LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » SPECIAL TV NEWS REPORT Lyme- Watch video

 - UBBFriend: Email this page to someone!    
Author Topic: SPECIAL TV NEWS REPORT Lyme- Watch video
Tincup
Honored Contributor (10K+ posts)
Member # 5829

Icon 7 posted      Profile for Tincup         Edit/Delete Post   Reply With Quote 
EDIT- If you missed the broadcast- you can see the video here. See Carol's post below and click on the top link for the main news story.

```````````````````````````````````````````````

Tonight on TV there will be a special news report on Lyme disease. To see the introduction clip for it...

Look near the top of the page on the link below... and see the line that says, "Lyme Disease Cases Skyrockets in Maryland. Could it be fatal?"

Click that and it will take you to a preview to watch of the report tonight at 11 PM on WJZ.tv Channel 13... in Baltimore, Maryland.

http://wjz.com/

Interesting that Sally Thorner is the one reporting. I have a letter from her that she wrote a number of years ago. She wouldn't do a news report on Lyme disease prevention to warn folks like we requested because she said basically it wasn't a big deal.

I have since been told on several ocassions over the years ... by their extremely unpleasent Health Watch reporter... and Marty Bass... that Lyme disease wasn't important and/or wasn't "news"... blah blah blah.

I guess we have to die first? That is sad.

Enjoy watching....

If you want to comment on the show... here is the form to fill out..

http://wjz.com/contact

[Big Grin]

[ 04. May 2007, 12:29 AM: Message edited by: Tincup ]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20352 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
mojo
Frequent Contributor (1K+ posts)
Member # 9309

Icon 1 posted      Profile for mojo     Send New Private Message       Edit/Delete Post   Reply With Quote 
I wish I could watch the show. I did write in with a comment.

Thank you for posting this.

Molly

Posts: 1761 | From USA | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
kam
Honored Contributor (10K+ posts)
Member # 3410

Icon 1 posted      Profile for kam     Send New Private Message       Edit/Delete Post   Reply With Quote 
I guess we have to die first? That is sad.

While on my evening outing with Rosie, I saw a white nicely printed "In memory of (and then the persons name) on the back window of a vehicle.

I thought, this just might be an idea for lyme disease.

"In memory of ______________ Who died of lyme disease ignorance.

Or who died of lyme disease.

Or something along those lines.

Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002  |  IP: Logged | Report this post to a Moderator
5dana8
Frequent Contributor (1K+ posts)
Member # 7935

Icon 1 posted      Profile for 5dana8   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks Tincup for putting up the link [Smile]

Glad to see the news is getting the information out to the public.

Very sad though that the man died from it [Frown] Wish the primary docs knew more about lyme & could treat it right away. Hope some of them tune into the news tonight.

Am hoping alot of people get to see it too.

I don't get this channel, after it airs is there a way to put up the link?

Thanks again [Smile]
Dana

--------------------
5dana8

Posts: 4432 | From some where over the rainbow | Registered: Sep 2005  |  IP: Logged | Report this post to a Moderator
breathwork
Frequent Contributor (1K+ posts)
Member # 567

Icon 1 posted      Profile for breathwork     Send New Private Message       Edit/Delete Post   Reply With Quote 
Most TV stations put links to their reports on their websites after the clip has aired....We can look after tonight and see if it's there....
Posts: 1062 | From CA USA | Registered: Jan 2001  |  IP: Logged | Report this post to a Moderator
wilsongal22
LymeNet Contributor
Member # 11210

Icon 1 posted      Profile for wilsongal22     Send New Private Message       Edit/Delete Post   Reply With Quote 
Would I be able to watch this? I have never heard of that channel. And I don't have a 13. But, it could be on something else. I just don't know the time it would be playing here.

Anyone know?

--------------------
Jesus sweated blood over the task that lay before Him.He could have escaped his brutal execution at anytime,but he didn't he stayed there for you.

God bless,Christi

Posts: 306 | From Alabama | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

Icon 7 posted      Profile for Tincup         Edit/Delete Post   Reply With Quote 
Turn on the tv NOW.. if you can get the station.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20352 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338

Icon 1 posted      Profile for Carol in PA     Send New Private Message       Edit/Delete Post   Reply With Quote 
http://wjz.com/
Web Extra
Thursday, May 03, 2007 | 11:47 pm US/Eastern
Lyme Disease Cases Skyrocket In Maryland. Could It Be Fatal?

WJZ's Sally Thorner Investigates In A Special Healthwatch Report
http://wjz.com/video/[email protected]


Read Story
http://wjz.com/local/local_story_122170140.html


Healthwatch Reporter Kellye Lynn Describes Symptoms
http://wjz.com/video/[email protected]


Lyme Disease Expert Discusses Dangers In Maryland
http://wjz.com/video/[email protected]

Posts: 6942 | From Lancaster, PA | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

Icon 7 posted      Profile for Tincup         Edit/Delete Post   Reply With Quote 
WOW!

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20352 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by kam:
I guess we have to die first? That is sad.

While on my evening outing with Rosie, I saw a white nicely printed "In memory of (and then the persons name) on the back window of a vehicle.

I thought, this just might be an idea for lyme disease.

"In memory of ______________ Who died of lyme disease ignorance.

Or who died of lyme disease.

Or something along those lines.

Great idea!

Thanks for the links, Tincup and Carol!!

Christi.... You have to have satellite TV or be near Baltimore.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95252 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338

Icon 1 posted      Profile for Carol in PA     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:

Read Story
http://wjz.com/local/local_story_122170140.html

Lyme Disease Skyrockets In Maryland
Sally Thorner Reporting

(WJZ) ANNAPOLIS, Md. As Lindsey Thomas reflects on the life of her husband Peter, she wonders what if?
What if her husband's Lyme disease was not misdiagnosed for five years?


"Besides walking down this horrific road we were treated with the utmost lack of compassion," Lindsey said to WJZ's Sally Thorner.
"He firmly believed that he had a severe case of Lyme."


Peter Thomas was an accomplished sound engineer who traveled the world making commercials and movies.
In 2001 he was working in the hills of western Maryland on the set of the film "Gods and Generals" when his wife says he was infected.


"He told me every night. He would go into his hotel room and do head-to-toe tick checks," said Lindsey.


Peter soon developed an oval rash.
At first he wasn't concerned because it looked nothing like the bulls-eye rash he believed was the disease's "smoking gun."

Still, he took a Lyme blood test.
The results came back negative.
False negatives are common.


About a year later he started exhibiting night-sweats.
Later he developed slurred speech, muscle pains and other symptoms synonymous with late-stage Lyme disease.


Peter was misdiagnosed with everything from ALS to arthritis.
He was given various medications to treat these conditions, but they had no effect.


"In the spring of '05, Peter said I just don't feel right about this and I really want to get another Lyme test," said Lindsey.
"I said let me do some research because I was not going to send him back to the same lab."


Peter flew to Colorado where six weeks later a doctor confirmed his worst suspicions.

Within months, he died from a disease few think can be fatal.
On his death certificate, one of the causes says Lyme.


"Ultimately his body was weak starting the medicine, and it made him weaker," said Lindsey.
"He never could regain his strength."


Peter's story is a warning to others.
For every detected case of Lyme, between four and twelve others go misdiagnosed.


Lyme disease specialist John Aucott says Lyme is a growing problem in Maryland.


"Maryland is clearly one of the top states for transmission of Lyme disease," he said to WJZ's Thorner from his office in Lutherville.


According to data obtained by WJZ 13, in 1990 there were only 238 confirmed cases in Maryland.
By 2005 that number spiked 418% to more than 1,235 cases.


Lyme disease is named after the Connecticut town where it was discovered in the 1970s.
It is caused by bacteria that is typically transmitted to humans by deer ticks.

The illness is rarely fatal.
In fact, if caught early it's very treatable with oral antibiotics.

However, according to the Center for Disease Control, if left untreated Lyme can lead to major chronic problems including severe arthritis, fatigue, fever, headaches and muscle pains.


Symptoms of early stage Lyme disease include fever, headache, weakness and a skin rash.

If you ever notice a localized rash, you are urged to contact a physician.

Symptoms of late-stage Lyme include stiff neck, irregular heart beat, hearing and vision problems and paralysis.


Click here for symptoms of Lyme disease.
http://www.cdc.gov/ncidod/dvbid/lyme/


The virus trademark is the bullseye-shaped rash, which usually occurs within a month of the initial bite.

But only 68% of people develop the bullseye. However, only one in two people bit by an infected tick will contract the disease.

For all that is known about the illness a lot remains unclear.


"The one thing we know is the sooner you get the tick off the less likely it is to transmit Lyme disease," said Aucott.

"It's an area where we need to do a lot of research because one thing I can tell you is that it's not going away."


Neither does the pain from losing a loved one.
It has been one year since Peter died.
Now Lindsey and her two children are trying to move on.


"My husband, the father of my children, was taken away from us.
But life presents you very difficult hurdles and you have to figure out a way to overcome them and move on."


Click here for more information about Lyme disease.
http://www.lymediseaseassociation.org/

Posts: 6942 | From Lancaster, PA | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

Icon 7 posted      Profile for Tincup         Edit/Delete Post   Reply With Quote 
You can see the full news report on video on your computer using the links Carol posted. No need for a tv or satelite.

WOW!

Thanks Carol.. you beat me to it!!

I've watched it 8 times already!!!

WOW!

Here is the main story... then the other links Carol posted has additional information.

WJZ's Sally Thorner Investigates In A Special Healthwatch Report

http://wjz.com/video/[email protected]


Anyone else have comments?

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20352 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

Icon 7 posted      Profile for Tincup         Edit/Delete Post   Reply With Quote 
If you want to comment on the show... here is the form to fill out..

http://wjz.com/contact

Wow...

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20352 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Vanilla
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
I just read some of the IDSA guidelines (BS) that was on a link from the news show. It makes you want to vomit.

Thanks for posting the video!

IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

Icon 7 posted      Profile for Tincup         Edit/Delete Post   Reply With Quote 
I'm with you vanilla. I was ok till I saw that garbage.

My heart goes out to the family. And I so appreciate them doing something to help others. They did a wonderful job.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20352 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
lou4656
Frequent Contributor (1K+ posts)
Member # 10300

Icon 1 posted      Profile for lou4656     Send New Private Message       Edit/Delete Post   Reply With Quote 
I saw the story last night on TV. I have sent the following comments to WJZ-TV:

THANK YOU so much for your story regarding Lyme Disease. It is so sad that someone had to die to bring attention to this topic.

I have only one disagreement with your coverage. Your information on the WJZ website states (CDC Guidelines), "longer courses of antibiotic treatment have not been shown to be beneficial and have been linked to serious complications, including death."


I was diagnosed with late stage Lyme Disease in December. I had a bullseye rash in 2000, but my lyme tests were negative, so I was not treated.

As you reported in your story, false negative tests are common. Had I been treated in 2000 based on the bullseye rash, the 4-8 weeks of antibiotics probably would have cured me of the illness, and I would have probably been spared many of the complications of late stage Lyme Disease.

I have been on antibiotics since December, and I am improving. This longer course of antibiotic treatment is the reason that I am improving.


Doctors routinely prescribe long term antibiotics to our teenagers for severe acne. In the eyes of our physicians, long term antibiotics is an acceptable course of treatment for acne, and yet, many Lyme Disease patients are denied the same course of treament for a potentially life threatening infection. I do not understand this.


I do appreciate that you have included information from the Lyme Disease Association, so that information in contrast to the CDC guidelines is also presented.


I believe that there are many people in Maryland who have been infected with a Tick Borne Disease that have not been diagnosed. Educating the public about what symptoms to look for, and educating more physicians about the treament of Lyme Disease will greatly benefit the citizens of this state.


I applaud you for your part in this education process. You may never know the lives that you have changed by presenting this story on Lyme Disease. I am sure if Peter Thomas was still with us, he would thank you personally.


I look forward to seeing this topic revisited by WJZ in the future.

Sincerely,
Lou

--------------------
LouLou

Posts: 1276 | From maryland | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


Icon 10 posted            Edit/Delete Post   Reply With Quote 
lou, great feedback letter!

tincup, thanks for posting; i saw the early clip you sent me last night. i have dialup so it took forever and a day. later...

IP: Logged | Report this post to a Moderator
humanbeing
LymeNet Contributor
Member # 8572

Icon 1 posted      Profile for humanbeing     Send New Private Message       Edit/Delete Post   Reply With Quote 
I wrote to them asking if they could push to make the story national news.

Thanks Tinny

--------------------
We are spiritual beings on a human journey...

www.ruggierogallery.com

Posts: 906 | From CT | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
klutzo
Frequent Contributor (1K+ posts)
Member # 5701

Icon 1 posted      Profile for klutzo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Great video clip!

My idea may seem morbid to some, but I like to be prepared.

As some of you know, I've had Lyme for over 21 yrs. and am allergic to all the ABX, so I've had nothing but herbals, and am steadily getting worse. Last year I had to give up driving, and this year I developed yet another abnormal heart rhythm, one that can cause sudden cardiac arrest.

I have written my own obituary and saved it in the drafts section of my email program, so all my husband has to do is print it out and send it in.

The only reason I care about having an obit in the local paper is because all those people who read the obits daily will learn that someone died of Lyme Disease. Our paper is one of the biggest in the country, so that should be a lot of folks. I also ask in my Obit that people make a donation to ILADS.

Klutzo

Posts: 1267 | From Clearwater, Florida, USA | Registered: May 2004  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


Icon 10 posted            Edit/Delete Post   Reply With Quote 
klutzo, we're of the same mind! after my mother-in-law died in 1979, i started writing obituaries for me, hubby, and both of my parents.

used them for both parents and have updated mine and hubbies every 5+ years.

memorials will be going to LDA to a special fund i'm establishing for adults needing lyme treatment and it will be named after me with additional funds from my estate plus 2 other funds for:

LDA education fund and CHRONIC LYME CENTER at columbia university, nyc [Big Grin] [Wink]

IP: Logged | Report this post to a Moderator
Vanilla
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
Great letter Lou!

The obits sound like a good idea.

IP: Logged | Report this post to a Moderator
livinlyme
Frequent Contributor (1K+ posts)
Member # 3773

Icon 1 posted      Profile for livinlyme   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks for the post TC!

I just caught it ealier today and didnt get to respond..

It makes me think that maybe there is more hope around the corner.. but then again with cancer that is wishful thinking.. and I doubt as complex as this bug is, that an answer will be an easy find.. but then again, look how they discovered Penicillin and a wonder of other major break throughs in life.. by accident!!!LOL


I never knew that late stage chronic was best treated with IV.. no wonder no one in my family is getting better with orals.. UH DUH>> [bonk] someone inform these llmd's when a pateint has coverage to act on it,,, instead of waiting until they have nothing!!!
[toilet]

beam me up scotty!!! [loco]
L8r Linda D

--------------------
"Hatred paralyzes life; love releases it. Hatred confuses life; love harmonizes it. Hatred darkens life; love illuminates it."

Posts: 1389 | From who knows, who cares, but somewhere over the rainbow | Registered: Mar 2003  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.