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» LymeNet Flash » Questions and Discussion » Medical Questions » I need advice from the Flagyl Experts out there...

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Author Topic: I need advice from the Flagyl Experts out there...
Visual Afterimage Man
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Ok....

I'm needing some advice from flagyl experts.

I'm on day 6 of flagyl and have ramped up to a dose of 500 mg 3x per day.

Here's what is going on.

I feel weird. Sometimes I feel pretty good. Sometimes I feel down in the dumps. It's about a 50-50 ratio.

I'm having worse than usual short term memory problems. (what day is it again type stuff) For crying out loud, yesterday was a weekend, but I can't for the life of me remember with much confidence what we did!!!! This scares me the most.

I occasionaly get a flooring headache. It is relieved by OTC pain killers. Thank God.

I'm very sleepy. I feel like I could go to sleep at any point.

I'm feeling very 'out of it'. Not myself type of feeling. Emotionless, guilty, doom and gloom feelings. I don't want to do anything, yet not doing anything drives me crazy. Yuk!

I have NO appitite. I eat because I know if I don't I'll have zero energy to get out of bed and go to work the next day. For lunch today I had to force myself to eat. I'm not sick to my stomach, but just not hungry.

When feeling down in the dumps, my vision issues get noticably worse. When I'm feeling better, they almost completely go away.

Strange strange stuff. Mainly the depression is the worst right now. I have been feeling down since I started Biaxin 4 months ago. But I think the flagyl has kicked it into overdrive.

I also do very stupid stuff. I made a clerk at starbucks feel like an idiot because I accused him of not giving me back my credit card. I was was feeling around in my pocket while he was telling me that he gave it back to me... sure enough it was there. I felt like a fool. But a I have zero memory of him returning it to me.

Did I just leave my body for a second??

Last night I went to get the mail. I got home and couldn't find the mail key. What happened to it? You guessed it. I left the mail key in the door and the door wide open. I actually WALKED away from a wide open door!! I don't remember that at all.

This sucks.... and it's scaring me. My only saving grace right now is to know that I could get some of myself to come back if I were to stop the meds right now.

Can anyone relate to this on Flagyl. I know this is a rough drug, but I wasn't exactly doing well before I started it. I'm attacking this crud full force because I don't know what else to do.

Thanks in advance for any replies.

--------------------
26 months of treatment. And counting.......

Posts: 298 | From Northeast Kansas | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
Michelle M
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Scary, I know. Very familiar. This is YOUR BRAIN ON FLAGYL. I promise, it will pass. You're on a right hefty dose, Visual Guy! I felt like that at 500mg a day. I swear, it never let up till the last couple of days out of a six-week long stint.

The depression will lift. The brain will clear. Yes, it IS horrid going through it but remind yourself it is NOT you, it's the med. It penetrates where few meds dare to go!! Hang in there; it will get easier. Rest where you can and ask others to help you get through it. Expect as little of yourself as possible!! Sending you a hug!!

Michelle

Posts: 3193 | From Northern California | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
hillaryb
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I did 2 months of Flagyl, and it was rough. I completely lost my appetite and had for force myself to eat. Fatigue increased massively, and I spent most of the time prostrate on the couch. The worst thing though was the feeling of utter despair. It built slowly, but by week 8 it was unbearable. It truly was the worst I'd ever felt in my life. And I was only taking half of the prescribed dose.

I didn't see my primary LLMD during that time, and when I did he said I should have stopped taking the Flagyl sooner than I did. I wish I'd called him when it got bad, but I was so depressed I couldn't deal with it. It took about 2 weeks to start feeling normal emotionally after I stopped.

Can you see your LLMD or do a phone consult? I know Flagyl is supposed to be a great cyst-buster, but the benefits have to be weighed against the costs to your mind & body & spirit.

Posts: 90 | From Sunny Southern Cali | Registered: Sep 2006  |  IP: Logged | Report this post to a Moderator
Visual Afterimage Man
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Thanks to you all for replying.

I see the doc on Tuesday of next week.. And I'm only on a two week regimen of Flagyl. Seems he wants to hit the cysts quick and dirty. Hit em hard and then stop.

I'm not sure if he's thinking about repeating this again in the future. From what I've read on here, most of you are on Flagyl for a longer duration.

I just did a phone consult with him.. he's moving me from Biaxin to Levaquin for the time being. Only time will tell.

So the Flagyl is what is making me feel like I'm having an out of body experience? Since this nightbare began, I always felt like I was in an altered state of conciousness... but this is taking it up a notch.

--------------------
26 months of treatment. And counting.......

Posts: 298 | From Northeast Kansas | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
Lymetoo
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Oh yeah. Flagyl messes with the brain BIGTIME. I immediately go into a huge depression when I'm on that stuff.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95344 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
randibear
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hmmmm, i'm always a zebra as my primary says.

i've had no effects other than a massive headache. man, if this is migraine i never want to do this again. ugh.

i also notice that i start sweating about an hour or two after taking it.

maybe my test on tuesday will go ok. pray for me as i'm really scared.

--------------------
do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
Visual Afterimage Man
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Your test for c. diff is on tues?

Colonoscopy? I'll pray for you. Don't sweat the test.. We've been through it twice now. It's no fun... but you'll recover fine.

--------------------
26 months of treatment. And counting.......

Posts: 298 | From Northeast Kansas | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
lymebytes
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I am no expert on Flagyl, but I am after a year of Biaxin and I believe it has had me on an emotional roller coaster. I do suffer a lot of pain, very excruciating, that can = depression. But either the Biaxin or the disease itself causes me to go in and out of some very dark places, then I have sudden moments of tremendous joy, it is strange, then I will slip down into depression. I never knew a depressed day in my life until this disease. Biaxin could be the cause or it could simply be the roller coaster of this disease.

Cymbalata has been recommended for me, but antidepressants unfortunately, make me feel even worse.

You are herxing - that I do know, I hope you feel better soon.

--------------------
www.truthaboutlymedisease.com

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Annxyz
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Bump

Very good info here . I am on flagyl a short time & my spirits are sooooooo low!

I looked it up on the search engine and found it makes a wreck out of a lot of people. this may be good info for others who are also
DEPRESSED and taking PROZAC!!

This med is like hopelessness in a pill.

It sure is miserable to want to cry cry cry
and have no motivation to do anything ( then be mad at yourself because you feel like a loser who can not do a DA-N thing!! )

Hopefully this will get better before I turn into a recluse or jump off a bridge .

--------------------
ANNXYZ

Posts: 744 | From Mineola | Registered: Apr 2006  |  IP: Logged | Report this post to a Moderator
lymielauren28
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You guys aren't going to beleive this but flagyl does the opposite for me.

It has become my lifeline. I can be sick, depressed, and foggy and within days of taking it my depression lifts, I get my energy back and my brain clears up.

I can stay semi normal and then quit taking it and within a couple of weeks all my symptoms return.

It's a puzzle to me and definately my LLMD...

What goes get me the worst is minocycline - I hate it!

It leaves a horrible metallic taste in my mouth, gets me very depressed and makes me so out of it I don't know which way is up and which way is down.

Maybe I'm an oddball - I don't know!

--------------------
"The only way out is through"

Posts: 1434 | From mississippi | Registered: Nov 2007  |  IP: Logged | Report this post to a Moderator
smiles132002
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I was on flagyl for two weeks-and within 2 days I felt miserable. I missed the next two weeks of work, couldn't get out of bed, had horrible pain.

Don't worry about the starbucks thing-I had horrible memory problems. I used to go for walk (mind you I've live in the same little town since I was born) and I would get lost, just be walking for hours unable to find my way to a main street. I remember i was hystercially crying, completely devistated, and so terrified that I could lose my way in a matter of days.

It made me think about why old people like to stick to their routines, don't like to go places, it truely is terrifing.

But I stopped after two weeks. A point comes when you need to decide if you are herxing or relapsing-and if your body can't handle the drug then you might have to switch.

Best,
Lindsay

Posts: 484 | From Burlingame, Ca | Registered: Sep 2005  |  IP: Logged | Report this post to a Moderator
Geneal
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I pulsed flagyl. 750mg on Fri, Sat, Sun with doxy or biaxin on Mon through Thursday.

I remember the headaches from heck.

The "out of body" like feeling.

1500mg is a very strong dose. Yikes!

Maybe after these two weeks, you can pulse it.

I still do flagyl (750mg) once a week while on babesia treatment.

Just to prevent c.diff.

Hang in there. Better days are coming.

Hugs,

Geneal

Posts: 6250 | From Louisiana | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
dbourne
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What is a normal dose of flagyl? 1500 seems like a lot but I don't know a baseline. I am on 500 and thought that was a lot. Thanks.
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randibear
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i was taking two doses per day. guess that would be 1000 mg wouldn't it?

someone said that was a massive dose to start with but he ws treating c. difficile. it really did mess with my head tho. but afterwards, i felt better than i had in years.

--------------------
do not look back when the only course is forward

Posts: 12262 | From texas | Registered: Mar 2007  |  IP: Logged | Report this post to a Moderator
Annxyz
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flagyl makes me : SLEEPY , unable to eat ,
and depresssed . I raised my prozac dose to cope & it is helping .

--------------------
ANNXYZ

Posts: 744 | From Mineola | Registered: Apr 2006  |  IP: Logged | Report this post to a Moderator
   

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