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» LymeNet Flash » Questions and Discussion » Medical Questions » Who has more than one family member with lyme?

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Author Topic: Who has more than one family member with lyme?
Peedie
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Husband? Wife? Kids?
For How Long?
Any Known (or suspected)Source for Contracting Lyme?
Who has been "cured"?
Who is chronic?

I have not been confirmed Lyme yet. I think this could be a good learning tool if you all can keep your answers brief. Thanks

Posts: 641 | From So. CA | Registered: May 2008  |  IP: Logged | Report this post to a Moderator
UnexpectedIlls
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Peedie

I have Lyme (Chronic) My last exposure was 19, but the last known bite was age 12. I am still very confused about my diagnosis.

My son 11 has Lyme (Chronic) bitten 5-6 years ago

We believe my Fiance has Lyme (Chronic) Bitten well over 5 years ago with embedded tick in his stomach, and years before that a bite on his leg.

I became ill with the pregnancy with my daughter who is now 1 year old, I am hoping I did not PASS it to her.

I have just been diagnosed after being bedridden for 10 months, sick since her birth. I am only on doxycycline right now

My son is on ABX, and he seems to be having some better days, but overall he is VERY fatigued and still has many symptoms.

My Fiance just started taking my Mino until he gets in to see a LLMD.

Unfortunatley it looks like my whole family is affected by this. [Frown]

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"You'll be surprised to know how far you can go from the point you thought it was the end"

Posts: 946 | From Massachusetts | Registered: Apr 2008  |  IP: Logged | Report this post to a Moderator
sixgoofykids
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I have chronic Lyme. Contracted it 35 years ago, got diagnosed last year. I don't think I got babesia until 5 years ago when my health went downhill.

My daughter was treated for Lyme for 8 months and is better.

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sixgoofykids.blogspot.com

Posts: 13449 | From Ohio | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
Sojourner
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Oh, let's see. My husband (and I think pretty much his whole immediate family) My sister, our three kids.

Where did we get it?.........In beautiful S.E. Pa of course.

My girls and probably my son were infected at least 6 yrs ago. (multiple reinfections possible). My husband had incredibily high exposure his whole life-I think he could have contracted it congenitally and was re-exposed over and over, finally getting an MS diagnosis.

My husband, sister and, I think, our older daughter are chronic, our 11 yr old is cured (but you never really know, do ya?). Our son (who has hearing loss) is still awaiting treatment-but is CDC positive.

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luluMN
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Well here's our story:

I have it (I am the "mom") and am chronic and think I have had it maybe 6 or 7 years who knows?

My husband tested positive too and is a hunter and outdoorsman, so who knows how long he has had it, but is chronic..
My 8 yr old son tested positive with symptoms and is in treatment but no success yet... [Frown]

My 6 yr old girl tested postive too but no symptoms so far...but I am always on the look out for them...
It seems never ending for us right now.. [Frown] [Frown]

Posts: 232 | From MN | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
cjnelson
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me!

suspect many many years, but sick almost 9

my daughter 16 almost 17 tests positive

10 yr old being tested not in yet

i was bitten so many times over years it is hard to say...we were campers fishermen hunters the whole nine....

lived in WI, TN, had family and visited regularly to MN, IN...growing up

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Seeking renewed health & vitality.
---------------------------------
Do not take anything I say as medical advice - I am NOT a dr!

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Hides1
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Me the Mom- 40 years old- Lyme Babs, Bart and Myco
In/out treatment for 6 years, undiagnosed for a long time.
My Husband- Lyme and Bart

My oldest son age 11- Lyme, Babs and possible Bart
My youngest son age 8- Lyme, Babs and Myco

My daughter age 6- Lyme and Bart and now Babs

My Mother- age 68- Lyme and many coinfections

My Brother age 35- beleive he was bit at 15 and docs in NJ didn't properly diagnosis- he has confirmed Lyme and Bart

My brother and sister in law and niece

My aunt

Most of us got it in NJ- Morris and Hunterdon Counties, and possibly Cape Cod-most of us are still not well

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hokie
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My father, me and my sister. My father is unbelievably better after 18 months of treatment. A completely different person.

I am much better, although not healed completely after four months of treatment.

My sister was just diagnosed. Her symptoms were mainly psychiatric, although fatigue and dysautonomia now play an additional role.

Of the three of us, my sister was the only one aware that she had been bitten by a (nymphal) tick.

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teresambear
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This coming Tuesday I am bringing my 4 year old son to LLMD I am terrified because, I had lyme while pregnant and he had lots of embedded ticks over the years.

Bringing him because he is a little delayed and I noticed that he gets the red pinna on his ears frequently just like me.

Personally I think my husband definitely has it he refuses to get checked and my other 3 children I am not sure. But I think I will eventually get all of them checked.

I will update. Teresa

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kim6869
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I thought my family was the only one.

My 9 year old daughter has been sick and in bed from December 2007 until March 2008. She started feeling better and om 5-20-2008 had tick attached with bullseye and is now in bed sick again.

My 17 year old daughter tested positive for Lyme and is on ABX with symptoms.

My 5 year old son just had a tick without bullseye and started 102 fever the next day. He is going to LLMD tomorrow.

My husband had tick with bullseye in December 2007 and took doxy and is still symptom free.

That leaves me and my 7 year old daughter. It is to the point that I am embarrassed to go the the pharmacy. People can't believe what we have been though. They think that we are making this stuff up.

I WISH we could make this stuff up, and have it not be true.

--------------------
Thanks,

KIM

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adamm
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My grandmother is suffering from a severe dementia because

of hers. She's had it for 10 years, and it will probably never

be diagnosed, despite the fact that she's had multiple EM rashes.

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Peedie
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Kim6869 - Please try to remember many people are walking around with Lymes and are unaware because of lack of public awareness. This post is to enhance "awareness". Perhaps someone at that pharmacy will one day see an odd rash or symptoms on their child and remember your experiences and have it checked out.
Up until now - I had no awareness of Lyme. I would have had it catagorized in my brain with Scarlet Fever as "almost unheard of" and nonexistant in today's world.
You have knowledge and you are doing something about it. Good job Mom!

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tdtid
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I started the roll in our family with five years of undiagnosed illness. More specialists and mis diagnosises than I could count.

After the one about degenerative disc disease in C-5 and C-6 and being told my options were surgery or epidural steroid injections...I did the injections and that was what finally crippled me.

I was on treatment about a year when I started feeling better and noticed that my husband and two of our daughters had these TINY TINY issues that were all different but in small degrees, things I had gone through before I was even seeking a doctor.

Not all at once, but one by one...and being paranoid to not let anyone get as sick as I did, I started suggesting they get it "ruled out".

First a daughter tested positive, then my son, then another daughter.

We are a well traveled family, I've been to all 50 states and 5 continents and only one of us (a daughter) remembers a tick bite, so as to when or where ANY of us got it, is a mystery.

We do have a dog that we have always hiked with a lot but oddly, she doesn't appear to have any symptoms of lyme although my gutt is that we got it while with her.

But yes, it does hit families and although I'm not scientific enough to say "why"...it does happen.

We were lucky in that the other three in the family had such MINOR symptoms that they wouldn't have even bothered a doctor with them other than my daughter having what the doctors called the worse case of mono they had ever seen. Hmmmmmm.

I'm the only one considered chronic in the family and my daughter always says "way to take one for the team, mom" since none of them would have had a clue without the paranoid mom in me. [Smile]

Cathy

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"To Dream The Impossible Dream" Man of La Mancha

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Geneal
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Well it started with me (the Mom). Then five months later my husband was diagnosed.

Then had children tested next month. They were both diagnosed.

My Mom, who lived outside with us after Katrina, also tested positive.

She isn't treating though.

I suspect my sister and her husband both have Lyme (pulled 3 ticks off my sister's behind,

And my brother-n-law was dx. with Post Traumatic Parkinson's Disease at age 29. He was an avid Deer hunter).

I also think my Dad may have it, but he refuses to test.

I suppose as the years go by, we will be adding to this list. [shake]

Especially, since the rest of my family think you can only get Lyme on my property. [dizzy]

Hugs,

Geneal

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desertlily
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Me - I was first diagnosed - been sick for 8 yrs.

My sister - sick about 4 years - both of us from California.

My husband - thinks it probably started for him back in high school in Oregon, had been back in the Mid west too. Hunted a lot, outdoors, logger, etc. Off and on problems over the years, diagnosed last year.

My youngest son - 23 yrs, been sick for about 3 years, not sure where he picked it up, congenital?, also he had recently been in China? When we lived in California when he was a kid? Who knows.

Of all of us, my son is doing the best, he's been able to hit the TBDs hard with oral meds and is getting to the point where he's going back to college.

My husband can work, my sister and I cannot. I'm on IV meds everyone else is on orals for now.

We're finally starting to slowly see some improvement.

I think this is one aspect of the illness that really makes a lot of people doubtful of you. How can just random people in a family all get sick from bug bites?!

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Susan

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Alv
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Me sick bitten when in scholl , I remember they send me to hospital in IV.

Later started compeling for pain on my ankles and headaches.

Recall my knee pain and high fever numbness back in my 20 in college.Than again 2 weeks antibiotics .

When 26 another knee right side all the time swollen , high fever and right hip pain .Back to antibiotics nobody could figure it out.

These were previous in EUROPE EASTERN AND WESTERN COUNTRIES .

Than here age 32 again eye pain ( neuro) horrible headaches-they treated me with anntiblood preassure pills got worst stoped the pills.No antibiotics. Started beeing symtomatic.No body figured out until reinfected ( backyard) at age 36 .Full active NEUROLYME and 7 coinfections .

Partner -positive -does not want to be treated things have minor problems ( Igenex positiv) but I see symtoms.

Daughter age 10 , bulls eye rash.Dr had no clue never treated.Again 14 years old Got bart.I treated her with homepathic formula.But will soon start her on HH capsules , herbs for bart.She has lyme and bart but functional yet.

Son severe several tick bites and pimple , has white matter in the head.Igenex showed 3 bands.Pediatritian -looked at me as I am making it up.Fired her.Send my son T DR J.Came up had MRI -WHITE matters in had due to lyme, bart , babesia and mucoplasma fementas.

I AM ALIVE.I would have been dead if I did not catch it .Or better say catch it 1 month before I would probably have been dead.( DEMENTIA problems ) heart , joints , loost 12 root canals , hearing you name it.

I beilive my mother had hig load of bartonella -DIED from LEUQEMIA.

My sisters have bart from all the symtoms.Do not have LLMD in EUROPE.

My niece is having symtoms of LYME and bart.The university and infectionist dr are just watching her and not treating her.They have no clue.

My father has lyme and bart and a pacemaker.He does nto want to be treated or test for it.he barerly walks and has vasculitis in his head.

My motheR in law has BART.

MY father in law might have babesia , all symtoms and heparin helps hom only .They do not know how to treat it in europe .They are not aware of it like LLMD here.

But anytime you have a fever they give you antibiotics not like here.THEY GAVE me antidepresant and that is how I got worst me and my son.

For me they called it depresion due to stress and for my son they said is SPOILED and MONONUCLEOSIS CASE !

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mojo
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My twin sister and I both have it. We are in our late 40s and figure we got it as kids.

That's a loooooong time.

We are both chronic and still in treatment. I was diagnosed 2/2006 and she was diagnosed 2/2007.

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Tracy9
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Who doesn't?

That might be easier to answer.

--------------------
NO PM; CONTACT: [email protected]

13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG.

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lymebytes
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6 in my family - me, son, husband, sister, niece, brother in law. All of suspect 10+ years.
And we are highly suspicious of at least 4 other family members who have not been tested.

With my diagnosis in '06 everyone else in the family who had undiagnosed symptoms OR Fibro/CFS were tested - all positive.

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www.truthaboutlymedisease.com

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astrocat1
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ME at least 2 years

My daughter. 13 years ago. Still battles with
reoccuring symtoms.

My son. 5 years ago. It's rearing it's ugly head again.

My other son. $ years ago. Still has problems.

All 3 of my dogs.They get better so much faster than we do!

My horse who suffers chronic lyme. 2 years now.

We all got in Fairfield County, CT

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Dawnee
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We aren't sure yet.
My LLMD is sure my husband has it but he has not been tested yet.
Also wondering about our 3 kids, they all have signs and symptoms. My teenager, if she has it, could have gotten it from the same place I got reinfected (TN) and the other two could only really have been from me through pregnancy.
When I can actually afford to get everyone tested I'll post results
Dawn

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hurtingramma
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My 28 year old (at the time) daughter was diagnosed in March 2005. When comparing her symptoms with mine, I had been diagnosed with FM, she encouraged me to see her LLMD.

I was then diagnosed in July. That same fall, I convinced my hubby to be tested and he also has it.

Last year my grandson was diagnosed. He is now almost 7 yrs. old and probably got it congenitally. My son-in-law has not been tested and shows some symptoms, but is treating himself with herbs.

None of us ever remembers a rash. We have probably had it for years and years. I, myself went from Dr. to Dr. just to obtain the FM diagnosis.

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"Few of us can do great things, but all of us can do small things with great love". Mother Theresa

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