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» LymeNet Flash » Questions and Discussion » Medical Questions » So many questions!!!

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Author Topic: So many questions!!!
lea
LymeNet Contributor
Member # 15593

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I have been experiencing some peculiar symptoms for over almost two months now, and I am wondering if they sound similar to anyone.

For the past month and a half I have had numbness and tingling intermittently in my arms, legs, and face, nausea, dizziness, vomitting mucus in morning, loss of appetite, weight loss, some muscle pain, some difficulty sleeping, joint pain, stomach pain, sweats, teeth hurt, and I just don't feel well.

On 4/4/08, I got a sharp pain behind my right knee, and then my lower right leg went numb. I didn't think much of it, so I went to bed. I woke up in the middle of the night, and my right leg and arm were numb, so I went to the ER.

The ER physician couldn't find anything wrong after doing blood and urine tests, EKG, MRI, Cat Scan, X-ray of chest, and a basic neurological exam. Said to follow up with my normal physician.

Saw my physician a few days later, and he referred me to a neurologist due to the numbness and tingling. The neuro couldn't find anything, so he referred me to a specialist at Stanford. The Stanford neuro couldn't find anything, so he did some bloodwork, and ordered some more neurological tests. He also recommended I see a psychologist(of course, cuz this is all in my head, right?!). [cussing]

The bloodwork came back normal, and I am still waiting on the neurological tests at Stanford. But I asked my regular doctor to test me for lyme through Igenex, and he reluctantly signed the paperwork. I explained that a week before all of this happened, I found a tick on my neck in the hairline.

Since it has been two months since the bite, will my tests still come up positive if I have lyme through Igenex?

Posts: 146 | From California | Registered: May 2008  |  IP: Logged | Report this post to a Moderator
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804

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this is a post of lymetoo's i copied listing symptoms

Lyme Disease Symptoms List
1. Unexplained fevers, sweats, chills, or flushing
2. Unexplained weight change--loss or gain
3. Fatigue, tiredness, poor stamina
4. Unexplained hair loss
5. Swollen glands: list areas____
6. Sore throat
7. Testicular pain/pelvic pain
8. Unexplained menstrual irregularity
9. Unexplained milk production: breast pain
10.Irritable bladder or bladder dysfunction
11.Sexual dysfunction or loss of libido
12.Upset stomach
13.Change in bowel function-constipation, diarrhea
14.Chest pain or rib soreness
15.Shortness of breath, cough
16.Heart palpitations, pulse skips, heart block
17.Any history of a heart murmur or valve prolapse?
18.Joint pain or swelling: list joints_____________
19.Stiffness of the joints, neck, or back
20.Muscle pain or cramps
21.Twitching of the face or other muscles
22.Headache
23.Neck creeks and cracks, neck stiffness, neck pain
24.Tingling, numbness, burning or stabbing sensations, shooting pains
25.Facial paralysis (Bell's Palsy)
26.Eyes/Vision: double, blurry, increased floaters, light sensitivity
27.Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity
28.lncreased motion sickness, vertigo, poor balance
29.Lightheadedness, wooziness
30.Tremor
31.Confusion, difficulty in thinking
32.Diffculty with concentration, reading
33.Forgetfuiness, poor short term memory
34.Disorientation: getting lost, going to wrong places
35.Difficulty with speech or writing
36.Mood swings, irritability, depression
37.Disturbed sleep-too much, too little, early awakening
38.Exaggerated symptoms or worse hangover from alcohol


The following signs/symptoms may be present in those infected with Babesiosis:
Fatigue
Arthralgias
Myalgia
Drenching sweats
Headaches
Emotional lability
Depression
Dark urine
Splenomegaly
Dizziness
Nausea and vomiting
Cough
Dyspnea
Fever
Chills
Hepatosplenomegaly
Jaundice
Malaise
Shortness of breath
Bleeding tendencies, bruising
Thrombocytopenia
Hemoglobinuria
Hyperesthesia
Pulmonary edema
Encephalopathy
Low to normal range leukocyte counts
Possible elevated levels of dehydrogenase, bilirubin,
transaminase*
Anorexia
Approximately 25%- 66% of Babesia patients are known to be co-infected with Lyme disease. These symptoms may continue for long periods of time, decrease, then return. A low Babesiosis titer (IgG) often indicates a chronic infection.
An acute or current infection may show a higher reading on the IgM test initially. There are over 100 species of Babesia in the United States but only ONE or TWO species are currently checked by commercial labs.


BARTONELLA SYMPTOMS

GENERAL: Fatigue, Restlessness, Combative behavior, Myalgias, Malaise, Liver and/or Spleen
involvement, Abdominal pain, Infectious Mononucleosis-like Syndrome, Granulomatous Hepatitis

BRAIN: Encephalopathy may occur 1-6 weeks after the initial infection and is fairly common in patients
with Bartonella. Note: Approximately 50 percent of patients who develop Encephalopathy can be affected
by seizures (from focal to generalized, and from brief and self-limited to status epilepticus). Headaches,
Cognitive Dysfunction, and CNS Lesions may be evident.

RASH AND LYMPHADENITIS: Erythematous papules (red splotches or slightly raised red spots) may
develop. Such papules occasionally occur on the lower limbs but are more common on the upper limbs, the
head, and neck. The papules may appear on the skin or mucous membranes. Bartonella may also cause
subcutaneous nodules, with some bone involvement possible. The nodules may show some
hyperpigmentation, be tender, fester, and/or be enlarged or swollen, but not always.

EYES: Conjunctivitis, Bartonella Neuroretinitis, Loss of Vision, Flame Shaped Hemorrhages, Branch
Retinal Artery Occlusion with Vision Loss, Cotton Wool Exudates, Parinaud's Oculoglandular Syndrome,
and Papilledema.
BONES AND MUSCLES: Osteomyelitis, Myositis, Osteolytic Lesions (softening of bone), Myelitis,
Radiculitis, Transverse Myelitis, Arthritis, Chronic Demyelinating Polyneuropathy.

HEART: Endocarditis, Cardiomegaly.
Possible lab findings: The following may show up during standard testing:
Thrombocytopenia, pancytopenia, anemia, elevated serum alkaline phosphatase level, elevated bilirubin, abnormal liver enzymes.
X-ray of the bone may show areas of lysis or poorly-defined areas of cortical destruction with periosteal
reaction. Cardiomegaly may show up on a chest X-Ray.

Biopsies of lymph nodes reveal pathology often indistinguishable from sarcoidosis. Reports of biopsies
strongly suggestive of lymphoma do occur.
Tests occasionally show an enlarged liver with multiple hypodense areas scattered throughout the
parenchyma.

--------------------
Do not take this as medical advice. I am not a doctor, but I DID stay at a Holiday Inn Express!

oops!
Lymetutu
My story: www.tinyurl.com/2ubzoz

--------------------
multiple chemical sensitvity group:
http://www.lymefriends.com/group/multiplechemicalsensitivities

Group for artists. All media welcome:
http://www.lymefriends.com/group/creativecorner


http://groups.yahoo.com/group/Lyme_Artist

Posts: 3860 | From nj,usa | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804

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igenex is a better lab but no test is completely reliable- meaning you can test negative and still have it.

besides lyme you could have also contracted another infection (a coinfection) from the tick..

I would suggest you see a lyme literate dr. they understand that lyme tests are not accurate and that lyme is a clinical diagnosis. Also in my expereince most regular drs dont no much about coinfections. This is the best way to rule it in or out.

If you post in seeking a dr and include your area someone will pm you with a drs info. We do not post drs info on the board so please make sure your private message is enabled.

--------------------
multiple chemical sensitvity group:
http://www.lymefriends.com/group/multiplechemicalsensitivities

Group for artists. All media welcome:
http://www.lymefriends.com/group/creativecorner


http://groups.yahoo.com/group/Lyme_Artist

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lea
LymeNet Contributor
Member # 15593

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Thanks for the response. I appreciate the support since so far this has been a very frustrating experience.
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Doomer
LymeNet Contributor
Member # 11013

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If you had an embeded tick and then started exhibiting the symptoms you suggest then chances are it is related to the tick bite.

Seek the help of an LLMD quickly as the other docs you are seeing most likely won't be of any assistance.

Also get a copy of your igenex test results because they won't be able to accurately read the results either.

There are many great LLMD's in CA.

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lea
LymeNet Contributor
Member # 15593

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I never did find an embedded tick on me. A week before all of this started I felt something moving in my hairline. I put my finger there, and I found a tick and a bump. Don't know if it was ever embedded or not.
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Clarissa
Frequent Contributor (1K+ posts)
Member # 4715

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Good sites to research:

Some good websites if you're interested:
http://www.wildcondor.com
http://www.lymenet.org
http://www.wildernetwork.org


MisDiagnosis of Lyme:
http://www.igenex.com/misdiagnosis.htm

Amy Tan's (author of Joy Luck Club) Lyme Disease Story:
http://www.amytan.net/LymeDisease.aspx

Testimonial Video from Teen with Lyme:
http://www.youtube.com/watch?v=em9OeiLkHUQ

Bartonella:
http://209.85.207.104/search?q=cache:oFuLFt80UsMJ:www.publichealthalert.org/Bartonella%2520and%2520Die.pdf+Ignore+Bartonella+and+Die&hl=en&ct=clnk&cd=1&gl=us

--------------------
Clarissa

Because I knew you:
I have been changed for good.

 -

Posts: 1625 | From Florida | Registered: Oct 2003  |  IP: Logged | Report this post to a Moderator
   

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