LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Success so far..anyone try this ABX combo?

 - UBBFriend: Email this page to someone!    
Author Topic: Success so far..anyone try this ABX combo?
123harmony
Member
Member # 13413

Icon 1 posted      Profile for 123harmony     Send New Private Message       Edit/Delete Post   Reply With Quote 
hello! been only treating several months, but so

far i feel like i am having a lot of success.

after about a month, my energy level has really

increased, back pain and my morning 'hit by a

truck feeling' has subsided. of course, i know

things could change b/c my symptoms have come

and gone in the past, but it's still

encouraging. so far had no major herxes, just a

few periods of greater fatigue, headaches, etc.

i haven't read of anyone doing the same abx

protocol as i am, and am curious if there is

anyone out there that is. my doctor said he

feels like this low dose of flagyl is enough in

combo w/others and he does not pulse it at all.

500mg Biaxin 2x daily
200mg Plaquenil 2x daily
875 amoxicillin 2x daily
250mg 1x daily

also probiotics, milk thistle, epsom bath, etc.

my blood test results show pos Lyme, high titers

for chlamydia pneumoniae, low Vit D, high

inflammation (c3,4), elevated C6 peptide, CD57

of 66 at start.

doctor does not recommend supplementing w/vit D

even though i am low and reverse ratios...??

sorry so LONG!

Posts: 31 | From maryland | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Sounds good!!!

I don't see why your dr tested you for Vitamin D levels if he wasn't planning on doing anything about it!!???

It can boost the immune system.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95806 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
Lymen
Member
Member # 6882

Icon 1 posted      Profile for Lymen     Send New Private Message       Edit/Delete Post   Reply With Quote 
What is "250mg 1x daily"?
Posts: 98 | From BC | Registered: Feb 2005  |  IP: Logged | Report this post to a Moderator
METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628

Icon 1 posted      Profile for METALLlC BLUE     Send New Private Message       Edit/Delete Post   Reply With Quote 
He's avoiding Vitamin D, because he saw the reverse ratio. The high Vitamin D is probably an indication of abnormal immune function as a result of the infection.

Long story short, the Vitamin D should stablize and reverse or at least balance as you improve, assuming the theory is correct.

--------------------
I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.

E-mail: [email protected]

Posts: 4157 | From Western Massachusetts | Registered: Dec 2004  |  IP: Logged | Report this post to a Moderator
123harmony
Member
Member # 13413

Icon 1 posted      Profile for 123harmony     Send New Private Message       Edit/Delete Post   Reply With Quote 
the 250mg 1x daily is 250mg of flagyl once a day. this seems lower than what other people take, so i was curious what anyone thought.
Posts: 31 | From maryland | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
123harmony
Member
Member # 13413

Icon 1 posted      Profile for 123harmony     Send New Private Message       Edit/Delete Post   Reply With Quote 
SORRY I JUST NOTICED I FORGOT TO INCLUDE THE FLAGYL... [Smile]
Posts: 31 | From maryland | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
justwondering
LymeNet Contributor
Member # 12813

Icon 1 posted      Profile for justwondering     Send New Private Message       Edit/Delete Post   Reply With Quote 
I hope more people respond, I am interested in the opinions and feedback!


Jackie

Posts: 209 | From maryland | Registered: Aug 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
That's enough flagyl to begin with. May want to raise it later. It's a tough drug to take.

If you take high doses you need to keep an eye out for neuropathy.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95806 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
CD57
Frequent Contributor (1K+ posts)
Member # 11749

Icon 1 posted      Profile for CD57     Send New Private Message       Edit/Delete Post   Reply With Quote 
are you treating co-infections w/this combo?
Posts: 3528 | From US | Registered: Apr 2007  |  IP: Logged | Report this post to a Moderator
123harmony
Member
Member # 13413

Icon 1 posted      Profile for 123harmony     Send New Private Message       Edit/Delete Post   Reply With Quote 
do you mean the chlamydia pneumoniae? that is

the only possible coinfection that i think i may

have, but i'm not really sure. my doctor says it

means that i could have a chronic cpn infection,

but many doctors would say that i don't. so..i

dont really know? i do know that my mother (who

passed away from MS) had high titers of CPN, and

at least one of my sister's do as well. all 3 of

my sisters have at least lyme, we are pretty

sure.

i'm happy w/the low dose of flagyl, b/c of the

lack of side effects i've had from it. just hope

it's enough in combo w/the others.

Posts: 31 | From maryland | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
jamescase20
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
I like it too, looks powerful, now I self treat so, if I was you, and I am not you of course, I would get off cell wall inhibiting abx (pennys and ceftins) and go on minocin and rulide, or zith if I was fearful of rulide, which I am not. or ANY of the abvanced marcolides. AND a tetra (minocin or doxy)...why? Because they both leave the cell wall intact, basially thought to keep the kets from hiding. They dont fear tetras or marcolides is the believe here. But they do kill them.
IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by 123harmony:
do you mean the chlamydia pneumoniae? that is

the only possible coinfection that i think i may

have, but i'm not really sure.

The most common coinfections are babesia and bartonella. The testing for those often results in a false NEGATIVE.

You need a dr who understands that and will at least give you a trial run of those meds to see how you respond.

If you're not getting better, there's usually a good reason why. Often it is because of an untreated coinfection.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95806 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
WildCondor
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
It's great that you are on a proper combination of antibiotics. Good job! Now...see how you feel, your doses are low. The combination is good, but the doses are low. Biaxin can be 1,500-2,000 mg/day and Amoxicillin 3-6 grams /day and up from there, Flagyl 1,500-2,000 mg/day...plaquenil leave as is. You may need to raise your doses over time.
IP: Logged | Report this post to a Moderator
123harmony
Member
Member # 13413

Icon 1 posted      Profile for 123harmony     Send New Private Message       Edit/Delete Post   Reply With Quote 
i did test negative for all other coinfections, and ok w/that since i really dont have the symptoms for them.

my doctor specializes in treating lyme and says from his experience this low dose flagyl has been very effective:)

Posts: 31 | From maryland | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
123harmony
Member
Member # 13413

Icon 1 posted      Profile for 123harmony     Send New Private Message       Edit/Delete Post   Reply With Quote 
i'm sorry jamescase20...i do not understand what you mean...?
Posts: 31 | From maryland | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
quote:
Originally posted by 123harmony:
my doctor specializes in treating lyme

Do you mean as in "only Lyme?"

I HOPE he is right about the co's....but keep an eye out for coinfections hiding behind the lyme.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 95806 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
123harmony
Member
Member # 13413

Icon 1 posted      Profile for 123harmony     Send New Private Message       Edit/Delete Post   Reply With Quote 
no, he treats lyme and all coinfections, but

does not believe that i have any. have to trust

him and my symptoms, at least until i have a

reason to believe otherwise.

Posts: 31 | From maryland | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.