LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » insomnia

 - UBBFriend: Email this page to someone!    
Author Topic: insomnia
elle108
LymeNet Contributor
Member # 11730

Icon 1 posted      Profile for elle108     Send New Private Message       Edit/Delete Post   Reply With Quote 
After years of being like Rip Van WInkle, my daughter now has developed insomnia...

She was unable to sleep at all last night and barely able the night before...

she is on Zithro and bactrim for babesia and LD..

COuld this be a herx, I wonder? ...or possibly a sighn that her energy is finally returning?


Anyone experience this here?

Any input would be very appreciated.

Posts: 217 | From New Jersey | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
kgg
Frequent Contributor (1K+ posts)
Member # 5867

Icon 1 posted      Profile for kgg   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I am sorry that your daughter is experiencing this. My son is on Babesia treatment right now. He too experiences the insomnia. He takes melatonin every night. Some times it helps some times it doesn't. So he just sleeps when his body allows him too.

He tried many sleep meds but they didn't work and he hated how it made him feel.

Have you tried Benadryl?

Best,
Karen

Posts: 1553 | From Maine | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
siggy
LymeNet Contributor
Member # 8654

Icon 1 posted      Profile for siggy     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi Elle108,
I get insomnia periodically. For me, I think it is related to herxing. I started taking Melatonin which would help me fall asleep, but not stop me from waking up early and having lots of weird, vivid dreams.

Eventually I will get so tired that I start sleeping again, but it takes from 1-3 weeks of very little sleep. It is really hard mentally and physically.

Hopefully your daughter will get some proper sleep soon.

sig

Posts: 155 | From Norway | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
ByronSBell 2007
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
I have lived with insomnia for 2 years now with lyme disease. I have found that a baby dose of seroquil will put me to sleep. (25mg) At night I usually try to calm down and I take it about an hour before bed.

Other things that very slightly help are magnesium, melotonin, l-tryptphene (not sure on spelling)

IP: Logged | Report this post to a Moderator
5dana8
Frequent Contributor (1K+ posts)
Member # 7935

Icon 1 posted      Profile for 5dana8   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
hi elle

sorry to hear your daughter is having such a hard time

I know for me when I am herxing trying to fall alseep is sooooo much harder.

Maybe ask your LLMD about something that might help her threw this now.

I hope you can find something that works and she can get some zzzzzzzzzz's [sleepy]

Hugs [group hug]
Dana

--------------------
5dana8

Posts: 4432 | From some where over the rainbow | Registered: Sep 2005  |  IP: Logged | Report this post to a Moderator
cactus
Frequent Contributor (1K+ posts)
Member # 7347

Icon 1 posted      Profile for cactus     Send New Private Message       Edit/Delete Post   Reply With Quote 
Herxing gives me insomnia as well, especially when targeting babs - seems like babs treatment makes sleep the impossible dream.

Sleep meds have helped with getting me through the worst of it - is that a possibility for your daughter?

Hope she gets some sleep soon,
cactus

--------------------
Did you ever stop to think, and forget to start again? - A.A. Milne

Posts: 1987 | From No. VA | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
elle108
LymeNet Contributor
Member # 11730

Icon 1 posted      Profile for elle108     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks everyopne for the input. If the insomnia kieeps up, we'll ask her LLMD when she sees him next week. May try the melatonin in the meantime, too.

Thanks,
Elle

Posts: 217 | From New Jersey | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
lymednva
Frequent Contributor (1K+ posts)
Member # 9098

Icon 1 posted      Profile for lymednva     Send New Private Message       Edit/Delete Post   Reply With Quote 
I've lived with insomnia for the past 11 years due to Lyme. Both Bart and Babs treatment has brought it out again, after it was being controlled with a lot of different meds.

Now I sleep for about four hours before the tossing and turning begins. I think it's part of the reason I feel so lousy compared to six months ago.

Mine is definitely part of a herx. However it is ever-present for the past several months, in connection with Bart and now Babs treatment.

--------------------
Lymednva

Posts: 2407 | From over the river and through the woods | Registered: Apr 2006  |  IP: Logged | Report this post to a Moderator
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789

Icon 10 posted      Profile for HEATHERKISS     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'm awake now!

--------------------
HEATHER

 -

Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
lymedad
LymeNet Contributor
Member # 8074

Icon 1 posted      Profile for lymedad     Send New Private Message       Edit/Delete Post   Reply With Quote 
My daughter has had terrible bouts of insomnia for the past 6 years. About the only thing that has helped is Xanax.

I also have insomnia and have had off and on for most of my life. I usually just go with it, if I can't sleep I work at something, when I can sleep, I do.

I've also tried Xanax and it has helped, although it does cause vivid dreams.

Posts: 681 | From California | Registered: Oct 2005  |  IP: Logged | Report this post to a Moderator
shoney
LymeNet Contributor
Member # 9925

Icon 1 posted      Profile for shoney     Send New Private Message       Edit/Delete Post   Reply With Quote 
I am also doing bactrim and zith for babs/lyme-I haven't seen anyone else doing that combo. Been on it 3 months and sleeping MUCH better.

How old is your daughter, and who is your LLMD? Just curious why he is also using bactrim intead of mepron/malarone. I have some vivid dreams though.

Posts: 561 | From eastcoast | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
Marcie
LymeNet Contributor
Member # 10070

Icon 1 posted      Profile for Marcie     Send New Private Message       Edit/Delete Post   Reply With Quote 
I am on bactrim for babs too. Was just added it in last week along with 1 malarone a day and 250mg of zithro. It is killing my stomach! I


started to herx off this combo a few days after adding the bactrim. My insomnia has been really

bad the past couple of days. When my babs symptoms are bad I can't sleep. I will

sometimes get up and read a book. This helps me relax and feel sleepy. Maybe get your daughter

a good book! Another thing, sleepy time tea is always good.
Hope she gets over it soon.

Posts: 323 | From Michigan | Registered: Sep 2006  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.