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» LymeNet Flash » Questions and Discussion » Medical Questions » tingling on scalp and hurts to touch, anyone else?

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Author Topic: tingling on scalp and hurts to touch, anyone else?
justag
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I'm not sure if it's tingling or the feeling of something trying to come out of my scalp. And when I touch the top of my head, the scalp hurts. It has been like this for a while, any comments and tips please?

Thanks a lot!!!

Posts: 196 | From atlanta/norcross, georgia | Registered: Feb 2007  |  IP: Logged | Report this post to a Moderator
AZURE WISH
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My nerves are all not copperating and i get the tingles on and ouches on the left side of my scalp along with diminished sensation...

I get it sometimes on the right but its is pretty constantly one of those things on the left side.

Just wanted to let you know that you are not alone with the symptom. I really don't know of anything to stop it though - Sorry.

Best wishes

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Posts: 3860 | From nj,usa | Registered: Mar 2001  |  IP: Logged | Report this post to a Moderator
swedish lyme sufferer
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Me too. Have had it for years.
Posts: 347 | From sweden | Registered: Feb 2008  |  IP: Logged | Report this post to a Moderator
Dawnee
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I've had it off and on for the last 5 years. I describe it as my "hair hurts" but it's more like where my scalp and hair meet. I'm not sure what causes it (lyme or co)
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dbourne
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The left side of my scalp is numb. We thought I had a brain tumor but an MRI ruled that out. Turns out it was lyme. This is how I was diagnosed.
Posts: 183 | From Texas | Registered: Nov 2007  |  IP: Logged | Report this post to a Moderator
MBB3
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Yes, I get this too. This is really the only 'patchy' nerve problem I have, the others are quadrilateral (hands/feet).

One thing that has seemed to lessen this in my case: cutting out aspartame and going gluten-free. Only wish I could say the same for burning feet/legs/hands!

BTW, I have started my first ABX for Lyme/Bart last week (IV Roc and Flagyl) and the tingling scalp is coming back, so perhaps it's a good thing? Any ideas?

Take Care, MBB3

Posts: 247 | From The Country | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
webmeg
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I get patches of numbness, top of head and very back of head (never the middle area??). It's neuropathy from Lyme for me.

[confused]

Posts: 257 | From Connecticut | Registered: Oct 2007  |  IP: Logged | Report this post to a Moderator
Peedie
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My daughter has complained "My hair hurts" for years - now I get it.

She also complains of "butt cramps".

I know....odd things - but now I'm wondering if these are Lyme symptoms? Would this be Lyme or Bart?

Anyone else?

Posts: 641 | From So. CA | Registered: May 2008  |  IP: Logged | Report this post to a Moderator
Alv
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yes I had it and in the scalp where the line of forehead is and were the hairs start...also numbnees and patches of burning on the skull.

Full frontal lobe swollowed...

I had that and just right now...for the first time ...stoped beeing non stop is less comes and goes...even "butt cramps" started 5 years ago and used to say to people ...I feel awshamed to say but that is what I feel...

MY main infections are LYME( neuro) and BART ( several strains) the rest was less ..in the load....

BART AND LYME together.

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Peedie
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ALV - What do you do for the Butt Cramps? Some times she is in tears until finally it subsides.

She mentioned this to her Dr. and she said other patients have mentioned this before - but just called it a spasm of some sort. No Solution.

Does Abx treatment stop it?

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Tincup
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It can get much worse during herxing.. sorry to say.

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Posts: 20352 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
feelfit
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It is an anal spasam....have them occ. too. Helps to lay down and ride it out, if she is like me it lasts up to 1/2 hr...no longer.

Hot/warm bath can help too.

Feelfit

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orrn
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My daughter's scalp is VERY sensitive. We have a hard time brushing her hair. She just cries. It's like it hurts to have her head touched by the brush.

orrn

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Alv
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First I apologive for the long posting.If any feels tired of reading them when they are so long let me know!

I have been there 'last year I would read a sentence and would not understand a thing and will read it out loud to myself to grasp the meaning of each sentence and write things down when I moved from one room to another.I would forget what I was doing 1 minute before.

Was horrifying -and I played good at hidding it .HATED to feel as retarded and stupid..b/c of inflamation on my brain .IT IS horrible feeling.

Check my posts...I do not use magnesium anymore ..it has been 3 months and I use levaquin...

Well the more I chase bart the more they have subsided....I had even spasm in my digestive track every where...I know , I was severe .

Again I see that azithr , levaquin , rifapmin and HH capsule ..have subsided it tremendously ...there is time I have no twitch at all ...

I had to work the way up to this point.

My brain was swolled fully ( frontal lobe last year) and I was so suacidial , cramping and pain on the body was nothing comparing the brain , I had spasm on my back and shooting as electrical waves on the spine starting from the top of my head all the way down to the tail bone.

I have no idea how I went thrugh it...but reading and knowing I was killing the bugs...made me happy -just killing them made me happy...and I wanted them out of me.

I would drink anything just to kill them...I have trying high dossages of everything...I do not take them several times on lower dosages..I always took them on highest dosage to reach the maximum level in the blood...

I always went with my gut...I took Doxy 400mg once, I took rifapmin once 600mg ( I even took it up to 1200mg for 2 weeks)and it did reach the brain and lowered the swelling...

Levaquin brought it to a depper level -bone pain was increased while killing...and my jaw( i lost 12 root canals and had 5 hrs surgery from infections -bart and lyme did it ) and levaquin got rid of the jaw deep bone pain.I had spent $7000 to clean my entire left and right bone -no bone left on my mollar place-all was infected--likking pus.( do not be surprise) .

My biologist doctor -could not understand How quiet I stayed on 5 hrs surgery .He said THANK YOU FOR BEEING SUCH a GOOD PATIENT.NEVER had a severe case like you .And he is one of the best dr surgeon on NORTH AMERIKA.

bart can cause osteomylitis..

I was in so much pain when I took levaquin and as hardheaded stayed put and went though herxes as I had no other chance..I sow death with my eye and I wanted desperatly to fight it as it was eating me alive anyway.NEver in 1 million year I thought I would be alive in my situation.

My organs shut down complelty from the infection..so what did I had to loose...The determination made me go through it..and not giving the bugs time to regroup .

I have used manything..read my posts...except IV...but I detoxed tremendously -even 2 years before finding that I had lyme and company I was detoxing but had no clue what MONSTER I was fighting .So I was ready to increase the dosage of antibiotics and bunches of herbs from my other doctor and surreal number of multivitamin and juicing that I have done.

They all help..I guess it takes a will on the person and strong mind to be able to go throut it also.I pulled my hairs from the pain( no pain killers -just 20-30 enzymes from WOBEN ZYME a day) and melatonin for sleep.

I never wanted to overload my liver for the painkiller..IF I had to use my liver was only to deal with antibiotics and suport me to clean them ..and did not wanted to overload with toxic efects of any painkillers or antianxiety drugs.

I stayed alone in the room and dealt with it.Did not wanted the people thinking I am crazy as I knew I was not and I knew the bugs had efected my brain.That is another reason most of people do not beilve me I was so sick as I SUCK IT UP !

So now when I see people that they are assymtomatic..they do not feel the urgency to treat it now..and they think is not such a big of a deal.

Treating bart was the best thing ever...I sleep 9 hrs now...and only take 1 melatonin..spasm subsided...do not stop fighting bart no matter what you take do not stop as it multiplies faster than lyme if that is active.

I also have had no doubts on anything I did and did not stoped it...continued until my body could not take it anymore,...and slowed down and increased detoxing and suport the body ..than I was ready for the killing dossage.

By the way -Today I took 6 andrographis, levaquin 500mg , HH capsules 8 , nexium , flagyl 2 ( pulsing week 2 on and 3 offs )azithromax 600mg , rifapmin 600mg ..and tons of diferent binders ...I used them early in the morning before starting the killing..

I felt good today.

ALSO I had a break yeasterday from my souna..I have reached 45 minurtes on FIR and sweat crazy ...the next day I am in so much pain as the antibiotics works better.

Since restarted levaquin -using saunas and having this heavy dosage chasing bart...my musle spasm is almost at level 1-2 comparing to 10.

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Peedie
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ALV - You have been through so much. I'm so sorry! Keep fighting those suckers!

I'm glad you feel better today - on my Birthday!

Cheers!
Peedie

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Shosty
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Yes, and it hurts if someone pats my hair w/out even touching my scalp.
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galehane
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dear Alv
know the scalp- thing..Think it is mycoplasma- not lyme.(see thread about frylabs findings)
Also I had most of my teethout because of never ending problems and infection.
Have not yetfound an antibiotics that does not make everything worse.
gale

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ByronSBell 2007
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I have it too, Google parasthesias- not sure if that it spelt right...
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