LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Erlichiosis not treatable?

 - UBBFriend: Email this page to someone!    
Author Topic: Erlichiosis not treatable?
MarsyNY
LymeNet Contributor
Member # 7766

Icon 1 posted      Profile for MarsyNY     Send New Private Message       Edit/Delete Post   Reply With Quote 
I have tested positive for Erlichiosis HGE. My doctor says that I've probably had it as long as the Lyme. We treated the Lyme for 6months with good results however he has told me that there is no treatment for long standing erlichiosis. He stated that the bacteria load would go down while on antibiotics but would always return so treatment was not presented as an option.


Does anyone have any information on this? Or know of any LLMD's that have more info on Erlichia?

Either Im having a relapse, post lyme syndrome, or the HME is stirring up some new symptoms.(oops or a new bite)

Thanks, Maryann

Posts: 465 | From New York, NY | Registered: Aug 2005  |  IP: Logged | Report this post to a Moderator
treepatrol
Honored Contributor (10K+ posts)
Member # 4117

Icon 1 posted      Profile for treepatrol     Send New Private Message       Edit/Delete Post   Reply With Quote 
TREATMENT

Standard treatment consists of Doxycycline, 200 mg daily for two to four weeks. Higher doses, parenteral therapy, and longer treatment durations may be needed based on the duration and severity of illness, and whether immune defects or extreme age is present. However, there are reports of treatment failure even when higher doses and long duration treatment with doxycycline is given. In such cases, consideration may be given for adding rifampin, 600 mg daily, to the regimen.
http://www.ilads.org/burrascano_1102.html#treatment6

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
MarsyNY
LymeNet Contributor
Member # 7766

Icon 1 posted      Profile for MarsyNY     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks Tree,

Wish Dr. B was still around!! What's he up to anyone know?

Posts: 465 | From New York, NY | Registered: Aug 2005  |  IP: Logged | Report this post to a Moderator
Sammi
Frequent Contributor (1K+ posts)
Member # 110

Icon 1 posted      Profile for Sammi     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Maryann. Are you seeing a Lyme doctor?

I have never heard that Ehrlichiosis is not treatable. I think it can be very serious if not treated. I had both types of it, and the HGE took long-term treatment.

Like treepatrol posted, Doxy is the best med for it and if you do not respond, Rifampin may be effective.

Posts: 4680 | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
MarsyNY
LymeNet Contributor
Member # 7766

Icon 1 posted      Profile for MarsyNY     Send New Private Message       Edit/Delete Post   Reply With Quote 
Sammi,

What this doctor said was that it is only treatable when caught early. I just dont know what to do here. Yes he is a lyme doctor.

If you dont mind me asking what were your symptoms with the 2 forms of Erlichiosis? Did you get rid of it or do you still test positive?

Wow you were one of the earliest on LymeNet eh?

Posts: 465 | From New York, NY | Registered: Aug 2005  |  IP: Logged | Report this post to a Moderator
randibear
Honored Contributor (10K+ posts)
Member # 11290

Icon 1 posted      Profile for randibear     Send New Private Message       Edit/Delete Post   Reply With Quote 
if doxy is ok, then would amoxycillin work too?

--------------------
do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
lymednva
Frequent Contributor (1K+ posts)
Member # 9098

Icon 1 posted      Profile for lymednva     Send New Private Message       Edit/Delete Post   Reply With Quote 
Doxy and amoxicillin are two different types of abx, so they cannot be expected to be interchangeable.

--------------------
Lymednva

Posts: 2407 | From over the river and through the woods | Registered: Apr 2006  |  IP: Logged | Report this post to a Moderator
Sammi
Frequent Contributor (1K+ posts)
Member # 110

Icon 1 posted      Profile for Sammi     Send New Private Message       Edit/Delete Post   Reply With Quote 
Maryann, you may want to get another opinion.

It is hard for me to say which symptoms are from Ehrlichiosis because I have had five tick-borne illesses and many symptoms can overlap. The HME resolved with Doxy but the HGE did not. I am still being treated for it and will be retested at the end of the month. I am hoping it will be negative!

Yes, I am a long-time member but I do not post much any more.

Posts: 4680 | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
GenaD
LymeNet Contributor
Member # 11988

Icon 1 posted      Profile for GenaD     Send New Private Message       Edit/Delete Post   Reply With Quote 
I know someone who was treated for Lyme and Erlichia when he was a teenager. He said he was very sick for a year.

I don't know how soon his doctor caught it, but he seems cured now. He's 24. I've never heard Erlichia isn't treatable.

--------------------
"Never underestimate the power of a few committed people to change the world. Indeed it is the only thing that ever has."
--Margaret Mead

Posts: 290 | From New York | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
WildCondor
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
It's usually treated with Doxycycline! Maybe your levels are low enough that you don't need treatment.
IP: Logged | Report this post to a Moderator
hiker53
Frequent Contributor (5K+ posts)
Member # 6046

Icon 1 posted      Profile for hiker53     Send New Private Message       Edit/Delete Post   Reply With Quote 
I had a mild case of erhlichiosis. I was treated with minocycline. Hiker

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

Posts: 7573 | From Illinois | Registered: Aug 2004  |  IP: Logged | Report this post to a Moderator
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136

Icon 1 posted      Profile for CaliforniaLyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
I've never ever heard Ehrlichiosis isn't treatable- it is usually the MOST treatable TBD!!

But maybe he read the marshfield abstract which concerns post-Ehrlichiosis syndrome- says that people with Ehr HGE in particular actually will have lingering symptoms after treatment.

Knowing the authors of that report as conservatives re treatment, I would think it had something to do with the treatment philosophy rather than Ehr- but who knows?

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

Posts: 5639 | From Aptos CA USA | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
MarsyNY
LymeNet Contributor
Member # 7766

Icon 1 posted      Profile for MarsyNY     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you all for your responses. There is just not alot of human erlichiosis information out there but the more I read it becomes apparent that this could be as difficult as the lyme to clear up after so many years.

Sammi after I asked you the question I realized how impossible it is to figure out whats causing what with all these co-infections. I have read that 5 out of 10 people that were successfully treated for erlichiosis will still test positive a year later so how do you know for sure?

My lyme treatment consisted of only Amoxicillin. I am thinking of trying some Doxy on my own. Does anyone know if there would be a herx from erlichia like lyme?

Posts: 465 | From New York, NY | Registered: Aug 2005  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.