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» LymeNet Flash » Questions and Discussion » Medical Questions » Prior to Lyme- what other diseases- Need 100 answers- FIVE more to go! (Page 2)

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Author Topic: Prior to Lyme- what other diseases- Need 100 answers- FIVE more to go!
lou4656
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I already posted my list, TC, but wanted to add:

I presented to my PCP in Oct 2000 with a bullseye rash. It had started out about the size of a quarter and by the time I went to his office 2 weeks later, it was about 5" across.

The PCP noted that I did not see a tick. But, he actually ordered the Elisa and WB (from Quest). Of course, they were both negative.

Negative tests = no lyme = no treatment. Lucky me!

When my body finally crashed in Oct. 2006, the PCP told me that the only abnormality that he could see was that my B-12 levels were on the low side. So the cause of my over-exaggerated symptoms was probably due to my body being overly sensitive to lower B-12 levels.

Shesh . . .

--------------------
LouLou

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wiserforit
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Migraines
Vestibular Neurinitis
Otosclerosis
Mononucleousis
Chronic Fatigue
Environmental Allergies
Depression
Diverticulitis
Anxiety
Get this...weak knees
Whiplash residual
Syndrome X
Food Sensitivities
Oh, and my favorite: "Could be MS or Cancer"

Oi,
Wiserforit

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shazdancer
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Son:

tick bite, age 5

trouble getting classwork done, age 7

panic attacks, age 10

depression and dysgraphia, age 11

depression and oppositional defiant disorder, age 12

+ for Lyme, age 13

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groovy2
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Depression

Mental Disorders

MS

Making it up

HellifIKnow-

and Most often you are Waisting My Time-

Finally I figured it out before it killed me-
--I was LUCKY --Jay--

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dbourne
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Lupus.

I have a letter signed by my old infections disease doctor in Tulsa stating that there was no possibility that lyme could continue after my 30 days of treatment.

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daise
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Since puberty:
Signs and symptoms of bartonella but no diagnosis(insomnia, soles of feet red with pins and needles, and burning.)


Starting at age 52:
Stroke (misdiagnosed, actually Bell's palsy)
Severe hypothyroidism
Bone infarct in right leg
PCOS
Myofascial trigger points
Neck out of alignment with spine at C1 and C2
Fibromyalgia / chronic fatigue
Menopause (false!)
Depression (no antidepressant)
Lyme, bart and babs

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arc35476
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RA
Lupus
Possible MS
Possible Cancer
Poor eating and lifestyle choices
Depression
Crohn's Disease
IBS / ulcer

It has to be one of these because THERE IS NO SUCH THING AS LYMES!!!!!

(Ha. LOL! we know that's false!!! And don't you love the addition of the "s" on the end of Lyme????)

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roro
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PCOS
migraines
chronic sinusitis
hepatitis C
1995 lyme disease w/EM (but cured with 30 days doxy [Roll Eyes] )
1 yr later - arthritis in knees
chronic fatigue syndrome
anxiety/depression
HHV-6
IBS
GERD
autonomic dysfunction POTS
fibroids - hysterectomy
chronic bladder infections
2004 hospitalized w/ meningitis, pleuro-pericarditis with unknown "virus"
cranial nerve palsy
bell's palsy
stevens johnson syndrome
bechet's
MS
GBS
myasthenia
degenerative disc disease
ALS
AS

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whatayear
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was told I have panic attacks
then possible MS
possible lupus
possible RA
then was told I had fibromyalgia
the GAD

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cordor
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Dehydration
Malnutrition
Otosclerosis
Fibromyalgia
Multiple Sclerosis
Dermatamytamosis
Stress
"Fever of Unknown Origin"
Must be Lupus
Hypoglycemia
TMJ
Trigeminal Neuralgia
Asthma
COPD
Costochondritis
GERD
Irritable Bowel Syndrome
Spastic colon
Anorexia Nervosa
Ocular migranes
Herniated disc in neck
"Must be HIV"
Cancer "somewhere"

I have been told I have ALL of these....but of course there IS no such thing as CHRONIC lyme....you just have EVERYTHING ELSE under the sun. And I am sure I forgot even more of them.

--------------------
Corinne

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cordor
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Oh I forgot the latest one - Benign Positional Vertigo- aka "BPV" (professional term)
and also "food poisoning" [loco]

--------------------
Corinne

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SoSublyme
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I'm not exactly sure when I contracted Lyme---I spent all my summers growing up either playing or working on Fire Island, NY (the tick capital of the world!) But I didn't pursue any diagnoses until I was a young adult, so I'll list those:

fibromyalgia
chronic fatigue syndrome
costochondritis
sjogren's syndrome
ankylosing spondylitis
pleurisy
connective tissue disorder, tendonitis
ADD
anxiety disorder
sleep disorder
restless legs syndrome
IBS
GERD
TMJ
inguinal hernia
hiatal hernia
chronic sinusitis
environmental allergies
chemical sensitivities
vertigo
arrythmia/mitral valve prolapse
autonomic dysfunction
uterine fibroids
migraines
degenerative disc disease
stomach ulcers
vitamin D deficiency
"severe neck sprain" (although I had no injury to neck--just couldn't move it--excrutiating pain)
infertility (but seven years of experimental treatments and surgeries paid off--3 kids!!)

I had to laugh when I looked at my list. I sound like a walking disaster. That's one of the weird things about lyme----everyone (including my llmd) always tells me..."but you LOOK so good". Maybe if we looked a little worse, people would take us more seriously!

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Salty Sue
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I always figured if I had turned green then I would have been diagnosed, treated and on the road to wellness in no time at all. Unfortunately I always look so healthy!

--------------------
Get our free Lyme Aware poster by writing [email protected]

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Robin123
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Torticollis (stiff neck)

Repetitive strain injury (RSI)

Brachial plexus disorder (part of RSI)

Fibromyalgia - the main label I got. FM was thought to be possibly a post-viral syndrome. I had had a lot of herpes infections prior to FM, so I accepted that explanation as to what had messed up my body.

Myofascial pain syndrome

Back injury

Poor posture

Costochondroitis

Chronic pain syndrome

Depression

Stress

Anxiety

Undetermined amount of functional overlay (meaning I was getting something out of being not well)

Bad relationship with family

TMJ

Pituitary tumor/hormone disorder

Candida

Chemical sensitivity

[ 23. June 2008, 09:05 AM: Message edited by: Robin123 ]

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Robin123
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quote:
Originally posted by cactus:


My older son made a video game out of it called "Pin the Diagnosis on Mom" - doctors throwing different diagnoses. Good game. Bad ducks.

Cactus, that's a good visual!
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Curiouser
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I do have many of these either in addition to or as a result of the lyme, but they were offered as stand-alone dxs for all my symptoms at the time

Various anxiety disorders
Depression
PTSD
Perimenopause [Roll Eyes]
CFS
Vitamin/Mineral deficiencies (including anemia)
PCOS
Metabolic Syndrome
Mono
Mercury toxicity (my levels aren't *that* high)
Hypothyroidism
Adrenal fatigue
Migraines
Food intolerances
Food/inhalant allergies
Candida (and once again, my levels weren't/aren't *that* high)
Hypoglycemia
GERD

And the kicker - if I only lived a "healthy" lifestyle (proper diet, supplements, exercise, sunshine), I'd get better.

Did that for close to a year and got worse. Go figure. [shake]

--------------------
If you don't know where you are going, any road will take you there. - Lewis Carroll

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Geneal
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Lupus

Post Traumatic Stress Disorder

Congestive Heart Disease

Generalized panic/anxiety disorder

"It's all in your head" diagnosis [shake]

Kidney failure

Fibromyalgia

Pre-Diabetes

Hugs,

Geneal

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1Bitten2XShy
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I had many, but my 2 "favorites" are:

PCP = You just need to pray more and handed me a religous medallion of his.

PCP = When he figured prayer was not working, he told me I had Leukemia!

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tickedoffjan
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Okay here it comes:

Migraines

Menieres Disease

Degenerative Disk Disease

Herniated Neck and Lower back Disks

Heart Murmur

Mitral Valve Prolapse

Dehydration

Allergies

Fibromyalgia

Chronic Fatigue

Anxiety

Depression

Chronic Sinus Infections

Insomnia

I probably left off another 10 or so but because of the fog I am unable to think clearly.

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Serenity
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Posting for my husband who contracted lyme in 1990 while visiting in Connecticut. We live in NC though so all physicians seen were from NC, with the exception of a week at Mayo Clinic which resulted in no diagnosis, more of a "go home and stop faking" type message.

In 2002, 11 year old daughter found an engorged deer tick on her while back in Conn. and tested CDC positive for Lyme. For about three years she kept saying, "Daddy, you have Lyme!" At her next LLMD visit, he made an appointment with her doctor. My husband has never had a positive Lyme test but has been treated on a clinical diagnosis since 2005.

In "fairness" I do have to say that the possibility of him having Lyme was considered by many specialists he saw and he was given the standard Lyme tests each time. They just were ignorant about looking outside of the "party line". I am seeing a slow but encouraging attitude regarding the possibility of Lyme disease in the absence of positive testing among NC physicians in the past year year.

Every little bit of knowledge is better than where we were four years ago when my daughter's pediatrician called our home at 9:30 at night to warn us that her IDSA buddy in Winston Salem told her it was her "professional responsibility" to let us know that the care our daughter was receiving from her NC LLMD "amounted to quackery"! Progress is slow, but it is progress.

Here is my husband's partial list, I can't possibly remember them all:

Chronic fatigue
Possible lupus (often considered)
RA
Sleep disorder
deviated septum causing sleep disorder which was causing all the other symptoms
surgery for deviated septum which would cure sleep disorder which would relieve all the other symptoms (not)
depression
cellulitis-several times
chronic sinusitis
food intolerances
allergies
cytomeglovirus (or something like that, sounded ominous)
fibromyalgia
hypochondria/malingering
"we've never seen anyone get as many strange infections as you!"

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kam
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Labels such as MS, Myasthenia Gravis, AL's, Parkinson's, Lupus, Valley Fever, etc were suggested but then ruled out for the most part.

EBV but also had doctor's say that they thought after a certain age everyone tested positive for EBV.

I guess. I did not go back to UCSF or Samsun clinic to get their final dx..ran out of insurance.

Knew enough then to know that when it comes to lyme disease many of the doctor's don't have a clue.

A couple of local primary docs suggested fibro, stress from work, CFS, see a shrink

Saw a pyschiatrist...he talked with me for an hour.

Said symptoms were medical not pyschological and to find a good MD>

Saw a person who specialized in fibro...said he did not know what I had but it was not fibro and to get back to him when I found out as he would like to know.

Had doctor's also who did not believe in fibro or CFS.

Insurance got in the way big time of getting a dx as most docs needed to stay within the insurance box for testing and sending me to specialists or not....mostly not.

If some of those bizarre symptoms I had that came and went for years before I was too sick to work or do household chores were lyme...

I was told at the time..

stress

silent migraines when I could not see or hear..it would come and go

inner ear infection when the classroom would spin around

bad marriage....need to get out of it (they were right, but medical needed to be looked at too.


Mycoplasma was mentioned by one doc but she would not do what it took to get approval from insurance to get the testing.

She also would not send me to a doc at Stanford that had been recommended because she would not get her quarterly bonus if she did so.

I found many of the primary doctor's in the small town I lived in would wait 3 months before telling me insurance had denied something.

Then, when I called insurance to see what needed to be done to get it through they would tell me the doctor's office never asked.

I started catching on after about the 4th primary doctor...yep...lyme brain ya know and being naive about the medical field..thinking they were there to do all they could to find out what was wrong and help me get my health back.


Silly me.

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riverpatrol
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TMJ
torn rotator cuff
mystery knee injury
gout
osteo arthritis
arthralgias
sinusitus
rheumatoid arthritis

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Tincup
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Holy COW again!!! This is insane!!!

Why don't they think Lyme FIRST?

Grrrrrrrrrrrr....

Anyhow... you all are wonderful to post and share. I will not tally up yet.. as I figured we need at least 120 posts here to make 100.. as some have posted 2 or more times.. like me!

So keep them coming and know that I appreciate each and every response!

This list is going to be miles long!

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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Sojourner
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OK, here goes---short and sweet.

Husband- MS
Sister-MS
Daughter (16) Bipolar/Depression/OCD
Daughter (11) Kawasaki Disease (an incomplete case)

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djf2005
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sweet i get to be 100.

MS, Lupus, FM, depression, anxiety disorder, and youre fine.

there's a lot more, thats what comes to mind at the moment.

derek

--------------------
"Experience is not what happens to you; it is what you do with what happens to you."

[email protected]

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FuzzySlippers
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These are diagnoses I've received over the past eight years. I have other diagnoses from years prior to 2000 but am too tired today to try and catalogue them all.

Some of the diagnoses I've gotten have, indeed, been valid in that I now know that they are secondary complications and/or health conditions resultant from my Lyme and Co-Infections.

I've had Lyme a long time. I was re-infected in 2005 by the bite of a sandfly and that's when my Lyme and new symptoms of co-infections reared their ugly heads to the point where I simply could not deny my obvious decline.


Diagnoses Since 2000:


Kidney Stone

Systemic Candidiasis-Candida Related Complex

Late Stage Adrenal Fatigue/Exhaustion

Estrogen Dominance and other hormonal deficiencies (i.e., very low DHEA, very low pregnenolone and cortisol)

Irritable Bowel Syndrome and Leaky Gut(also two bad bowel bacterial infections- citrobacter freundii and C. Difficile which appeared before my Lyme diagnosis and Lyme Treatment)

Chronic Fatigue Immune Dysfunction

Fibromyalgia

Heavy Metal Toxicity

Mono

Chronic Epstein Barr Virus

Chronic Mycoplasma Infection (Mycoplasma pneumonia)

Raynaud's Disease

I've had 5 surgeries in the past 7 years (e.g., kidney stone removal, D&C's, pelvic laparoscopic surgery - nothing found from this surgery - my pelvic pain was a direct result/symptom of Lyme and Co-Infections, etc.)

Loads of Gyn issues and problems (i.e., uterine fibroids, uterine cysts, recurrent infections, ovarian cysts, etc.)

Lupus

Depression

Recurrent upper respiratory infections (ear infections and sinusitis)

Allergies

Whiplash (was told that my neck pain and stiffness was whiplash as a result of my choking-type frequent cough -- the cough and neck issue was Lyme!)

Multiple vitamin and mineral deficiencies

And was told by the family doctor (internal med doc) that "Obviously you are infected with a bacterial infection of unknown origin."

Grief (Yep. A doc said my symptoms were probably caused by grief)


Of course, the above doesn't even include all of my symptoms. Were I to include them, I'd end up posting a tome.

If I can think of anything else, I'll revise this.

Hope this helps, TC.

Fuzz

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teresambear
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anxiety
panic disorder
PRE-MENOPAUSE
TMJ
depression
benign fasciculation dosorder
possible fibromyalgia
allergies
sinusitus

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teresambear
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OH Forgot to Add The Main One HYPOCHONDRIA !!!!!!!!!
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lymednva
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I don't think I have replied to this, so here goes! Some of these were for real, but I now see are related to Lyme, compromised immune system, etc.

Warning, since I've been ill for over 40 years, this is long.

In OK

Severe headaches in junior high- psychosomatic

recurring strep throat in high school - this was for real, but I now see was due to my immune system being compromised

In college, no dx, but had only one all-nighter. Felt so bad after I swore never again!

In KS, no dx, but here's what occurred:

1974 - Had first Rubella vaccination because I was working with young children, never had rubella, and knew we wanted to start a family in a year or two.

Back to OK

1975 - at first ob-gyn appt. with first pregnancy - no rubella immunity. Hmmmm.

During first three months of pregnancy, had what I thought was morning sickness , but I now realize was dysautonomia. My BP at appointments was always 90/60 and I felt better when lying down.

Looking back through old photos, I noticed spent a LOT of time lying down, pregnant or not!

1976 - after birth of first child, received second rubella vaccination.

Try sauna for first time. Can't breathe, so leave.

In VA

1978, first visit to ob-gyn with second pregnancy - no rubella immunity.

This time "morning sickness" lasted five months!

1979 - third rubella vaccination

1981 -

third pregnancy, no rubella immunity - doc says, "maybe you have immunity, just not enough to show positive on the titer." Ah...intelligent doc! Still love him, but he's about to retire. [Frown]

"Morning sickness" was worse than ever. Doc's response (the guy I love) -"It's because you are middle-aged." I had just turned 30.

Mid-80's

Unable to drink caffeine after 2 PM, or cannot sleep at night.

Notice I have less energy than friends with kids when they are able to get up and run after their kids, and I simply sit and call to them.

Need naps on the weekends

New dx: multi-nodular goiter I decide this is the reason I fall asleep after teaching afternoon preschool, am tired on weekends, have low energy.

Realize I cannot take antihistamines during day because they knock me out -my dx now - drug sensitivity.

1989 - return to work full-time, first time since 1975, pre-pregnancy

Can't do anything else except work, care for kids, drive to activities, try to keep up with house. Feeling stressed

See endocrinologist - tells me I need to lose weight (duh!). I tell him I am stressed out from work, home, eat due to stress. His reply, "You need to learn to deal with it." Huh? How? No clue!

1990's

Working 30 minutes from home. Exhausted when I return. Sometimes have trouble staying awake on drive home.

Energy levels are low.

Frequent sinus infections lasting minimum of six week, every fall and spring. Sometimes last longer. Duck rolls eyes when I go back after first round of abx.

Every summer, after school ends, I am exhausted and sleep for two weeks. Hubby says this is not normal, wants me to go to doctor.

Ducks says, my body is just adjusting to the different activity levels.

Hubby traveling a lot. I am exhausted and/or sick when he returns. He claims I am "faking it."

Hubby returns from month-long trip to Russia. I have severe strep, which duck's office tells me is normal not to feel better after 4 days on abx.

Throat feels better, but I have missed 3 days of school, unable to cook full Thanksgiving dinner.

Week later develop cough. After it doesn't resolve I decide to go to duck to see if it's bronchitis. It's pneumonia! When doesn't resolve duck rolls eyes , again.

Sends me to get chest x-ray. Surprise! It's still pneumonia!

Miss three weeks of school and rest during winter break. Finally resolved after third round of abx.

January 1996, during huge blizzard, hubby shovels snow (first clue there's something wrong!), finds neighbor to take him to subway so he can go to NYC for pre-planned business trip.

Calls me from train and tells me there is a letter on his desk for me. Instinct tells me not to open until the next morning.

Letters says he's leaving me. I'm stuck at home with three kids (oldest home from college), can't get out, devastated.

Begin psychotherapy to deal with divorce. Begin having neck and shoulder pain, headaches. Therapist says those are all signs of depression , makes sense since I am going through major trauma.

Duck give me rx for Prozac. As summer progresses I am feeling worse and worse. Increase dosage, still not helping.

Duck sends me to psychiatrist, who changes meds, and gives me something to help me sleep.

Going through divorce, getting house ready to sell with no help, moving out, I end up with torn meniscus.

Surgery six days before school starts, but orthopedist assures me I will be able to start school. Takes me longer to heal than expected.

By end of September I am exhausted, feeling what I have been told is "depression." After discussion with therapist decide to check myself into mental hospital .

Spend two weeks there, feeling worse when I leave than when I went in. Use up all sick leave and take one month of unpaid leave.

Still not feeling well. Wake up in AM, eat breakfast and need to go back to bed. Psych duck says that's normal, I have been through a lot and it will take time to recover.

Return to work part-time in mid-Nov. full-time in December. Live for weekends and holidays, so I can sleep.

Therapist begins to suggest that this appears to be more than just depression, perhaps something physical.

Go to duck who runs basic tests and pronounces me to be fine. [bonk]

Slowly improve, still have difficulty sleeping, sensitive to stimulants and caffeine. Live with Diet Coke in my hand at school. Only way I was able to remain at work for the last few years.

1999 - endo tells me I am pre-diabetic over the phone, sends me to diabetes educator who says there is no such thing, I am diabetic.

January 2001, go to gyn due to heavy periods. He asks for all recent test results, so I have them faxed to him. Tells me I am hyperthyroid. Endo never called to tell me this. [shake]

Runs other tests and tells me my night sweats and insomnia are NOT due to menopause , no longer hyperthyroid, wants me to follow-up with endo for further testing.

Go for further testing, but falls through the cracks.

Begin to have increased neck, back, and shoulder pain. Muscles can't relax. Start getting therapeutic massages, which help temporarily, but can't even stay relaxed through entire massage.

Friend tells me my back is like a rock. Another suggests I see her chiro. He does x-rays and pronounces my problem is scoliosis.

I am thrilled because I think I know what is wrong with me. I look in mirror and can clearly see that my neck is completely out of alignment. After a few months of treatments I decide this is not helping and stop.

Feeling worse and worse, what I had always associated with "depression." Go back to psych doc and he tells me there is only one anti-depressant I haven't tried ( wrong!) and puts me on Effexor.

I start on it and begin to suffer from severe anxiety. Affects my ability to teach. Go into tears over nothing. Begin having panic attacks.

Psych doc repeats there is nothing else he can put me on for depression, the anxiety can't be cause by the Effexor (I later checked and he was wrong).

Puts me on Buspar for anxiety. Gives me sample pack and rx to fill when I finish the pack. I fill rx and begin taking the dose on the rx.

Begin to feel much worse. All symptoms seem to be worse. I can barely function at school. After a few days I looked at the sample pack, which I just happened to save, and noticed that the increase in dosage from the pack to the rx seemed way too much.

I try calling psych doc, but his voice mail is full. Call pharmacy and ask about dosage level. Tell me that it is twice as much as normal high dose, but sometimes docs write for more.

Check their files to make sure they did not make an error and tell me they have the written script and the meds I have are what was written. Suggest I call doc. Finally get through to voicemail and leave message.

Stop at pharmacy to get photocopy of script so I can have info when I speak to doc. Finally connect around 10 PM. He proceeds to tell me it is a pharmacy error.

He would never have written it for that much. I tell him I have the script and that is what it says. Then he tells me I must have misunderstood what it meant. [bonk]

Tells me to just use the pills I have to take the right dosage. I tell him I don't know how to make that dosage from the pills I have. They will not divide that way. They are scored, but not for dosage he wants me to take.

I am in tears and he keeps telling me to calm down. Easier said than done! I try to explain the dosages on the pills and how I can't divide them like he says.

Then he tells me to take three times day instead of two. How was I supposed to figure that one out?! [Eek!]

That summer sell my house and my mom's so we can move in together. She was 90. In addition, son comes home in psychotic state. Hospitalized twice, dx'd bipolar disorder.

In the midst of moving I discover a large lump in one breast. This is not the first time I've had this. Turns out to be cyst.

Move, go back to work next day. After three weeks I take day off due to exhaustion and medical appointment. Decide I will stay home rest of week because I am feeling worse, rather than better.

Cannot walk dog more than a very short distance. Used to walk half mile or more.

Dx'd with low WBC count. Develop infection in toe and since it rapidly moves up my foot I go to ER. They treat with IV Cipro. When done I am so dizzy I can't stand up without holding on to walls.

Tell me it's because of low blood sugar (it's 4 AM, so I am too tired to think) and give me OJ to drink. I get up to leave and still cannot walk without holding on to walls. Now realize this was herx.

After two days on Cipro I called to ask for different abx. When I was running errands I felt so bad after standing in line that I began to get dizzy, Always felt better when I got in my car. Strangers looked at me and were concerned.

I continue to feel worse and worse and call in sick again at school. I initiate the STD process. At the time the only dx I have is depression , from a new psych doc I am seeing.

As I watch my health continue to get worse and am unable to even figure out what is wrong with me my therapist suggests that it appears I have what she has recently been dx'd with, CFS and FM.

She gives me the name of her doc, but he is out of my network, so I try to see a rheumatologist others have recommended to me. He was a disaster. Told me he didn't believe in CFS and IF I had FM there was nothing he could do for me! I left in tears.

Went home and got the number of the other doc and made an appointment. Couldn't get in until December, but at least I had hope.

Meanwhile I could only sit up for a few minutes without becoming totally exhausted and needing to lie down and sleep.

Often I threw my legs over the back of the sofa, where I spent my days, because it helped me feel better.

Being single, I still needed to drive, at least sometimes. I did get rides to appointments. But when I drove I put my feet up on the dashboard at stoplights.

Finally at my appointment I was dx'd with "profound dysautonomia," CFS, and FM. The first thing he began to work on was my dysautonomia.

By January I was feeling a lot better. I figured that if I continue to improve like this I would be able to return to work part-time in March and full-time in the fall.

I did return n March, but by May it was obvious that I couldn't keep up that pace. I talked to my doc about filing for disability and he was totally supportive.

Over the years I posted on a few message boards. The one I frequented most had a lot of people who had originally been dx'd with CFS and/or FM now being dx'd with Lyme. I began to explore Lyme and finally asked my doc to test me through Igenex.

He spouted IDSA nonsense and printed out a copy of some report about Lyme, obviously from IDSA.

Later I tried going to a doctor I was told was a LLMD. He wasn't, and ran and ELISA, which was negative, so that as the end of that. I didn't know where else to turn.

Then, over a year after my original request my doc asked me if I had been tested for Lyme. I told hm I had asked him to do it, but he didn't do Igenex. He said he was now running Igenex testing. He was becoming Lyme Literate.

He did the testing, and while mine were negative overall, I did have a few ind bands that were significant. Based on my history he began treating me.

I finally had a correct dx of Lyme Disease, and Babesia WA-1. I also herxed on bart treatment, so believe I also have that. and after a few months began to feel better. That was over two years ago.

I've been ill for over 40 years, so I am not expecting miracles, but do believe I can get better than I am at this point.

--------------------
Lymednva

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breezywings
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All the memories come flooding back...GRRR

Chronic Fatigue Syndrome

Arthritis

Possible MS

Allergies

Menopause

Fibromyalgia

Anxiety

Depression

Thyroid problems

et al.

--------------------
...~*Just keep swimming, Just keep swimming*~...

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TerryK
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Rheumatic fever

Allergies to abx (turns out I'm not allergic, just a herx)

Growing pains

IC

Fibromyalgia

Chronic Fatigue Syndrome

I have many other illnesses - most if not all probably related to decades of chronic untreated infections. They are real illnesses so they are not mis-diagnosed.

The worst thing of it is that they found some pretty severe abnormalities 20 years ago that they told me were the cause of my illness and that I would get better as I aged. For that reason, I didn't continue looking for answers for years.

I finally started looking again when I developed fibromyalgia. They tell fibromyalgia patients that they just have to learn to live with it so it took time to realize that there could be a lot of reasons for fibromyalgia and that the medical community doesn't know what it's doing with these types of illnesses.

When I finally realized it could be lyme, I couldn't find a doctor who would run a test because "we don't have lyme in Oregon". We are endemic here but we don't have lyme?? I didn't push too hard because I thought it was only a remote possibility since we don't have lyme here or if we do it is very rare!!

I finally got a fibromyalgia doctor who agreed to run the test. ELISA came back IND and WB came back IgeneX positive. 3 doctor's told me it was negative and not the reason for my illness.

Then I found lymenet. If it weren't for lymenet telling me how to get an LLMD, I'd probably still be wondering what is at the bottom of my illness.

Terry

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Silverwolf
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Before Lyme/Bart Diagnosis[in '06]:

Early Childhood:
  • *Sore throats, Sinus Infections, Bronchitis,and Ear Infections...frequent*.

    Lack of Coordination/and Balance Issues as well as Left/Right Disorientation problems.

    Usual childhood diseases [Measles,Mumps,Chicken- pox].And Tonsilectomy/addenoidectomy age 4.

    Grade School years: Also Pneumonia w/ ongoing *listing above* from Early childhood and Growing pains continuing thru...

    Junior-high-thru- Highschool : Strep throat,Mono-, Various flu like Symptoms, Heartburn,stress. Possible Reflux, Ulcer etc.Painful Chest Spasms/w/ extreme Drop in temperature[like 93'F I think].

    Various *Gyn' problems from Age 14[hmm also when I had Strep and Mono' together].Dysmenoreah/Amenohreah,Dx'ed as Adult w/ Endometriosis and PCOS resulting in Total Hyst '94.

    Interstiatial Cystitis, frequent cyst problems at base of bladder/end of Urtital[sp.?] tubes.

    CFS/FMS/IBS/TMJ/and Tinnitis

    Gall bladder Disease/gallstones[ surgery '04].

    Rt. Neuro Migraine/Migraine Variant/Migranic 'Seizures etc.

    ///// '95 CT scan Brain: Rt, Frontal Lobe small sub-Aracnoid Cyst of " Doubtful Significance..."/////

    Yeah,thats why I have White Matter Lesion disease now,w/ 2 demilination lesions on my brain now.

    Possible Prolactinoma on Pituitary[?] negative [ Milk in breasts for years],

    Deviated Septum w/ all the Sinusitis bit...

    Pneumonia like illness w/ *lung bleed [*burst Alvioli sacs]in '01.

    Frequent bouts of dizziness,

    Loud noises sensitivity and Light sensitivity/Photo sensitivity... Did I say Chostachondritis and Pleurisy at various times?


    After HS Graduation,College: Thoraxic Outlet Syndrome [w/ extra cervical ribs,surgery later in '82 w/ collapsed lung], and Continuing w/ the above issues.

    Allergies, severe to Oats from Jr High on...
    Frequent weakness/ knees weak, and would give out Sr.year highschool... Hospitalized -called- an " Unknown Virus w/ Neuritis".

    Endometriosis, at least Five miscarriages, Neo-adanoma Tumor/Cyst rt. Ovary fallopian tube,

    Tested several times for MS, indeterminate.
    " " " " " " " " " Myastehnia G. negative.


Hopefully I haven't repeated much info' Sure I forgot some stuff... Looks like everyone elses list... I've had issues sinceI was a tiny tyke.worsenig at around 14, never got really well...I'm 51 now...Jus' confused Silverwolf here in SE Idaho.

[Hope this helps w/o being too confusing.]

--------------------
2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain.
[ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94
Diabetes*2 Dx 10/'08

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Silverwolf
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Since the Lyme/ BArt diagnosis in '06 ... We've found out about an MVP problem and the White matter lesion disease/brain .

Prolly didn't mention Dequervanes tendonitis RT. wrist/hand/arm [spent '95 summer in a cast from it].

I'm gonna go wander...and pack more boxes for our move...before I tax anything else...

Jus' Silverwolf...cornfused as usual.

--------------------
2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain.
[ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94
Diabetes*2 Dx 10/'08

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heiwalove
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somatic delusional disorder -- this is the 'diagnosis' that got me locked up for five months in two separate psych wards, including a state hospital.

also: IBS, interstitial cystitis, depression, anorexia, panic disorder, chronic fatigue syndrome, possible MS, hypochondria, nothing. mitral valve prolapse, but that was post-lyme and coinfections diagnosis.

--------------------
http://www.myspace.com/violinexplosion

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jigaram
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The first pediatrician I took my daughter to said that it was probably a SPIDER BITE!! LOL. And that I was overreacting.


You would think in a tick/Lyme endemic area the physicians wouldn't be so ignorant. And the symptoms were probably the flu going around in school.


The second pediatrician I took my daughter to was not sure it was Lyme.


I see flyers educating the public but where are the ones educating the physicians?????

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darla135
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Chronic Fatigue Syndrome

Endometriosis

Interstitial Cystitis

Chronic Sinusitis/Allergies

Hypothyroidism

**Note: all of these are actual conditions I have but no one could fully explain my symptoms with them.

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Tincup
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Update...

Been hand writing the lists. About 200 different diagnosis so far.. and have only gotten 2 pages done!

Thank you all... good information. I am going to go count to be sure we have at least 100 people with a list.

BTW-

Questions...

Tailz... what is pcos?

bobidour- channeling powers?

Thanks again everyone!

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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Tincup
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ALMOST THERE!

We need 12 more people to respond that haven't already.

Anyone?

I know this is hard to do and I am really impressed by the details and time it took to do it. Hope it didn't bring up too many bad moments or memories.

[Big Grin]

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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joysie
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"Conversion disorder" (you had a real illness, babesia, it is gone but you need psychiatric help). [Roll Eyes]
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klutzo
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endolymphatic hydrops

multiple sclerosis

depression

fibromyalgia

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pj1954
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arthritis,fibro,chronic,fatigue,gerd,ibs,migranes,myofacial pain syndrome,chronic sinus infections, had pnemonia 2x and heres the kicker cushings disease all incorrect dx's in reality it was babesiaa all along.
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aiden424
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Flu
viral meningitis
virus (Mayo Clinic)
granuloma annular
anxiety
CFS
GERD
Hoshimotos
Factor 5 Leidon
staph carrier
Lyme
Bartonella

--------------------
You never know how strong you are until being strong is the only choice you have.

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Tif
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K, I am chiming in my two cents worth, I am 31........
Pseudotumor Cerebri
myofascial pain disorder
3 different jaw disorders
uterine fibroids
uterine and ovarian cysts
have had cervical carcinoma in situ
PCOS
fibrocystic breast tissue
EBV
CFS
Fibro
Lupus(possible)
Migraines
Cluster headaches
spastic colon
IBS
GERD
severe gastritis
have had gallbladder removed
ALL THE DIGESTIVE ISSUES WERE DX'D BY SCOPING
hypochondria
PTSD
OCD
GAD (Generalized Anxiety Disorder)
Chronic anxiety
Depression
Arthritis
psoriasis
eczema
pityriasis rosea

That is all I can think of at the moment, but I know there are a few more

--------------------
TL

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Tif
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OH YEA..
Hypothyroidism
Adrenal fatigue
various endocrine abnormalities
inappropriate sinus tachycardia
supraventricular tachycardia with PVC's and PAC's
mild valve regurgitation

--------------------
TL

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daise
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I'm sorry. Please add carpal tunnel.

daise [Smile]

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bettyg
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hi tincup,

just to clarify; you have 200 DIFFERENT ILLNESSES/SYMPTOMS diagnosis.


you are NOT copying everyone's laundry list; just the DIFFERENT ones not mentioned earlier right?


been interesting reading them all! uffda; what we all have been thru. later... [group hug] [kiss]

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GADaisy
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Neuro #1 - Dehydration

Neuro's #1 - 5 Glioblastomia Multiformae (Nasty brain cancer)

Neuro's # 6 - 11 Balo's Concentric Sclerosis (Nasty version of MS)

--------------------
When you are going through hell, just keep going. Winston Churchill

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Niere
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I was diagnosed with "benign fasciculation syndrome".

[Razz]

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kelmo
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For my daughter:

Migraines
Psychiatric symptoms/psychosomatic disorder
Fibromyalgia
Chronic Fatigue Syndrome
Latex Allergy (she doesn't have one)
Asthma
Mycoplasma pneumonia
EBV
Parvovirus


For me:
Asthma
Psychosomatic disorder
Depression

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Mtgirl
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Upon getting an MRI of my head, it was found that I have a Chiari I Malformation. Because I was referred to a neurologist, he thought this might be causing my sympptoms. I mentioned lyme to him, as I had had a previous physician confirmed EM rash in 1998 with no treatment to follow.
In order to just get me out of his office and to have someone shoot down the lyme suspition, he referred me to Infectious Diseases at a local hospital. After a very thorough history and many labs (all negaitive) the Infectious Disease doctor diagnosed me with lyme an scheduled a picc line to be placed with 30 days of IV rocephin.
I found a LLMD to continue my IV treatment after the 30 days was discontinued by the ID docs.
Finally, after 10 weeks of IV rocephin, and 6.5 months of oral antibiotic therapy, I tested CDC positive on a Westen Blot conducted at the hospitals lab.

--------------------
Mountaingirl

"What lies behind us and what lies before us are tiny matters compared to what lies within us."
~ Ralph Waldo Emerson

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AliG
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Answering your ?? to Tailz - "PCOS" = Polycystic Ovarian Syndrome


My previous diagnoses:

childhood Appendicitis (likely completely unrelated)

multiple Dx of Flu

simultaneous Strep Throat + Kidney Infection (suspect cultures not run as vials of patients blood were found in Dr's garage fridge/freezer when he was arrested on drug charges)

Peptic Esophogitis

multiple Upper Respiratory Tract Infections & bouts of Bronchitis

Pneumonia

Stress

Anxiety

PMDD-Premenstrual Dysphoric Disorder

FUO-Fever of Unknown Origin (I gave up, thought it was probably the thermometer)

Simultaneous Dxs- Depression, Allergies and Dr was working on Dxing Sleep Apnea, when I was bitten by a reduviid bug (vector for Chagas) and went to an ID (to whom I spilled my guts over every Sx, Dxd disease and possible exposure to any possible infectious disease that I'd ever had) only to get the following Dx:

Multiple Somatoform Disorder-"multiple somatiform complaints indeed", "complaints numbering 20-30", told "consider alternative therapy such as massage, physical therapy and acupuncture for possible control of some of her symptoms"

TMJ

The flu, followed by Irritable Bowl Syndrome and mild Proteinurea

Astigmatism

"Broken blood vessels under the skin" at age 12(circular petechial rash, Derm attempted to burn the vessels [Eek!] I couldn't take the pain & decided to live with it, recently Levaquin made it go away so it may have been Bart-related???)

???-(On Biaxin XL)-"I have no idea why you're reacting to the Biaxin like that. I've never seen this before. It doesn't appear to be allergy." (pinpoint rash all over abdomen & extreme air hunger, requiring albuterol & Advair to get through the 10 day course of ABX)

???- (On Amoxi) "I have no idea what that rash means. It doesn't appear to be allergy." (same pinpoint rash covering abdomen as appeared previously on Biaxin, different duck - same practice)

That's all I've got for now [Roll Eyes] . If I think of anything else, I'll tack it on later.

[hi]

--------------------
Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

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AliG
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PS-

Dxd with ??? - had fluttering in chest during pregnancy, (heart sonogram thingy ??? [Roll Eyes] )was normal,

never received the Holter Monitor from the Cardiologist,

the fluttering stopped and I had a baby so I didn't really care as long as it didn't come back.

[bonk]

--------------------
Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner.

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Lauralyme
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Benign positional disorder (to explain the vertigo)
Anxiety
Peri menopause (I'm too young)
Bronchitis
Bursitis of the hip
Chronic Fatigue Syndrome
Lesions appeared on MRI the neuro wants to do a spinal tap to rule out MS.

--------------------
Fall down seven times, get up eight
~Japanese proverb

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jklynd
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Fibromyalgia
High Blood Pressure
Irritable Bowel Syndrome-Was given meds for ulcers

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LisaS
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panic attacks
black widow bite
desert valley fever (even though symptoms started in Wisconsin)
carpal tunnel
inner ear infection
sinus infection
ulcer
acid reflux
mostly anxiety disorder
[bonk]

--------------------
https://www.facebook.com/profile.php?id=1660435643

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coffeebehm
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Hi, I was dxd with

12/2006-neuro said " Basilar migraines and Benign Fasiculation syndrome" (at the time I had a positive IGM band 23, but was never told and new nothing about LYME Test from neuro)

4/2008- neuro again said BFS and to go home and have a drink.

Three days after that wonderful wrong dx from neuro, primary dr tested me for LD and it came back positive.....

I only wonder how things would have been if I would have been treated 2 years ago....

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KS
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Possible:

MS
ALS
Addison's Disease
Post-partum depression
Gastroparesis (did have this but wasn't the cause of making me so sick, just a by-product of lyme)

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Clarissa
Frequent Contributor (1K+ posts)
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clinical depression
stomach aches (kid trying to get out of school)
fear of having BM's (as a child)
hypochodriac/faking/weak constitution
over-sensitivity
EXTREME anxiety, SEVERE OCD by the time I was 8-years-old
allergies
swollen eyes
codependency on Mother (anxiety)
fear of leaving home (anxiety)
homesickness (anxiety)
mono
thyroid problems
mytral valve prolapse of the heart
horrific mind-blowing two weeks worth of PMS (every month for over a decade)
mind blowing stiff neck (like in a vice grip)
freezing feet, hands and nose even in CA & FL
severe lower back pain (had to take steroids for my "slipped disk")
herpes simplex on my chin in a clock like circle?
skin tags
conjuctivitis
bladder control problems
melasma of the skin
chronic insomnia
extreme daytime fatigue
rage
impulsivity
"psycho" risk taker
crazy one in the family; black sheep
promiscuity
heart palpitations
acid reflux
extreme stomach pains/GI Tract issues
chronic sore throats
thrush (several times)
vomitting
sensitivity to light, noises, smells
warts
severe acne
germ issues
compulsive washing/bathing
tmj
clumsiness, dislocated knee from swinging a bat
self-hate
weird reactions to food...swollen lip
suicidal thoughts
hopelesness, envy, jealousy due to low self-esteem
ingrown toenail
fungal toe infections
soft teeth (14 cavities first check up as a child)
roasecea of the skin
anorexia
body dysmporphic disorder
night sweats
delusional thoughts
ritualistic behavior
headaches
severe back acne
reclusivity/turning off phone/towels over windows
overdose of xanax
actions without thinking of consequences
smoking cigarettes and other
incapable of trusting or being truly intimate on an emotional level
inflexible/afraid of change
my way or the highway
self-blame for almost everything
irreverent
alone

--------------------
Clarissa

Because I knew you:
I have been changed for good.

 -

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lpkayak
Honored Contributor (10K+ posts)
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rheumatoid arthritis
fibromyalgia
irritable bowel syndrome
depression
toxic shock syndrome
menopause (sweats)-i didn't really go thru menopause for another 10 years
chronic conjunctivitis

[ 24. June 2008, 10:48 PM: Message edited by: lpkayak ]

--------------------
Lyme? Its complicated. Educate yourself.

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tickled1
Frequent Contributor (1K+ posts)
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Myofascial Pain Syndrome
POTS Syndrome
Sleep Deprivation
Dehydration
Fibromyalgia
Depression
Anxiety Disorder
OCD
GERD
EBV
Mycoplasma

...I'm sure I missed some


Oh yeah! I forgot.....

Interstitial Cystitis
IBS
Hyperventilation
Sitting wrong way causing numbness!!(in arms too?)
Right pupil more dilated(told neuro but didn't know why, still don't)
[Smile]

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lightfoot
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Tincup.....I can't imagine that you want to hear more!!! [Smile]

Atrophied thyroid....removed with nodule

Nutrient deficiencies

Heavy metal poisoning (mercury)

Food, inhalant, chemical allergies

PMS

Menopause....

Hormone imbalances

Miscarriages (3)

Adrenal Exhaustion

MCS

Arthritis

Asthma

Candida

Depression

Bi-Polar

Fibro

Chronic Fatigue (self dx)

Despite all......there was a part of me that thought ALL of it was in my head. Health care professionals confirmed it by their attitude toward my complaints.

Addition:
Mystery illness...high fever...semi- consciousness..."flu like".....hospitalized 7 to 10 days....age 15

Good luck & Namaste......

--------------------
Healing Smiles.....lightfoot [Smile] [Smile] [Smile]

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MysteryGirl44
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O.C.D.
Hypocondria
Depression
Anxiety
Panic Attacks
Severe Dehydration
Nothing

--------------------
"Life doesn't have to be perfect to be wonderful."

www.myspace.com/lymediseaseawareness

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InADaze
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Jumper's knee
Seasonal Allergies
Calcium deposits in ear canal
Gastritis
GERD
Migraine
Motion Sickness
Sinus Infection
Orthostatic Hypotension
Anemia
Ovarian cysts

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lpkayak
Honored Contributor (10K+ posts)
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ok-you got your 5

are you using graph paper to sort this out???

ps i just added one...sorry

--------------------
Lyme? Its complicated. Educate yourself.

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Tincup
Honored Contributor (10K+ posts)
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I am so grateful you all have taken time to do this survey. Thank you so much for spending your time making this come to be!

[bow]

I will cut it off here... make a final count (including emails).. then start sorting the last 2 pages into categories.

BTW- Good news! The proposal (idea) for this article has been approved. It already was actually... but I gave them the topic titles this time... and they were happy with them.

There will be 4 articles (with possibility to continue doing more if I want- yippee)... and 2 were submitted already and will be published soon... so the third article- this one- will hopefully show people what the heck is going on out there.

The 4th article will be on our precious children with Lyme and tick borne diseases.

Without your help here and the other posts.... we couldn't get the word out there to folks who need to know.

Again... THANK YOU!!!!!

[Big Grin]

You make me smile!

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

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lea
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1. complicated migraine

2. anxiety/depression

3. stress

4. "all in your head"

5. flu (a flu that lasts 3 months?)

6. evaluated for MS (MRI's, Cat Scans, evoked potentials, nerve conduction studies)

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LoneDove
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Tincup

I know you cut this off but one thing that really stands out & went thru with an endo that set my teeth on edge - he gave me powerful brain drugs (samples) for depression! after seeing off the chart antibodies and previous ebv...so he gives me some depression meds..can't remember what they were - I tossed them in garbage.

Two other drs dx'd hashimoto's & lupus which I may have prior to zee tick bite/bulls eye rash.

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Peedie
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Tin cup - well now that we are officially Lyme:

My daughter, now 24
Exposed by many ticks when camping with our horses in Anza, CA. 12 years ago.

Taken to Fountain Valley Hospital ER when a bite wound with inflammed and angry bruise appeared.

ER MD Dx'd as infected hair folicle even though he could not elicit any infection. 14

Knee pain - thought were growing pains? xray normal at 14-15

Spinal menegitis at 17 -spinal tap leaked - a painful trip to ER for blood patch application.

Mono shortly after
Headaches and Migraines for years, also prone to urinary infections.

Referred to Neurologist and Rhuematologist

Dx as Lupus by Neuro when all over body pain was unbearable - put on Prednisone (steroid)pain got worse, could hardly walk and laying down hurt.

Hands were swollen, especially in the finger joints.

Cysts and benign tumor developed on Thyroid - Lobectomy 19

Tonsils out - ulcerated, infected and bleeding 22

Still in all over pain - DX as Fibromyalgia at 21 or 22 (can't remember) no meds helped.

Always pain and digestive problems.

TMJ

Knees still hurt, back and shoulders also, sleeping problems, depression over sickness.

Got Dx'd when mom discovered she had Lyme.

Tested strong positive for Lyme by Igenix this month.

Mom (me)
Health problems over the years I attributed to sports mostly.

Back and neck problems, problem knees xrays neg.
flu in the middle of summer?

Things I just put up with - then last August I had a strange rash on my back - then my chest
but doctor didn't think was shingles - no Dx.

Then both legs had pain escalating to unbearable and neuropathy in both legs.

Then in pelvis/groin area.

No reflex in left leg.

Asked PCP if it could be Lyme as I researched my symptoms in the computer and kept seeing Lyme.

She said "no - there is no Lyme in So. California. We have a different kind of tick."

PCP referred to Neuro.
MRI of lower back showed nothing unusual for 55 year old. No spinal stenosis.

Asked for a WB test and got one (the short version) which showed positive bands but read as a negitive test (printed at top of page).

Neuro Dx'd as Fibromyalgia even though she said "not typical fibro" Wanted to just treat with Lyrica.

Had a new WB done with Igenix.
Still negative result:

41+ 58+ 23-25 IND 34 IND for IGM
41++ and 31 IND 39 IND on IGG

Saw LLMD and Dx Lyme.

Twelve Years of visits to various doctors - especially for my daughter.

NO ONE asked a simple question. "Is there any chance you were bitten by a tick?"

Wishing Best of Health to ALL
Peedie

[ 27. July 2008, 03:06 AM: Message edited by: Peedie ]

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hokie
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pudendal nerve entrapment

"myofascial-like pain syndrome"

"fibromyalgia-like syndrome"

mono

conjunctivitis

lymphadenopathy

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Peedie
LymeNet Contributor
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I would like to add a little something. A special Thank you to "Laura" who posts here sometimes.

When I was waiting for results for the MRI done on the small of my back. The neuro Rx'd Neurontin for me to take for pain and neuropathy.

At first it seemed to be a miracle drug. The neuropathy subsided. But then I started having side effects.

The Neurologist said Neurontin was safe and had no side effects.

I went to the internet and researched Neurontin and found a useful site: "ask a patient.com"

You can search any drug here and patients rate it and talk about it.

I described my original symptoms and asked if anyone out there knew what was wrong with me.

I heard for the first time - in a email from a perfect stranger:

"Could you have been bitten by a tick?" Laura suggested I get tested for Lyme and I told her my doctor said we don't have Lyme where I live.

Gently, she guided me to the ILADs and Calif. Lyme websites and here, where I learned we do have Lyme in So. Calif.

So - I thank Laura - if you are out there - for helping me and my daughter.

Blessings,
Peedie

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bettyg
Unregistered


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tincup,


never saw your final note saying you got 100 since your subject line shows you still NEED MORE!


good deal; writing 4 articles!! fantastic... [group hug] [kiss]

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bejoy
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Have you yet gotten:

Pregnancy!

Yes, people often get backaches, nausea, and fatigue when pregnant. (Don't be such a baby about it.)

No, you really don't understand. This is excruciating. There's something really wrong here.

There is nothing wrong with you at all. You are the picture of perfect health.

--------------------
bejoy!

"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson

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Dan's Mom
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Son: diagnosed & treated (30 days each time) for Lyme at age 13 and again at 14

Seizures started at 15 DX: Epilepsy

At 21 Psychotic episodes that rolled into seizures DX: Pseudoseizures

At 22 LLMD DX: Lyme, Bartonella, Babesiosis

He is now almost 24 and has been on abx for 18 mos. and is much improved.

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Hoosiers51
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I was diagnosed with something called "Over-Exertion Fatigue" because I got severely ill suddenly after participating in intense sporting events.

Sounds like a pretty lame diagnosis to me, but honestly, the doctor was trying his best and doing a lot of research on my behalf. He was very apologetic and admitted he didn't know, so at least he wasn't a know-it-all.

Another weird diagnosis I got was after a strange reaction to Effexor, I was diagnosed as having an "Atypical Panic Attack." This reminds me of the "pseudoseizures" listed above. It's not a typical X or Y, but at least it LOOKS like one, huh doc?

But then again, I guess "Post Lyme Syndrome" also "looks" like Lyme!

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lymer
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Generalized Anxiety Disorder
IBS
Scarlet Fever

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