posted
This is really a jump from another thread, but I'm curious: Where does your lyme hide?
We know lyme can go into cyst form and can hide in cartilege, etc. I remember in December '06 having weird sore shoulders, then BAM major lyme symptoms evolving during the spring.
Then when I just stopped abx two weeks ago after being symptom free for 12 weeks BAM the shoulder again!
Second part of the question: How do you chase the lyme from the hiding spots? Any success?
Posts: 524 | From Hudson Valley, NY | Registered: Jul 2007
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tailz
Unregistered
posted
In my spine - to the left of center in the middle.
Something is living in my jaw, too - or maybe in the part of my brain that controls the jaw.
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
I'd say mine is in my brain mostly since the majority of my symptoms are lyme brain-like: dizziness, wooziness, spaciness, floating-on-a-cloud feeling, feeling like I'm not here and not myself, have trouble finding words, mix sentences/words up, having panic-y symptoms, hot flashes, can't stand noise, can't stand too much light, etc. I also have something in my joints, including my jaw -- TMJ.
But for me, the worst is the lyme brain. Scary.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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posted
Mine is in my jaw, neck, traps, mid back, glut muscles, and knees. And the worst is in my brain.
Haven't found anything to chase it out but detox baths, osteopathic treatments help some.
-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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Clarissa
Frequent Contributor (1K+ posts)
Member # 4715
posted
I would say in my head, or to be more exact, between the eyes and in my jaw. and in the brain, I'm new to this but I feel like I have a lot of neuro-symptoms.
also, very low in my back, just before a flare I get pain in my lower back and up high on my spine and neck
Posts: 13 | From netherlands | Registered: Jan 2008
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posted
Right shoulder and left elbow. Started in my right shoulder and neck. Neck has stopped hurting, but right shoulder is almost in moveable due to pain.
Posts: 108 | From maryland | Registered: Sep 2007
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posted
It's spread pretty much all over my body (though my brain, luckily, not so much), but I still get some serious pain especially bad flares out of the blue in my left forearm and a spot just above my right shoulder blade. Those two are what sent me to my now defunct death plan---I mean health plan---7 years ago.
Posts: 343 | From Northern VA | Registered: Oct 2004
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
Hmmmm. My brain, my bladder, my joints (all of them),
Sometimes my jaw, toes, fingers, etc.
My behind is just about the only part of my body that doesn't hurt......too much.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
My lyme is mostly in my brain and spine.
Posts: 1603 | From ny | Registered: Aug 2006
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posted
in the back of my neck, the base of the scalp, and shoulders. I recently broke out in a rash in these areas and found that when I applied various therapeutic herbal tincures to the rash, I herxed big time w/neuro sx.
So at least in my case, I believe the rash is not just full of toxins, it's full of bacteria or other microorganisms. I was doing so well when the rash broke out, I think the bugs are being chased to this area from other areas.
Because of the proximity to the spinal cord, I think they may be "seeded" from the spinal cord.
Posts: 975 | From California | Registered: Apr 2007
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posted
Will settle anywhere in your body. Will also change. Mine started in back and neck, then after treatment most pain went away. About 3 years later came back in elbow- wierd swollen the side of golfball for no reason.
Primary problem now is brain- and finally got dx for Babestia and Bart.
-------------------- Positive 10 bands WB IGG & IGM + Babesia + Bartonolla and NOW RMSF 3/5/09 all at Quest
posted
For my wife her sternum used to be sore, but now it's migrated to the upper chest muscles. The soreness comes and goes every few days without any pattern.
We are thinking of topically applying some of the leftover abx.
Has anybody tried making a paste with your abx (crush pill and add water) and applying it to the sore spot?
She has a bunch of Mepron left over, thinking about applying some of that topically to see what happens!
My theory is that abx simply cannot penetrate some of the cartilege areas of the body systemically - so why not attack the bacterial colonies from a different angle? It might at least the force the colony to disperse into the bloodstream where you can kill them.
Any ideas?
Posts: 655 | From USA | Registered: Sep 2007
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luvs2ride
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Member # 8090
posted
Massage. A good masseuse can find the knots and break them loose.
My masseuse was a nurse and knows the anatomy very well. My neck can be frozen and she works on me for an hour and I am painfree.
I used to have so many knots in my shoulders, neck and back I would sound like bubble wrap. She finally gave me a discounted rate so I could afford weekly visits. I rebound and eat about 50% raw diet to try to keep toxins moving.
Together I stay painfree. Am not ready yet to give up her weekly visits.
Luvs
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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tickled1
Frequent Contributor (1K+ posts)
Member # 14257
posted
Mine picks different spots to hang out in.
Either forearms, right eye/sinus/ear. Right side of neck through shoulder and back down into groin/thigh/knee. Sometimes on both sides but right is worse.
Interesting b/c tick was attached in right groin area.
Also had terrible bladder pain which has now moved to my guts, lungs and kidneys.
And my brain!!!
Posts: 2541 | From Northeast | Registered: Jan 2008
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lymie_in_md
Frequent Contributor (1K+ posts)
Member # 14197
posted
Mostly left side of my body, especially forearms, neck and left shoulder entire jaw. Doesn't seem to be on the right side that much
-------------------- Bob Posts: 2148 | From Maryland | Registered: Dec 2007
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The harder you work the luckier you get! Posts: 965 | From Nebraska Cornhuskers fan in Massachusetts | Registered: Dec 2007
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lymeladyinNY
Frequent Contributor (1K+ posts)
Member # 10235
posted
Back of head/neck, lower back, pelvis, and diaphragm.
If anyone touches my lower back I can't stand it. My son smacked me there last week when he got mad and I fell to the floor and couldn't walk or talk the rest of the night.
-------------------- I want to be free Posts: 1170 | From Endicott, NY | Registered: Sep 2006
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posted
Mine is mainly in my knees, elbows, neck, shoulders...and now more recently in the hips and lower back.
-------------------- "Never underestimate the power of a few committed people to change the world. Indeed it is the only thing that ever has." --Margaret Mead Posts: 290 | From New York | Registered: May 2007
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bettyg
Unregistered
posted
quote:Originally posted by disturbedme:
I'd say mine is in my brain mostly since the majority of my symptoms are lyme brain-like: dizziness, wooziness, spaciness, feeling like I'm not here and not myself, have trouble finding words, mix sentences/words up, having panic-y symptoms, hot flashes, can't stand noise, can't stand too much light, etc.
took a few words out that didn't apply to me and ADDING horrible pain in my neck, entire spine, and lower butt/hip!
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charlie
Frequent Contributor (1K+ posts)
Member # 25
posted
Knees elbows feet...I have the golfball thing in elbow like Blake.
when it swells and stings I know it's time for a round of abx. I wish somebody would invent elbowmycin....
Charlie
Posts: 2804 | From Texas | Registered: Oct 2000
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posted
Oh no! I hope lyme isn't hiding everywhere it hurts!
I would say in order of ouchiness
brain spine knees elbows jaw
Bones (actually that should be at the top of the list)
legs forearms fingers ears
crazy twingy things that can happen any where
Most of these things continue to hurt when I'm in a remission too. Just a little less. The only thing that really goes away is fog brain and getting lost
I once got lost in my own backyard for about 4 hours
Posts: 102 | From ny | Registered: Feb 2008
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posted
Upper back, shoulders and spine are always in agony.
-------------------- "Life isn't about waiting for the storm to pass, it's about learning to dance in the rain." Anonymous Posts: 450 | From California | Registered: Feb 2008
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adamm
Unregistered
posted
Lyme for me is, as it is generally,
most significantly a brain infection. Some must have
been done to it in a lab to strengthen its neurotropic tendencies.
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