder irritation, frequency (over 30 times/day) and urgency

3- fatigue

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clairenotes
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Before:

1) Near seizures
2) Migraines
3) Memory loss, brain fog, moodiness

After:

1) Mild memory loss, mild brain fog, mild moodiness
2) Occassional headache
3) Intermittant lower back pain


Claire

[ 03. May 2007, 05:15 AM: Message edited by: clairenotes ]

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Boomerang
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Hubby's are:

1. Brain Fog (can't get words out, or think of words, can't read, problems comprehending)

2. Fatigue

3. Vision (blurred) -- usually during Herx

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kayru
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1. burning, stabbing, pin pricking, unbearbale pain in my lower legs and feet. feels like boiling water is being poured through my legs and i am standing on hot black pavement.

2. severe depression

3. head and neck pain

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Geodeta_31
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My [puke] are:
1. Vision (extreme floaters, snow vision, entopic phenomenon, pain, blurry, afterimages etc.)
2. Head (pressure, pain, ringing in my ears, brain fog, dizziness)
3. Extreme fatique - EXTREME FATIQUE!!!

--------------------
All the best...
Marcin

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ChrisBtheLymie
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1) Fatigue
2) Brainfog
3) Visual disturbances.

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tic chick
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1 balance
Stiffness
Walking

2.numbness toes to chest

3 dizziness

Treatment for 8 months
Sxs are milder and less
Frequent [Wink]

--------------------
Adversity is the diamond dust heaven polishes it's jewels with. Robert Leighton

Daily world-wide prayers welcome for the Lyme Community - every day at 6:00 p.m. Pacific Time and 9:00 p.m. Eastern Time all faiths welcome!

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sick
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Andie333

Now that is a way to describe it that I had never heard of before. I have suffered from fatigue for as long as I can remember but didn't have a name for it. You did good. That is exactly what it is life halting fatigue.


1. Life halting fatigue

2. Foot pain.

It is in the front part of the bottom of both my feet. I have been to so many foot doctors and none of them seem to know how to help this. I think alot of the problem is due to the fact that the fatty pad on the bottom of my feet is gone. This is from to working in the library and constantly standing on my toes reaching up to put books away.

3. Severe sleep problems.

Since I get little rem sleep at night I can hardly stay a wake during the day. I have had seven sleep studies done at different hospitols. Also a daytime nap study where I was asleep witin three minutes every time. No one has been able to help with this.I get 18 minutes of rem sleep a night. If I didn't take my meds I would literally sleep all the time.


sick

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mrsdizzy
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Mine are as follows:

1. Rocking/dizziness in head
2. Headpressure (feels like someone is crushing my face and standing on my shoulders. This goes down to my chest). Stiff neck
3. Tiredness, joint pain (knees) worse at night when I'm lying down!

--------------------
"don't ever write anyone off, you'll never know who or what they will become"

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canbravelyme
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1. Partial Seizures brought on by -any- kind of stimulation; concentration or exertion. Seizures include: sneezing,
muscle tightening, vertigo, "strange" gait, feeling of impending doom over usually things that in a "regular" state of mind would be banal, yawning, diarrhea, and finally vomiting. A real show stopper.

[Venting for a minute...I saw a new doctor recently, and I said, "I would just like a little more control". Doc's these days are often swimming in the shallow end of the new age movement. He says, "Maybe that's your problem - maybe you need to accept being out of control". I said, "Are you kidding? Everytime I go to do something, I have a seizure attack - I think I'm pretty clear on the "I am not in control" thing"...]

2. Burning skin pain and eye pain largely as a result of light on skin. When light is on my skin (or joints) I begin to experience searing pain, muscle cramping, and then I'm back to #1.

3. Finding proper medical help. Or at least it feels like a symptom...

--------------------
For medical advice related to Lyme disease, please see an ILADS physician.

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lizzie518
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1. Bladder issues (incontinence, urgency, hesitancy, dribbling)

2. Vision issues (double vision, eyes not tracking together)

3. Pain (burning intermittent pain in forearms, calves, head, and pelvic area)

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kylasrain
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1. Backpain

2. facial numbness/tingling

3. jaw pain,TMJ stuff

(now the new night sweats and nightmares are runner-ups!)

[sleepy]

--------------------
http://kylahikeson.blogspot.com

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MamaWolf
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1) Hyperacusis/Tinnitus (walked outside and swatted a bee away from my ear but it was actually the neighbor using her weedeater.. sounded like it was right in my head)

2) Neuropathy/paresthesia (feels like centipedes biting and crawling on my legs and then someone uses a blowtorch to remove them.. all while I'm sitting on a washing machine during the spin cycle)

3) Overall tendon/joint pain and swelling

--------------------
~Ro~

Don't wait for someone to take you under their wing. Find a good wing and climb up underneath it~ Frank C. Bucaro

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jocus20
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1. Brain fog/derealization/disconnected feeling

2. Vision problems( after images, hazt vision, trouble focusing)

3. Fatigue

--------------------
http://www.myspace.com/jocus20

also check out my videos:

http://www.youtube.com/user/jocus20

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dlp252
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I haven't started treatment yet, so hopefully soon these will be FORMER worst:

1. Burning sking (like a bad sunburn) all over my upper torso and arms...got it now badly and even my hair brushing on my neck is sending pain waves.

2. Extreme fatigue.

3. Disconnected brain...it feels like my brain is floating free form in my head.

4. INSOMNIA!!!!

Other equally annoying: enumerable food intolerances, floaters which are getting worse, etc. etc. etc.

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merrygirl
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geez there are sooo many.....


1. Headache
2. Fatigue
3. body pain


it was a close one....

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EWT1638
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BEFORE treatment:

1. Sudden weakness/pain
2. exhaustion
3. brain fog (I became an idiot!)

DURING treatment (just started, but I've had it for years)):

1. exhaustion
2. still an idiot! "How do you spell ...um..forget it, I can't remember the word."
3. back pain
[bonk]

--------------------
When you reach your "wits-end" remember this: "Peace I leave with you, my peace I give you. I do not give as the world gives. Do not let your hearts be troubled and do not be afraid." John 14:27

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ByronSBell 2007
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Man! after reading all of these, I must have the worst combo... This is depressing
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GenaD
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1) Fatigue
2) Joint Pain
3) Brain Fog

--------------------
"Never underestimate the power of a few committed people to change the world. Indeed it is the only thing that ever has."
--Margaret Mead

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aiden424
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It's hard to narrow it down to three, but here goes.

1) head pressure-head neck and spine hurt

2)head feeling foggy and like I'm going to faint

3)Fatigue

--------------------
You never know how strong you are until being strong is the only choice you have.

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egotlyme
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I would like to send my prayers out to all that is suffering with this awful disease. My worst three symptoms are air hunger( the very worst), joint pain, and my body is always feverish and hot all the time. There are so many more that would qualify for the worst but these are the worst three.
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egotlyme
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I would like to send my prayers out to all that is suffering with this awful disease. My worst three symptoms are air hunger( the very worst), joint pain, and my body is always feverish and hot all the time. There are so many more that would qualify for the worst but these are the worst three.
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hatpianka
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My worst three:

1. Extreme fatigue
2. Joint pain
3. In a fog, can't concentrate at work, which is why I'm here right now.

I'll be going home to take a nap very soon. I've only been on doxycycline for 3 days now, so I'm hoping it all gets better soon.

[kiss]

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mojo
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Right now:

Vulvar Pain (sorry, guys)
Brain Fog
Fatigue

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AmyInMI
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My worst symptoms are:

1) Extreme pain in legs for past 10 weeks that I can not find anything to control, which has caused me to take another medical leave from work and makes it VERY hard to walk.

2) Extreme fatigue and exhaustion

3) Not being able to remeber things and having a hard time processing my thoughts and communicating them

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tailz
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I was going to reply, but I have trouble deciding on which 3 to post. Is that a symptom? Yep!
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