LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Left side numbness/paralysis: herx???

 - UBBFriend: Email this page to someone!    
Author Topic: Left side numbness/paralysis: herx???
Ellie K
LymeNet Contributor
Member # 12056

Icon 1 posted      Profile for Ellie K     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi all,

I'm freaking out here-- I just started adding Zithro 250mg/day to my Lyme treatment (also doing Bicillin shots).

About a week in and I'm having severe nerve issues. Shooting pains, tingling, complete numbness, ice cold sensations with white/bluish skin-- most of it is concentrated on my left side, starting a the tailbone ans shooting down my left lef.

Last night my entire left side (leg and arm included) went numb and completely paralyzed. It has been off/on throughout the day.

I'm so freaked out. I've had neuropathy issues before, but never this bad.

Is this part of a Zithro herx??? Need others' experiences, please!

Could it be permanent??? God, I hope not. It's really scary.

It feels like my leg has fallen asleep and I can't wake it back up. [Frown]

Posts: 390 | From Oakland, CA | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
hillaryb
Member
Member # 10049

Icon 1 posted      Profile for hillaryb     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'm on bicillin too, and I just added Zmax (a liquid form of Zithro). I've also been having shooting nerve pains since I added the Zmax. It feels very electrical--like shocks. Interestingly, it's also on my left side--weird!

Have you called your LLMD? Your pain & reactions sound pretty severe to me. I'm in the camp that you shouldn't put yourself through too much pain and anguish...

Good luck & I hope that you can talk to your LLMD or someone in his/her office tomorrow!!!

Posts: 90 | From Sunny Southern Cali | Registered: Sep 2006  |  IP: Logged | Report this post to a Moderator
Andie333
Frequent Contributor (1K+ posts)
Member # 7370

Icon 1 posted      Profile for Andie333     Send New Private Message       Edit/Delete Post   Reply With Quote 
Ellie,

I don't really know your history and how long you've been in treatment, but unilateral numbness and paralysis were both part of my initial herx (I was on ceftin).

In fact, at the end of the first month on ceftin, I had full-body paralysis that landed me via ambulance in the ER. It lasted about 4 hours.

The next month, I had the same thing happen (though I didn't go to the hospital that time). It lasted exactly the same amount of time. And it's never happened since.

I also had my face go numb and, weirdly, my ankles. In fact, it felt like I had tight bands wrapped around both my ankles.

And you're right: all this stuff is so scary.

I agree with calling your LLMD. I talked with mine during that first episode.

I hope this all calms down for you, but I'd also let your LLMD know what's going on. He/she may want you to ramp down your abx dosage until some of this subsides. Plus, I don't know what your living situation is, but it might be good to have a SO, friend or family member around...or just let them know what you're going through.

Andie

Posts: 2549 | From never never land | Registered: May 2005  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yes, please call your LLMD. Let's hope it passes very soon!!!
[group hug] [group hug] [group hug]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95327 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
pattilynn
LymeNet Contributor
Member # 8065

Icon 1 posted      Profile for pattilynn     Send New Private Message       Edit/Delete Post   Reply With Quote 
Every time I start or add a new antibiotic I get the same thing. It usually starts a couple weeks into it. Biaxin did it to me. So did zithromax. I don't have paralysis though. Just numbness and tingling down my entire left side. It's very scary.
Posts: 340 | From Ohio | Registered: Oct 2005  |  IP: Logged | Report this post to a Moderator
Ellie K
LymeNet Contributor
Member # 12056

Icon 1 posted      Profile for Ellie K     Send New Private Message       Edit/Delete Post   Reply With Quote 
thank you all...

up...

Posts: 390 | From Oakland, CA | Registered: May 2007  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.