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» LymeNet Flash » Questions and Discussion » Medical Questions » I have no idea whats going on with me!

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Author Topic: I have no idea whats going on with me!
Junior Member
Member # 15975

Icon 11 posted      Profile for SarahKY     Send New Private Message       Edit/Delete Post   Reply With Quote 
Could this be Lyme Disease? I dont know if I have ever been tested before and I have had ticks on me but no rash that I am aware of.

I have had several tests with no luck of a diagnosis. Here are all of my symptoms (in no particular order) please help me!

-Spotting/Bleeding after sex and masterbation

-No ovulation


-Abnormal periods- lack of periods, constant brown/black discharge (old blood)

-Abdominal bloating- all the time



-I lose handfuls of hair in the shower

-Constipation (all the time)- sometimes severe

-Ovarian cysts

-Abdominal pain

-Weird calf discomfort at night- they feel tight and achy and just uncomfortable, enough to keep me up at night



-Lower back pain, sometimes severe

These are the main problem I have on a daily basis.

I do not have any idea whats going on with me and I can not get a diagnosis.

I have had a lot of doctors dismiss me because I am only 27 and according to them, I am too young to have anything 'wrong' with me.

Im just fed up and want to know whats going on with my body.

I know that something is out of wack...
My main issues are the fact that I do not have normal periods, if I do menstrate, it is only for a day or two and it varies from light brown to black discharge, I do not ovulate and I have the same discharge after sex and masterbation.
We've used lubercation with no avail...
I still bleed.

Now, I am having issues with not being able to 'get wet, even though I am turned on.
Im just at a loss.

Im constipated and bloated (I look like Im pregnent sometimes!), sometimes severly.

I dont know if I might have a few things going on or if all this is just an accumilation of one main thing...gurrr

Also, I wanted to add that Ive had these issues since I have been in my teens.

I also suffer from severe joint pain in my hands, fingers, knees, ankles and toes.

This mainly happens in the morning and night time.

I am not overweight or too out of shape.

[ 21. June 2008, 11:44 AM: Message edited by: SarahKY ]

Posts: 2 | From KY | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
Honored Contributor (10K+ posts)
Member # 5829

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You might want to go to the seeking a doctor section and find a doctor trained in Lyme disease to evaluate you.

Hopefully there is one close by.

Hope you feel better soon.


Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
Honored Contributor (25K+ posts)
Member # 12673

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I can't read all your post as my eyes need more white space and very short paragraphs - as do many others here.

You'll get more replies if you can edit your post and put in spacing.

I did see a couple things that have me asking if your thyroid has been checked lately.

At Amazon, or your library, you might check out the books on women's issues by Tori Hudson, ND or Christiana Northrup, MD

- and, as suggested above, consult a lyme specialist for an evaluation. I hope you find solutions soon.

for the dizziness, that can be a symptom of lyme. For now, ginger capsules or ginger tea can help.

You might want to check out VEDA - in the links from the tread below. I know there are some excellent vestibular doctors in Kentucy. I don't know if they also know about lyme. You'd need someone who knew it all (so to speak).

Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links;f=1;t=065801


Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator

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WELCOME, would you like a FREE copy of my newbie package of 124 pages info galore sent by LYMENET'S PRIVATE MESSAGE system here; includes TREEPATROL'S LINK of his archive of over 1000 links of good lyme info?

I've been completely REORGANIZING it; NOT DONE YET; but up to page 60 since I have now created a TABLE OF CONTENTS WITHOUT PAGE NUMBERS since it changes DAILY! The part NOT organized yet is the last 30 pages of SSDI, ss disability insurance benefits tips/forms!

also, please go to TREEPATROL'S NEWBIE INFO IN MEDICAL; at top being features; mark it as a favorite! over 1000 links of good lyme info. He/I have some duplicates.

most of mine is very DETAILED info on certain things: SSDI/ss diability insurance benefits; FINANCIAL BURDENS; about IGENEX blood testing, symptoms lists for the basic types, NOIR/no infrared SUNGLASSES, etc. and how to use this board!

If you would like my newbie package, please send me a PRIVATE MESSAGE. PMs are the 2 people standing together icon to right of your name. Just ask me to send you lyme package, and I'll get it to you promptly. Thank you!


When you post or reply, please break up your solid, continuous block text [Smile]

welcome to the board! many of us have neuro lyme where we can NOT read long solid block text and be able to comprehend and read it as is.

please edit your post by CLICKING PAPER/PENCIL ICON to right of your name. that opens up BOTH subject line and body text.

now please break up your WORDY SENTENCES into one sentence paragraphs. Then hit ENTER KEY ``THREE`` after each paragraph; we need that space for comprehension.

if you are NOT a wordy person, you can do 2 or 3 total ok. do this for your entire post.

then go to left hand corner and mark box to receive ALL REPLIES, and click EDIT SEND

we thank you for helping us; [Wink] otherwise, we will SOB, SCROLL ON BY, since we can't read to help you. If I see posts like this, I SOB them; to hard on me. I'm also in the early stages of losing my eyesight from diabetes retinopathy. [Frown]

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LymeNet Contributor
Member # 14238

Icon 1 posted      Profile for Cockapoo1996     Send New Private Message       Edit/Delete Post   Reply With Quote 
Everyone gets different symptoms but one of mine was missed periods. I was 20 when they slowed to almost a halt. 5 gynocologists said it was ok. Nothing to worry about. Well, they were all wrong.

After 16 years of searching I found out I had lyme. The periods turned regular after about 8 months of treatment. So please go to a LLMD and find out if lyme is the cause of your troubles.

Posts: 472 | From New Jersey | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
Junior Member
Member # 15975

Icon 10 posted      Profile for SarahKY     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thank you for replaying to my post.

Im sorry that I had made it difficult to read...

I am going to look into a specialty doctor and hopefully I will finially get results.

I hope you all have a great weekend!

Posts: 2 | From KY | Registered: Jun 2008  |  IP: Logged | Report this post to a Moderator
Frequent Contributor (1K+ posts)
Member # 9780

Icon 1 posted      Profile for Vermont_Lymie     Send New Private Message       Edit/Delete Post   Reply With Quote 

Many of those symptoms that you mention are lyme and tick-borne disease symptoms.

Definitely, please go to a lyme literate medical doctor to be fully evaluated. Treatment does work!

And any doctor that dismisses you, saying you are too young to be ill, run away from as quickly as possible!!!

Posts: 2557 | From home | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
LymeNet Contributor
Member # 9222

Icon 1 posted      Profile for breezywings   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hi SarahK and Welcome. You broke up your paragraphs just fine. That part of Betty's post is in the newbie packet but it didn't apply to this post. [Smile]

I had all of the symptoms that you had. It wasn't lyme related at all.

I wound up having an ovarian tumor. Benign, but needed to get taken care of.

In my non medical opinion, I would see out a really good gyno and request a CAT SCAN, an in-depth transvaginal ultrasound and an abdominal ultrasound. I also had an MRI.

Sometimes we can blame it all on Lyme but fail to treat some of the things that are really NOT lyme.

Good luck and please let us know.

...~*Just keep swimming, Just keep swimming*~...

Posts: 120 | From New Jersey | Registered: May 2006  |  IP: Logged | Report this post to a Moderator

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