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» LymeNet Flash » Questions and Discussion » Medical Questions » Raynauds and lyme- anyone else?

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Author Topic: Raynauds and lyme- anyone else?
iceball
Junior Member
Member # 14191

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I was recently dx with Lyme (llmd) and Erhlichiosis (Mayo). I have been sick over two years and was dx with Raynauds, dairy allergy, gluten sensitivity, and chronic fatigue before Lyme was looked at.

I started treatment of Doxycyline (4 weeks), but headaches became unbearable.
I am currently taking Diflucan and Cefdinir (started 2-7) among many other supplements and prescriptions. I'm seeing a bit of improvement overall. [Smile]

I am taking Nattokinase for my Raynauds. Other meds were discontinued because of sever headaches getting worse. My Raynauds is giving me fits lately-very swollen and painful fingers with raised red patches and bumps. They are swollen to the point of making a fist impossible. This is different then I have ever had.

I was wondering if anyone else has these symptoms and if Lyme or meds could be causing the change...
Any input will be helpful.
Thanks,
Iceball

Posts: 3 | From Iowa | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

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Iceball.

[Eek!]

And here I was just telling a friend it was the PERFECT day in Florida. FINALLY!

80 degres, sunny, light breeze, clear sky with puffy beautiful Florida clouds... and now a bunch of stars and a delightful and very bright moon.

And here comes "ICEBALL" to make me shiver!

HA!

[Big Grin]

Welcome to you!

Sounds like you've had a rough go of it. So sorry!

Reynauds is fairly common with folks who have Lyme. I have problems with it myself.

I can't say the swelling you have is from Reynauds... but whatever it is from... be sure you tell you doctor.

They should check you since it is that bad and maybe run some tests.

In the meantime.. may I suggest some thing that might help?

Perhaps a couple cups of dandelion tea?

It is a natual diuretic - I know.. my spelling sucks.

I use it and after 2 cups each day for only 2 days... the swelling goes down.

BUT.. I would be sure to check your meds for side effects.. and other things too... like thyroid, etc.

Glad you are posting and hope you feel better soon.

[Big Grin]

PS.. I am not a doctor and this is NOT professional advise.. only my opinion.

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
cottonbrain
Frequent Contributor (1K+ posts)
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me too -- Lyme and Raynauds. It turns out that if you are hypothyroid, it can make your Raynauds worse.

my PCP added a little cytomel, and i believe that helped.

have you found the nattokinase making any differnece?

Posts: 1172 | From USA | Registered: Nov 2007  |  IP: Logged | Report this post to a Moderator
iceball
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My thyroid was tested and nothing came up. In fact th insurance co. isn't going to pay or all the tests that were run on it- "certainly excessive and repetitive"

Nattokinase made a huge difference on the calcium formations created from the poor circulation. (LLMD prescribed) Didn't see an improvement with coldness. At one point, I ran out and the deposits returned within a week. started taking Nattokinase and gone within two weeks. Rhumy said, "Take it if it works..."

This swelling is new and bumps are flat and almost deep bruise like. All are on my fingers. I'll call and see if anyone is working today to check for possible answers.

Thanks for your replies!

iceball-
snowed in today with 9"of snow and ice:(

Posts: 3 | From Iowa | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
justwondering
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I have never been officially diagnosed with it, in fact my doctor actually kind of blew me off when I told her about it so I may have to bring it up again!

Not sure if it is offically Raynaud's, but when my hands and feet become cold

they turn very patchy white and numb and tingle severely when they are warmed up.

Whatever it is it began after Lyme and co's.

Hope you find some relief soon! Take care:)

Posts: 209 | From maryland | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
Parisa
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Swollen hands/fingers was one of my husband's first symptoms. He cannot make a fist either.

Some people get relief with Viagra. Insurance didn't want to pay for that so he tried Cialis which last for three days. Unfortunately, it gave him a horrible backache. It was worth the try though because his hand symptoms are horrible.

If you haven't already, buy some silk glove liners. They will protect your hands and help keep them warm, a must.

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just don
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Iceball, Welcome,,I am from the state west of you!!

First off Mayo isnt going to properly treat YOU!! They are going to give you quick and low doses of abx and say your ALL better.

Head south and go to a real deal LLMD!!! IF you dont know who Doc C is and where to go,,,PM me and I will give you name and number.

Save your life and your suffering,,,pays to go first class when you are talking THIS disease.

AND yikes Raynauds is a PAIN this time of year,,,specially THIS year!!

My hands have SO MUCH osteo arthritis I cant make a fist either. Bone spurs and cysts where cartilage of the hands belong!!! yep its fun with this stuff!!still--just don--

--------------------
just don

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wantabe
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Blame it on brain fog or not, but I was locked out of my account when I tried to change my email address...so "wantabe" is "iceball" for anyone who cares...

Thanks for the replies. I am no longer @ Mayo. My LLMD is in MN but not at Rochester. I have also heard great things about Dr. C, but so far so good where I am.

My LLMD called me back today and asked me to up my Nattokinase and to see my family dr. to be checked for vasospasm problems in my hands-ASAP. I'll get in tomorrow. I'll let you know what the verdict is-again thanks for your help!
iceball/wantabe

--------------------
Lyme+ dx Dec.07
Currently: Levaquin,Cefdinir,Plaquinil,Fluconazole
Nystatin,B12 meth, nortriptyline
Ambien,Clonazepam,many supplements
Dairy, sugar, gluten free diet
infrared sauna and exercise

Posts: 235 | From Iowa | Registered: Feb 2008  |  IP: Logged | Report this post to a Moderator
wantabe
LymeNet Contributor
Member # 14703

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justdon and all-
Blame it on brain fog or not, but I was locked out of my account when I tried to change my email address...so "wantabe" is "iceball" for anyone who cares...

Thanks for the replies. I am no longer @ Mayo. My LLMD is in MN but not at Rochester. I have also heard great things about Dr. C, but so far so good where I am.

My LLMD called me back today and asked me to up my Nattokinase and to see my family dr. to be checked for vasospasm problems in my hands-ASAP. I'll get in tomorrow. I'll let you know what the verdict is-again thanks for your help!
iceball/wantabe

--------------------
Lyme+ dx Dec.07
Currently: Levaquin,Cefdinir,Plaquinil,Fluconazole
Nystatin,B12 meth, nortriptyline
Ambien,Clonazepam,many supplements
Dairy, sugar, gluten free diet
infrared sauna and exercise

Posts: 235 | From Iowa | Registered: Feb 2008  |  IP: Logged | Report this post to a Moderator
   

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