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» LymeNet Flash » Questions and Discussion » Medical Questions » When is IV Treatment Necessary?

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Author Topic: When is IV Treatment Necessary?
justwondering
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Hi to all of you have helped me SO much

Just began treatment two weeks ago for Chronic Lyme (12 years undiagnosed) and tomorrow I find out what co-infection(s) I have. (Doc left msg saying I had 1 or more but did not say which ones)

My symptoms are many, including neuro, but when do (or should) doctors recommend IV treatment or is it something I should bring up?

If IV treatment is given, is this done at home or at a hospital and usually for how long?

THANKs!

Posts: 209 | From maryland | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
Vermont_Lymie
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Hi wondering,

I had untreated lyme for many years, along with babesia, and a range of severe physical and neuro symptoms when I finally got diagnosed and started treatment.

I saw 2 llmds the first four months of tx, and both recommended starting with IV due to the neurosymptoms. IV Rocephin is often recommended in cases like mine, but I am allergic to it. I made alot of progress with oral abx and bicillin shots over the past year, but may still use IV as some long-standing neuro symptoms have not resolved.

So, depends on what your llmd wants to try first. There are oral abx, like doxy, minocycline, high dose amoxy and others, that cross the blood brain barrier and are used for folks with lyme.

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justwondering
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Thank you. I just received my Igenex co-infection result and tested positive for Erlichiosis and Babesiosis. No wonder I have felt so awful all these years... I can't believe this....

I am glad you are making progress in your treatment. I hope my doctor treats me aggressively, too, so I can one day put this behind me:)

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Vermont_Lymie
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Sorry to hear that you have those two co-infections, but the good thing about having a positive test is that now you can get treated properly, and these diseases are treatable!! (And, many insurance companies are better about reimbursing with positive tests, I have heard). Actually, I was incredibly happy after first getting my diagnosis, to finally figure out why I had become so sick.

I was treated for babesia with five months of malarone; it wasn't always easy going, but I made alot of gains in health after the treatment! Also now takinig plaquenil for months, which I hear weakly hits the babesia and is used as a lyme cyst-buster.

My best wishes for your treatment, be sure to read as much as possible, including Dr. B's guidelines!

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