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» LymeNet Flash » Questions and Discussion » Medical Questions » Last words on LightWorks for those interested... (Page 2)

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Author Topic: Last words on LightWorks for those interested...
gwenb
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I just ordered my lightworks also - I will keep people updated with developments.

Gwen

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johnnyb
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That's it... am ordering one right now... [Smile]
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sparkle7
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Today, I'm having intestinal issues... feels like toxins. My treatment seems to alternate between feeling toxic & feeling energized or less pain.

I think it's the light that's causing the toxic feeling since I'm not really using much else that would cause that sort of reaction.

I think I just have to keep continuing with it to see what the ultimate result will be. I am going to try to combine using an auto nosode when I get the time to make it... should be soon.

Bob- I think a laser is coherent light. LED is non-coherent. Maybe you need to use the light for a longer period of time. That would compensate for lack of brightness...

I'd like to spend some time researching if brighter or more powerful light is more effective. I'm having a pretty big reaction just using the LightWorks... I don't know if stronger would be better for me.

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sparkle7
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Still having intestinal issues, pain in the intestines. Not to be gross but I did see another biofilm in the toilet today... It also happened a couple of weeks ago & I thought it was either the bee venom honey or I had a stomach flu.

I think it's the light. A stomach flu would be gone by now & I stopped the bee venom honey (& most everything else besides the light).

I think I'm just detoxing & getting rid of bacteria that doesn't belong in my body. It may take some time... I've been ill for over 10 years.

I just have to bite the bullet & deal with it as best as I can.

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LoneDove
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Without tmi, what's biofilm?
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herxuk
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Good Question. What does it look like ?? what should we be looking for ??? Or is it too unpleasant to tell ??
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sparkle7
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It looks kind of like a tissue floating in the water. Sort of gelatinous.

Sometimes you can see them in old apple juice. The biofilm is the slimy stuff that keeps a bunch of bacteria all together in a community.

I posted another thread about it (Lyme, Biofilm, & Alzheimers) & there's a bunch of info about it here on Lymenet if you do a search.

It's the reason why abx can't get to kill the bacteria. It can form a defensive shield for the bacteria in the colony.

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sixgoofykids
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So that's what that stuff is!!! I saw a lot of that when I was getting rid of parasites. I had a lot of GI issues that cleared up with treatment.

--------------------
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sparkle7
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What kind of treatment were you doing, six? Also, what sort of parasites if you don't mind me asking...?

I don't think I have any intestinal parasites. I never had much of a problem with my intestines from Lyme prior to using the Lightworks... except some constipation from using Welchol while on abx about a year ago.

At first I thought it was the bee venom honey, so I stopped that. Then, I thought I had an intestinal flu. My doctor told me a while back that an intestinal flu usually goes away in a few days.

Then, I found this excellent article about how Lyme can infect the digestive system - so, I got a bit freaked out.

"Bell's Palsy of the Gut" and Other GI Manifestations of Lyme and Associated Diseases

PRACTICAL GASTROENTEROLOGY
April 2006
by Virginia T. Sherr, MD

http://www.thehumansideoflyme.net/viewarticle.php?aid=62

I don't think this is what's happening, though. I have to keep in mind that Dr. W & others feel we can "cure" Lyme with the help of infrared light. If I were on abx & this was happening, I'd think the abx were doing their job.

I've been dealing with alot of stress, lately... so, I have to continue to convince myself that I'm on the right path. I have no idea if this is a cure or if it's just prolonging the agony.

I've been ill for over 10 years & I've gone through all of this "getting worse before getting better" stuff on a number of occasions. I'm going to try to continue to be hopeful.

I guess it's just going to take time. I've only been doing this infrared light thing for a month. I'll keep you posted.

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hiker53
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I do see that Sota now has the new colors for sale. You have to buy both sets of paddles for $250. I wonder what green does.

My chiropractor who does energy testing (and I am not convinced about energy testing, yet), said that green was a good color for me and perhaps I reactly so much to the infrared was that red is my worst color. We tested colors for reducing my seizures over a year ago. Hiker53

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

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sixgoofykids
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Sparkle, I took Humaworm and Enula. I had a large tapeworm, two smaller tapeworms and about 20 roundworms. No wonder I had GI issues! LOL

The Humaworm eliminated the large tape .... the Enula combined with just getting better (making it so it was the wrong environment for worms) helped with the roundworms.

I did not know I had these until I saw them .... I was surprised and it did freak me out. [Smile]

I don't eat questionable food and I'm very much the perfectionist, so it was this disease that made my immune system weak enough to allow these to take hold in my gut.

I also was treating bartonella, which is known to cause GI issues.

This was all prior to the Lightworks. [Smile]

I'm still thinking the Lightworks is doing something, too. My daughter who I have always thought might have Lyme but who had heartburn as her only symptom, gets headaches every time she uses it. After several days of using it every other day, she has the worst headache she has ever had.

I think it's like Sparkle and I experienced .... it takes a few times, then a huge herx hits.

I still herx badly when I use it. My other daughter who is a confirmed Lymie and who is in remission (does not herx from meds) herxes from it as well.

Our other two family members who use it never feel bad afterward.

I know this is anecdotal and that pain afterward does not confirm healing, but after using it for a few weeks now, it seems more than coincidental.

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sparkle7
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I'm starting to feel better today. For some reason intestinal pain makes me very anxious.

I took some charcoal as per another thread here & I'm feeling alot better. (4 caps, twice today so far) It seems to have helped alot. I was taking it but I don't think it was enough.

I think it's still good to use the light even though you may be herxing. I'm not sure if the red or infrared is better. The red side seems a bit more mild. You have to do it at your discretion, though. If it's really bad or if you are on abx - it may be too extreme. We all are different!

Thanks for the info, 6. I don't think I have any of those issues. I took ENULA for about 3 months so far & not a big reaction. It does make me purge a bit so I lowered the dosage.

My shoulders are a still a bit achy. I'm going to just continue with it & see what happens next. I'm curious to see if the hormonal/endocrine balancing frequencies will help when I get my period. I've been using them. I get very severe cramps.

I'm not sure about your reactions to color, hiker. I would like to get the additional color paddles when I have some extra money.

I'll post some info about different colors when I get a chance. Some people here have mocked color therapy but this is a little different... LEDs are a whole new animal.

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micul
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I agree that IR light can heal. I built my own Near Infrared sauna like Dr Wilson describes in his book on sauna therapy. However; I don't belive that IR light has been proven to kill anything, it has been shown to help heal, but in superficial ways like speeding the healing of burns and helping to repair basal cell carcinomas, these sorts of things.

Why don't you guys put this thing to the test and see what is really going on with Clancy? This is the perfect opportunity to test Dr W's claim that he is free of lyme and coinfections. Get together and chip in for some legitimate tests at Igenix and Fry that will corroborate what Dr W claims.

That old saying, "If it sounds to good to be true," is usually right. People have made the same claims about Rife and ozone therapy. You may indeed get some benefit from them, but they are vary far from a cure.

The Bionic 880 probably would have some benefit for a fairly healthy non infected person, but cell regeneration would be very limited and pretty much futile IMO until the infections have been eliminated, and Infrared LED light has not been proven to do that. That's why detox is extremely important with all of these alternative therapy protocols. The infections are still there producing toxins, and so detox is crucial to maintaining health. But still, it slips away. Sometimes slowly, and sometimes very quickly regardless of continued therapy.

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herxuk
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Micul.

With all due respect, this LT Works thread makes no such claims. The word "CURE " is not usually thrown around on these thread's. Neither do we make much, if any conversations about the Bionic 880.

The Bionic 880 discussions has it's own thread.
I don't want to talk about it on hear, I can't speak for the others on here, but I don't want the same trouble as what that brought.

Oh, and by the way, were not expecting miracles.

If I have mistaken what you mean, then i'm not afraid to apologies.

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sparkle7
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I don't mind if you don't agree. The tests for Lyme aren't accurate so I don't think anything can be determined either way by using tests.

I'm not doing a study. If someone would like to fund a study - that would be fine with me. I don't have the money for abx, health insurance, or expensive alternative doctors.

I was ill for 10 years before I got any sort of treatment for Lyme. I've seen many doctors, specialists, etc. The abx didn't help after using them for 8 months. Not at all... no little improvement, nothing.

At this point, all the doctors advice didn't seem to do anything to help me - so, I don't feel I have anything to lose.

If anything - the only thing that has helped is the infrared light at 880 nm. It has produced a strong herx for me - more so than any abx I've taken.

I'm not angry at anyone who doesn't think this will work. It's fine with me if you disagree. The LightWorks is different than an infrared sauna. The light is brighter & more focused and there are a number of other differences.

Several people who post messages here have reported herxes from using the infrared light. None of us know what the long term outcome is from the various treatments for Lyme.

I believe that the abx may put the Lyme into remission but the bacteria may still linger in the body. It is not know how long they may linger in the body for since most of the ways to test are so inaccurate. There are also many disadvantages & side effects of using abx.

I believe that abx are great if you catch the Lyme early - but if you've had it for 10 years untreated, it's a different story.

I have not seen Dr. W nor do I have a Bionic 880. I am the guinea pig for this experiment with the LightWorks. I don't sell anything nor make a profit from this. I am just looking for an alternative way to get well.

If people gain anything from my experience - that would be great. If they think it's a joke, that's OK, too.

I've posted numerous studies about the effects of various kinds of light here. Do the research on your own & decide what you'd like to do for yourself.

I do not rule out drugs, herbs, supplements... it's just that they have been mostly ineffective for me. For some reason this infrared light seems to be doing something. Whether it's a cure... I just don't know. I am going to continue to see what will come of it.

If all of this can help others out there, then it will be worth it. It's just too soon to tell. I don't have any desire to disturb Clancy about what happened. If they wanted us to know, they would post again.

Each person is different. What may or may not work for one person doesn't really prove anything.

I wish for good luck to everyone - no matter what treatments you decide to pursue. We all have to do the research & make a decision what to do. It's an individual choice.

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sixgoofykids
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From what Clancy has said, her husband has other non-Lyme problems, so I think we will know if she is kind enough to post once he gets those taken care of. I won't blame her if she doesn't come back.

That is why I am going to Germany. It's not a huge sacrifice for me and Lyme and co's are my primary problem. I've chelated metals, cleaned out parasites, etc, and the Lyme is still there.

I herx more from the infrared light than from my meds. (I pulse some meds because of the herx and feel worse on light days than on med days).

What is very interesting to me is that my daughter in remission herxes on the light. It's reaching places abx didn't.

As Sparkle said, we're experimenting with the Lightworks to see what it does, and so far we're surprised at how much it does.

I'm going to have to Google on basal cell carcinomas, I didn't know that. My husband is using it on one of his.

There is an LED and Parkinson's study Marnie, posted. I think infrared light looks very promising, beyond the detoxing of the sauna, which is still good in its own right (I use a far infrared one).

--------------------
sixgoofykids.blogspot.com

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oxygenbabe
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Just a few points to keep in mind:

1) You were not seeing biofilms. You were seeing mucus. The intestinal lining can generate mucus. Maybe you were killing stuff, and the lining was producing more mucus to help you shed it. Who knows.

2) You don't know if its a herx. The light for instance could stimulate inflammatory cytokines that make you feel flu-ish. Maybe it's a herx maybe not but I think its a misused term. Sometimes people use it for abx side effects. Therefore, if people would just report their *symptoms* when they use it, it would be so helpful.

Thanks! I'm going to try mine on my knee this weekend. I injured it about 2 months ago and it doesn't seem to be recovering well.

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sixgoofykids
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Oxygenbabe, my symptoms are identical to those that the Zith causes that my LLMD determined were herxes. [Smile]

I get shoulder/back/neck pain on the left side only, extreme fatigue, dizziness. The pain is very bad and requires painkillers like I do with the zith.

My daughter gets headaches from it ... headaches were her primary Lyme symptom.

I also get knee pain like I do from Lyme when I use it on the back of my knee on a scar.

I pulse Zith, and I get the same symptoms from either the zith or the lighworks.

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sparkle7
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I agree that the term "herxheimer" is kind of vague. I think it was originally used in regards to the reaction of treating syphilis.

I think they use the term "healing crisis" for other seemingly negative effects of getting rid of toxins, bacteria, yeast, etc. these days.

Initially, I felt much better from using the infrared light. This lasted about 2 weeks. Alot less pain... I was able to greatly reduce taking pain medication. Then, I got a big herx... increased pain & intestinal pain (which I never had before from Lyme).

I really thought it was from taking bee venom honey. Then, I thought I had a stomach virus. As I stopped all herbs & supplements - I discovered it was from the light.

I started taking alot of toxin absorbers like psylium seeds, clay, etc. Slime or mucus is probably what biofilms are. I don't know if the biofilm I saw in the toilet was Lyme related or something else. It wasn't something I've seen very often in the toilet... (Sorry, I don't mean to be gross but I'm just trying to explain.)

Yesterday, I took an increased amount to charcoal pills & my intestinal issues are much better today. I think the charcoal is really helpful.

I'm still pretty achy in my back & shoulders but I still have not had to use much pain meds. I think I took something over that last 2 weeks due to the herx but I've really been able to reduce the amount.

I was doing the full Cowden for about 3 months. I stopped but I would like to continue it when I'm not feeling such a strong reaction to the light. I will also continue with the bee venom honey when I can. I think it was definitely working.

I just don't feel like I need to take many supplements right now since the light has effected me so strongly. This "herx" was very much more potent than any I had while on abx.

I don't know if herxing proves anything but it seems that this is a pretty basic way for people to tell if something is going on in regards to Lyme since the tests are inadequate.

I'm continuing to use the LightWorks. I used it this morning since I was starting to feel some pre-menstrual cramps happening. After 15 minutes of use - no more cramps...

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herxuk
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Oxgenbabe.
You said, "" The light could stimulate inflammatory cytokines that make you flu- ish, maybe a herx, maybe not. ""

When I have a flare up, ( active spiros ) herx include, flu, pain, fatigue, and much inflammation, more skin sensitivity, and feel very ill.

No activity, most of above subside, especially INFLAMMATION.

All this to me is part of, herx, killing, toxins.

If I respond to the LT works, like the above, then I will think the same as Six and Sparkle.

Others that have not got Lyme, won't get that reaction, my daughter, and spouse are going to try it ,
( not got Lyme ) so should be interesting, will keep you posted, lets see what happens.

My LT wrks should be here next week.

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oxygenbabe
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Okay folks, then think of it as indulging 02 (me).
Could you report all your symptoms when you use the light, whether or not you classify it as herx or not?
It would help me anyway. Thanks!

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sparkle7
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My boyfriend uses it & does not have Lyme. He doesn't have any of the symptoms that I have gotten from using it.

I think he uses it almost every day. He hasn't had anything that I would consider a herx. He says it makes him feel better. He has other health issues but not Lyme.

From what I see - only the people with Lyme seem to be responding by having a herx or healing crisis/reaction.

You can also check on the Yahoo group for SOTA LightWorks.

PS - I also noticed that I have had increased thirst since using this device. I think 6goofy mentioned this, too.

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herxuk
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Is this inflammatory cascade, your own body's response, going to the site ( like when you have wound , cut, injury ) to mop up infection death. Perhaps something like WBC activity. ?????
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herxuk
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Sparkle.
Forgot to say, about the thirst you mention.

When these flare ups happen, I am constantly thirsty, to the point of feeling constantly dehydrated all the time, drinking no matter how much, never seems to take away the thirst.
Maybe part of the herx, not the LT wrks. ??

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sparkle7
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I didn't really notice it prior to using the LightWorks.

Having unquenchable thirst can be a signs of diabetes, I think... not to worry you.

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herxuk
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Sparkle.
No diabetes, not even borderline. As of now, out of the question. Because of the flu like feeling ( sometimes sore throat ) but not always, It seems like when you get a very bad cold, and you want to drink more, especially warm drinks.
I always get this flu thing back on a flare up.

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randibear
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i've read this entire post and am still confused!! lyme has screwed up my brain.

i went to a naturaopath (sp?) and she did this treatment where she took a colored stick type thing, maybe a wand) and rubbed it over my arms, neck, etc.,

she said it was some kind of treatment but i can't remember.

can anybody tell me if this is the same thing? she charged 50 bucks for the treatment but i didn't notice any difference.

she also did the foot detox bath and blood type diet thing.

did i just blow $150 bucks for nothing????

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do not look back when the only course is forward

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lymie_in_md
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Herxuk -- lyme does cause dehydration. Do some research into "bio active homeopathic" "hydrate 1". Possibly talk to your doctor about it. It helped me with dehydration and in the mean time lots of electrolytes.

I'm not herxing nearly as much from the LWs any more. I still have symptoms and I really like using it. And use it every day as much as I can. I really feel after awhile the LW still nibbles away at the disease. Time will tell based on others experiences.

Lets do a poll, whose bought an LW used it for about three weeks and found either efficacious or not?

My vote after about 4 weeks -- efficacious

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Bob

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lymie_in_md
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Randibear -- some treatments aren't worth 150 bucks. I'm not sure I believe in detox foot baths. I believe she use a stick with some kind of crystals a form of energy therapy, i guess. if it works you'll be spending too much money, for not too much.

This is a better way to spend money:

Diet is very important, eat organic as much as you can. Lots of green, chloryphyl in plants is good for detoxification. Especially raw dandelion green.

Assessing your mouth : see a biological dentist really expensive, but essential IMO.

Good filtered water.

lower emf and mold exposure

enzymatic puts a metal cleanse it used to be called mercury magnet. I think it is the most inexpensive way to do metal cleansing. It did have some impressive clinical results, you'll have to look for them. If you can afford more there is "extended health" puts out a product called longevity. Chlorella and cilantro are very good as well. Then while your doing all this, plenty of activated charcoal and apple pectin.

See your doctor for kidney drainage herb supplements. These are very important while you are doing a metal cleanse.

after a few months of doing the metal and toxin cleanse might be the time to consider doing the light works.

These are just some ideas to ponder. [Smile]

--------------------
Bob

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sparkle7
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I still have mercury fillings. I don't have the money to have them removed right now.

I know people say this is important. I'm going to try to do it as soon as I can. I still figured I would proceed with the infrared light.

I had 2 mercury tests & I was pretty low. I don't like that it's in my mouth.

randi - I don't know what kind of treatment you had. I don't think it was the LightWorks.

The LightWorks is an LED paddle connected to an electronic type thing to make the lights pulse at different rates.

The paddle has 2 sides - one has red LEDs & the other has infrared LEDs. The light is pretty bright & focused. You can use it on different parts of the body for healing.

Some of us think it may be a way to cure Lyme but we aren't sure yet.

I'm with you Bob - it works so far. Definitely going to continue...

I guess the thing about going to Germany is that I think people may need longer treatments than a few weeks. Some people may not be able to get the device as well as the treatment.

I think you may need to use the light for a longer period of time than just a few weeks. That's why I think this is a good option...

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LoneDove
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Just got my ltwrks today but herxing from magpulsar. Used sota silver pulsar which help migraine and detox. Now going to use ltwrks tonite! slowly and see how it goes....
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sparkle7
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Let us know how it's working... Good luck!
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sparkle7
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I found some studies where BLUE light can cause ROS (reactive oxygen species).

THIS IS IMPORTANT! If light can cause this ROS... it may mean that it is damaging the body.

http://findarticles.com/p/articles/mi_qa3931/is_200405/ai_n9445452/pg_1?tag=artBody;col1

This is specifically in regards to blue light. I don't think we have to worry about this with infrared light but just to be on the safe side... people using light therapy may want to increase anti-oxidants like:

NAC
vitamin E

These were found to be protective in the case of overexposure to blue light.

I don't think they found vitamin C to be of use. You may also want to take more glutathione.

Just go slow with using any light device for healing. There is still alot we don't know.

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herxuk
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Would Nasa, even consider using this, if it was detrimental to ones health. ? Or cancer patient recovery ? can't see that at all.
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sparkle7
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No - it's not the red or infrared LEDs.

It's BLUE light!

I just wanted people to be aware of this.

From what I studied red & infrared are OK. You may want to use some extra anti-oxidants just as a precaution.

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LoneDove
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Have done ltwrks 2x now plus the silver pulsar and feel much better.

My face is clear and not molting for the first time in a couple of months. I have a red cyst thingey that showed up a few days ago and it's much smaller. It's on bridge of nose and it's not something that comes to a head...prolly a bart thing, I guess. It's not sore anymore.

Don't have as much joint pain and don't feel the undergrade fever. Lymph nodes around neck feel ok. Making sure I get plenty of vit C and mag and clear out toxins to avoid herxes.

Still could rest but have to go run some errands so will see how energy level goes today. So far pretty good.

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sparkle7
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One of the things I've been noticing is that I'm able to wake up earlier. I've been getting up at around 10 am. I used to sleep until 12 noon, 1 pm, 3 pm....

I really had a hard time getting out of bed. I was in so much pain & I had a hard time falling asleep...

I just have to see if this continues.

Seems like the worst of the abdominal pain is over. I think I still have some detoxing left to do. I'm going to try the coffee enema everyone seems to be recommending...

I've been avoiding it but it may just be a helpful thing to do. I read alot of good stuff about it on another post.

Starbucks Organic Mexican coffee... It actually tastes good, too. Kind of mild & not acidic.

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sparkle7
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More info...

posted by Bob on another thread:

http://www.naturalawakenings.com/natural_health/natural_health_tips_23.htm

``PENETRATING THROUGH THE BLOOD STREAM``

You can even get light into the blood stream. One of the best ways is through your belly button, because the aorta artery is behind the belly button. So if you insert the light there for 20 minutes, every drop of blood in the body will pass in front of the light, increasing the activity of your white cells, red cells, B-cells and T-cells, so you can boost your whole immune system."

------

ALSO! I posted a comment on the SOTA LightWorks group on Yahoo asking if a paddle for 1072 nm will be available. The owner posted a comment saying that he was very interested & he thought it would be a good idea.

I'll keep you posted.

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LoneDove
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Sparkle

For belly button area:

Do you use IR or red paddle size?

What frequency?

Thanks!

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sparkle7
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You could probably use either side at any frequency depending on what your health issues are.

You could also just let it run through all of the frequencies on AUTO.

After doing this a few times - my belly button area became a little sensitive, so I cut back. We just have to experiment...

Another area that may be interesting to try is under the tongue. This is an area that we use to take homeopathic remedies. I think there are blood vessels that run through this area, as well.

I saw on a website that they were doing it in this area with UV light for people with AIDS &/or malaria in Africa. I'm not sure if it works.

Just be careful & don't do it too long unless you've tried it & you don't react badly.

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lymie_in_md
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While your using these devices make sure your using binders. Chlorella, apple pectin, and activated charcoal to name some of them. Foods with lots of chloraphyll.

In my own case, I have a lot of headaches right now. Not so much from lyme, but from too much copper. I probably optained too much copper from the the copper water pipes in the house. I'm taking molybdenum and zinc supplements to hopefully rebalance my system. I'm hoping the lightworks helps the elimination by using the red side to strenghen my kidneys. If the kidneys are healthier it aid in elimination.

I added the above to give you some ideas on how think through the process of getting well. We need to consider our own environment supplements we're taking in order to determine where we are at any point during the healing process.

With the lightworks changes will start to happen and you will have to understand how those changes affect how you are supplementing and your diet.

--------------------
Bob

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gwenb
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I received my LW a couple of days ago and have used it two times so far - 1/2 hour each time. I don't feel anything really - maybe a little more energy. I realize it is too early to draw any conclusions. It will be interesting to see how things develop.

Gwen

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sparkle7
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gwenb- it takes a little time. Best to go slow at first.

If you feel OK, you may want to increase it to 1 hour. Where are you using the light & which side - red or infrared?

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gwenb
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Hi Sparkle

I'm using the near infra-red side. I am using it for a half hour at a time. I thought best to go slow lest I develop a huge herx in several days.

I know it is too early to see any changes. Just thought I would give a blow by blow.

Gwen

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sparkle7
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It took me until 2 weeks of use at about an hour a day until I had the "big herx".

I'm still dealing with "stuff" now. I tried a coffee enema last night. It wasn't fun & my abdomen was gurgling alot afterwards.

Today I've had diarrhea. I think it's going in a positive direction... I think I had alot of toxins in my intestines. I'm pretty sure it's from using the light. The coffee enema just got everything moving out.

I didn't have any intestinal issues in regards to Lyme prior to using the infrared light.

Please don't take what I say as medical advice. You have to choose what to do carefully based on your own personal symptoms.

I'm very happy with my choice to use this LightWorks. You have to figure out what to do about the release of toxins, though.

In my way of thinking - this is working! I've had Lyme in my body for 10+ years. It's just going to be a process of things & experimenting to get it out.

I am still using the infrared light. Today I was having some menstrual cramps & I used it for about an hour on various areas of my body.

The cramps have subsided. I get have been getting very ill from my period for many years.... I'm not in bed right now - which says alot!

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hiker53
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I did not get any herx from lightworks until 8 days into using it for 30-40 minutes per day. Developed more myoclonus and major stomaches and mild headaches.

Sure helped the arthritic toe, though.

I am backing off on it for awhile and then may do it just once a week.

Still would like to know what green color does. Anyone know? Hiker53

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

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karatelady
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I used my Lightworks last night for the first time. I only did the pain frequency because I'm doing N.A.E.T. (allergy elimination) with my ND and want to wait until that is finished before I start all the freqencies.

I woke up this morning with less pain in my neck and shoulders (where all my pain sits) than I've had in years! What a wonderful feeling!

Usually my pain level is around 80% and I'm miserable when I first get up. This morning I would say it was around 40%. This is the first time something has actually helped me relieve pain!

I had a massage this morning to get the "bubble-wrap" knots out of my shoulders and my therapist said they were less than usual.

So time will tell but I'm encouraged so far!

Sandy

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sixgoofykids
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quote:
Originally posted by oxygenbabe:
The light for instance could stimulate inflammatory cytokines that make you feel flu-ish.

O2, my LLMD has me off Cumanda, Transfer Factor, and even Zith as he thinks the cytokines stimulated from these are what's causing me the pain.

He thinks I need to still treat babesia because it's obvious I still have babs symptoms, but my remaining Lyme symptoms could be due to cytokines.

I have never heard of these. Does a herx produce them? Is it the die-off of the bacteria? If so, then taking those products would be a good thing? Is that right? I trust my LLMD, I'm trying to understand better.

If they are not from a herx, why do immune stimulating products cause more of them?

I also see your point now as regards the light. Thanks for any "light" you can shed on this. [Big Grin]

--------------------
sixgoofykids.blogspot.com

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oxygenbabe
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Well, your immune system generates inflammatory "cytokines" when fighting the flu or an infection. In fact the "flu" is really just your immune system's side-effects in a way, as it uses these molecules to rev up and fight. That's why you can instantly have a fever break and all your symptoms go away in an acute flu, because there is a point where your immune system knows that it won the battle, and even if all the bugs aren't gone, it switches off all those cytokines.

Some bacteria such as anthrax, or lyme, or others, have biotoxins that are highly stimulating of our inflammatory cytokines. Much of our symptoms come not from the invasion of the tissue but the resulting inflammation (though I suspect, invasion ain't too good for cartilage and ligaments longterm.)

The light, I'm figuring, could as easily stimulate healing mechanisms as inflammatory cytokines, since we haven't studied it yet. That's why going slow seems good.

It is a very interesting modality I wish we could get some funding to really study in vitro and in laboratory animals, different wavelengths, colors and pathogens.

What transfer factor were you taking? I'm highly sensitive to lactoferrin, my gut gets totally inflamed (not a herx) and I bought Immunfactor 2 and 5 really hoping to deal with some strep and staph that I think cause some sinus/ear issues in me, but the lactoferrin irritated my gut no end. I don't think they needed to add it, and I wish I could just get pure formulations of things.

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lymie_in_md
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O2 the problem is the IDSA political environment. We'll never see the research dollars being spent on a product which won't make money for big pharma. And specifically to helping people with lyme & co. What a quagmire! [shake]

We have to create common sense approaches to this, unfortunately. Maybe we can learn ways to determine efficacy along the way.

--------------------
Bob

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sixgoofykids
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So, do these cytokines perform a function? Can we get rid of Lyme without stimulating them? Or are they going to show up no matter how we treat it?

My LLMD is thinking that since most of my Lyme symptoms are gone except for the pain and fatigue, that the symptoms now are coming from the cytokines. He still thinks I have some intracellular Lyme, which is why the Zith also makes me feel this way.

Does going slower get the Lyme without stimulating the cytokines?

I was taking 4 Life Transfer Factor. Any time I took it, I felt horrible as I described above. I felt that way even after 1. It didn't bother my gut at all .... but then again, I have an iron gut. [Big Grin]

--------------------
sixgoofykids.blogspot.com

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sparkle7
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From Bob's post on another thread -

From low level laser therapy in the range of 660 nm & 684 nm...

Using the LightWorks' red side may produce a similar result.

http://www.liebertonline.com/doi/pdf/10.1089/pho.2007.2119?cookieSet=1

Our results suggest that LLLT induces an anti-inflammatory
reaction that may modulate transcription factors linked to
mRNA expression of pro-inflammatory cytokines. Further stud-
ies are needed in this novel area to elucidate the exact mecha-
nism of action of LLLT in reducing inflammation.

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hiker53
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I did notice the yahoo group that Sparkle posted has a file on what the different colors do. Makes me want to get the extra paddles. Hiker53

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

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sparkle7
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I've been using the LightWorkd on & off for the past few days. I'm having bad intestinal pain today & yesterday.

The infrared light did help with menstrual cramps but I think it's producing a die off & my intestines are having a hard time handling the toxins that are released.

I can't think of any other reason that my intestines would be having pain. I usually don't have any digestive problems.

I noticed biofilms in the toilet again from a bowel movement today.

I've been taking chlorella, charcoal, probiotics, & an EmergenC packet to replace electrolites/vitamins. I've also been eating very bland sort of food. I also started taking some aloe vera to try to soothe my intestines.

It seems that my intestines feel worse after eating. I am not on any abx & haven't taken any since last Nov. '07. This intestinal pain has been happening on & off for about 2 weeks, now.

I don't know what else to do except go forward... I'll probably reduce using the infrared light until my intestines feel a bit better. I did use the red light today for a little while.

-----

PS - I don't think it was me who posted info about other colors for the LightWorks paddles. I didn't get to posting anything about it, yet.

Be a little careful about using the colors. The other colors of the visible light spectrum may cause ROS - or oxidative damage to the cells.

The ones that seem pretty safe are red & infrared. If you do use the other colors, you may want to increase anti-oxidants to replace the ones that may be lost. Especially, NAC & Vit. E.

There still needs to be more studies about these things. I think they are good but you may want to do some research just to be on the safe side.

Red & infrared have been studied more & they seem to be pretty safe. I've read anything above 500 nm is considered fairly safe.

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lymie_in_md
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Sparkle, the only thing I can think of is to add 1 zinc lozenge a day. It will help repair any issues in your intestines.

By the way, I have all that coming out of me as well. It looks like mucous (sorry if this is gross) hanging on the side of the defacation. I
ve seen it quite often, no so much now. But I did today, jamescase20 will like this, I started lauric acid with the MMS. And vwalla more muccous.

It is going take a while longer. I started seeing this about three months ago when I did a 15 course of detoxamin. I had to break it up and the 15 day course took about 6 weeks.

I really believe it is biofilm and your body is trying hard to remove the toxins. Look up solidago on the web by nestmann pharmaceuticals here's a link http://www.marcopharma.net/chelation.htm. It will help your kidneys drain. The kidneys are very important!

I'm guessing it is biofilm and there is a lot of it and therefor a lot of toxins.

Just want question, are there any pains in your back?

Unfortunately this is all part of the process. So hang in there.

--------------------
Bob

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LoneDove
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I'm thinking about doing the MMS and lauric acid. I'm taking virgin cold pressed organic coconut oil...not sure if that's same as lauric acid.

Alternating with litewrks and mag pulsar helps pain. Finally got some more Naturally Calm magnesium and those 3 things really help eradicate my pain. Also, taking methylcobalamin B12 tabs which gives more energy. Also using silver pulsar on wrist. That plus vit C and cats claw.

Still sleeping in but sleep is deeper. Much less pain when I get up in morning. Getting out of house earlier and staying out longer each time. Not 100% yet but way better. Mental fog better...fog was getting so bad it was hard to communicate effectively.

I really appreciate some of the people at this website for so much info. The guy I bought the sota instruments told me about this place and he's been great also...best price on sota and fast shipping.

Feeling hope for the future after feeling pretty hopeless and in terrible pain and brain mush not long ago.

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sparkle7
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I was taking the coconut oil for a while but I cut back. I've stopped alot of things due to using the LightWorks.

I have to get through this intestine issue first before I go back to anything. I'm going to stop using the light, as well, for the time being until this intestine issue blows over.

Thanks for the suggestions, Bob. I've been looking into drainage remedies but I didn't order any, as of yet. I think my liver may need this type of thing.

I tested it with a pendulum & I asked about lymph, kidney or liver & it came up with liver... (in regards to drainage). I'll test it again before I order anything.

I'll try the zinc... I never had intestinal pain for this long. It's weird & I have been under alot of stress. It's also busy season for our business now...

I could use a break from this intestinal pain. I have had lower back pain for many years. I don't think it's my kidneys, though. I been drinking lots of water.

I also have some of the Cowden herbs here. I'm sure some of them are diuretic. I don't know if that's the issue. I'll have to think about it.

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lymie_in_md
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Sparkle use the lightworks at 660nm over the liver and the kidneys. That should support drainage as well.

--------------------
Bob

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tonyp
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Just used Lightworks for the first time, definetely stirred something up. Increased stomach pain and headaches.

I am not sure if I could continue as I am on 400 Mg doxy and I am wondering about photosensitivty.

Can you use Lightworks thru clothes or does it not work. Will that protect your skin

I want to continue but I do not want to create any further damage

Thanks in advance

--------------------
Dx 3/2008 Pos. WB and Bart- igenex
Levequin 500 mg March 2008
Amox 6000 mg - May 2008
Doxy 400 mg - June - oct
Biaxin and Flagly 1000 each, oct-dec
Zitro, Malarone and Flagly Jan - feb
Remission for 6 months
Relapse Sept 2009 zithro/flagyl

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jamescase20
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Have you ever tested your lightworks under a scope?

I could and would do this for you for free.

I could take a infected blood drop, foucus in on the alive invaders, then turn on your lightworks.

I would then know in seconds if it works.

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lymie_in_md
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tonyp -- lightworks is not a problem for those with photosensitivity. It is not UV or ultraviolet light. It is save to put on your skin. You won't get sunburned from it.

James, lightworks doesn't kill bacteria or viruses. It triggers a chain reaction where our cells do that. If we would see anything under the microscope, it might be the distruction of our cells because it has the organism inside the cell or the cell expelling the invader because it is now strong enough to do so. We might also see the invader getting killed because the cells are spitting toxins at the invader, such as nitrous oxide.

To see it under the microscope you might want to see it with a very infected person. Also to see if activity occurs in someone no so infected. At this point James you might be a good candidate.

--------------------
Bob

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sixgoofykids
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I'm reading .... I've just taken a Lightworks break so I can see how my new protocol is working (just got back from LLMD Tues.). I'm on mostly herbs now (Buhner, and some Cowden), plus Malarone and Lariam.

Keep posting, I'm reading. [Big Grin]

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sparkle7
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I tried the 660 nm, yesterday - mostly on my foot accupuncture points & my wrists. I'm still very ill today. I don't think it's a good idea right now for me.

Our landlord didn't pay the electric bill for the house so we have no hot water. I can't take a bath in epsom salt to detox. There are a number of other stress factors going on for me for some reason right now. It seems like it's all happening at once.

I still think this therapy is beneficial but you have to be careful & not go too quickly. I'm sure people have herxes like this all the time from abx... I just didn't expect this from using light.

Ultimately, I think it's good but it's just kind of unpredictable. Just be careful & try not to overdo it. The infrared light actually feels good but it may cause something unexpected to happen.

I don't know if it's cytokines, immune related or what.

Six... did your doctor have anything to say about using infrared light? Are you still planning your trip?

James - maybe you can try someone who has used the light as a before & after scenario? Test the blood before & then use the light on them - then, look at the blood afterwards...?

I bet bee venom kills the spirochetes, too (as in bee venom honey)!

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hiker53
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I had to stop the light works after 15 days due to severe stomach pain as well. Part of the pain may be coming from the coconut milk smoothies I drink almost every day to gain weight. I would assume they have some lauricidin in them, so cut back on those, too.

I think I will approach the infrared light like I do rife. Once a week and just do a few minutes.

Good luck everyone and keep reporting. Hiker53

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

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sixgoofykids
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Sparkle, my doctor was unfamiliar with the near infrared .... he recommends far infrared saunas, but didn't talk about near infrared.

He was ready to put me on an abx break anyway because the Zith was hitting me so hard. As I've been off zith and off the light I have felt better each day. Today I didn't even need a pain killer. [Smile]

Have you considered that the light maybe be hitting something else like parasites in the gut? I had a lot of worms (tapeworms and roundworms). As I got better and was on Enula, I started passing the worms.

Also, bartonella can cause GI symptoms.

I still plan on going to Germany. I've had trouble getting an appt set up. I've faxed and emailed several times but have not gotten a response. We've gotten through with the phone, but they wanted us to email or fax.

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sparkle7
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I never had any intestinal issues before this.

I've had Lyme for over 10 years & this is the first time I've had pain in my intestines except when I was taking abx. The main reason I quit the abx was due to intestinal cramps/pain...

I don't think I have bart or parasites. I was taking ENULA for about 3 months prior to using the LightWorks - just as part of the full Cowden protocol.

I don't have any of the symptoms of bart but I figured I'd take the ENULA anyway. I don't have any reason to think I may have any other intestinal parasites...

I'm also fatigued, I have been having diarrhea & increased pain. Seems like a big herx but I don't know. I'll just have to see when this ends...

I stopped almost everything except some charcoal pills & a multi-vitamin - & a little chlorella or zeolites here & there.

I don't think I have any problems with yeast or anything else. It's strange but if it is a herx - that would be pretty interesting.

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karatelady
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The LightWorks is doing wonders for me in regard to neck/shoulder pain.

I'm not using any other frequency except for pain right now and it is awesome to wake up without horrible neck pain.

Once I finish allergy detox, I will try some of the other frequencies but am a little nervous about the herxing you guys are experiencing.

Sandy

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sparkle7
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Last night I made an "auto nosode". I tried 5 drops under my tongue.

About 20 minutes later, I had some gurgling in my intestines & had some diarrhea (sorry, I don't mean to be gross but I'm posting this info so people may be able to learn from my experience).

Today, I had much less intestinal pain but my back & shoulders ached when I woke up. I'm going to try the auto nosode again a little later today. I'm just going very gradually with it.

I'd eventually like to use it in conjunction with the LightWorks as per Dr. W in Germany. I'm taking a little break from using the light until my intestines are in better shape.

I'm going to take some aloe vera among other things so they can heal. I feel like they have been through alot in the past couple of weeks.

One thought I am having is that there may be spirochetes living in my intestines but I'm not sure.

I don't know if spirochetes are being killed in other parts of my body & being processed through my intestines or if they are (or were) living in my intestines.

I guess it's hard to say.

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lymie_in_md
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They most definitely live in the intestines, and it would be great if someone would take a close look at mucous from defacations. Specifically in a microscope.

If you can get lyme out of the intestines, I believe you've removed there headquarters. Most of our immune system is also headquartered there, once lyme is out of the intestines our bodies are able to do the job. It's also where a lot of our blood junctions, this how we nurture our bodies with nutrients from the intestines. 3 of the 7 major chakras are around the intestines.

So a battle needs to be waged. I think james is onto something as well as garlic, freeze dried bear garlic if you can get it. Or just regular garlic 1 clove after meals. Aloe vera for healing the intestines. 660nm to also heal the intestines and binders to remove toxins.

--------------------
Bob

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sixgoofykids
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My grandmother who is almost 89 used the light yesterday on her arthritic knee and hip. She couldn't tell if it did anything, then she asked this evening to use it again because she thought it helped. She'll be able to use it two more days, so I'll keep you posted.

I haven't used it in a while. I'm waiting until my immune system settles. I was doing significantly better today. I rode on my FIL's motorcycle ... my lymph nodes up and down my back and neck were sore afterward, I think it did more than my rebounder. [Smile] He said he'd take me on a ride once a week or so. [Big Grin]

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sparkle7
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Thanks for the info Bob. I have some problems with garlic. I think I'm allergic to it. I have very few allergies but for some reason eating raw garlic make me get seasonal type allergies.

I still have the bee venom honey... I think that was doing something & all the Dr. Cowden herbs.

I'm just going to continue on this break for a bit until my intestines are better. I'm still pretty weak today.

That's funny about the motorcycle, 6! Who would have thought? I hope your grandmother gets some relief with the LightWorks.

Still have to take the auto nosode drops. I didn't take them, yet, today. I'll keep everyone posted.

-----

PS - This website has some info about using LEDs for skin treatments (especially acne):

http://laserskin.com/pro_ledandalaforacne.asp

There is a caution here - just for your info. It is mainly in relationship to the therapy they provide for skin related issues:

The main contraindications to using this type of photosensitizing therapy is the potential for an exaggerated response to the light.

You must not be taking any medicines that could be photosensitizing. The more common ones are certain diuretics, antibiotics that are any form of tetracycline, and antifungals.

Likewise, if you have any photosensitive disease such as porphyria, lupus or albinism you should not do this treatment.

Because the treatment is inflammatory it can flare herpes, and if you have a history of oral herpes anywhere on your face or in the treated area we will prescribe for you a series of anti-herpes pills to take the day before, the day of, and the day after your treatment. Even so, herpes infection could still break through.

From this you could have pigment or scarring just like in any herpes infection.

-----

I figured I'd post it just in case...

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sparkle7
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Using light is very powerful. We still don't know the implications of using light for healing. There just have not been enough published studies, yet.

If people do have information & they don't want to share it... then it is only of benefit to companies who make money from "curing" people.

If people decide to use the less expensive mode of treatment (ie: LightWorks), you have to adjust & go slow. Not everyone who is ill can afford expensive treatments or find a job/work extra hours/beg, borrow, steal, etc. to afford it if they are ill.

I've been going through something that seems like a big herx. Other people who do not have Lyme & use the LightWorks do not seem to go through this.

All medicine is trial & error. No one can tell how a person may react to any given treatment whether it's drugs, herbs, light, energy medicine or whatever.

We all are different & have various health issues to deal with either due to Lyme or other problems. I don't mind trying this out & letting people know how I'm doing.

Even though it's been difficult going through this herx reaction - I still feel that I'm going in the right direction. I guess only time will tell.

With any modality - there's always the chance that people will have unexpected results. I guess we will know in time how all the different modalities will measure up.

Some people will travel to be treated & some will stay home. If people want to share their findings, we will all be able to learn how to treat ourselves when most of the doctors have failed us.

I don't believe that the best way to get well is to throw money at practicioners, drugs, devices, supplements, etc. & hope for the best.

We need to establish low cost treatments for people so they can heal themselves from this awful illness. I hope to share my experience since many of us have used up all of our resources to try to get well.

Health care should be a human right - not just for people who are employed or who have wealth.

I hope people will continue to feel safe enough to share their thoughts here - whether you agree or disagree or whatever you find.

Please share your experiences so we all can learn!

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sparkle7
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Had a MAJOR herx yesterday. I was so ill... I've actually stopped using the LightWorks for about 4 or 5 days or so... maybe more. I did sit in the sun for about an hour the day before the 2nd big herx.

This herx or whatever it was was very severe. But I do think I'm coming out of it today & I'm feeling better. I still have some intestinal disturbance & I'm a bit nauseaous.

I'm just telling you so that you will be careful. I don't think the power of the light matters or the frequency, whether you use nosodes or not, etc.

I think it has to do with the 880 nm wavelength. Actually, I think something more powerful would make you more ill from herxing alot quicker & maybe worse (?).

I have trouble believing that anyone knows how to control the herx & make adjustments in the treatment to do it in a way that is gentle - especially, if they are using a light that is brighter & more powerful then the LightWorks. I might be wrong, though.

I have faith in this treatment but we are all experimenting... Please be careful & be cautious. I was very ill yesterday but it may be worth it in the long run.

It's just that it may not be necessary for everyone to go through as severe a herx as I have been going through. Maybe it's different for everyone...? It's just hard for me to say.

I believe the light is more powerful than abx. The infrared light effects people with Lyme differently than people who don't have it - just by my observations.

Be careful & be prepared for a BIG herx if you use the LightWorks. I think the effects of the light are cumulative. This is just my experience... Time will tell if this is worth it.

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herxuk
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Just checking in, got my LT wrks today. Took 11 days, thats really good. Decided to be kind to myself, and try the 660 nm, and then try the 880 nm another time, then I will be able to tell more what's happening with each one.

I just can't believe what i'm seeing, my knees are looking normal colour, instead of red, theirs still a bit of red, but nothing like before, even after Ibuprofen use.

This is only one day, but i'm so thrilled. Done back of neck, back, and ribs.

Want to try belly button area, for immune system, but I think that is the 880 nm, so I think 5 minutes, just for starters. If todays anything to go by, i'm more than pleased.

Decided to take it steady with the 880 nm, don't want to be overwhelmed with toxins, can't deal with too much in one go, makes me sick as a dog.
Let you know more, when I know more. Bye.

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aklnwlf
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Am kinda looking into this too since the post on the Bionic 880 was deleted.

So much drama............

--------------------
Do not take this as medical advice. This comment is based on opinion and personal experience only.

Alaska Lone Wolf

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