is an excellant website with reputable information on a variety of topics with various free daily newsletters.
Could this be happening to those of us who were positive for Babesia? As nothing seems to work for me now, and my Babesia IGG titer is off the charts (considered normal by some...but what do they know?)could part of my incredible fatigue and headche be due to the same mechanism?
Update...the inside aspect of my big toe on my left foot (great movie...) is completely numb.
For those of you who do not know: I was first bitten in 1994 in Ct., bitten again in Southampton, NY in 2000...caught the first right away...3 weeks doxy. 3 spinal taps 1995, 2000, and 2005...the last showed Oligoclonal Antibodies..not a good sign...indicative of MS...these antibodies attack the Myelin sheath in the brain, etc. My MS Dr. believes it could also be the Lyme...he is head of MS research at NY Hospital, Cornell Presbyterian Medical Center. Very open to ideas...I send him research updates as I receive them...he knows almost all of the Drs. involved.
I am getting strange "electrical weakness" in my shoulders and arms, and a type of numbness in my fingers. Lovely.
Peace, Love and Wellness, JRW
Posts: 1414 | From Ny, Ny | Registered: Oct 2002
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tabbytamer
Frequent Contributor (1K+ posts)
Member # 3159
posted
James,
When you ask "could this be happening", are you referring to the reactivation of EBV?
Are tests for EBV also unreliable? I always have tested negative.
posted
id really like a link to the website..could you PM me with it??
-------------------- If Your Going Through Hell, Keep Going... Posts: 99 | From Shepherdstown, WV | Registered: Sep 2006
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
JRW,
Interesting article, perhaps explaining the connection between lyme, chronic fatigue & EBV.
Have you tried malarone for babesia? I was exposed to babesia years ago, over 20 years ago on block island and then again with a tick bite in Long Island years ago.
I never had treatment for babesia until my blood tests came back positive. I have been on malarone for over 3 months and it has helped alot with babs symptoms.
Posts: 2557 | From home | Registered: Aug 2006
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JRWagner
Frequent Contributor (1K+ posts)
Member # 3229
posted
Tabby...bingo...could Babs be reactivating EBV the same way as does Malaria?
Vanilla...nice name...YES I would like you to post the link for the website. Thank you.
I have tried Mepron in various combos. Burrescano's guidelines mentions many strains of Babs that are not even on the testing radar...so...we all could have one of these as well as BB (Lyme).
Who got nasty, ringing, stiff neck headaches from Babs and who got the same thing from Lyme...or just MS?
Damn!
Peace, Love and Wellness, JRW
Posts: 1414 | From Ny, Ny | Registered: Oct 2002
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posted
This makes so much sense...that Babesia could be behind the Epstein Barr reactivations...My daughter has been diagnosed with EBV reactivations many times...twice during which she had low platelets and low white count...among other things...
Just trying to piece all this together...I have learned so much from this site in a short few months than I ever did trying to chase down a diagnosis for her opver the last 11 years.
Ellen
Posts: 217 | From New Jersey | Registered: Apr 2007
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JRWagner
Frequent Contributor (1K+ posts)
Member # 3229
posted
Thanks all. What about the theory (I heard this 10, no, 12 yars ago from a "Vibration Therapy" lady in Westchester (NY) that Chronic Lyme is due to a VIRAL infection "Piggybacking" on the Bb or other bacterial agent. Makes sense if you buy the idea that our chronis Lym symptoms are not due to Bb. I am not sure, but think it is worth investigating. Something has to be causng my 24/7 severe head crap!
Enough!
Peace, Love and Wellness, JRW
Posts: 1414 | From Ny, Ny | Registered: Oct 2002
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Great article. I know that I had EVB almost 30 years ago, and now I am showing 3 times the antibody in the EVB IGG.
Hummmm
JRW, so sorry about your head cramp. I hear ya.
Von
Posts: 258 | From Washington State | Registered: Nov 2005
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oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831
posted
Yes what if there is something else involved. Like an altered polio-type virus. Think about the symptoms. They're very odd. They're not that dissimilar to polio. I don't think EBV can do this to you, but viruses in the herpes family or polio type could. Too many pathogens, leads to immune suppression. Which one comes first? Who knows.
Posts: 2276 | From united states | Registered: Jun 2004
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