LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » 2008 Shapiro: short course of orals= long-term cure

 - UBBFriend: Email this page to someone!    
Author Topic: 2008 Shapiro: short course of orals= long-term cure
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136

Icon 1 posted      Profile for CaliforniaLyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Murderer.
***********************************
1: Adv Exp Med Biol. 2008;609:185-95.

Lyme disease.

Shapiro ED.Department of Pediatrics, Yale University School of Medicine, New Haven, CT 06520-8064, USA. [email protected]

We now have more than 30 years of solid, scientific research about Lyme disease, a relatively common, vector-borne illness in
parts of the United States and of Europe.

Although there is still widespread misunderstanding of and misinformation about
the disease among the lay public, its clinical manifestations as well as how to diagnose and
to treat it are now well understood.


In the vast majority of cases simple treatment with a relatively short course of orally administered antimicrobials results in long-term cure with no adverse sequelae.

PMID: 18193666

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

Posts: 5639 | From Aptos CA USA | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
treepatrol
Honored Contributor (10K+ posts)
Member # 4117

Icon 1 posted      Profile for treepatrol     Send New Private Message       Edit/Delete Post   Reply With Quote 
To top it off he in pediatrics children!!

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
jamescase20
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
I dont get the point of this post? Stupidity? Thats what that is!
IP: Logged | Report this post to a Moderator
painted turtle
LymeNet Contributor
Member # 7801

Icon 1 posted      Profile for painted turtle   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Way too simplistic.

He should be watching cartoons.

Or open himself up to learn from the drs who see a vast complex condition that wreaks serious havoc if not diagnosed or treated properly

Very ignorant or corrupt

Definite accomplice to potential murder by neglect of the truth.

--------------------
www.lymefire.blogspot.com

Posts: 855 | From United States of Mind | Registered: Aug 2005  |  IP: Logged | Report this post to a Moderator
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136

Icon 1 posted      Profile for CaliforniaLyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
The point of this post is that THIS man is considered one of the top pediatric Lyme experts in the world, while our dear Doc J is screwed.

Know thine enemy.
They are working overtime-
and have no problem getting published.

THIS murderer is considered an authority.

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

Posts: 5639 | From Aptos CA USA | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
jamescase20
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
And we left the old world to come and deal with this new world?
IP: Logged | Report this post to a Moderator
Michelle M
Frequent Contributor (1K+ posts)
Member # 7200

Icon 1 posted      Profile for Michelle M   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by CaliforniaLyme:
Murderer.
***********************************
1: Adv Exp Med Biol. 2008;609:185-95.

Although there is still widespread misunderstanding of and misinformation about
the disease among the lay public, its clinical manifestations as well as how to diagnose and
to treat it are now well understood.


Let me dissect just this one retarded sentence:

"Widespread misunderstanding of and misinformation about the disease among the lay public" means: People with lyme keep disagreeing with us loudly, and other people are listening, and we don't like that.

As to the other part, "its clinical manifestations as well as how to diagnose and to treat it are now well understood," this means: 9 out of 10 doctors still don't have a freaking clue, but if your doctor says you don't have it, you should trust him because this is now so 'well understood.'

Recently, even my YOUNG doctor (orthopedic) exlaimed, "Lyme disease? In California?"

The 'best' neurologist in town couldn't figure it out despite every textbook symptom and objective finding and even a recitation of a bite and rash, preferring instead the "MS" diagnosis. He doesn't even know what co-infections are.

This kind of drivel from Shapiro flies in the face of reality. I wonder if he realizes how stupid it sounds? Even people without lyme know this is silly. He ought to be embarrassed to publish such garbage.

Michelle

Posts: 3193 | From Northern California | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
AliG
Frequent Contributor (1K+ posts)
Member # 9734

Icon 1 posted      Profile for AliG     Send New Private Message       Edit/Delete Post   Reply With Quote 
It would seem that he lives in his own alternate reality. [shake]

--------------------
Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006  |  IP: Logged | Report this post to a Moderator
KS
LymeNet Contributor
Member # 12549

Icon 1 posted      Profile for KS     Send New Private Message       Edit/Delete Post   Reply With Quote 
If he is so sure, he should be willing to demonstrate this for the rest of us. Why not allow himself to be bitten by a few infected ticks, allow ample time for the disease to really manifest and then treat for 2 weeks. Let's see if he relapses and then make sure he can't obtain anymore antibiotics because he's been successfully treated.

Granted this wouldn't represent Chronic Lyme but still.....

So frustrating!

Posts: 561 | From mass | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
ldfighter
LymeNet Contributor
Member # 9405

Icon 1 posted      Profile for ldfighter     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by CaliforniaLyme:
The point of this post is that THIS man is considered one of the top pediatric Lyme experts in the world, while our dear Doc J is screwed.

Yes, and he was the prosecution's 'expert' witness against Dr. J. This is the man the CT medical board chose to listen to!! while ignoring the other expert testimony.

We have to get the truth out wherever and whenever we can.

Posts: 621 | From US | Registered: Jun 2006  |  IP: Logged | Report this post to a Moderator
David95928
Frequent Contributor (1K+ posts)
Member # 3521

Icon 1 posted      Profile for David95928     Send New Private Message       Edit/Delete Post   Reply With Quote 
I'm sure he would be willing to take a blood transfusion form me (not).

--------------------
Dave

Posts: 2034 | From CA | Registered: Jan 2003  |  IP: Logged | Report this post to a Moderator
TerryK
Frequent Contributor (5K+ posts)
Member # 8552

Icon 1 posted      Profile for TerryK     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks for posting this CALyme!

The IDSA now include information on human granulocytic anaplasmosis (HGA) and babesiosis in the 2006 treatment guidelines. How can they state that they have 30 years of history to justify their stance when it is clear that even if a person were treated for lyme, they will still be sick if they contracted babs because lyme treatment does nothing to treat babs?

Oh yeah, they probably think it goes away on it's own. [bonk]

Why don't they admit that a percentage of the people that they have doomed to hell with their label of "post lyme syndrome" could actually have a treatable illness - BABESIA? Then those people could get some treatment. Why don't they admit that the combination of one or more infections can change the outcome of infection to a much more complex infection? Why aren't they considering all of the other tick infections that are known to be passed with a tick bite??

I haven't seen any mention from these a$$es that prior to their admitting that there are other tick borne infections transmitted with lyme, patients would have been infected that have never gotten treatment! Those patients who have been diagnosed with so called post lyme syndrome should at the very least be evaluated for babesia and HGE!!! They obviously realize that some patients have it that have never been treated. [rant]

They simply don't care about the suffering that they have caused because here is one instance when we know for a fact that they know without a doubt that there are people who contracted babs that have never been treated. The thought that this infection simply goes away on it's own is ridiculous.

Terry

Posts: 6282 | From Oregon | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
karuna
Junior Member
Member # 14313

Icon 1 posted      Profile for karuna     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by CaliforniaLyme:
The point of this post is that THIS man is considered one of the top pediatric Lyme experts in the world, while our dear Doc J is screwed.

Who's Doc J? What is he/she screwed for? (Sorry if this is off-topic, I just want to understand.)
Posts: 7 | From WA | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
sizzled
Frequent Contributor (1K+ posts)
Member # 1357

Icon 1 posted      Profile for sizzled     Send New Private Message       Edit/Delete Post   Reply With Quote 
Murderer.
Posts: 4258 | From over there | Registered: Jul 2001  |  IP: Logged | Report this post to a Moderator
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521

Icon 1 posted      Profile for Tracy9         Edit/Delete Post   Reply With Quote 
Momfromtexas,

SO WELL SAID.

I'm afraid his alternate reality is making it our reality; we are coming up against more and more people who have heard this and think we are fakers.

Momfromtexas, GOD I HOPE YOU ARE RIGHT.

Certainly, it is becoming more and more widespread and I can't imagine there could be any way that this will escape people much longer.

--------------------
NO PM; CONTACT: [email protected]

13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG.

Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005  |  IP: Logged | Report this post to a Moderator
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136

Icon 1 posted      Profile for CaliforniaLyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Karuna- PMed you an explanation*)!!!

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

Posts: 5639 | From Aptos CA USA | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
Aligondo Bruce
LymeNet Contributor
Member # 6219

Icon 1 posted      Profile for Aligondo Bruce     Send New Private Message       Edit/Delete Post   Reply With Quote 
Basically, my opinion is . These individuals are involved in a long-term effort to cover up something called 'treatment resistant neuroborreliosis' which is the bioweaponized strain of Bb s.s. and which causes chronic lyme .encephalopathy. This effort is designed to basically screw over people like us. As time progresses and the diseases spread throughout the US, the chances are that the virulent, dangerous form of the disease will be bred out. Also the total numbers become so huge that it is true that most cases ARE NOT the bad strains.

For purposes of the military industrial fascist establishment, we DO NOT exist. Why? Because it is an incovenience to the establishment elite who want to keep profitting off of our backs. For every destitute and isolated lyme victim, there is an investment banker or defense executive residing in splendor because the status quo, politically and economically, is maintained by the cover up and fiction.

Remember what russ tice, the DIA/NSA whistleblower had to say when he claimed the secretary of defense, the NSA director, and an air force general were breaking the law, and then was told by the NSA that he couldn't testify to closed session of Congress because none of the congressmen were cleared for the program in question:

"this is not something you'd want to see in the times...the american people should never hear about this unless it is 200 years from now when it is declassified."

I don't know what exactly tice was referring to, but it could be this. Tice specialized in satellite telemetry for black ops, 'special access programs', for the US defense intelligence agency and for the NSA.

Posts: 523 | From Stillwater,OK,USA | Registered: Sep 2004  |  IP: Logged | Report this post to a Moderator
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521

Icon 1 posted      Profile for Tracy9         Edit/Delete Post   Reply With Quote 
I"ve been crying a lot today.

This post by Sarah sort of sums it us, I guess. I feel hopeless/helpless today.

I am really depressed that the motion for reconsideration for Dr Jones was not considered. I had such high hopes that it would be helpful. The motion was based on the fact that one of the panel members, Dr Senechal, was biased from the start. Affadavits were filed by Dr Jones legal team from "two parents" whose child was treated by Dr Senechal, and had heard him make very biased statements about Chronic Lyme not existing, and dismissing thier concerns about thier son.

Sometimes I guess as a parent you just fight so hard for your child and feel like no one hears you. My son is now 18, and for four years we have fought for him to get treated for chronic lyme, to no avail.

Both Dr. Zemel and Dr. Senechal were the reasons behind that, boy we sure hit the jackpot.

It was hard enough to have to hear Dr Senechal make these and other comments to our son and to us, hard to enough to run up against a brick wall in trying to get our son treated, hard enough not to be listened to..

It was shocking to see him on the Dr Jones panel on Dec 18 and try to absorb that this man was part of the Dr Jones proceedings.

We had hope that in stepping forward we might have made a difference for Dr Jones; then maybe all our son suffered wasn't in vain, that maybe our voices and experiences, identical to those of so many others, might just have a chance at turning the tide.

Maybe the reality is just sinking in. Maybe I didn't know it was going to hit me this hard.

It feels like just another instance of being invalidated, being helpless, being voiceless, and not being able to protect not only mine, but thousands of other children now as well.

It just hit me that this is a big reason why I've been crying all day.

To see these words of Dr Shapiro today just makes me feel like he is sticking his tongue out and saying "nah nah nah nah nah."

I'm so sorry our voices weren't heard. I'm so sorry for everyone, but mostly Dr. Jones. I wish my son had been able to be proud of his parents for speaking up and helping others. I wish my son could feel that what he went through ended up helping lots of other kids, and one incredible doctor.

It just sucks. It just isn't right. I wish there was something more we could do. I know it isn't logical, yet I can't help but feel that somehow I have failed Dr. Jones and everyone else. I don't know why.

I guess it's just the overall let down, and the overall feeling of helplessness that is rooted in years of watching my child get lost. Maybe what I really feel is that I didn't do enough for my son these last four years; and now it's out there for everyone to see; reflected in the fact that somehow what we did wasn't enough to help Dr. Jones.

I hope I don't sound crazy or like I'm having a pity party here. I'm just sad. I hope somehone understands what I'm trying to say.

Pass the antidepressants. [Frown]

--------------------
NO PM; CONTACT: [email protected]

13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG.

Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005  |  IP: Logged | Report this post to a Moderator
hcconn22
LymeNet Contributor
Member # 5263

Icon 1 posted      Profile for hcconn22   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
It it now clear that the great Dr. Shapiro of Yale has wasted his entire career working on, researching, debating, and being outspoken critic of a disease that is as simple as Lyme.

Maybe he will tell us next that the world is flat.

--------------------
Positive 10 bands WB IGG & IGM
+ Babesia + Bartonolla and NOW RMSF 3/5/09 all at Quest

And still positive ELISA and WB two years after IV treatment
http://www.lymefriends.org/profile/blake

Posts: 607 | From Tick Town, Connecticut | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
CaliforniaLyme
Frequent Contributor (5K+ posts)
Member # 7136

Icon 1 posted      Profile for CaliforniaLyme     Send New Private Message       Edit/Delete Post   Reply With Quote 
Tracy9, [email protected] was the email for Ira the guy who won the Cecil Teen Lyme lawsuit for 1.4 million!!! If you do have a case- The problem is the standard of care is SO low- but if you get NO treatment- and can document disability stemming from that- you can have a case-
Tracy9, I am so proud of you!!! You stood up for all of us. Who knows what may happen on appeal!!
Sincerely,
Sarah

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

Posts: 5639 | From Aptos CA USA | Registered: Apr 2005  |  IP: Logged | Report this post to a Moderator
oxygenbabe
Frequent Contributor (1K+ posts)
Member # 5831

Icon 1 posted      Profile for oxygenbabe     Send New Private Message       Edit/Delete Post   Reply With Quote 
Bruce I agree with a lot but not that the virulent form will be wiped out--its spreading.

I would get you guys the full text but that would cause me to vomit while I was doing it so I prefer not to vomit.

I'd like to hang and quarter them but I don't have time now [Smile] ,.

Posts: 2276 | From united states | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
nellypointis
LymeNet Contributor
Member # 1719

Icon 1 posted      Profile for nellypointis     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Why don't they admit that the combination of one or more infections can change the outcome of infection to a much more complex infection? Why aren't they considering all of the other tick infections that are known to be passed with a tick bite??
Yes, why? I actually thought they would be smart enough to realise that the co-infections were a good way out for them to avoid losing face. Maybe that's what they are doing, keeping the co-infections up their sleeves for when the s--t starts hitting the fan. I thought they were going to say:

"oh! but we were not wrong, we were writing about "pure" Lyme and "pure" Lyme is easily cured with a handful of abx.

But now, if we are dealing with Lyme with co-infections that's different, and it might be harder to treat."

But they haven't, I think they might actually be as dumb as what they write. They are going to stick to their guns no matter what.

Nelly

Posts: 416 | From france | Registered: Oct 2001  |  IP: Logged | Report this post to a Moderator
TerryK
Frequent Contributor (5K+ posts)
Member # 8552

Icon 1 posted      Profile for TerryK     Send New Private Message       Edit/Delete Post   Reply With Quote 
Yes, you are right Nelly - it would be a good way for them to save face! So frustrating that it isn't happening.

Really does make one wonder about the biowarfare angle.

Of course I suppose they could be as dumb as a post but that just doesn't seem likely to me.

Terry

Posts: 6282 | From Oregon | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521

Icon 1 posted      Profile for Tracy9         Edit/Delete Post   Reply With Quote 
Nelly,
I bet you're right; their "pompousness" has prevailed so far...so maybe they are still saving that one.

Frankly they really haven't had to use it yet, and the more they "win", they more pompous and entitled they become.

--------------------
NO PM; CONTACT: [email protected]

13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG.

Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005  |  IP: Logged | Report this post to a Moderator
lymednva
Frequent Contributor (1K+ posts)
Member # 9098

Icon 1 posted      Profile for lymednva     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Although there is still widespread misunderstanding of and misinformation about the disease among the lay public, its clinical manifestations as well as how to diagnose and
to treat it are now well understood.

I think he has that part backward! The "lay public," i.e. patients, have a well-informed understanding of and information about Lyme.

It's the ducks like him that are lacking it! [shake]

The LLMD's have figured out how to diagnose and treat Lyme, it's IDSA and Shapiro that have the misunderstanding! [loco]

--------------------
Lymednva

Posts: 2407 | From over the river and through the woods | Registered: Apr 2006  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.