I am not on plaquenil. I am on amoxycillin 6000mg/day
I do have a positive bestern blot from Igenex and I have been treating lyme since October. Not sure how much improvement I have, got better and then again went down. I thought it was herx but by the way I was told it was just the disease itself. My llmd still kept me on the same meds.
It is scary every time there is a new symptom showing up.
Do you think it could be the nerves connecting to the eyes that is causing this?
Posts: 5 | From canada | Registered: Mar 2008
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Definitely. Unfortunately, like you said, while you're herxing new symptoms can surface weekly.
You just have to keep reminding yourself that it's just clearing out all of the "bad stuff" for lack of more accurate verbiage.
Taking tha abx is stirring everything up so the Lyme is punishing you with it's die-off effects. It's truly frustrating and scary but based on my personal experience (and others) it will pass as the treatment continues and is successful.
People have, literally, developed Bells Palsy while herxing (paralysis of 1/2 the face) and it goes away with treatment (abx).
It's a wax and wane type of treatment, herxing, die-off with weird symptoms, clearing. Then the cycle repeats itself.
So "try" not to get too anxious about every little change as it will, in hindsight, just be a blip on the screen of the healthy life ahead of you.
Easier said than done, I know!!
Hang in there and try your best to tap into your faith and keep reminding yourself that this is all "temporary".