LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Bartonella IS Lyme says insurance co!

 - UBBFriend: Email this page to someone!    
Author Topic: Bartonella IS Lyme says insurance co!
MommaK
LymeNet Contributor
Member # 10376

Icon 1 posted      Profile for MommaK     Send New Private Message       Edit/Delete Post   Reply With Quote 
Don't know whether to laugh or cry!

Already appealing BCBS policy of 28 day IV for lyme for exception.........

Now request for levaquin IV for bartonella is denied because "bartonella is lyme"

I don't have time to educate this case manager! Can she really be this dense? They don't have the same medical code number. Is this just a stall tactic?

No where on the BCBS policy of lyme treatment are co-infections mentioned. The only place bartonella is mentioned in the policy has to do with nucleic acid probe testing being considered investigational.

What next!

Got to go, baby crying!

MommaK

Posts: 242 | From Mississippi | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
jamescase20
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
Thats why I am not even bothering with insurance. Bought leva from india...I really dont even want my insurer to know about all this. Oh, I have private insurance...so they would play so many games...

Yes, there stalling...they do anything to avoid paying...even if not leg. they will play every game they can play.

IP: Logged | Report this post to a Moderator
MommaK
LymeNet Contributor
Member # 10376

Icon 1 posted      Profile for MommaK     Send New Private Message       Edit/Delete Post   Reply With Quote 
Any suggestions on what to put in insurance appeal letter?

How do they know she didn't get bart from a cat?

Waiting on Igenex bart lab results. I don't doubt clinical dx. Rash on thighs, enlarged pelvic lymph nodes. Is rash meaningful in dx like EM rash in lyme?

Do you even use levaquin on lyme?

Thanks, MommaK

Posts: 242 | From Mississippi | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
clairenotes
Frequent Contributor (1K+ posts)
Member # 10392

Icon 1 posted      Profile for clairenotes         Edit/Delete Post   Reply With Quote 
I don't know if this will help, but can you provide them with some definitions of lyme disease? Here are three that I found relatively quickly on the internet and co-infections are no where to be found within the definition.

http://www.medterms.com/script/main/art.asp?articlekey=10733

http://dictionary.webmd.com/terms/lyme-disease.xml

http://medical.merriam-webster.com/medical/lyme%20disease

Claire

Posts: 1111 | From Colorado | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
Soleilpie
LymeNet Contributor
Member # 8481

Icon 1 posted      Profile for Soleilpie     Send New Private Message       Edit/Delete Post   Reply With Quote 
Bartonella henselae (formerly known as Rochalimaea henselae), a rod shaped gram negative bacteria, is neither equivalent nor exactly that of Borrelia burgdorferi, a corkscrew-shaped bacteria that is neither gram positive nor gram negative (but when stained, stains as a weak gram negative). They are completely two different bacteria.

Either they're stalling or that person needs to be reassigned!

--------------------
The best index to a person's character is how he treats people who can't do him any good, and how he treats people who can't fight back.
-Abigail van Buren (Pauline Esther Friedman) (1918-2002)

Posts: 409 | From Florida | Registered: Dec 2005  |  IP: Logged | Report this post to a Moderator
tailz
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
Where are our doctors? - the ones who we were raised to entrust our lives with who are supposed to be protecting us?

We're dying of infection. I don't know why it didn't hit me before, but I have an autoimmune disease with low IgG 1 and 3 subclasses which will put me at risk for lymphoma, stomach cancer, colon cancer. My grandafather died of colon cancer. My grandmother died of Alzheimer's.

I know infection combined with chronic EMR exposure is the reason for my being immunodeficient, and not a damn doctor will listen to me.

IP: Logged | Report this post to a Moderator
bettyg
Unregistered


Icon 9 posted            Edit/Delete Post   Reply With Quote 
up for more replies! [cussing]
IP: Logged | Report this post to a Moderator
jamescase20
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
I think most doctors have themselves in mind, rather then the sick pat.
IP: Logged | Report this post to a Moderator
MommaK
LymeNet Contributor
Member # 10376

Icon 1 posted      Profile for MommaK     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi!

Thanks for your replies.

The medical policy does have a decent defination of lyme disease. At least they aren't disputing the lyme diagnosis - yet.

Waiting on Igenex bart test results. Maybe a positive test will at least prove diagnosis of bart. Without a positive bart test wonder what will happen.

To quote a neurologist "The chance you have a rare infectious disease is very, very small. The chance you have two rare infectious diseases is basically imposible."

Guess there are many doctors that need educating, so I shouldn't be surprised the RN case manager at the insurance co does too!

Thanks, MommaK

Posts: 242 | From Mississippi | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
D Bergy
Frequent Contributor (1K+ posts)
Member # 9984

Icon 1 posted      Profile for D Bergy     Send New Private Message       Edit/Delete Post   Reply With Quote 
Insurance companies teach their people to deny most any claim, for most any reason. Especially if it is expensive.

Appeal their decision. Tell them that they are separate organisms and require separate treatment and that it is not your responsibility to teach them about pathogens. If that does not work you may want to tell them that you are writing a letter to the the state insurance commissioner explaining your problem. (whether this scares them depends on what state you are in.) Unless your policy excludes this procedure, they have no grounds for denial.

You will find the next reason for denial is that the procedure is "experimental".

They count on wearing you down before they submit. Unfortunatly it often works.

Do not be afraid to write a letter to the insurance commissioner. Insurers do not like attention being focused on their denial policy.

BC/BS is paying for my Low Dose Naltrexone for Crohn's and my policy specifically says they do not pay for this drug. They also do not pay for compounded drugs. My LDN is compounded. Plus, its use for Crohn's Disease is experimental. They do not even know what they are not supposed to be paying for. My medication is cheap, so they do not even look into it.

Good Luck

D Bergy

Posts: 2916 | From Minnesota | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
luvdogs
LymeNet Contributor
Member # 9507

Icon 1 posted      Profile for luvdogs     Send New Private Message       Edit/Delete Post   Reply With Quote 
I agree with the Insurance Commissioner idea! It worked for me from a different angle, and with United. But the minute they came in - or that I mentioned that I have been dealing with the Commissioner, all was settled.

And DO speak to the commissioner, That is what they are there for and they will help!

Best of luck to you and I am sorry for what you are going through.

Posts: 584 | From Rhode Island | Registered: Jun 2006  |  IP: Logged | Report this post to a Moderator
Chia Pet
Member
Member # 12399

Icon 1 posted      Profile for Chia Pet     Send New Private Message       Edit/Delete Post   Reply With Quote 
I would print out as much as possible about Bartonella as you can especially this article

http://www.publichealthalert.org/AUG%2007%20PHA%20template%20REVISED.pdf

Take pictures of your rash.

Curious about IV Levaquin. I've not heard it being adminsitered via IV.
Is this new?

Posts: 85 | From here | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.