LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter

The Lyme Disease Network receives a commission from for each purchase originating from this site.

When purchasing from, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Shaz's Survey Results

 - UBBFriend: Email this page to someone!    
Author Topic: Shaz's Survey Results
Frequent Contributor (1K+ posts)
Member # 1436

Icon 1 posted      Profile for shazdancer     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks to everybody who contributed! Here are the preliminary results. I am currently polling a control group of generally healthy people who also have Internet skills. This poll could also be extended to other severely ill patients.

I received surveys from 41 patients who have severe Lyme disease, to find out if they have ever shown Internet information about Lyme to their healthcare providers, and what happened as a result.

Of the 41 surveyed, 29 (71%) went first to their primary care practitioner (PCP) for help with their symptoms, not to the Internet. Only 6 of the 41 went to the Internet first. Sort of puts to rest those who say we're a bunch of hypochondriacs looking for an illness on the Internet.

After their PCP was stumped, patients' secondary sources of information included the Internet (90%) and/or a specialist (85%). Friends, family or support groups were the next most popular sources of information.

Almost all of the patients (39/41, or 95%) brought the Internet information they found to at least one healthcare professional. (One who didn't had a nurse for a wife who did, and the other went right from a PCP to a specialist.)

Healthcare professionals responded negatively in conversations with their patients about Internet information on Lyme fully 78% of the time.

To put it another way, over three out of four conversations ended in negative feedback, and of those, three out of four negative reactions contributed to patients leaving their healthcare professional.

A few patients reported that it was the doctor that told them to leave the practice; other patients reported that they were proactive in searching for a more sympathetic clinician.

It was not the point of this survey to analyze whether or not the Internet information was authoritative or accurate. But what is clear is that there is a breakdown in communication when these very sick patients bring Internet information to their healthcare professionals.

Posts: 1558 | From the Berkshires | Registered: Jul 2001  |  IP: Logged | Report this post to a Moderator
Frequent Contributor (5K+ posts)
Member # 10375

Icon 1 posted      Profile for Geneal     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks for putting the numbers to it.

I hate to say it.....but I kind of expected this result.

Great job! [Big Grin]



Posts: 6250 | From Louisiana | Registered: Oct 2006  |  IP: Logged | Report this post to a Moderator
Honored Contributor (10K+ posts)
Member # 5829

Icon 1 posted      Profile for Tincup         Edit/Delete Post   Reply With Quote 
EXCELLENT survey Shaz!

I've sent it around to a few folks as it is good info to have!

Thanks for taking time to put this together!

[Big Grin]


Posts: 20332 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator

Icon 14 posted            Edit/Delete Post   Reply With Quote 
thank you shaz for your timing in developing and tallying the results! [group hug] [kiss]

it was as i thought it would be .... drs. NOT receptive to internet info.

IP: Logged | Report this post to a Moderator

Quick Reply

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins

Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:

Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA

| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.