disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
I'm just curious if this happens to a lot of people.
The way I feel fluctuates a LOT. One day I'll feel terrible, the next day I'll feel fine.
OR I'll feel great for a week, then feel really terribly ill for a few days.
Some days it's even to the point of feeling great for a few hours, then feeling terrible for a few hours. Sometimes it'll switch on and off like this throughout the day.
Do a lot of you feel like this? Have these weird fluctauations?
For me, it gets to the point where I have no idea how I am going to feel upon waking, etc.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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I hear ya hear! I NEVER have good weeks, I seldom have good days, however, I do have good hours. It can fluctuate so bad and I never know how I'm going to feel. One minute I'm ok...the next I feel like I need to go to the ER. It's crazy!!!
-------------------- "don't ever write anyone off, you'll never know who or what they will become" Posts: 115 | From la la land | Registered: Apr 2007
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ByronSBell 2007
Unregistered
posted
yes, one minute I wanna excercise, the next I am looking for a way to knock myself out the pain is so bad, I fluctuate on an hourly basis
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posted
I also fluctuate in this way, every morning usually starts off rough for me. after a few hours my body starts to adjust. but I definately have my good/bad days/hours.
Posts: 55 | From S.E. Wisconsin | Registered: May 2007
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Yep. Up & down like a rollar coaster
I have learned over the years to sorta strap myself in for the bummpie rides & try to enjoy the "good times", even if they only last a short time.
The thing that helps me the most, is knowing to the core of my being, that the good moments will be coming along soon. I really do live for my good days/moments, however frequent they may be.
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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Beverly
Frequent Contributor (5K+ posts)
Member # 1271
posted
Yes, this happens to me also. I never can tell how I will feel from one day to the next, so it's very hard to make plans.
Just like dana said....that is me too, I tell myself this will pass and a good moment will come, it's the only way I get through the really bad times.
Posts: 6639 | From Michigan | Registered: Jun 2001
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Yup, happens to me, like today, i woke up no stiffness, and only two symptoms....which is just so odd. I suffered for weeks with very bad symptoms, so today was a welcome change...
the weather was cooler today and lower humidity, which my muscles and joints like very much.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
I would be curious how long each of you has been treated, and whether you have coinfections.
I say right now I can't trust my body. Some good days, some bad. Ver y unpredictable. I am hoping to get to the point where it is more stable. I am 2.5 years into treatment.
-------------------- Jeff Posts: 533 | From CA | Registered: Mar 2006
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posted
This happens to me all of the time and has throughout the entire time I had Lyme. I also know that for the past two months i have had less good days so it is very hard to plan things out.
When I first started Zith I herxed really bad for 4 days and then felt better than I had in an entire year for a week. That was two weeks ago and since then I have slowly gotten worse and worse and now I am experiencing the same symptoms as before I started antibiotics.
I now know that I have to make the most of my time that I feel good and hope it will last. Just think that you are still having good days which is a good sign!
Take Care, LuLu
-------------------- "One day at a time"
Current: -1.2 IM bicillin three times a week -1.25 IV Vancomycin every day -IV glutathione and IM B12 -Byron White since Jan. 2011 -ALA, Yasko protocal, Adapten-All, thyrosol, Pekano, phosphalipid exchange, probiotics, oregano... Posts: 390 | From FLORIDA | Registered: Jun 2007
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posted
This happens to me all of the time and has throughout the entire time I had Lyme. I also know that for the past two months i have had less good days so it is very hard to plan things out. When I first started Zith I herxed really bad for 4 days and then felt better than I had in an entire year for a week. That was two weeks ago and since then I have slowly gotten worse and worse and now I am experiencing the same symptoms as before I started antibiotics. I now know that I have to make the most of my time that I feel good and hope it will last. Just think that you are still having good days which is a good sign!
Take Care, LuLu
-------------------- "One day at a time"
Current: -1.2 IM bicillin three times a week -1.25 IV Vancomycin every day -IV glutathione and IM B12 -Byron White since Jan. 2011 -ALA, Yasko protocal, Adapten-All, thyrosol, Pekano, phosphalipid exchange, probiotics, oregano... Posts: 390 | From FLORIDA | Registered: Jun 2007
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posted
I'm yet another one who experiences the same thing--I'll feel good for a couple days, then terrible, and there's no warning or any noticeable reason why. On some days I'll feel good for a couple hours, then bad for the rest of the day.
Before I knew I had Lyme, this was really depressing to me. I'd feel good for a week, think I was going to get better from whatever it was that was wrong with me, just to wake up the next day feeling like I got hit by a truck. It was such a helpless feeling.
Now the way I deal with it is like someone else said a few posts back--I remember that the bad days don't stay around too long. Hopefully one day most of our days will be good ones!!
-------------------- "Never underestimate the power of a few committed people to change the world. Indeed it is the only thing that ever has." --Margaret Mead Posts: 290 | From New York | Registered: May 2007
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I have been back on treatment and I have yet to have one full "good day". I'll wake up feeling like I can't possibly do the day. Make it to work. Feel very animated in my first meeting. Then, suddenly start to loose energy, etc.
When I was off treatment, but slowly relapsing, I seemed to have more even days. Some good, some bad - never know which you will have. But the good days kept getting slowly less good.
Now, I'm up and down alot - mostly within the same day. I can have a bad morning and then make it to the gym it the afternoon and have a good evening.
Go figure.
Robin
Posts: 276 | From Maryland | Registered: Dec 2006
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posted
If one tracks barometric pressure, it will be obvious that many times the worst symptoms are felt when there is a rapid drop in barometric pressure.
When the bar. pressure outside the body drops, it takes some time for the relatively higher pressure inside joints, bones, tendons, spinal cord, etc., to equalize (drop) to the pressure outside. Meanwhile synovial fluid inside the joints, for example, exerts pressure from inside the joints; i.e., this can result in joint pain.
If you link to the following website, using your own zip code you can track your pain and other symptoms to drops in barometric pressure over the previous 3 days. Conversely, my own experience is that rises in bar. pressure seem to correlate with improvements in symptoms.
quote:Originally posted by shoney: Me too, I wake up and never know what the day will bring.
One curious thing-I always feel better in the evening-anyone else experience this?
WOW Shoney, same with me!!!!!!! I start feeling better and gain all my energy around 6-7 or so and I can go until 1-2 am, I found it so strange!
-------------------- "don't ever write anyone off, you'll never know who or what they will become" Posts: 115 | From la la land | Registered: Apr 2007
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I've noticed over the past many years that I also usually feel better at night. Coincidentally, here in CO the barometric pressure usually goes up at night but down during the afternoon (when we many times have thunderstorms in summer). Don't know if that's the case in other parts of the world though. If anyone has noticed similar effects any where else, please let me know. Sometimes I feel as if I'm just talking to myself out here.
Having watched for several years how the barometric pressure affects me, I would bet that many (obviously not all) of the herx-like increases in symptoms are really due to drops in barometric pressure in my case.
Posts: 175 | From Colorado | Registered: Feb 2007
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posted
I go up and down wkly dly or hourly. Ive been off atb for several mo. & doing well til slowly each day a new symptom coms &goes. Today everything was "on". i dontvwant to go back to anatb should i try to ride it out its my first relapse been in treatment 8 yr. chronic for 20 yrs. help?
Posts: 161 | From midwest | Registered: Jul 2007
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hi Jasek
sorry to hear your symptoms are coming back
Do you have a lyme literate doctor?
I can't tell you what to do at this point except to suggest more treatment. Sometimes co-infections can keep you from recovering from lyme treatment.
Have you been tested for these?
Can I ask how long & what abx's where you on? Did you take pro-biotics durning abx?
Hang in there Hugs Dana
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
Yes, the roller coaster aspect of treatment is challenging. One day might be the best I have had in years, and the next I will feel like the herx from hell. Or as Byron said, all within one day.
Overall, the trend has been good during my almost-year in treatment. But the regression days can be very discouraging!
Posts: 2557 | From home | Registered: Aug 2006
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
I did when I first got sick but then I was bad all the time!!! Now I am good all the time!!! Thank goodness*)!*)! No bad days in 6 years now!!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136
posted
p.s. I realize that is an exagerration, I had a bad two weeks a couple of years ago when I got IC before it went away with abx!!!!!!!!!!!!! That sucked!!! Other than that no bad days in 6 years though- that's pretty darn good*)!*)!!
-------------------- There is no wealth but life. -John Ruskin
All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer Posts: 5639 | From Aptos CA USA | Registered: Apr 2005
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posted
dana ttx! yes i have an excellent llmd. i have been in treatment for 8 yrs. i:m just so tired and am resisting starting over, I;ve been on every inc. i.v. rocefin my dr believes in hitting it from all sids. he follows dr. b. protocal im just hoping my immune system can overcome this. i am going yo give it a wk.
Posts: 161 | From midwest | Registered: Jul 2007
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