LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Diagnosis X (TLC) - bacteria attacks CNS through degenerating disks similar to Lyme?

 - UBBFriend: Email this page to someone!    
Author Topic: Diagnosis X (TLC) - bacteria attacks CNS through degenerating disks similar to Lyme?
SouthernCO
LymeNet Contributor
Member # 11167

Icon 1 posted      Profile for SouthernCO     Send New Private Message       Edit/Delete Post   Reply With Quote 
Show was on 8/22/2007 early evening. A replay of the show aired at 1000 PM MDT. Would appreciate any comments on this show and how it relates to neurolyme and other tbd's.

Wouldn't waste the board's time, but the description of the entry of the strepto? bacteria into the CNS was identical to my own theory of how the Lyme bacteria attacked my low back then spread through my CNS.

The show: A loading dock employee was brought to ER because of ascending paralysis. He was able to struggle into the hospital but within moments the paralysis spread up through the arms then finally prevented respiration.

First test was a spinal tap which was checked for Lyme (sarcasm on: why in the world would they check that?) and Guillain-Barre which were both negative. (for G-B they checked for protein in CSF?)

Next test was an MRI which showed severe disk degeneration. Also found a growth in the spine formed because of the bacteria which invaded through the degenerating disks as the dr. explained: the bacteria takes the easiest route into the spine which in this case was the degenerating structures surrounding the spine.

Turns out the employee had self-treated a boil without proper abx, then the bacteria entered the CNS and the ensuing growth impacted virually all the nerves in the spine.

This is pretty much the exact theory I came up with (on my own + internet research) for my own condition.

Through several MRI's, I have been diagnosed with Tarlov Cyst disease at S2-S4 by the Dept. of Neurosurgery at Johns Hopkins. Could it be that the invading Lyme bacteria were encapsulated in cysts inside the sacral-spine by the immune system? Thus those cysts are impinging on the nerves which exit the CNS then form part of the Sciatic nerve? This would certainly explain at least parts of my condition.

I have tried to explain this theory relating to my condition to dr.'s but get only blank stares in return.

The fact that this transmission of bacteria into the CNS may be a valid theory seems very significant to how Lyme can enter the CNS.

[ 23. August 2007, 12:38 PM: Message edited by: SouthernCO ]

Posts: 175 | From Colorado | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
lou
Frequent Contributor (5K+ posts)
Member # 81

Icon 1 posted      Profile for lou     Send New Private Message       Edit/Delete Post   Reply With Quote 
I dunno on your theory but will mention that lyme caused major lower back problems was followed by neurolyme that is causing muscle wasting. Of course, I had plenty of neurolyme issues before that, it just seemed to have changed its behavior for some reason. The old skinning burning or freezing and stabbing sensations went away, and now I have muscle wasting. If it is true that asymmetrical neuro symptoms means peripheral nervous system involvement, then that is what I have. But my question is whether there really is a wall between peripheral and central nervous system.
Posts: 8430 | From Not available | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
SouthernCO
LymeNet Contributor
Member # 11167

Icon 1 posted      Profile for SouthernCO     Send New Private Message       Edit/Delete Post   Reply With Quote 
In summer, 1992, my initial infection caused severe low back pain along with the normal lyme symptoms. According to the ER dr. on this show, strepto? bacteria gained entry to the spinal canal through degenerating structures, in this case degenerating disks. The pain that I experienced in 1992 was probably the spirochetes drilling through the degenerating disks into the spinal canal. I can only guess that the never-ending symptoms of pain and other neuro symptoms are because of the bacteria still residing in the CNS.

If the immune system reacts to the bacteria by forming Tarlov cysts, those cysts can also impact the nerves before the nerves emerge from the spine. One of my cysts is about 4cm X 2cm X 2cm so it could cause problems in the sacrum (S2-S4).

I won't waste any more space or any more of my energy since I'm apparently the only one who thinks this is significant.

And since my LLMD has closed his practice, my hopes for any help of any kind are forever dashed.

Posts: 175 | From Colorado | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
lou
Frequent Contributor (5K+ posts)
Member # 81

Icon 1 posted      Profile for lou     Send New Private Message       Edit/Delete Post   Reply With Quote 
Well, you just posted this a couple of hours ago. Don't give up yet on a reply that you find more useful than mine.

You sound depressed. Got company there as my doc retired too.

Posts: 8430 | From Not available | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
Marz
Frequent Contributor (1K+ posts)
Member # 3446

Icon 1 posted      Profile for Marz     Send New Private Message       Edit/Delete Post   Reply With Quote 
When I was in my acute phase of lyme (also in 1992), I had severe lower back pain with spasms that were so bad, I couldn't stand up.

I could barely get in the car to get to a chiropractor and the adjustments did nothing.

Back then, I didn't connect it to lyme, but have since read that this is one of the symptoms.

After your post, I'm wondering if this is a weak spot for me, although I haven't been diagnosed with disc problems in lower back, just in the neck I think.

When I'm herxing, my lower back will bother me, but never as bad as back then.

I don't have your scientific knowledge, but I'm wondering if it isn't the other way around--the chetes caused the degneration for you.

I probably didn't have as serious a case as you, so maybe mine didn't progress as far as yours.

Just a thought--maybe I'm way off base in understanding what is happening with you and what the show implied.

Posts: 1292 | From USA | Registered: Dec 2002  |  IP: Logged | Report this post to a Moderator
Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512

Icon 1 posted      Profile for Truthfinder     Send New Private Message       Edit/Delete Post   Reply With Quote 
Pardon my ignorance about this, but if the ketes can cross the BBB (blood brain barrier), then don't they have access to the spine anyway - the whole CNS?

Or is them some mechanism or barrier between the brain and the spinal cord?

I hope those aren't dumb questions.....

But I do believe the Lyme bacteria finds the weakest areas to attack.

Tracy

--------------------
Tracy
.... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�.

Posts: 2966 | From Colorado | Registered: Dec 2005  |  IP: Logged | Report this post to a Moderator
Marz
Frequent Contributor (1K+ posts)
Member # 3446

Icon 1 posted      Profile for Marz     Send New Private Message       Edit/Delete Post   Reply With Quote 
Cave, what kind of test determines they're in your cerebral spinal fluid? Is that when they put the needle in your spine to get fluid?

Is it done in the hospital and is it really painful? sounds like it would be.

Posts: 1292 | From USA | Registered: Dec 2002  |  IP: Logged | Report this post to a Moderator
caat
Frequent Contributor (1K+ posts)
Member # 2321

Icon 1 posted      Profile for caat     Send New Private Message       Edit/Delete Post   Reply With Quote 
SouthernCO, Anything's possible, but I think it's more likely that bart or another bacteria would do that rather than lyme.

I have a lot of cysts too, but I don't think it's from lyme.

Posts: 1436 | From Humboldt county ca usa | Registered: Mar 2002  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.