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» LymeNet Flash » Questions and Discussion » Medical Questions » Get ill when in stores or buildings? (Page 2)

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Author Topic: Get ill when in stores or buildings?
primcol
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I gradually gave up large stores entirely.
I never knew why. I did not get nervous
or was not bothered by the lighting. I just
had the overwhelming urge to get out of them. Eventually I realized that casinos
had a similar effect and so did schools
where I used to work.
I thought it was because I could not stomach
being with people so alien to myself. I love the company of people but can tolerate them in large groups .Little by little I came to realize I was not like people in general....they
all mingled about without a care in the world
and patiently looked thought all the stuff.
I felt great impatience with crowds of people.
I somehow new that I was not one of them.
In large stores I feel like I am trapped
in a monkey cage a the Zoo....and not
being a monkey felt I a strong sense of
disconnectedness...shoppers are not
lymies....They are not the same species as us.
Lymies are no longer fully human I believe.
Like in the movie "the fly" we are now part
spirochete on a molecular genetic level.
For some reason spirochetes dont like crowds.
Years ago I heard a song by the kinks,,,it
was called I not like everybody else...I
was fascinated by that song...It was sung to
us...Download it from limewire..It think
you see what I mean.

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cws3333
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Dear Primcol,

Thank you for your vivid description of your feeling of alienation from others when you are in stores and crowds. I am sorry that Lyme has affected you in this way.

I have heard others describe that they feel that they have lost their humanity, too, as a result of Lyme disease, but they meant that in a completely different way than what you have mentioned here. One of the things that they sensed was that they no longer were always able to be fully responsive to the emotional or moral requirements that a particular time and circumstances demanded- that there was a disconnect between their understanding that something needed to be attended to and being able to act accordingly- a failure of will. This phenomenon goes against the philosphical work of thinkers such as Victor Frankl and others who state that the one thing humans always have freedom over is that we can choose how we respond to circumstances. The deterioration of this function, which gives dignity and meaning to our species, is therefore utterly dismaying to someone who senses this loss. It implies a loss of selfhood.

What you describe as a loss of humanity is understandably clearly very distressing to you, too. I just wanted to clarify that the sense of loss of humanity that patients experience with Lyme disease is apparently sensed in quite different ways.

I hope that with time your symptoms will improve and that you will again feel more connected to others.

cws

[This message has been edited by cws3333 (edited 05 May 2002).]

[This message has been edited by cws3333 (edited 05 May 2002).]


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Tincup
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To the top for newbies...

------------------
Please don't feed the ducks!


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Liz Hallinan
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My husband has these problems and he doesn't have lyme! He can't stay in stores more than 10 minutes or he freaks out, his eyes hurt and he gets exhausted. He thinks it's dust allergies because he works under floresant lights all day.
Liz

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Tincup
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Bringing it up for Jimm...


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Tincup
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up for new member
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Rose
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quote:
Originally posted by jen13:
That's interesting. Could be fluorescent lighting affecting your nervous system--it's known that autistic kids for instance, who have trouble processing sensory input because of innate nervous system damage--can't handle fluorescent lighting, or loud noises and so on. So lyme could have screwed up the nerve pathways.

Also, just want to make note, chemical sensitivities come with lyme and candida. When my candida was at its worst some years ago (pre lyme) I would feel sick whenever I went into ABC Carpet--a huge fantastic store that has not only tons of carpets but all kinds of household goodies, linens, couches, pillows, etc etc etc. I'd go there on my lunch hour. I now realize all those old costly rugs had mold in them.

Stores can have chemicals--like particle board outgassing formaledhyde, plastics outgassing stuff etc. You could be reacting to those too


Flourescent lights actually flicker at a high rate of speed. Your eyes don't see it, but your brain does. So does a computer screen, which is why sitting at a computer screen for long periods of time bothers a lot of people. (This time period will vary depending on the type of monitor you have, and the color scheme you use to absorb the flicker and light intensity.)

The lighting in stores can trigger seizures. I cannot shop, though I need the bright light of natural sunshine (full-spectrum lighting). I even have to use a light box during the winter months to simulate natural sunshine. But shopping leaves me very disoriented. Plus, the lights reflect on the highly waxed floors in grocery stores or places like Target, which makes them impossible to navigate. I haven't had any seizure activity since 1997 -- mainly because i stay out of stores. If I have to go, I only run in for prescriptions, and I have to hang onto a grocery cart to keep balanced. James does what little shopping we do.

Also, the fabric (the dyes) can affect people with chemical sensitivities. And perfume. James cannot go near the perfume and cosmetic counters in malls -- and they usually place them right at the anchor store entrances, and people are spraying this poisen into the air. It makes him absolutely hostile! Different scents provoke more intense reactions.

I am very sensitive to mold. When we had an overflow in a closet area (from the upstairs a/c pan), we both got sick, but James ended up in the hospital with a life-threatening illness from toxic mold.
Love ya,
Rose in Texas

p.s. As an example of how light affects the brain, have you ever noticed the computers or TVs in the background when you are watching a news program? Do you see how the screen "blips?" That's because of the way the camera reacts to the flicker rate...it's somehow delayed. anyway, my point is that that is how your brain actually registers the image. You don't "see" it in real time, but your brain does. (Very simple explanation, here...not all that technical, I know, but just trying to give something to relate to about why we experience these symptoms.)

------------------
!!! T.O.I.L. for Lyme !!!
Teach tolerance
Overcome ignorance
Initiate insurance reform
Labor for Lyme literacy

[This message has been edited by Rose (edited 18 October 2002).]


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Rose
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I use full-spectrum light bulbs in my reading lamps at home, and because we have 24-foot ceilings, I use halogen lights on pole lamps to shine UP. Creates a lot of light, without casting shadows. It really helps to boost my energy levels.

Because I suffer from seasonal affective disorder (SAD), this is a subject I've studied for years. strangely enough, since being treated with antibiotics for Lyme, my symptoms have actually lessoned. Usually, this type of illness gets worse with age.

Having been diagnosed with encephalities, I was really worried about the upcoming winter season a few years ago, because I am usually extremely depressed and completely nonfunctional (extreme fatigue, inability to stay awake, and having to use light box 3-4 hours a day) in the winter months. But, I went on IV antibiotics in late October, and my symptoms that year were the mildest ever!

Interesting correlation? Maybe not "scientific," but I was just glad for the relief, and for the first time in my entire life (had Lyme since 5th grade, we've determined -- and I'm 55) I do not fear the winter months or the time change.
Love ya,
Rose in Texas

------------------
!!! T.O.I.L. for Lyme !!!
Teach tolerance
Overcome ignorance
Initiate insurance reform
Labor for Lyme literacy


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Tincup
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Nice ideas Rose.. thanks.


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helen65
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Wow what a topic.
I too have had this problem.
I even hate to hear a child cry or screaming in a store. ( Im thinking awful things like why do they have to bring their kids in here...) I know bad since i have kids myself.

Lowes is like too big of a store and i feel like the stuff at the top could tumble down on me ..

the minute i walk in a store is terrible,i have to write a list and hopefully i can get it all before i feel too bad and have to leave. I ve also left a store with like 2-3 items when i needed alot more.

i used to know where everything is in a store where i frequent for groceries and now have to look in every isle for what i want....aarrrggghhhhh

Hang tough everyone, Helen


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Tincup
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Shop till you drop....
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JRWagner
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Ouch...that floor is HARD!!!

Great post by all. Good facts, good intentions, and, of course, CHOCOLATE!
Seriously, thank you!
Peace, Love and wellness!
JRW


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Pat
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delete

[This message has been edited by Pat (edited 04 May 2003).]


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tickchick
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Request a link about coinfections, please.
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troutscout
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[B]I am extremely sensitive to chemicals and mold in stores, where I work, at home, etc.

I suggest to anyone who has had the serious symptoms to see the postings on www.MCSurvivors.com

this is where three of us came from...ArtistDi, FancyRatFan and myself.

There are several hints on how to combat this.

Fizzing Vitamin C is a BIG help.

Also....as the abx work into the brain they will kill keets in the olfactory and trigeminal nerve area...then release the toxins...so you get both the good and the bad...if your symptoms are hightened after a course of abx it is probably one or both of these hitting you.

Trout Scout

PS..Chemical Sensitivity seems to wane as you heal....also, reduce your toxic load...use only all natural detergents and NO FABRIC SOFTENER/SHEETS!

[This message has been edited by troutscout (edited 22 November 2002).]


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cws3333
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TS,

Good point about the scent-free laundry detergent and nixing the fabric softener!

cws


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Tincup
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Up for G....
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mandykrystal
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i have also have problems going into stores-my dr said its just panic attacks-but i feel the people are moving around me too fast sometimes its like a buzz in my head-strange i know-i do work under floresent lites but have 2 have the one over my desk dimmed or i get migraines-i am always dragging someone with me 2 stores as i cant walk around inside by myself!
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Tincup
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Up for BG...
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Tincup
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Tis the shopping season...

I thought this might remind you to get that peppermint oil and GO TO TOWN!


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echo
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Ditto, Ditto, Ditto!!
Maybe I'm not nuts after all.
I'm going to give the peppermint oil a shot.
Perhaps this is why I'm addicted to altoids when I'm at the office under the flourescent lights.

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Tincup
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Up for Kathy's friend...
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Lymiegirl
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Hi Tincup and rest of group:
Just wanted to let you know that I've obtained the Olbas peppermint inhaler and the red/pink sunglasses. I can definitely say they are helping me....still wouldn't say that I want to spend even one extra SECOND in the grocery store (eSPECially the detergent and frozen food aisles...ACK!), but these little devices are making it easier. I haven't been in a mall for about three years....maybe this will be the year?
Anyhoo, many thanks Tincup, for this information, and to eveybody else for sharing their experience(s), so none of us feel alone in this peculiar aspect of our Lyme-ness.
May your holly days be jolly days! LG
(Tincup, I loved this phrase of yours! Just had to try it out, too!)

------------------


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RSF718
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Wow, what a relief to know that this isn't all in my head. I have found that shopping malls make me REALLY dizzy and fatigued. I can't stand shopping anymore b/c I get so wiped out and exhausted from it. I just feel completely overwhelmed. Weirdest thing too ... I always loved shopping before. It seems that only the malls overwhelm me like that though. Weird ...
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Tincup
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Peppermint patty...

Up for new member...


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Tincup
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Up for new member....
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SunRa
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Tincup - thanks for bringing this up, being new here, I probably wouldn't have found it otherwise and reading everyone's posts on this has really helped me.

Stores also make all my symptoms worse and I get extremely dizzy. I can only go into them on my "good" days. And I don't even go to the big scary stores...even walking around a small health food store makes me panic, especially when I don't know exactly what I need and I have to look down rows of items.

I'm constantly trying to explain to family/friends that it's not social anxiety! I'm going to print out some of the explanations of the flouresent lights and chemical smells to show them. Thanks!!!!!

I get similar reactions in doctor's offices. I wish they'd get rid of the awful flourescent lighting and create more calming, healing environments.

Tincup - I'm anxious to try the peppermint oil!! thanks for the great suggestions!!

Peace and good health to you all!
- Jen


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Tincup
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SunRa...

Glad to see it was a help to just read this post.... It does help when we share the stuff that no one mentions.

I am like you.. very difficult for me to "shop" and I know others don't understand. It is embarrassing too... especially when you are invited to go with someone on the spur of the moment and you immediately think to your self.. geeze... I wouldn't invite them to a slaughter house.. so why do they want to torture me? To them shopping is fun. To me I HAVE to do it to be able to eat and survive.... and it compares to looking forward to a root canal.. or worse.

I hope some of the little tricks help ease some of the panicky stuff for you.

Since I have gotten to actually "shop" more lately because of this help... I find that I now sometimes "drop by" a store while out. I haven't even thought of doing that in years... it would have been a nightmare to even consider it. But now I actually feel it is somewhat "normal"...

I still have days that are worse than others.. and sometimes I go in stores and forget to use the peppermint. I get about 10 steps inside before I realize I forgot the peppermint.

And what I said about using it 10 minutes or so before you go in.. that makes a big difference instead of doing it AS you are going in. That couple extra minutes does help.. at least it helps me.

And yes.. doctors offices are a NIGHT MARE for me!

Between already being sick.. nervous.. white coat syndrome.. the smells... being locked up in a tiny room with the door shut... plain stupid white walls bouncing light back in your face.. and the patterns on the floors... etc. etc....

I get dizzy.. weird.. freaky... pacing back and forth like a caged animal... breathing strange.. off balance like I will fall over... dry mouth... anxious...extremely impatient.. and finally nasty and hatefull. The longer I am stuck in the little room, the worse I get.

I am to the point now that I sit outside till the last minute.. reopen the door the nurse shuts when they leave... walk the halls... go use the bathroom... whew... it is awful.

Using the peppermints the whole time helps some.. but that is one of the worst places for me. Especially when they don't have windows! And when they do have windows.. they are often shaded shut. Ahhhhhh!!!!!

Anyhow.. good luck and I hope it helps.


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sandygf
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Can't tell you how many times I've just left a full cart of 'stuff' in a store cause I
just couldn't last another minute.

I'm probably one of the few people who
doesn't mind parking far from the store
since thats all the more time I have before
I walk inside those dreaded doors.

I feel disoriented, sick, nervous and far
removed from the 'normal' people around me.

Have almost passed out in stores. Never get
all the things on my list cause I just can't
last that long.

Grocery stores are not nearly as bad as
shopping Malls.



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lelahj
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i get VERY foggy, my eyes tear up, and my nose starts running in places like home depot and wal-mart- i used to think it was my dust allergies. but, come to think of it, i get really irritated by strong odors, bright lights of any kind, screaming kids (grrr), and loud noises.

i've had lyme since 1992 (i think, i was pretty far gone when i tested positive in 1993).


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Tincup
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Up for new member...

------------------
Never apologise for extreme measures when defending your values, your health, or your family's safety.


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livinlyme
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look into florescent lighting and the effects it may have on Lymies... not sure but I know it had an affect on my mother when she had it.. and I never stay in stores long enough to find out.. but at work they have them and I'm fine out side but not inside!
Go figure!
Still LIVIN

------------------
Can't do better, unless you know better!


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Laurie
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I'm astonished at the volume of folks who have this problem. No, we can't all be crazy! As Caj said previously, it also seems worse for me in small/mall stores where clothing racks hang free. I often feel the inside of my head "buzzing" or that I don't hear the person speaking to me, and I want to grab onto the clothing rack because it's like the world is sliding out from under me. In large stores like WalMart or Target, I start out okay and within moments, feel overcome with confusion, fright, irritability, as if everything looks "strange." Never had this prior to Lyme. Friends of mine with LD sometimes have to leave when we're in buildings with florescent lights. I've had LD for 19 years and probably babesia also.
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Laurie
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Oh - forgot. You asked how long until we feel "normal" again. Usually, when I get outside to my car I start feeling ok, but the dissasociative state does take a while to dissipate. It does sound like a panic attack, of course, and I also have these - another LD gift. But since so many of us have these store/building intolerance, I think that yes, there's another answer. Maybe the LD has damaged some part of our brain that controls/adapts to something here.
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Tincup
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up for new members...
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Byron2
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Hi...

Most Mall type stores are filled with toxic outgassing chemicals...the flouresant lights definetely have an affect on the body. EVERYONE is affected, but not necessarily notice it...the ballasts that drive the lighting systems is as big as problem as the light itself...it puts out frequencies that bother alot of people...one light not so bad, a hundred or more and well, run for cover...

Byron2


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Digby
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Yup!~ I always attributed my Walmart symptoms to being chemically sensitive. I avoid the aisle with the scented candles at all costs. I get spacey, weak, my eyes burn, intense brain fog and reach a point where I head for the cashier even if I haven't finished shopping. Just can't take anymore!

The emotional aspect of it for me is a sense of vulnerablility. I will also duck down an aisle to avoid people I know (typically I can't remember their names).

It's not just Walmart of course but being in rural Arkansas, I don't have too many options. Oh yeah, the tire store is the worst, I get physically sick within minutes.

Michael


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Lishs mom
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Lishkas worst stores are stores with smells. She cant go in the perfume stores or candle stores in general.
The smells used to create seizures, in fact a friend of ours with her "brown baby syndrome" daughter were in a store, and her daughter stopped breathing, just as Lish became white as a ghost and almost fainted. Each mom noticed the others daughter was NOT ok in the store and we rushed out. Her daugher was given O2 and did fine, mine sat for a while and finally recovered. That is the last time we went into a "smell" shop for a long time.

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chraxis
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I work in a restaurant that is always very hot, partly because the owner is too cheap to put on the AC, and partly because of all of the rotisseries and ovens. When I walk in there my neuro symptoms become worse and I become more fatigued. Also, the perfume section in department stores drives me crazy. Flourescent lights make me notice my neuro symptoms much more, thus making me feel more ill.

[This message has been edited by chraxis (edited 05 June 2003).]


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Patty M
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I think somebody already mentioned this, but sound and light sensitivity are symptoms of lyme... Even without lyme, the lighting would bother me and depending on the "time of month" the lights might trigger a migraine. Add lyme to it...
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Tincup
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up for David...
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texjb
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Since becoming sick in March, 2003 - I have a very difficult time being in large, public places because my brain "does not" process everything I am seeing. My symptoms - disequilibrium, brain ache, brain fog & disorientation - get much worse when in amy store. I would LOVE for this to go away - since I feel like such a loser not being able to "participate" in real life.

Has anyone felt that this has gotten better with abx treatment of lyme?


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Beverly
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Up.
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Green Darkness
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Throughout my three yrs with lyme I have had a lot of the dizzyness before going into the grocery stores; I'd drive over curbs, almost get hit from the side in my car; a lot of that could have been loud sounds of the traffic beside me--i.e. motor cycles, etc. I used to have to try to get home and sit(scared to death) for three hrs until it passed. Now I get panic attacks ; hate to shop in stores ; have had a lot of photophobia(at one time 20/400 glare).
Now I notice the motion sickness stuff when I drive.
I have just lyme, however, feeling better on the 4000 mg of three different antibiotics(ones used for a lot of co-infections) , so I suspect I have more than lyme.
Thanks for the post,Tincup.

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kitsicox
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I'm so glad I found this website! Now I know I'm not the only one.

Back in '83, when I was 23 yrs old, I had a weird flu-like illness--headache, fever, nausea/vomiting while in college. It hung on for 3 weeks!! I chalked it up to poor eating habits...but I have never, ever been the same since.

The weird feeling stayed with me after that--when I walked, the ground appeared to ripple under me(like a sidewalk appears on a very hot day). Dizzy, heart palp's, etc.

The warehouse type stores were the worst--my eye muscles felt sluggish, tunnel vision--my eyes would even feel dry-

I once read that autistic people have processing issues because they experience the overload of assimilating their surroundings all at the same time! So every auditory and visual stimulus is processed all at once. Talk about overwhelming. It's no wonder that I often don't even want to be touched--it actually hurts!

My youngest child has autistic behaviors, but doesn't exactly fit any particular part of the spectrum. So he's been taking paxil and it helps a bit.

To fight the icky feeling in stores, like someone here said, you do sort of get used to it. I started wearing a walkman with headphones-sometimes I would have a favorite CD, or radio station on--other times just to buffer myself from the sensory overload. Over the years I have developed hearing loss, so I don't need it much anymore. If your visual problems aren't too bad sometimes sunglasses can help.

Hope this helps.
Take care, Kathy


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doggiemom
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Haven't been diagnosed with Lyme yet, but I have problems in stores too. I get headaches, dizziness, lightheaded, woozy, and nauseous. One of my doctors, who thinks I have lupus, said it's the flourescent lighting. She said it's bad for anyone with any type of auto-immune problem.

The smells in stores bother me too. I'm allergic to chemicals, perfumes and rubber.

Edited to add: Sometimes I wear contacts. When I go into a store like Walmart, I can hardly stand my contacts. My eyes blur and sting. But away from flourescent lights, I can see fine with them.

[This message has been edited by doggiemom (edited 09 October 2004).]


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lymeHerx001
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Yes I have these terrible symptoms,,

so bad today that i cant read well

terrible vertigo and i just went shopping for a new car and all the smell are making my ears weep and the vertigo more intense.

What the hell is going on here!!!!

I want some relief.


IM sick of being a prisoner in my body and with these damn mcs syptoms.


Im gonna keep saying it people.

All thanks to the a- holes at the gym and their PVC mats.

I should sue them!!!!

But all the money in the world wouldnt really help me when I would lose track counting it,, and the smell would bother me

TORTURE!!!! TORTURE!!!!!! SUFFERING

this is this life!!!!


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Jackie in NH
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I get that all the time. I dread shopping...I get panic attacks in stores like Walmart. My nose is wicked sensitive and my hearing. I can't stand loud noises. It's like having PTSD, I jump from every sudden noise or motion I didn't expect. I feel nuts like I am paranoid! This has been going on for over a year. I was dx only a month ago, but was first dx last November after being bitten by a deer tick in August. My Dr. treated me for 4 weeks with Doxi and that was it. I got worse and then I finally got this dx in Sept. 2004. Long haul. Hopefully I will be able to shop once more!

Jackie in NH

quote:
Originally posted by Tincup:
Anyone who gets feeling bad while in stores shopping.. please give detailed info as to when this happens, types of stores, how you feel exactly (detailed symptoms), how soon after you go in does it happen, what you think triggers it?

Also, once you leave.. how soon till symptoms stop?

Do you have co-infections?

Thanks!



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Chocolat
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Great inquirey, T.C.

My daughter-in-law and I were talking about this tonight. Just saw the thread.

I get anxiety now just thinking about going into stores.

For me, I know flourescent lighting plays a big part. In doctor's offices I have to always ask if I can close their blinds and usually hold a magazine to shade eyes from the lighting because with sunglasses, can't make eye contact.

Any big store-Target, etc. and my symptoms return within minutes. Disoriented-blurry vision- stumbling-weakness, etc. It is awful.

So now I never shop--unless I can run in real quick and pick up a pair of socks or something.

Terrific info on reasoning behind it-thanks.

Grocery stores are not as bad as department stores so chemical sensitivity must play a hugh part.

But in a crowded store-like Whole Foods today, I get all whacked out. Walk like I am drunk and feel freaked out.

So good to hear of others who experience this. Have always known it was Lyme related. Before with Lupus dx. had the same problems but they are much worse now.

Choc.


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Chocolat
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Geeeze--just noticed the date on these posts.

Oh well-chiming in anyway.

It has all been very helpful to me since reading tonight.

Choc.


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Green Darkness
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I also get a lot of my symptoms back in stores. Think it is the confusion with loud sounds and flourecent(sp) lights. I usually put my sun glasses on and walk around; helps. Also, get panic attacks and leave the store and others have to drive me home.
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TheCrimeOfLyme
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AUTONOMIC NERVOUS SYSTEM DSYFUNCTION


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kitsicox
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Hey, Tincup,Chocolat, et.al,
Gotta tell you something funny about this store syndrome. I was in Target today, feeling weird as usual, and thinking about this thread/responses.

While I quickly shopped, I wondered how many people around me might have the same problem. Somehow, I started to laugh about it, audibly(I was alone). People began to stare, and try as I might, I could not wipe the loopy grin off my face.

The lady next to me in line made eye contact and smiled saying, "What?.....what's funny?"
She started laughing too!

It was hilarious. I don't know why I felt that way today, but it was welcome relief from an otherwise stressful chore for me.

Can't help but think that you guys all made it happen. Thanks!
Kathy


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Tincup
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up

On the house top reindeer paws?

Or is it... reindeer "pause"?

I gotta know! Tell me.. tell me do.


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Corestar
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Hey Tincup,

How come I'm just finding this thread tonight, apparently because I'm not sleeping!

You mean there is a possibility I'm not crazy? Wow, what a concept!

I have been going into stores having a lot of this. Sometimes just walking throws me into severe pain. Once I almost sat down in the asile at a large Giant food store. I have always been sensitivie to light so this symptom seemed normal. I can't remember what I am there for unless I write it down.

I think all the stimulation and input is disruptive for me. I'm looking right in front of what I'm looking for and I can't find it. I have 24/7 tinnitus which is made worse from the Zith so that in itself makes me feel crazy.

I can get very irritable around so many people...too much stimulation!

I go shopping like "one of the three pigs"...very early before the rest of the world is up. I never go at crowded times of the day. I have panic attacks. I never had panic attacks before Lyme. I was very even and easy going until I got Lyme.

Something happens with my vision. I don't have all this figured out yet. I had trauma as a young child, have done lots of therapy with a wonderful therapist and have healed so much in my life.

I have Babs and Erlichia and I'm wondering if there is more. My symptoms are worsening with Mepron and Zith and my LLMD says the medicine is taking me deeper into the disease! He is a wonderful human being with a great soul! I am so thankful I found him.

Thanks for posting this question. This has helped me a lot and given me so much more to think about.

I see your name often here, and we're lucky to have you!

Be well and flourish!

Ann


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chroniccosmic
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I can't believe what I'm reading! I thought I was going crazy! At this point, I don't go into malls, grocery stores or department stores. My husband made the association of the type of lighting (he's a theater lighting guy) that makes me worse. In a store, I would consistently feel worse in a store like Home Depot that have ballast Mercury vapor lighting that vibrates. Apparently, those of us that are compromised neurologically can become quite sick. I feel better in natural light.
Thanks to all of you.

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Health
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WHO has gotten better from this?

WHO does not react anymore in stores or buildings? I had to quit jobs because of this, the last job was my dream job 5 years ago.


I have this as well, and never did before lyme.

thanks,

Trish


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lymie tony z
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Used to really get panicky and all that stuff...had to use the little electric carts at one time...would get visually/mentally/geographically confused..not to mention pain if I was walking....

I always hate to say I got better cuz usually when I do the crap pops up again...however I am better and can walk longer until I eventually get pain and sweaty and then don't feel realy well till I'm back in my car heading home...sometimes that was difficult when I was really bad cuz I had trouble finding my car...and then

Had trouble remembering how I got to the store and how to get back....

It does get better though.......zman

------------------


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Lymied
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Me too!!! In fact my first episode happened in Walmart...I never shop there but was feeling sick while on a trip and thought it was just low blood sugar.

Went in there and almost collapsed. Felt so disoriented and weird.

Office Max is horrible - they have lighting from hell and I actually felt like I was going to have a migraine attack the last time I was there.

Interesting stuff...


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lyme_suz
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Forgive me if someone has already mentioned this...

My son has very mild autism (Asperger's); I have noticed that my Lyme symptoms give me the same sensory and attentional problems that her has. This surprised me but makes sense as both autism and lyme cause nuerological problems.

I am not suggesting autism in your case. But interesting observation from my experience as a special ed teacer. Some of my kids freaked out in mall and my impression was that they were overwhelmed by echoes and various noises that typical students systems screened out. Temple Gradin, a woman who is a leader in her field; and Mrs. _____ Holliday give practical suggestions on how to cope with sensory overload.
You have definitly struck a nerve with your post,,,Hope the response is more encouraging more than overwhelming!

Best wishes,

Suz


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Lauralyme
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I do the same also. I just started teaching at a new school and my room has flor. lights. They are driving me crazy! I tested positive for Irlen Syndrome. This has to do with the way your eyes perceive lights. A lot of my special ed. students have this! So, I am wondering if the neuro. stuff is the culprit?
I also have a huge problems at church. No, flor. light though. Perhaps, it is having to sit still for so long?
Great topic!

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tailz
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I look like a truck hit me whenever I go into a brightly lit store, especially in winter months. Maybe it's the dry air.

My eyes swell up, turn red, get all bloodshot, tear profusely - it looks like I have pink eye. Sometimes green or yellow 'goo' starts to accumulate in my eyes, even though they are dry, itchy, and painful.

I get all congested and my nose starts running like crazy. I also find myself crinkling up my forehead and wanting to rip my contact lenses out. I often have trouble breathing when this happens. I know I must look like a freak of nature when this happens.

I don't think my symptoms are just a straightforward case of photophobia in stores anymore like I originally thought. If this were the case, I would think I'd be just as bad leaving the store and going into daylight, but often I feel better when I leave the store. Hall's Menthol Lyptus sometimes helps, too.

I think it's the fluorescent lighting - the more fluorescent lights a store has, the worse I feel. I think mold and chemical sensitivities is another trigger.

I went to Goodwill yesterday - I'm fine in one of them, but this particular Goodwill store has more fluorescent lighting than the other AND smells like moldy fabric softener, dryer sheets, and mothballs.

My pupils get even tinier, too.

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CaliforniaLyme
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This is yet another thing that IV Rocephin took away!!! It is gone now, has been for years. It made me feel CRAZY because it was so severe and sudden, for me would just start feeling massive vertigo & nausea...

I think it is the fluorescent lights because when it started happening it would happen in Safeway our grocery store. I would just start to feel almost like a physical meltdown. It was horrible, I would have to leave and go home and vomit!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Thank God that is gone!&)*!)*)!
God & my LLMD*)!

--------------------
There is no wealth but life.
-John Ruskin

All truth goes through 3 stages: first it is ridiculed: then it is violently opposed: finally it is accepted as self evident. - Schopenhauer

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ChrisBtheLymie
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I started to feel very dizzy and my brain feels foggy, this causes me to be tense and anxious, then I start to really panic, sometimes breathing changes and I just need to get out A.S.A.P. [Frown]
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sickandtiredofbeingsandt
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Very interesting thread. I can't read it all through, though. There's too much. However, I have this same thing and have had it for years.

I worked for a construction contractor for about 10 years before I had to retire. I knew the florescent lights were bad for me so I asked them to install special ones.

They were a kind that don't flicker or pulse at the speed the usual ones do. I could work under them. They were expensive, though.

Can't expect stores to shell out $$ for special lighting for what they would consider a small percentage of their customers. Too bad for us.

--------------------
Sick and Tired of Being Sick and Tired

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Health
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I have this problem too, it started about 10 years ago, have had undiagnosed lyme about 17 years or more.

I had a mercury filling out the time I became extremely MCS sensitive. I became so sensitive within one month that I had to quit my job, leave the city and moved in with family.

I still to this day think I became sensitive because of the mercury filling, but maybe not, I had all mercury out and did 2-3 years of chelation with ND's the DMPS shots, the oral chelation, had root canal out, did improve enough to work again, somewhat

but then became sick again, and could not work, then found out I had lyme.

I find stress makes it worse, I read on here somewhere that IV Rocephin helped someone with the MCS, it went away completley he/she wrote,

So there is hope.

Trish

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Moosie
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Really interesting.

I have big time troulbe in Walmart. There was a super Walmart in Topeka, KS, that was at first called Hypermart. I called it Hyperhell.

Also, the flourescent lighting thing. When I was still working, I had my own little private office. It had overhead flourescents that had orignially been lighting a much larger area. I couldn't stand them.

I took out the tubes because it was the only way to have them off and brought in floor torch type lamps, and used under-cabinet lighting and those little green desk lamps for my work surfaces. My office looked like a den. It was really pretty nice actually. Others in the office would come at break times to sit in my den. . .

But while it was nice, it was because the overheads drove me insane. They flickered, at least to me, and I could hear them too.

I wondered about the connection.

Moosie

--------------------
Trying to figure it all out.

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pigwit
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I think the neuro problems from some of the large buildings is more from pollution in the air than from the lighting.

I have worked in a large distribution center with over 25 miles of conveyors. Cardboard boxes go to a machine that crunches them up into bales.

When I worked near the machine, I tended to have spells of severe brain fog, blurry vision, and sometimes becoming dizzy.

It was more dusty the closer I got to the machine. I suspected that dust came from the boxes and glue used to hold them together. The process of crunching them up probably caused more dust, fumes, etc. to be released.

Having a lot of product stored in cardboard boxes may be a factor also. If so, it may be worse in large stores like a supercenter or Sam's Club.

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panicbegone
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wow im not alone.
i get like this mildly in my own house. but mostly when i out which is rare.
i get hot...slightly disoriented and blurry/foggy, its different from a panic attack..which i get too.
I get tired, irritable, lose my train of thought and cant "browse" like i want. I feel i can only stand it for a short time.

I tried going to the mall...horrible! Light headed, felt faint, couldnt walk right.
Local stores are better. I do better in safeway than in walmart. But ...when i go to a place like that i ALWAYS hit up the food section first and either get a water or juice and sometimes a snack...just so i know that if i feel weird its not from my hypoglycemia.

hope that helps.
now u know why im always sitting at home on my a$$. Cant handle the outside too much...as much as i miss it.
I too have motion sickness...so i can relate to the previous poster

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GRC
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The lights,tile floors make me dizzy (er),light headed and cause panic attacks.
Gets better as soon as I get out of there.I hate to leave home anyway..... [loco]

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Robin123
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Wow - what a thread -- for me, it's the chemicals. I call it sidewalk shopping. I literally sometimes have had to ask the store clerk to bring the wanted item outside for me if the store is one of those petrochemical type ones!

Also, bleach cleaning. Can't be in a place at closing time when they start cleaning it. One office I go to all the time has agreed to switch to lesser-smelling cleaning fluids, and I think everyone who works there is happier with that switch too.

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pigwit
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When I have the symptoms I described above, my head is sweating for most of the shift. The rest of my body does not feel hot. When the symptoms came on quickly or unexpected, I felt close to having a panic attack.

There is also a lot of background noise which adds to overstimulation.

Maybe the large buildings have toxins, light waves that affect us neurologically, overstimulation, and present the need to make many small decisions that can overwhelm and/or confuse us. That can easily trigger fear or panic.

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Monitorp
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Interesting that many of you are affected at Walmart because somebody just posted at my board that he's employed at Walmart & it's tough going for him.

It definitely is a neurological issue which can be affected by lyme, mercury, childhood trauma, chemicals, & more.

Alot is explained in Invisible Disease (by Gunni Nordstrom). Per Hedemalm, consultant, explains that EMFs/light/chemicals are interchangeable insofar as effect. Also that CHEMICALS ARE PHOTO-REACTIVE. For example, some medicines warn against exposure to sunlight. Thus,
here's the process:
Induction of chemicals (absorbtion of chems into body
Then comes chemical & photo-reactivity by body, and all sorts of sensitivities, spasms etc.

What Nordstrom omits in her book is that there's also emotional toxins caused by trauma which keep playing like a broken record and require clearing (similar to REBOOTing one's computer.

Neurolink maybe worthy of trial for some of you. Then again, there's good practitioners & inferior ones as I've discovered by experiencing 2 neuro (NMT & neurolink respectively). Life is about russian roulette & guinea pigs. [Wink]

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Monitorp
Computer Monitor Pain - Survey, Polls, Posts

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AutumnDay
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Hi Tincup,

Put me down for this one to. Stores, crowded anything with a lot of movement, also big picture movie theaters.

This has been one of my worst symptoms. Dizziness, almost 24/7. It's good to know that I am not alone. Thought I was the only one this happened to.

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quote form Mother Theresa"God won't give me more then I can handle, sometimes I wish he didn't trust me so much."

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Geneal
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Other than my joint pain, my first realization that something was really, really wrong with me was at Walmart.

As I was pushing my basket I started feeling shaky like my blood sugar had taken a serious nose dive.

I became short of breath, weak, and full of anxiety.

I almost passed out at the check out. Horrible!!

Walmart still sets me off. I have dizziness, shaking and air hunger.

Also get unusually annoyed while shopping there. I seem to be in such a hurry to get out of there that any delay like a long line, someone's cart in my way really irritates me.

Don't have many shopping options around where I live. So I grit my teeth and go to Walmart.

I always survive the trip......just barely.

Geneal

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